The Hermit Club
Comments
-
gOOD CHOICE dUCKY hAPPY bIRTHDAY...
Andrew is playing baseball so is Bianca....the twins also are, I love it gets me out of the house...
it was so cold last night...won't go if it is cold, they know that, the twins didn't start playing yet in May sometime, Andrew did, Bianca got hurt!!
Me either Ducky!!!
0 -
I know Sandy........your a trooper............you go girl...............hugs
0 -
Hi hermits- back at home working and getting some apts done. Finally got my home network working again after the great computer crash a few weeks ago. We took things apart and tried to reconfig the wireless, and I had no luck so I called the experts. He fixed that, secured my computers for me with some new passwords again, and also did a malware clean up on my backup computer. I feel 100% back in business again.
Tree guy also came to talk to me about some distressed trees. One is trying to make it, the other may have to come down eventually. Nothing we need to do right now.
And I cancelled the sprinkler fix as I fixed it myself! They are going to come next week to give me an estimate to extend the drip system though. I have many more plants and watering stations needed now.
And it's barely past noon! I need a nap!
Sally- so many things go on the way side after bc and then all the things we go through. I have most of my summer apts set up, just have a few more to complete for July and August. My sister who had bc at the same time as me is going for her overdo colonoscopy next week. We are both on the five year follow up plan and she is now at 7 years because of her diagnosis and treatment. We just have to keep up as best we can and get back to it when we can. And pneumonia is a nasty thing and takes a lot out of a person (I had it as a teenager). I just wanted you to know you are not alone with feeling behind on things (don't even ask me about the house.....)
Cami- it sounds like you had a great time with your fellow bc survivors. Sounds like you crashed when you got home. I was up awhile last night too, not sleeping well again.
Ducky- you are a hardy soul hanging in those high winds. I want to be just like you when I grow up!
I wonder if Lily is back yet from her get away to the UK?
0 -
0 -
Jazzy--like u--my fellow cancer peeps were my sister and cousin so we do have that in common besides our love for each other.
Sally it does take time--and having a home job would b ideal for u to start, cuz u never feel like Oh I don't feel like going, u'r already there or if it's storming or crazy weather.
Sometimes I have a really off day (as u all know) but it's a simple job so I can still do it. It's funny cuz like Ducky my sister is well 75 and she has 9 GC and doesn't miss a game or recital or whatever is going on. And she works full time--Stage IV now 7 years. So to me she's amazing and my cousin is 76 works full time too, But my sister thinks she'll retire this year. I told her she's a wimp I'm still going to work. LOL
0 -
Ducky, Jazzy, and Cami, thanks for cheering me on.
Ducky and Blondie, I bet the kids love having you at games and activities.
0 -
Teka0 -
Just checking in to say I am back. Too close to anniversary of mutilation for emotional comfort so not posting much, struggled when away, and hoped to feel rested but I don't.....
Hope everyone is doing ok, sorry i have nothing to offer right now.....
0 -
Lily I am so sorry this is so hard for u. There are so many women who feel this way, u are not alone. Please come out of u'r shell more and try to talk about it, maybe we won't solve anything but we sure can understand and help u to feel better about u'rself--Things take time, u know we're good with venting so we are here, use us.
0 -
Thanks ladies for the compliment...........I do enjoy going to all their activities and functions......right before I was dx and after the heart attack I was still driving 5 hours up and 5 hours back to Pittsburgh to watch my grandson quarterback his team every week........we never stayed......we always drove up, went to the game,took him to dinner, and then got back on the road......usually 10 hours driving or more depending on the weather and traffic........also went to Penn State to see another grandson, and when 2 more went to Franklin & Marshall college to play football I drove there every week for 4 years......
I miss nothing, and yes I am always there for them.......and my belief is "the love comes back to you"
0 -
0 -
Happy Birthday Teka. George called and will be taking you out for lunch today!
0 -
wow................so much to catch up on.
Looks like a few Hugs need issued........
Especially (((((((Sally and Lily)))))))
Jazzy...you sure were productive.......Naps are always nice!
This weekend, I am going to try to begin cleaning out my upstairs office/living area and begin the chore of the basement and garage as well.
But first...................today..................I will take a nice long walk, set up my deck furniture and wash my car. I know I can accomplish those 3 things in the next 12 hours. LOL.
I am going to catch up with an old college friend on Sunday. Otherwise it looks like a very quiet weekend. The first in a long time and probably the last in a very long time. My work schedule being what it is and the desire to have shiny new things (appliances) will provoke me to do OT.
