The Hermit Club

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  • spookiesmom
    spookiesmom Member Posts: 8,178

    Huh? Now she's ok. 

  • camillegal
    camillegal Member Posts: 15,711

    ThumbsUp

  • moderators
    moderators Posts: 8,643

    Teka: SlowDeepBreaths found it works in Chrome but not in Firefox. But out tech team has it on the list.

  • [Deleted User]
    [Deleted User] Member Posts: 942

    Do any of you watch the series, Parenthood? Last year Christina was dx with BC. She had a lumpectomy & chemo, lost all of her hair, and ended up in the hospital with neutropenia.

    Fast forward 1 year. She just went back for her one year pfc checkup. She was on pins & needles for 3 or 4 days until she got the call from her onc telling her everything's ok, "see you in 6 months for a repeat." When she got the good news, there was joyful laughter mixed with tears, knowing she will have to do it all again in 6 months.

    NBC has done a pretty good job with the reality of this story line. A producer or someone very close to the show who's wife who had just faced the Beast came up with the story.

  • jazzygirl
    jazzygirl Member Posts: 11,976

    Hi hermits- not having an easy week. Struggling with the client to get some outstanding invoices paid (supposedly checks being cut tomorrow, fingers crossed) and then today. The second anniversary of my mothers passing. 

    Whew, glad this day is over so I can move forward. Going to the gym tonight to swim.

    There is a documentary on HBO centered around an infusion center. I saw it not that long ago but cannot remember the name. If I find it, I will let you know, it was very good. Hit all aspects of what women go through with this, including women of all ages, life after treatment, what happens to families during treatment, etc. Very real.

    I hope everybody here is having an okay week! And no more snow!

  • SallyS70
    SallyS70 Member Posts: 816

    Jazzy, thinking of you.  

  • jazzygirl
    jazzygirl Member Posts: 11,976

    Here is the HBO story about breast cancer. It actually focused a lot on the cost of cancer treatment, which is a big issue for everyone.

    http://www.cinemablend.com/television/Education-De...

    It was on not all that long ago so it may show up again so if you get HBO, be watching for it.

  • jazzygirl
    jazzygirl Member Posts: 11,976

    And thanks Sally. I went swimming and feel better. Hope to sleep well tonight. 

  • camillegal
    camillegal Member Posts: 15,711

    Good Morning Hermmies.

    Jazzy I really hope u'r week ends on a good note, really good. Moms passing is a tough one, I may not remember yesterday, but I remember my mom leaving me like it was yesterday and to this day once in a while I want to call her and tell her something. She lived downstairs from me so if by chance I didn't see them I talked to my mom everyday anyway. My mom and dad carried me thru so many bad times, but I'm glad she didn't see any of this. But also great times and I like to think of that a lot and so should u.

    I hope everyone is doing OK and hopefully the bad weather is behind us maybe.

  • blondiex46
    blondiex46 Member Posts: 2,726


    Jazzy thinking of you!!

  • OncoWarrior
    OncoWarrior Member Posts: 3,326

    .


  • jazzygirl
    jazzygirl Member Posts: 11,976

    Hi hermits- I have just had a total discombobulated week! Is that a word anyways? I think it is just a result of grief coming up again, and had some crazy computer things going on today. I cannot wait to get to this weekend!

    Both my overdue checks got cut from the client today and are in the mail to my biz PO box. Will check tomorrow and then I should be flush with cash again for a bit.

    I went to yoga tonight. It always helps. Been moving my body every day this week.

    Weather got cooler again and feels more like winter is back. It may rain tonight, we hope. I heard there is a big storm in NE again. Spring is next weekend, someone needs to tell Mother Nature!

    Thanks for all your kind words this week. Sometime a girl just has to take it one day at a time and love having friends here who just get that.

  • jazzygirl
    jazzygirl Member Posts: 11,976

    Teka- are you warm and cozy tonight? Any snow in North Country?

  • camillegal
    camillegal Member Posts: 15,711

    Good Morning

    Jazzy I think for some people too the bad  weather doesn't help a mood--altho u'r weather is much nicer than ours, it still is winterish and it's lasted a long time this year without many breaks so maybe that will help u some. And good u keep up u'r swimming and Yoga-and then work u'r better than u think. And it is a sad time anyway for you, our memories can be so mixed at a time like u'r having so give u'rself a break.

    TEKA====almost 14 inches Holy chit---all we had was about 5 -and u'r right Crazy March--I do feel like we're in for one more storm tho--I don't know really but I hope u don't get that again. 

  • duckyb1
    duckyb1 Member Posts: 9,646

    Snow coming St. Patrick's Day here in Philly..............

