The Hermit Club
Comments
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I love dancing too...my daughter's wedding was a few months ago-right during chemo. At the time I was diagnosed as Stage 3...I was a dancing maniac at the reception. haha a couple weeks later my back was hurting -found out it was bone mets and one vert was fractured! I have no doubt I did it at the wedding-but it was worth it!0 -
Lynn....."you go girl......did the same thing for my grandson's wedding.......had an ER visit that was Easter Sunday 2013....was admitted for what the CT scan showed...a mass in my colon did a colonoscopy, more mass, severe colitis, was discharged on Tuesday...that Thursday morning I took my first ever flight to Chicago, along with the pills for Colitis......danced my feet off......"paid for it the next day with barely being able to get out of a chair, but it too was worth it".
No problems since, although they want another colonoscopy now that all is well, to rule out ischemic colitis....already cancelled once....will do it soon.......0 -
Wow, lynn1234, what a way to find out you have bone mets! what a way! At least you danced like a maniac. Thats how i dance too, just usually if there is no one watching. took me 10 years to dance in front of my boyfriend, not right in front of, but in the same room with him. i would go all wonkitty, and lose the rhythm... so self conscious. but funny, not so much since all of this. it is like i found my real spine or something somehow. not afraid to reveal myself so much now & even talk back to drs if i need to.0 -
I'm starting to speak up and talk back a little-it feels good! I mainly want to understand what their reasoning is behind the plan.0 -
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Yay! So glad you won! We want some pics!0 -
Sally, by this time tomorrow it will be all over...good luck."ask for an Xtra large hospital gown , with pockets we need a lot of room...we're many, and noisy.....I'll bring some snacks......hugs0 -
Wow. Busy hermits.
Welcome, Tn hermits! (I'm just next door in Ar!)
Dancing... how lovely. Never had the confidence for it, though. I admire those who do.
Hugs and warm wishes for surgery, dealing with loved and not-so-loved ones, and life in general.
ccfw--yay! happy news. Fun to enjoy satisfying an urge.
Pretty puppy! Haven't mastered photos yet...
Happy midweek.0 -
CCFW, congrats on winning the fur ... try to post a picture of that as well as a pic of you and hubby.
Teka and duckyb1 thanks ... I know I will feel you with me.0 -
Sally.....hugs0 -
Yes! We need pics of kilts and tartans and fur!0 -
sallly, dont know if you will see this before surgury, but everytime tomorrow that i am reminded of bc, i promise to think of you first, and send mental gentle hugs your way.0 -
Sally we'll be there with u, u won't be alone just listen, and before he starts tell him we're watching, and like was said this time tomorrow night it will be done.Oh and Ducky always says she'll be quiet and never is., but I am.
CC nice goin' u won that fur--u'd better learn to post pics, we all want to see them and how u and u'r DH looked. Such fun for u.
Kath hope u;r feeling OK, hahaha this is the simplist job anyone could have and I'm so worn out. Oh Geeze.0 -
Thanks kathec and camillegal.0 -
Thanks duckyb too.0 -
Cami, i am curious. what is it you are doing from home. cause i really need to start something, not ready to throw myself out into the world yet, and pretty darn sure i cant do what i was doing. No strength, back messed up, ribs hurt everyday since surgury, not to mention lymphedema. no cuts burns or scratches allowed! and certainly cant lift up five gallon buckets of paint anymore, or even sit long without having to stand up. been selling things i dont really need.0 -
Cam.....remember......funniest, prettiest, oldest, sexiest, smartest, but how can you be the quietest when your a member of the MHC........lol, lol, lol.0 -
hi ladies! Hoping you take new members as this is where I belong, as I am definitely a tried and true hermit. I recognize a couple names from other threads and look forward to catching up. Just over a year since my mx and I have to say I've probably spent 95% of that time at home (mostly alone, except for my 4-legged friends), most of that in a recliner. Wasn't comfortable having friends over as DH has a drinking problem and it's uncomfortable for me, wouldn't want my friends to see how my life really is. Plus, after surgeries (3 of them) I don't feel like entertaining when I feel like crap. Have 2 friends going thru other cancers and another who's had a couple surgeries (not cancer) so my biggest form of companionship (other than BCO or cats) is texting. Moved my parents closer to me (from 250 miles away to 35) end if July and that has also become my refuge (using the excuse I'm still getting them settled). Mom has Alzheimer's, Dad is totally devoted to her and wants to care for her, but we all know she should be in the memory care unit of the community. Don't like going out because money has be one a big issue so if I stay home I don't spend.