Although I do have to watch because my energy is not what it once was. Bleh!
Cami Wow!!!! We had a family friend who worked well into her 70's as did my Mom. She just officially retired a couple of years ago and she is 78yo.
I do not think I can do my current work into my 70s, however, I can see myself doing something a little less stressful and less physically demanding. Anything to keep active and get out of the house.
HAHAHAHA. The conversation we were having last week...........
xoxoxoxoxoxoxoxoxox
Piper
0 -
Lilly, sorry you are feeling down ... thinking of you ... take care of yourself.
Sandpiper, thanks for the hug. From all you have planned, it sounds like you have lots of energy.
0 -
Teka wait, wait, wait-----is it u'r BD today???? How did I not know this? Someone tell me.
0 -
Love the pics. Sally do not be impressed. I have wild thoughts of getting lot's done and my energy sinks. So I ran/walked in the rain. It let up and I only did 2 miles. I normally do at least 3 miles. After my 2 miles the rain became heavier and more steady, Sooooooo I lounged for a bit. Put a roast in the crockpot and I am just now finishing cooking dinner. Contemplating cleaning the kitchen afterwards. Picked up DS from work, ran to the store for essentials and now realize I did nada on the cleaning front. I am dickering with the thought of picking up extra work tomorrow, because I fear it will be another non productive day and I could really use the money!
Not to mention my DS has taken over the laundry room and I don't even have that to do at the moment. (And no...I will not mix our clothes together-Yuck!) All righty......here's to a day of lowered expectations......hahahahaha
0 -
Piper your awesome.............
0 -
Hi hermits- whew, glad to be through a busy week. Relaxing for awhile now. I would like to go to the gym but we will see.
Piper- I am working on decluttering and spring cleaning. Got some spare bedrooms and a closet to tackle next. I think Sally is that mode too. Lets share our accomplishments here. I love having organized spaces! Like you, I am less with energy so sometime my plans are greater than my stamina!
Teka- my mistake, but lunch with George is good any old time. Don't need a reason! I love the photo of the crocuses. I remember looking at those in the garden back east each spring. Crocus and daffodils to me are the beginning of so much more to come. I think I have decided spring is my new favorite season (used to be fall).
Lily- glad to hear you are back and sorry the anniversary of everything has you down. I hope tomorrow is a better day. I like to think of you walking your dogs and maybe the spring time going on over the pond.
Onco- you go girl. I know lots about computer stuff as you know so here to answer questions!
0 -
Jazzy see u'r ready for the weekend and already thinking about what to do.
Piper sometimes I think OK today this is what I'll do--I do start then it's over I'm not done but my body is done. This morning about 5:30am I was making egg salad for everyone and my DD got up to let the dog out and she's like what are u doing--well that's when I felt like doing this and sometimes I'm washing clothes at 3am--I'm at the other side of the house by the washer and dryer--cuz that's when I feel like doing it--then during the day I'm blah--So there are spurts of energy here and there. Mostly there.
And I liked the pics--I always enjoy seeing fun or just our life pics.
0 -
Teka that's how I feel, but it seemed to happen all at one time and quickly so it wasn't a process of a little at a time--to me it was all of a sudden I think that's what gets me. My sister and cousin talk about our moms (they were sisters) and until they were in their 80's they did not slow down. And then it was gradual with little things, of course then with bigger things, my sister has her bedroom upstair--she comes down in the morning and goes up when it time to go to bed and slowly, that just happened in no time and she exercises and my cousin said she never goes up or down her stairs it's just to painful. WTF Our moms were like bulls and they both had cancer in their lives, but they both did no chemo, rads or meds. IDK if that has anything to do with it.
0 -
I always said the cure will kill you, but then what the hell do I know..........but this I do know.......I felt better before I started any treatment.
After surgery (lumpectomy) I felt great........if I could have just gone on from there without doing any of the shit I did, who knows what might have happened.........I just know the Rads, ;(I'm sure affects you), then the Letrozole (which I have 3 more years on)..........have taken me to a place I hate.............no quality of life, and everyday pain of some kind...................
I have no idea what would have happened had I said "nothing, I am doing nothing"...........taken my chances..........enjoyed what ever time I had............at my age..........what did it matter............I was 76........but I was not willing to get "mets".............and possibly live a life of pain till the disease finally took me..............so instead........each day I take the pain that comes with the "cure????".........what cure.............are we ever cured..............
I just know this is not "living"..........you go day to day......hoping that tomorrow will be better........not pain free..........that is not going t happen............but maybe, just maybe.........a day with less pain.......
