Bone Mets Thread
Comments
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Babs, What wonderful memories your beautiful granddaughters will have of this special day. The smiles on their faces are priceless. They must have been so excited. I will never understand your dil's attitude, but I'm glad you were able to have this experience in spite of her. Now get some rest. You daughter and grandson will be there soon, right?
Hugs and prayers from, Lynne
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Lynne, yes my DD and grandson arrive Monday night so I am resting for that next!
Babs
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Thanks for the pics Babs. Way to rock Grandmahood despite the odd DIL.
>Z<
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Babs - you look great! Enjoy those grandkids - they are beautiful. Maybe your DIL will learn one day what it is like to be deprived of something so precious and will regret how she treated you. Monday can't come soon enough. Your DD and grandson will bring you the joy you deserve.
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Minnie, so sorry you're in pain and hoping rads help. I can see where hip issues cause leg pain, but doctors comment about muscles not working has me confused. If muscular, I wouldn't think rads would help. Hopefully someone can offer insight here.
Babs, thanks for sharing a great family day!
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Laka -I had fever and flu like symptoms for 4 days. Joint pain everywhere / but especially in my knee that I had surgery on years ago for a skiing accident. Seemed like every weak area that I had an injury was the worst like my shoulder where I had a frozen shoulder two years ago, etc. Hang in there, hope you find relief soon. So sorry we all have to go through this - praying for you
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Babs, what an absolutely wonderful day with your beautiful granddaughters. Their smiles are so precious. And their first Broadway play will always be a special day. Rest up to enjoy your daughter and the baby.
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babs such a beautiful picture.
Ladies I saw a button add as friend. What happens when you add someone? you have different chat room. Ok don't make fun of me ladies I'm learning lol😜😂😂
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Jaylea....According to the scans, I have a lot tumors in my muscle tissue as well as in my bones. So, pain can definitely be caused by those tumors pressing against nerves adjacent to the muscle tissue and into the muscles themselves.
L
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Babs- Love the photo of you and the girls! A wonderful memory they will always have.
So thankful that your daughter is determined to have time with you and Anton regardless of an ocean to cross. What a blessing!
Sorry to hear about all the joint pain folks are experiencing! It stinks💩.
My DH asked me why I come here when there is so much loss. I think this is the place I can be real. Giving and receiving support through both celebration and devastation is rare and this is where it happens. Voicing the daily concerns without having to "make lemonade" is refreshing.
We've been lighting many candles lately to remember dear friends we have gotten to know here who are gone, and praying hard for others who are facing the beast close up right now.
An encouraging word here means something...who knew that virtual ((())) could do that!!
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Lita, argh! mets in muscle tissue ? Your "arranged marriage" is needing an arbiter !
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Yay, Babs! Great pic and memories made!
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Yes Jaylea, I'm confused too. Think I will go to see my MD. not everything is cancer, could be something completely different. Great pics Babs
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Babs,
I honestly had to look again when I saw the posts about your grandchildren. I thought you were the Mom! You look great! But as we all know, looks can be deceiving, so I hope you can rest up and enjoy time with your daughter.
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Booboo. You made me laugh! Today was a tough day. I just feel weird I think it’s from the y 90. My stomach is gurgling like crazy. I’m gassy and sooo tired. But tomorrow I get my love here- sweet Anton!
Cant wait!!!! That should make me feel better!
Bab
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Babs - there can be delayed symptoms and reactions to all these treatments ... take care of yourself!
>Z<
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Babs....so wonderful to see such happy little girls and you look fantastic. I'm glad you had a happy time despite your DIL's attitude.
Iwrite...lately I've been thinking about why it is I keep coming back here and for me, as an Australian, it's even a bit surprising because after all it's an American site and most members are American yet I feel an affinity with you girls that I didn't feel when I joined an Australian site. Not because I don't get on with my "own" people but there's just not that je ne sais pas....a warmth, a responsiveness... in the Aussie site. It could be because our population is smaller so it's more difficult to find as many like minded people.Whatever - I find the same thing you do, that I can be myself here and there's always someone who understands. We don't have to mask our feelings or explain ourselves or pretend we're feeling good when we're not. Best of all we celebrate each others' achievements, even the tiny ones, in a big way because we know just how important it is to reach that goal we've been hoping for.