Sally, best wishes tomorrow! Hopefully, this time tomorrow you're doing well!0 -
Welcome Maddy! Seen you here and there too! would love to see you here. Sometimes life is just easier, bein a hermit. there are some good and funny women here, and genuinely very caring. my favorite place on bco. how cool that your mom & dad are closer to you know, an easy day trip. Does that mean you had nodes out of both sides? Ouch! we are sorta neighbors....0 -
Thanks for the welcomes!
Kathec, you're so right about being a hermit, so much easier! Got tired of friends continually comparing me to their breast reductions/enhancements and wondering why I'm not back to usual. Why? Because it's not the same! Plus had others get irritated with me because they felt it was more important to help than me being comfortable with that. So... Easier to stay at home! As far as nodes: all taken the 1st mx, that's the way they did it then, just SNB this time, such a difference! Definite LE on the left side, there's so much more info now. And we are sorta neighbors (in the IE and if you listen to traffic rept, it's the area that always has traffic probs). My DH was born and raised in LA0 -
2nd time Welcome to a nice nice group that will help as much as possible--I'be been on here for a while the only thing that changes about me are my spring.summer. nightgowns. to my flannels and my cat is a stay at home cat so we pretty much just stick together. Some people don't understand it, once I do get out I'm fine but to make the decision to go out and get ready everything takes so much longer and hurt so much more I can't wait to get home and change==As we always say this is a judge free area whatever we talk about is about all of us, but we do try to have some fun.
DUCKY I never said I was mile high person===YOU ARE, you just wanted me to remind everybody LOL
Kath this fell into my lap, My cousin's GS is starting his own business, in his late 20's and he couldn't keep up with working and answering the phones So my cousi SUGGESTS me and Dan only lives 5 min. frm me, so he transferred all the call to my phone, and h=I really didn't think there's be so many but with Angies's list and Yelp they're coming in all the time, then I text him and of course I tell him call now or this can wait, and I end up missing my nap hahaha Then he wants me to do the books in the computer *which I have no idea) After I get used to this whole thing, /but like I said it's just starting so who knows, It's construction, heating and cooling-pretty much all things like that and furnaces are big now, And I must have told u guys my DD got a PT job at a beauty /salon not far from here so, that's the one she wanted so hope that goes good and hopefully we can have a decent Christmas. But Kath I have days I don't want to talk to anyone and I have to force myself for this so I'm sure I don't sound very friendly. LOL0 -
Hi All,
Thank you for the warm welcome! You can call me Simple if you like. It doesn't matter to me. I have used the name Simplelife4real for several years at a fitness website I use (SparkPeople), so when I got BC and joined this site, it was a natural thing for me to use that name here too.
Sally, good luck with your surgery. I'll be thinking of you today.
I'm going for my 11th treatment of taxol today. One more after that, and I will be done with the taxol and on to AC in Dec. and Jan. The fatigue was a lot worse this past week. It's taking me all week to rebound now whereas for the first 6 taxol infusions, I just had a couple bad days. I'll be glad when I get a break between the taxol and the AC. I still have hair (it's fine, but looks semi-normal in public) , but based on the AC schedule, it looks like I'll be losing what is left of it right around Christmas day. I am thankful that I'll probably have it over Thanksgiving weekend when I'll be getting together with out of town family.
Here's a picture of me that I took a couple days ago to show my hair. It looks a lot thicker in the picture than it really is.
I found out that the dinner/dance on Saturday is actually only a dance....no dinner involved....so even though Saturday is my "chemo crash day", I'm thinking I want to go and try out our newly learned ballroom dance moves. It helps a lot that I won't have to sit through a dinner with a table full of strangers.0 -
Hi hermits- checking in here and lots of good posts to catch up on.
Sally- thinking of you this morning and saying a special prayer for a successful surgery (including clear margins) and quick recovery. Let us know how you are doing when you are on the other side of this, and feeling up to coming here again.
CC- your dinner, outfit and the winning the blue faux fur all sounded so uplifting! Would love to see a photo if you are inclined to share.
Simple- thinking of you to as you go through the difficult chemo treatments. I encourage you to see how you feel this weekend and if you are feeling good, go to your dance. Something to look forward to, which we all really need. I like your picture too!
