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Bone Mets Thread

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Comments

  • Lita57
    Lita57 Member Posts: 2,338
    edited February 2018

    Cloud nine...the very first Zometa is always the worst. They get better. I always take a benadryl one hr b4 infusion. No problems then.

    L

  • Bliss58
    Bliss58 Member Posts: 938
    edited February 2018

    Sherry, thanks for letting us know about JFV. Sending love and hugs to Joan, you and her family.

  • PHOTOGIRL-62
    PHOTOGIRL-62 Member Posts: 274
    edited February 2018

    Welcome Lauren to this great group. We have all been so grateful for each other sharing knowledge and the ups and downs of this horrible disease. I’m waiting to see if I’m going to get radiation on a few areas too. I’ll let you know how many are needed.

    Iwrite, thank you for sharing this sad news of Aurora passing. I feel that every time we lose someone it hits home that we are all so vulnerable with this disease. Things can turn bad fast. She will be missed, but at least the suffering is over for her.

    Hugs to everyone and welcome to all the new ladies.

    Anita

  • zarovka
    zarovka Member Posts: 2,959
    edited February 2018

    How are you feeling Anita?

    >Z<

  • LaurenH
    LaurenH Member Posts: 382
    edited February 2018

    Thanks photogirl!

    Appreciate the feedback from all. I met with the RO Thursday and we talked it through and agreed to do 16 sessions to my rib spot - I start tomorrow. She said the spot is deep but well positioned to easily avoid organs. I also started my treatment: Ibrance & Faslodex and Herceptin. I feel good about my plan.

    Thanks again for the welcome!

  • SheliaMarie
    SheliaMarie Member Posts: 284
    edited February 2018

    Do any of you everjust want to go away? Have a week, possibly just a weekend, completely alone? Unplugged? No one to think or worry about except our own needs of food, sleep and entertainment, whether it’s good reading or a good Netflix binge. I sometimes get this overwhelming urge to go. I need some total alone time.

  • Jaylea
    Jaylea Member Posts: 440
    edited February 2018

    Swess, yes, but not just since or because of the cancer! I think it's every woman/wife/mom/daughter's fantasy to have a long weekend alone to recharge and have some quality alone time. I joked to my sister that she's on notice to be my excuse for a getaway-except...she's not going. We worry for ourselves and for others, it's a crapload of emotional luggage. I've never actually done it, the best I get is a few hours of shopping alone. Let me know if you pull the trigger.

  • iwrite
    iwrite Member Posts: 746
    edited February 2018

    Bad influence here having a little rant.

    I left home for six months last year and loved being alone in my little rental house in Colorado. I worked a little, grew vegetables and went hiking all the time. It was heaven. I went home in October and have enjoyed seeing my Midwest family,especially my daughter and grandkids, friends and having time with DH, But...I just feel like I want to live the time I have left with joy rather than fulfilling duties others feel i owe them.

    My youngest is expecting a baby this summer and I want to be there for her like I have been for her sister. I want to spend time writing and hiking in the mountains and sewing and loving that new baby. I'm looking at property tomorrow before leaving Colorado.

    So ladies, I think it's good for the soul to do that girls weekend or take that trip to a beautiful Place you have always wanted to see while you still can. Feel the sun in your face and smell the roses if your heart is calling you to do that. We all truly understand life is short. I sure won't dream of cutting in paint along the ceiling standing on a ladder during my last moments, but I may well smile thinking about holding my precious newgranddaughter or hearing the wind brush through a grove of yellow aspens or tall ponderosa pines on a warm fall day. We get to choose some things.


  • illimae
    illimae Member Posts: 5,736
    edited February 2018

    Yes swess but I live that way often. DH has worked away from home for a couple months at a time during most of our marriage. I enjoy my time alone and being in total control of what I watch, eat, etc. I find it the best of both worlds for me :)

  • zarovka
    zarovka Member Posts: 2,959
    edited February 2018

    Swess, Lwrite - Amen.

    >Z<

  • PHOTOGIRL-62
    PHOTOGIRL-62 Member Posts: 274
    edited February 2018

    Z, I’m feeling ok just get a little pain in the hip. I told my husband about Japan. I will pm you to find out what you are doing. Thank you for asking. Hope you are feeling better too. I don’t know when my TX will require a port but I think it might be in the near future.

    Hugs, Anita

  • GracieM2007
    GracieM2007 Member Posts: 1,255
    edited February 2018

    I live that way (alone) daily, and against my wishes. Tom has been gone five years...seems impossible it's been that long. So I live in mostly silence. Most days the tv isn't on until after 3 or 4 pm, and then usually only a short while to check news. I'm getting used to the silence, but the loneliness? It's palpable. I would gladly go back to the days of no rest, noise and the sound of children.