Thinking of you Minnie xx
Laka...I've added some members as friends and I have no idea what happens after that despite having been on these threads for about a year so maybe I'm missing something too!
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babs. Those grand daughters are adorable.
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Thanks Patty. How r u doing today? Any word on the biopsy results? Today my dd and Anton come from Paris. I’m beyond excited! This weekend was not a good one for me- they’re the medicine I so need!
Babs
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Babs,
Good. Laughter is so therapeutic. I hope your family visit helps to create more of it!
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Leapfrog,
I am SO glad you post on this site. If I’ve learned nothing else during this MBC journey, this disease knows no boundaries. Black, Caucasian, Asian, Australian, American....doesn’t matter. We all need each other.
BTW, I read your blog. You write very well, and bravo! It amazes me how many new things I learned about MBC when I read your blog.
Same with this website....it’s so valuable. My onc only spends about 15-20 mins with me each visit, and I always forget to ask her things. Many times I find the answers here. Besides, our oncologists don’t take the meds we do, so they can’t really answer some of the questions anyway.
Guess I’m feeling grateful to have a place to go to help me live with MBC
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Ah, Bab's I just saw your pictures. Your grandaughters are so charming ! What a beautiful family
made me happy to see you guys and yes, you look so young and beautiful, you could be their mother.0 -
Kathryn,
Your reasons for coming here sound just like mine. I need the non-judgemental support. I like celebrating each small victory that I read about - stable scans, improvements, even NED. I feel the pain and disappointment when I read about progression. The people on these threads are the only ones who understand both sides of the coin. I have lost many friends here, people who gave me hope and encouragement during difficult times and shared my joy when things went well. I find myself needing to take breaks from time to time when I feel myself focusing too much on the losses and on MBC in general. I have come back after each break. My DH has found me in tears several times as I was reading posts, and he posed the same question as your DH. I do not post as often now, and many people do not know me, but I am always lurking here.
When can we look forward to read your next book
Hugs and prayers from, Lynne
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Aah Patty so good to see you posting!!! Hope you are feeling stronger and get those biopsy results stat
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Hey Patty. It makes me happy every time I see a post.
>Z<
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Loved the photo, Babs! A first Broadway show is always a lifetime memory, and the girls look so excited to be there. So happy to worked out with the DIL.
Patty, I echo Z's thoughts -- always great to see you posting!
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hi ladies, I am like some of you, come to this site, I hate to read about treatments not working, going down hill, etc. it brings me down so much that I have to take a break from this site. When I see posts like Babs' & Patty, my heart soars. We all know the struggle better than those who have not experienced breast cancer personally, so we know how genuine our posts are. I have a couple of thoughts to share after reading over the latest posts. Adding a friend seems most important if you want to send a personal messsge. Another thought I have is, why are we suffering in pain, when there are goods meds out there to keep us comfortable. I have had breast cancer since 2008, in 2013 I was told my hip was so bad I could potentially fracture it just walking around. At that time I told my RO, who lucky for me was pain management certified, that I needed something to control my chronic low back pain. I am allergic to morphine. He started me on fentynal patches. I was so greatful to have a med that made me functional without feeling high. I have been on the patches since 2013 & am amazed how many people have never been offered this form of pain control . Those are my thoughts for today & I am tired,
❤️ To u all, Sue
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Sue2009 I have fentanyl nasal spray, do you think patches would be better? My hip is destroyed, what have you done to cope? My ability to walk is worsening. Any advice appreciated
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Leapfrog- These boards have confirmed that friendship and compassion have no borders! Though we may travel less these days our international network is alive and well
Lynne- Rehabbing the house has overrun my writing. The summer plan is to take my laptop to Colorado and leave behind my ladder and house painter clothes in Illinois. Got down on my knees to paint trim this morning. It was hard to get up:-/
Patty- Love seeing you posting. ((()))
Sue, Cathy, Deanna, Minnie, Amarantha, BooBoo- Hoping for pain free weeks for everyone.
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iwrite. Well said about friendship and compassion
Babs. So glad to hear your dd and family have arrived. Hoping you make wonderful loving memories. Remember to get pics. I always get wrapped up in the visit that I always forget pics.
Hugs all
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