2nd time- welcome to our thread and we are glad you found us! We a nice group of gals, with some folks who have been here awhile (I have been here a year, others longer) and lots of newbees here too recently. We try to help one another, listen, have a few laughs, rant, you name it. Its all good, and we like to call it a judgement free zone. We hope you will feel comfortable here.
I am also sorry to hear about the lack of sensitivity around your bc and treatment with your community. I know southern CA has lots of folks who routinely have "work done"; my sister lives in southern CA and am very familiar with the culture there. Yet just the same, what are these women thinking? Deciding to reduce or enlarge breasts is a personal choice, bc is not! They don't get it, and we understand that too. It is why we are here as we all have people around us that have expectations around our recovery.
I did not tell a lot of people about my diagnosis for professional reasons and have kept things mostly private. Within that smaller community I did tell, I have friends who stick around, don't have a need to expect me to be the way I was, can listen to my updates without the need to judge or change things. These people are neither afraid of this and always make me feel like they care about me. Difficult times teach us a lot about ourselves, but also about our relationships with other. You are taking care of you and those other women can go find others to compare themselves to.
Teka, Cami, Skittle, Kathy, Ducky, Granny, Lori, Lily, Lynn, Markat, CC, and all the rest, have a beautiful day!
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You to Jazz.....really cold here in the Philly suburbs.....some cold spell hit us....thanks Canada...lol
Maddy.....hi girlfriend, glad to see you here.....a little different then our "humor and games", but a great bunch of ladies..."we do have good times".........so many of the things you mentioned are very familiar to me too......no husband, he died 22 years ago, but other things ring so familiar......no Mother or Father they both died in the 80's....Not to mention I am 78..........see, said I was the oldest.....lol.....quiet Cami......so welcome Maddy.....so glad I am getting to know better, my game playing partner.."hugs....
Cami....I said......
How can "you", meaning "me" be the quietest when "your", meaning "me" is a member of the MHC......I did not mean "you", as in "you Cami" ...................LMAO......now I really confused you.......lol
Ok, gotta clear my head after that...just confused myself........LOL...0 -
Sally-Praying for you at this minute and hope it goes well. God bless.
Welcome 2nd time ...you are at the right place-a great group of women here in the Hermit Club! Do you prefer Maddy? btw Your tag line is spot on.
simplelife-I like your hairdo-that's how I want mine styled...when it grows back in. I will be glad when that happens. Hope you decide to go to the dance and try out your new moves!
Jazzygirl-that's right-I have found out so much about my family and friends...mainly good things. They have rallied around me. There are some that have kept their distance-I think because they don't know what to say-afraid they would say the wrong thing. I try not to focus on that because it was really starting to consume my thoughts and bring me down.0 -
Ducky is right it is so cold here.....
welcome newbies we love new people...
Off for my 3rd week of chemo week off next week, have the appt with the surgeon tomorrow for the lung biopsy, just want to be able to breathe, don't care why just fix it...but if it is the chemo then what.....want to know if the lung is being damaged by the chemo or if it is just aggrataving it..
Get chemo on Wednesday and Friday afternoon is when it hits....hate it, usually am going "I will be fine, I will be fine" sometimes I call people to tell me I will be fine!!!
love the hermits....
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blondie-You will be fine! Love and prayers coming your way!0 -
stay warm Sandy.....damn it's cold here........hope chemo is kind to you this week.......hugs0 -
Cold weather is the best time to be a Hermit. Haha I may not go out till next spring!0 -
back again......so tired of.....do a little...sit.....a little more, sit......knee hurts, back hurts, feet hurt......sit.....such bullshit......what happened to that person who raised 6 kids......then lugged around a 2 year old and a baby grandsons at 51, while still having 3 grown kids at home, then did it again at age 65 for 2 more grandchildren, from 6:30 till 5pm.......3 days a week, then worked the other 2 at big Pharma......not to mention 1 grandson weighed 12lbs at birth..........2 years later came his sister at 12lbs 6 ounces.............."and I carried these 2......took care of them until 5 months ago when their Mom started working from home........they are now 15, and 13..,.,.
I hate this do nothing existence now, I want my old life back..........now the mind says I can, and I want to do things......"..then the body slaps you into reality and says....."go ahead try", and you realize "you can't"........... honestly I was great till I became a slave to the meds that help keep us alive a little longer, or perhaps till the good Lord takes us for another reason........"...but are we truly alive......
Well my pity party is over,.......guess I will go rearrange the dirt, until it's time to "sit" again.......hugs......0