Ok, I'm done..............
0 -
I thought this was worth sharing.....I got this from my grandaughter......
0 -
Ducky that was so awesome. ? Hope u enjoyed u r birthday. Quite honestly after I got the lumpectomy in 96 I really didn't think bout it much cept 4 October n mother's day cause of the race. Raised my kids, had more kids got divorced n boom 14 years later it decided to grace me with it's presence again, this time spreading. I did whatever I wanted in those 14 years enjoying myself. Now I do what I can
0 -
ducky i get you, i am angry at myself for having rads especially now there is evidence they make cancer stem cells 30times stronger and more likely to sprout new cancers, all my pain and discomfort and ongoing damage is from rads, plus infection means i can only have fat transfer with BRAVA and hope that works. I am now more sunken than before, cant wear clothes i wore last summer, sorted out some of my wardrobe to freak wear and put away normal clothes more still to do. Never in my worst nightmares did I think i would still be a lopsided freak two years on ..........tired of feeling tired, tired of feeling so negative about my body, fed up that tiny things can upset me so much, and damn angry at how much drug companies suppress and manipulate info on natural remedies that work without side effects ........i dont post how i feel about myself here as i know it will only alienate people, even with a modesty band abve bra my sunken ness is easily visible
0 -
Just want to shout out and say hi to everyone! Hugs,Rain
0 -
Hi Rain hope u'r doing OK.
Lily u can say anything--For the first 1/12 yrs I had one boob off the other one was good--ins. would cover it nd it was worse than having 2 off--I actually walked lopsided--it blew my balance, which never dawned onme that would happen so I understand the uniboob business--I still remember when my Doc hugged me nd said they needed to take th other one, I think she thought I'd be upset of course finding more of the inevitable, instead I was like Thank God get it off and even thos I still had more chemo and junk--- I was glad for my balance on my top back--I wouldn't have had a double whammy if not for insurance so I think they had something to do with a lot of how I feel today--everything took longer, I was big busted so I'd walk into walls literally so right now is very difficult for u--I don't know really why so many of us just can't feel decent like before but we're all messed up inside==everything screwed with the natural way of the way our body should work--I think and again no one really addresses that==They've done th job of NED or remission or whatever it called today and that was what they needed to do, but kind of left so many with this limbo land of will I get better or are we here for the duration, I don't think it has to do with stages as it does with how much chemo and rads and of course those little devil pills do--I'm just rambling again, I'm famous for that.
0 -
Good morning hermits- I am gearing up to go out for Clean Up America day and our neighborhood association's part in picking up some trash in our area. I have not done this for a few years with all that has gone on, but going to go do it just for an hour this morning in an area that has a bunch of bottle and other junk around one of our walking travels. So that is my focus this morning, clean that area up and go!
Then I am going to go to a recycled products expo at the Open Space Visitors Center. Part of all the Earth Day activities going on here today.
You don't know this about me, but I am a huge recycling fiend! Been so since a kid when I set up the first neighborhood clean up/recycling program in the 1970s when I was only 11! You should see my recycling dumpster! And fortunately, our city is finally getting better programs for this now too.
Teka- I hope to bike this weekend but we are forecasted to have super high, if not outright damaging winds. I got the bike back, but the weather has been tricky since (rain, wind, rain and wind, etc.) I need to play it by ear today and thanks for reminding me!
Cami- I am like you in that when I get a burst of energy, I sure do take advantage of it. I have been known to be up middle of the night doing stuff too.
Lily- hugs
Ducky- what a nice posting you got there!
Blondie- hugs too!
Rain- thanks for saying hi!
Okay, about our struggles with treatment and the ongoing SEs. I totally agree that everything we go through makes life on the other side a different story. Many things in my life are the same, many are not, post treatment. I had less treatment than some of you (surgery and rads, no chemo). But as I tell my sister (who had BC and does not have to take AIs) that these drugs are no picnic. They make you tired, make your joints stiff, feet sore, bone ache sometimes. Yesterday, I was having an "arimidex day" and had weird aches in my finger and toe bones. Gone today. Chemo exhausts folks, the surgeries can leave many feeling very badly about their bodies, rads has its toll too.
I am glad we have each other here to talk to this stuff about. Because most folks don't really understand the bc world, especially post treatment.
0 -
I posted this on the single women's thread, but thought some here might like this too.
0 -
.0
-
That was sweet Jazzy, and u are too busy for me to keep up with mentally even... Good for you--I'm glad u can do all of this--U are an earth person how wonderful.
0
