Bone Mets Thread
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Thank you, Nkb. Did you have any mutations out of the bone biopsy?
I’m assuming since my bone marrow biopsy was negative in 2016 that it would be negative today. I am just going to hopefully have one more MRI to make sure what they’ve been seeing all these years hasn’t grown. If it hasn’t, I probably won’t ever know what that is.
The one thing I’m noticing also is most people found the cancer in their breast first. Since this isn’t the case for me, it makes it more confusing.
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I'm cross-posting with Xeloda....
HOORAY...just saw the unfiltered report from my PET this AM.....
MUSCULOSKELETAL: The CT scan demonstrates extensive sclerotic metastases also noted in the prior scans. There is however no definite focal FDG uptake over the imaged bony skeleton and hence this appears to be due to treated metastases. IMPRESSION: 1. No definite FDG avid focus suspicious for metastasis is identified in today's scan. As mentioned above extensive sclerotic metastases are noted in the CT scan without any FDG uptake since these are treated metastases.
Thanks for the wonderful support, everyone! 16 mo and counting.....:)
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Letrozole is the culprit for increased bone and joint. It is horrible
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Great news Joyner. Yeah!
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JoynerL, happy for your good result!
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Lynn,
Yay, yay, yay! Wonderful news.
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Joyner...wonderful news!
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JoynerL- GREAT NEWS!!!! Celebrate!!!
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Joyner- Hooray!!!! Good news is always a reason to celebrate. Hugs.
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JoynerL— Woot Woot!!! Great results 👏👏
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Congratulations, Joyner. That is awesome news.
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Huzzah, Lynn!! Have a great summer!!
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Thanks so much, everyone! xox
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Oh Joyner I couldn’t be happier!!!!
BIG HUG, Penn
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Lynn, this is wonderful news! May it multiply and travel fast!
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Such wonderful news Joyner. I think all the fireworks are for you. Take care
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I have a bone mets question. The mets are in my spine, hip and femur. I’ve just finished my first course of Ibrance The past few days my outer thigh had been itching (same side as mets). Tonight I can feel a small lump there. Has anyone had a similar experience? I see my MO next Wednesday for my monthly appointment. Just wondered if this is a cause for concern. Thanks, everyone who has been so helpful on my Stage IV journey
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Maire, it's so good to "hear" your voice! Sunshine, I don't know the answer, but I'll bet that it's nothing scary. Glad you're going to see your MO for reassurance, though.
Are most of you aware of Practice Update's "This Week in Metastatic Breast Cancer"? It's an online newsletter for which you sign up. Here's the page I received overnight. This site includes terrific updated news in MBC.
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Oops...it doesn't appear that the image I cut and pasted appeared. Here's the link:
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Joyner- Weird. I clicked the link and it went to my email????? Please post again. I would like to see that and possibly sign up to get the newsletter.
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Candy, probably not weird at all. I clicked the link in my own email, and that's probably not the right way to share this.
I just clicked on the Practice Update icon, and it took me to this dashboard. You'll have to feel your way through that and set up a subscription. I did it, so it can't be but so convoluted! If this doesn't work, we'll try something else. This is good information.
I have discovered that this link takes you to MY dashboard, but maybe you can figure out a way to sign up by seeing what this is. Please don't change any settings on mine, as it works perfectly right now!
Here's a .jpg of the most recent update:
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Wonderful news, Joyner! (And thanks for the links)
Sunshine, I had lots of odd aches and pains when I started Ibrance. I think it was due to the active healing. After a few months the SEs improved and we found the right dose and timing. Hang in there! It’s a great treatment
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sunshine, it probably related to radiation treatment, I see you had some treatment recently. I had a sensitive skin around affected area for several months. It might also related to ibrance, I am in 8th cycle and still having itchy skin around upper back, neck and face. But good to let your MO knows.
JoynerL, good information, thanks for sharing
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Joyner, I get the newsletter and because of you sharing it. Lots of good information. Thanks!
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Who's had rib fractures from cancer here? I have extreme pain in my side when sitting/ twisting. It started out over a month ago, and I chalked it up to a muscle pull/strain at first, due to sitting in odd positions while spending so much time on the couch due to covid shelter in place, but it's gotten worse. I was going to request x-ray/MRI, but doctor wants to do a PET scan early, since I am due for another in a little over a month. It's scheduled for the 16th - next Thursday, but the pain is really extreme. I can only get relief when lying flat or standing straight. I really can't sit -- which is making it difficult to wait a week for the scan. The pain can be so bad that it makes me vomit and brings me to my knees. There's not really much they do for fractured ribs anyway, is there? So I think I'm in for a good 6 weeks on the couch. Last PET in March showed increased uptake in both iliac crests, but I was still considered stable. Have been on Ibrance for 19 cycles. I guess there is nothing else to do but lie low and wait for the PET, which will show what's up, but when I aggravate it, I surely don't think I can tolerate it any longer, though with COVID running rampant, I'm really not too keen on going to the ER, so trying to wait it out. I have some Oxy and hydrocodone, but instead of putting me to sleep, it keeps me up,so I take a muscle relaxer and ibuprofen. Any other suggestions on how to make it through another week?
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meg8000– do you have any mets in your spine? The pain you described is how I feel when mets in my thoracic spine press on nerve bundles which circle around to the rib cage area. When that nerve pain hits, it takes my breath away. I end up with an ice pack on my ribs and lidocaine patches on my back, taking pain meds and crying due to the pain. Rads to my thoracic spine calmed that down tremendously..... having a flair up on thoracic pain hitting nerves again but it I a getting better slowly this week. I do take a muscle relaxer when pain flares
I hope your PET gives your medical team a successful plan to stop your pain.
And I hope you find something to help you immediately while you wait for your PET.
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Curious -Have any of you experienced bruising of the skin over the area of a known bone met?
I’m scheduled for a CT next week. Lesion of the proximal femur. Pain has been increasing. Have not fallen done anything that could cause injury but at first it just felt like there was a bruise there. Now there are two small bruises on my hip around where the tumor is.
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pesky904–as it turned out at MBC dx, I had bruises along my back that correlated with my bone mets. Dx MBC Dec 2019. Bruises were visible months before dx
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that is really interesting! I have a bruise in the center of my back where my spine hurts also. And a feeling of a bruise on my right shoulder but no bruise (yet.) The only Known bone lesion I have is in the intertrochanteric regionof left proximal femur.
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pesky904: I never asked my MO about the bruises. Just something I made a note of as there wasn’t really a reason for those bruises, I had no bumped into anything nor had any injuries.
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