  • dlb823
    dlb823 Member Posts: 2,701
    edited February 2018

    Asking for a friend not on BCO who is about to do R/T for fast growing tumors in her chest... Is there anything she can do prophylactically or integrative stuff to help ease anticipated esophagus burn and discomfort?

    Iwrite, I'm envious of your choice to create the joy you need. I would love to do that, but because my husband still works full time mostly to keep our PPO, I don't have the heart to up and do what I want to do. I often wish I did.

    (((Gracie))) I'm sorry you're lonely. If you're able to get out, have you tried looking for a community center or similar place where others meet for activities? Our local hospital also has quite a few classes for cancer patients, everything from yoga to art to journaling. Any chance your local hospital does the same thing and there might be a class you would enjoy?

  • gkbuser
    gkbuser Member Posts: 300
    edited February 2018

    Gracie, sorry about Tom. I cant even imagine not having my Gary with me. Do you have some friends you could do something with? Church activities? Start a dinner club? Game nights? Your comments were a reality check for me. Still in busy mom mode with what seems like constant noise and chores along with trying to juggle a job. Sometimes I just want some quiet time. I know even that would get old after a while.

  • GracieM2007
    GracieM2007 Member Posts: 1,255
    edited February 2018

    Thanks ladies! I live in a very little town in Kansas. 60 miles one way to a large town, Wichita. We have almost nothing here. I do have friends but the majority of them are still married and spend time with other couples, which makes me the odd woman out. Church helps

  • cure-ious
    cure-ious Member Posts: 2,891
    edited February 2018

    Gracie- My sister lives in Derby KS, so I can imagine your hometown! (actually they have lots of nice stuff there, but its a long way to big city lights). I have taken up some crafting, quilting, beading, art and gardening, which have been my mainstays now that my kids are out adulting in the world, plus of course my dog (recently diagnosed with incurable cancer). Sorry I have nothing specific to offer, but hope the right person for you shows up soon. Science says happiness has to do with expectations, and now that mine are truly at rock-bottom, I do find stunning beauty in the ordinary world everyday, and am easier to please. Hoping for some sunshine and happiness for you today!

  • PattyPeppermint
    PattyPeppermint Member Posts: 8,950
    edited February 2018

    hello ladies. Wow so many new people. Glad they have found this awesome group but amazed at the number of new people.

    Reading back to catch up on y’all.


  • GracieM2007
    GracieM2007 Member Posts: 1,255
    edited February 2018

    Cure, Derby is a really nice town :)

  • illimae
    illimae Member Posts: 5,736
    edited February 2018

    Nice to see you PattyPeppermint, I presume your feeling better, at least I hope so :)

  • zarovka
    zarovka Member Posts: 2,959
    edited February 2018

    Hey Gracie - we're just glad youre here.

    >Z<

  • babs6287
    babs6287 Member Posts: 1,619
    edited February 2018

    Patty so glad to see you posting. How are you?

    Deanna. I had problems with my radiation until my gastro put me on Prilosec. It worked for me!!!!

    Bab

  • GracieM2007
    GracieM2007 Member Posts: 1,255
    edited February 2018

    Thanks Z! Have been thinking of you a lot! Hoping and praying you are getting a great response from your treatment over there this time! You are an amazing woman!!! Hugs!!

  • Laka
    Laka Member Posts: 20
    edited February 2018

    Hello everyone. I'm back here and trying to figure out how this chat works. I was diagnosed stage IV breast cancer. I have so my quetions but I'm so shocked. Nothing comes in my mind right now. Hope you guys are having a good day

  • Lita57
    Lita57 Member Posts: 2,338
    edited February 2018

    Welcome, Laka!

    We're a great group of supportive women here.

    L


  • illimae
    illimae Member Posts: 5,736
    edited February 2018

    Lauren, Jkbuser, Taka and anyone I may have missed.

    image

  • gkbuser
    gkbuser Member Posts: 300
    edited February 2018

    Hi illimae!

    image

  • LaurenH
    LaurenH Member Posts: 382
    edited February 2018

    image

  • Maire67
    Maire67 Member Posts: 418
    edited February 2018
    Laka welcome. 10 months ago I felt the same shock. The support and info you find here will really help in the days to come. There are so many treatments . You will work out a plan and start but now give yourself time to breathe.

    I have some good results to share. Results from the recent PET show no new bone mets. Tumor markers also going down. Next scan in 3 months. Side effects just became more tolerable. Stable is a beautiful word. Maire
  • illimae
    illimae Member Posts: 5,736
    edited February 2018

    Congrats Maire! I’m working on continued stability myself and agree on it being good news.

  • zarovka
    zarovka Member Posts: 2,959
    edited February 2018

    Maire67 - Yahoo!!!

    Laka - You are welcome here. We're here whenever your questions arise, but be aware that shock is a real thing and pretty much where we all start. You may find your brain is not in much of a state to take things in or articulate questions. Hugs and support headed your way.

    >Z<

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