  • duckyb1
    duckyb1 Member Posts: 9,646

    image

  • jazzygirl
    jazzygirl Member Posts: 11,976

    image

  • camillegal
    camillegal Member Posts: 15,711

    Nerdy

  • blondiex46
    blondiex46 Member Posts: 2,726

    Singing

  • duckyb1
    duckyb1 Member Posts: 9,646

    image

  • dwill
    dwill Member Posts: 248

    Hi Hermits, Well I am in Springfield Il on a teacher's conference.  Came Wednesday night and staying until  Saturday afternoon.  I know since I put in my retirement for 2016--this will be the last one I will be able to come.   There are three of us here from my school.  The other two teachers are sharing a room because I talked them into allowing me to have a room by  myself.   I told them  I have all these SE's and  other medical issues such as IBS..  We can go up to five workshops a day--I have only been able to go to two to three a day.  Today, I went to two workshops and then came back to the room hurting so bad and so exhausted, I am still in my room. These symptoms have been going on for a long time since my Cancer diagnosis and my AL.  Yesterday and today, my knees were flaring and my leg bones were hurting; I have cold symptoms and a lymph node swollen on the side of my neck.  .  I don't know what the other teachers think since I am telling them I am ill each day.. I haven't been able to I have lunch with them or even keep up with them walking.  It makes me sad.  So today sometime, I was having a pity party in my room by myself.  I will be seeing three doctors on my return trying to figure out what is going on with me--my MO, the Orthopedic and my BS,  Before I left to come here, I had just visited my PCP, and my orthopedic because the pain was so severe.  I was placed on Prednisone for 5 days--told my SED was high/ inflammation somewhere in my body  and diagnosed with osteoarthritis--oh and my MO stopped my anastrozole for three weeks to make sure that wasn't affecting me negatively. . I've been off the AL for two weeks, I would think I would be feeling  better. However, now that the Prednisone is out of my body--I'm back to feeling so miserable.  So, I was in this room having a pity party, hurting and sure that my Cancer is more than Stage 1--- that maybe someone has missed something.  Why am I so sick every day?  Why am I so weak and tired?  I'm so thinking that my Cancer has spread..  Just waiting on the doctors to catch up with my situation and tell me.  Well, I have dinner tonight with the two other teachers and maybe two workshops tomorrow.  Then, I can go home and burrow myself in my home. At least, I won't be so embarrassed that I can't keep up and I can suffer at home.



  • duckyb1
    duckyb1 Member Posts: 9,646

    Dwill........will PM you........no one needs to know our business....hugs.........

  • SallyS70
    SallyS70 Member Posts: 816

    dwill, so sorry you are having issues while away from home.  I hope dinner is tasty and tomorrow's speakers interesting.

    Jazzy, happy to hear that your consultant's check was finally written.  

  • camillegal
    camillegal Member Posts: 15,711

    Dwill---I'm sorry but u'r body has been thru A LOT this last year and the healing process can be slower than u think. Give u'rself credit for even going, This is not like a cold, this hangs on for many reasons with new aches and pains all the time from what u had done--it doesn't always mean more cancer it means cancer had u in it's grip and maybe not now but u don't just feel well in a short time. If the armidex did damage, even tho u'r off of it that damage is done it doesn't mend itself. That's the problem, and u have every right to feel sorry--U've had a tough go of this. I'm sure the other people didn' feel like u just couldn't keep up they know, so like I said give u'r self a break. I think for most cancer is a double edged sword--emotional and physically and both have to heal and one can't without the other. I'm glad u'r going to the Drs. so u can find out what's going on and let us know too. I like to think we all share our problems with each other that's why we came here.

  • camillegal
    camillegal Member Posts: 15,711

    Teka I have some luck doing it, but not all the time????? I have no idea why.

  • camillegal
    camillegal Member Posts: 15,711

    Teka all I do is go to google images and put in what I'm looking for and copy it and paste it--but it doesn't alwys work.

  • Gingerbrew
    Gingerbrew Member Posts: 1,997

    Hi Dwill, I just wanted to let you know that I had extremely bad SE's from anastrozole and arimidex, I am off of both and on Tamoxifen which only gives me hair loss as a SE and maybe a tiny bit cranky but really minimal.      Somewhere I have a list of all my SE's and it was very extensive and joint pain was at the top of the list.  I was given several vacations from the drugs for three months and it didn't help.    

    I hope you find a solution for your pains, I feel for you. 

    Hugs Ginger

  • camillegal
    camillegal Member Posts: 15,711

    Good Morning everyone--boy am I late.

    Teka I see u'r posting hell nyway u can just do it.

    It's decent out today with some snow tomorrow but not much and a little colder, crazy March as they say.

    Oh and like I said that little evil pill is evil, how could it be so small and do all that damage--I can't figure it out., but then again look at the atom--so much activity in there.

    Dwill hang in there and I hope u find relief somehow.

  • duckyb1
    duckyb1 Member Posts: 9,646

    Ugh........Ginger, was planning a vacation from Letrozole...........you said it didn't help..........damn.....was kinda hoping it would..........aches and pains are brutal....just getting out of a chair takes effort sometimes.........told Dwill about a supplement my SIL gave me to try..........I have been doing it for 3 days now......they say it takes a montth........he got amazing results with it..............I don't recommend anything to people on here, but have consulted my Dr., Pharmacist, and the Mfg. to make sure it would not interfere with my other Meds, and they said no..............

    That is what I sent the PM to Dwill for......not that I have to explain myself......I am not one to suggest any type of treatment or Meds to people.............not a good practice..........at least in my opinion....

    However will try this supplement before vacationing........LOL oh boy I just hope this is all worth it.......

    If I was to write down my SE"s from the AI's ......I would need a 1,000 roll sheet of Scott Bathroom Tissue......LOL

  • jazzygirl
    jazzygirl Member Posts: 11,976

    Dwill- I am so sorry you are having such a difficult time. And it is keeping you from enjoying your conference and time with your colleagues. There is something going on, and understand where the mind goes with anything like this. I also know it is terrible to be away when you don't feel well. You are doing all the right things too follow up on this. I hope you are able to get home okay and get some answers soon.