The Hermit Club
Comments
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wow that was a profound one Jazzy
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Hi hermits- I did all I planned to today and am pooped! The crazy winds began this afternoon and were making the whole house shake awhile ago. It seems to be better now but is feeling cold and winter-ish again. No threat of freeze, but more wind tomorrow.
Watching movies tonight, just finished Dallas Buyers Club and on to Phillomenia.
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CLOONEY ALERT!!!!!!!
I just saw on Yahoo news he is engaged!!!!
I'm going to go cry myself to sleep.
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Good morning hermits- I hope everyone had a good weekend.
This new research was on the local news this morning and talked about the effects of chemo on longer term employment. The side effects and perhaps other issues that go with our diagnosis and treatment. I know there are women many of the threads I join in that struggle with staying employed, loosing jobs during treatment or right after, and/or finding work later. I know many on this thread are retired, but many of us here do work and need to work too.
http://www.medicalnewstoday.com/articles/275889.ph...
Healthcare is not good about understanding the financial impacts on folks when something greater hits them. There are plenty of statistics around those who are forced into bankruptcy after a major health crisis. Now it seems they are really beginning to understand the financial impacts to women who have gone through bc treatment. Not just from out of pocket costs, but from not being able to work afterwards.
And I don't think this issue is limited to those who just go through chemo. Many struggle with SEs from the other treatments too including surgery, radiation, and the anti-hormone treatments. I hope they take a look at those too in their future research.
Information is power and hope this is helpful to folks here in some way.
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Jazzy........thanks for the information.....since I am retired this does not apply to me, other then with no income other then a small pension and social security which is a joke......you go to the "well" every month to pay the bills........you just hope the well does not run dry..........in other words........."no one wants to outlive their "nest egg"............but you sit and watch it dwindle, cause God knows you can't live on the interest..........
So that being said I'm glad there are more important things to think about other then "George Cloony", getting engaged....................does anyone really care, and is it going to change our lives one way or the other.................LOL............
Thanks Jazzy always on the ball girlfriend.........hugs
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Jazzy, the article surprised me because I seem to hear about so many people just taking their treatment and going on with their lives as before. I had actually been feeling bad that I was not back to normal. Fortunately, when I posted about that, you and a few others told me that I shouldn't feel bad. So why was I surprised? I guess because I don't see or hear about the continuing effects except here on BC.org.
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Jazzy, it was nice knowing you. Maybe I'll see you on other threads? I'm leaving this one.
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Spookiesmom, it was nice knowing you too. Good luck and happy spring.
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Welcome Mila-Lyn
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Ducky, Mila-Lyn is beautiful and so are you. I hope the mommy is doing well ... the daddy too!
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Spookie- sorry to hear you need to leave, here but people need to come and go as it works. I think you and I are on another thread together. Keep in touch girlfriend.
Ducky- Mia is beautiful. Congrats and hope everyone is doing well!
Sally- I think there is a whole scale of women post treatment that go from recovered to not so much. I have talked to many women on these threads that have very bad SEs and depression post treatment, that results in having to continue to work very difficult. We sort of all have our own timeline for recovery and know several here have said it takes years to feel better sometimes.
The docs cannot really tell you how you are going to react or recover, they just give you averages. It has been around 18 months since my surgery, 14 months since I finished my rad treatments and a over a year on the AIs. I still feel like I am recovering in many respects. Things do get better with time, but it has never taken me this long to recover from anything in my life to date, so a new experience for sure.
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Thought you might enjoy seeing this fun garden sculpture I got at the recycled art event this weekend. Cactus pods made out of recycled circular saws with some recycled nuts, bolts and screws thrown in for fun!
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Jazzy, your new garden art is darling. Thanks for sharing.
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Thanks Ladies......yes she is beautiful.......not a flaw on this child's face.......I told my grandaughter......her face is like velvet..............have not seen her with her eyes open.......
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Hi Teka- well, maybe you will get invited to the wedding? Start shopping now for a nice dress! It's good to have fun here.
Ducky- She must be a good sleeper!
Dang, we may get a hard freeze tonight. Three days of very strong cold winds and winter like temps. On April 28th no less and after a mild winter. Got the plants covered as best I can. Should be in the 80s here by this weekend.
Going to take a bath and go to bed early. Hope everybody made it through Monday okay.
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Nite Jazzy, have a restful sleep.
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Onco- well maybe by the weekend. It is 37 here this morning, went WAY down last night and much colder than it has been in awhile. Highs today will be in the 50s, 20 degrees colder than usual for this time of year. I am waiting for spring to return.
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I still have my heat on.......WTH..........and its rain today, rain tomorrow, and probably Thursday unless it rains itself out by then................and they are saying 2 to 4 inches with flooding.........crazy.....
At least its not what they are getting in the south and midwest...........my heart goes out to those poor people...........my grandson just moved to Missouri..........just hope nothing hits there.........
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I am not sure who on here knew MaryWH..............here daughter Rachel contacted me today to tell me Mary has been put into hospice.
For those who knew her I need say anymore.
For those who did not........you missed knowing a loving, compassionate, person with a warm and funny sense of humor.............I was very close to Mary, Mary, (as I called her), and that makes it hurt all the more.
Please pray for her, and keep her family in your thoughts...........
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So sorry to hear that Ducky........
I am not posting how I am as the basement is sound proofed.....
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Ducky- I don't know MaryWH, but such sad news. Each time we hear we are loosing or have lost one of our fellow warriors, it is a reminder of the fact bc still takes some. May she be comfortable and surrounded by those who love her during this transition.
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Lily........come on girfriend............no basement..........I hear you........soundproof walls don't stop us from helping you....................come on up.....openn the door, and let's talk...............we care about you...........hugs...........
Jazzy thanks so much......you would have loved her...........
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Ducky, Jazzy has said what I feel but could not find the words to say.
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I have a friend from college whose life partner just got diagnosed with HER 2 + cancer a couple months ago. She has had her surgery and now going through chemo. They are posting all these photos on FB of the process from getting her port and now being the infusion center. It is very sad to see and a reminder of the whole ugly thing we all go through.
Although I stood up for this friend and her partner in their commitment ceremony years ago, they were not very nice to myself or my family after the fact, so we lost touch for many years. We reconnected a few years ago, and I tried to see them when I was out in CA a few years back, hoping maybe things were more settled for them as the relationship happened quickly, but that attempted visit got complicated with unpleasantries from the partner, so I just bowed out. I like my friend from college, but I just was reminded her partner does not like her friends. Not much you can do to make that okay.
Anyways, if it were my friend that were diagnosed, I would have divulged my diagnosis, treatment, and been there more for them, but I opted to remain supportive with occasional e-mail check ins and told them about bco site here, which I said was recommended by some friends. Despite all the negative experiences with this breast cancer patient, I hope she comes through this better and stronger and if possible, a bit nicer to others.
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Jazzy, your post about your friend's partner was very meaningful. Friendships like families can be very complicated ... at least it seems that way to me.
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Teka love it.
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Teka- ha ha. That is so you, especially about the Clooney part!
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