Bone Mets Thread
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KBL - best of luck with the biopsy and 🙏 for best possible outcome
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Thank you so much, HopeandGratitude.
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cyathea, thank you. I hope you get great results as well. It will take about 7-10 days for results I was told. Hugs back to you.
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Good news does happen.
Sometimes after getting multiple rounds of bad news, it is hard to think that good news will happen for me.
But it did! My bone scan didn’t show any new mets! So, all of my rib, back and hip pain is related to muscle weakness and getting older.
I just have to focus on my exercises, healthy eating, and getting enough rest. I’ll do an MRI to monitor T11 in 3 months. Life is good in these moments.
KBL, 7-10 days is a long wait. Thinking of you and hoping you have some of my good news too
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Cyathea,
In this crazy world of MBC, who would have thought that being told that aches and pains are due to advancing age is good news. But it surely is for all of us -- so great to hear this. So happy for you.
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All done and in recovery. Wow, that was really easy. I barely remember the needle stick for the lidocaine. I’ll keep you posted on results when I get them. So glad I did this for my peace of mind.
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KBL, glad all went well for you. Keep us posted.
Cyathea, so happy for your good news. Congrats!
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Thank you, Bliss. I will. I read the report of what they did. They used an 11-gauge needle. I guess that’s a pretty good size. I’m glad I couldn’t see it. I’m, of course, a little more sore now. I still had lidocaine onboard when I wrote. It’s not too bad, though. Just taking Tylenol.
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Hi everyone,, I just got told last week it’s in my bones. I’m 41 yes old. 4 years out of my original diagnosis of stage one cancer to my right breast. I chose double mastectomy, and chemo due to my high onco score. Hace been on tamoxifen since 3/2017. Everything was fine. Until about a month ago I started getting sone pain. In my back. Then a week later I got double vision. That does not go away and my left eye now crosses in. I can’t even drive I guess my 6th cranial nerve is messed up. So I got sent to do mri w contrast. Something showed up in my skull. Left side Explains the double vision ,, then I got sent for CT scan with contrast cuz if my bone pain. And dr called me next day ( last week) to tell me it’s in my bones. Spine and pelvic bones. I’m terrified at what’s to come. My hip bones hurt so much. I go for a bone scan Tuesday and biopsy Friday. Then we can set up gane plan for treatment. Question? Does this bone pain go away. Thanks everyone in advance for readin this hugs
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Hopfull2, I'm going to PM you about the bone biopsy procedure. Hang in there, girl-
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Hi Hopeful. I was Dx 4 years ago and yes the pain does go away once you start treatment. I have extensive bone mets whole spine, all ribs, shoulders, hips, sacrum etc etc. I also have extensive osteoarthritis and therefore had lots of pain. I had radiotherapy to my whole T section and then once I started treatment, in my case Ibrance and Letrozole plus Xgeva, my Onc suggested I cut down the pain meds. I found very quickly that I can cope without any pain relief most of the time and now just take it when I need it. I live a full and normal life although of course I have scans every 3 months. I wish you all the best and hope that once you start treatment you can get back to living your life
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hi Hopeful,
Like Chico, I have extensive bone mets, the first consult was with an oncology surgeon to see if I needed a rod in my femur, but they decided I could go without it. I had pain in my shoulder and hip that showed up when I first started taking Femara-Ibrance, but I guess that was 'flares' from the dying tumor cells? Otherwise, I have a lot of non-specific joint pain-stiffness, which I attribute to the treatment and/or osteoarthritis, and it responds really well to Celecoxib..
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Hopfull2– when I was diagnosed MBC last December, the first step of my treatment plan was rads to the spine and hips which reduced the pain from bone mets. Now I am on Ibrance/Letrozole and XGEVA to fight the bone mets.
I still have pain but it is managed with pain meds for now. The pain in my spine is soooo much better than it was before MBC diagnosis
Welcome to this topic. There are so many very helpful people here. And, at the same time, sorry you find yourself here. Hugs virtually to you
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Hi Hopfull2
Sorry to hear you are also joining this club. I also have extensive bone mets and have had three separate zaps of radiation to treat areas that were cause for concern. Each treatment brought immense relief.
You will find a lot of great advice and support here. Hope you have a plan in place quickly so that you get relief from those symptoms.
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KBL...I'm so glad your biopsy went smoothly. Prayers for good results.
Hopful2...I'm sorry you have to join us here. But you will find a lot of comfort talking to people that know how you're feeling.
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Thank you, JACK5IE. We all know the waiting is the hardest part. I appreciate it.
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Thanks you guys for your reply’s. This waiting process is the worst. Tomm. Is my bone scan. I’m nervous about that. Because I hate needles and they will be injecting that stuff. I had an anxiety attack on my ct scan with contrast last week. So not looking forward to Tomm. Hope you ladies had a nice weekend
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Don't be fearful about the nuclear bone scan. It's a pretty quick IV injection, and then you just have to wait for the nucleotide to get into your system. The actual test is a bit long, but it's not really difficult. A camera-type device moves over your whole body in slow motion as they take pictures -- you're not enclosed in a tube like with an MRI, so that makes it a bit easier. Good luck.
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Hopful - think of the nuclear bone scan as like a giant xerox machine. You lay there and it xeroxes you. The only problem I had was that when the top "plate" comes down it gets really close to your face, but that is only for a few minutes until it moves down the body. I seem to recall the nurse saying you could blow upward and it would retract slightly if you felt uncomfortable, but I didn't test that out.
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Hopefull, I may be a little late posting this for you to see this, but when I had my bone scan and CT scan with contrast, they were on the same day. I got injected with the stuff for the nuclear bone scan, and the tech left the IV in while I went to get the CT scan. That way, they could use the same IV line for both, and I didn't have to get stuck twice. I'll ask for that next time as well. The CT tech removed the IV line and I was good to go back to the nuclear bone scan. It might be worth asking if they will do that for you.
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So I just found out that in addition to the bone mets (spine, ribcage, sternum), I have liver and lung mets. I'm so ... devastated. It doesn't change my treatment plan, but it sure wasn't good news.
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lauawill, that really sucks. I'm so sorry...
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Laura, sorry to hear that but hopefully a good strong blast of chemo will knock them out for you. xo
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I looked on my portal today and saw my biopsy results. I then called and made an appointment for Thursday. Unfortunately, it is breast cancer in my spine. I am 99.9999% sure it’s been there since the first MRI saw lesions in my spine in 2013 and thought it was multiple myeloma. This means I went six years with no treatment, which is probably why it spread to my stomach. I feel angry and numb at the same time.
Lauawill, I totally get your devastation. I’m sorry.
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cyathea, thank you. I will know more Thursday.
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Lauawill,
How long did you go from first diagnosis, or are you Stage IV de novo? Were you already taking an aromatase inhibitor when the mets were diagnosed?
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lauawill and KBL-. Sorry you received such unfortunate news. Praying that your treatments take care of these buggers and no more surprises. 🙏🙏🙏
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Thank you, JavaJana.
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