For Arimidex (Anastrozole) users, new, past, and ongoing
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or when we get mud, make a pie
Skittlemade Shortbread Cookies yesterday & brought plates of them into my hospital today. It was a way to say, "Thanks" to Nuclear Med, diagnostic imaging and to radiation professionals for my last rad this morning!
Now, off to the Arimidex for who knows how long?? yup, mud
cheers
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Well, I used to have a mud hole by the side of the house for the kids to play in. The only rule, they had to strip to undies outside. and go straight to the shower after they got in. They loved it. Real cheap fun. So mud isn't all bad! Just sayin! LOL well, if there are clinical trials that I qualify for, count me in. It's a toss of the dice, but what isn't. Much love to all.
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According to someone on the symposium thread, the study was funded by drug makers. Don't know if that is true, but if so, it would make me somewhat nervous about trusting the results.
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I've been taking anistrozle for about 6 weeks. Up until a few days ago I felt fine. These last couple of days I'm extremely stiff when I get up in the morning or after sitting for a while ... often to the point of it being painful. I do loosen up with activity and then feel okay. Is this how that side effect of the drug happens?
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ruthbru~ did the thread that you read say anything about PERI-menopausal women? Just curious. I can only HOPE that I can stop AI after five years and I've only been taking it for 4 months!
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I think after 5 years, that is enough. I am 10 months now and counting the years. At the rate I am going, in another year I will have no hair left and weigh 200 lbs. Oh great. I hate mud!
Hortense...that sounds interesting about the silica...have heard it used for many things but not thinning hair.
Could you give me some more information please?
ruth...I decided to check the sugar content on the prunes...YE GAWDS...just 10 have 30 g of sugar. Guess I can always get splenda for my one cuppa.
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Watch your blood pressure on Wellbutrin. A great drug but high bp can be a side effect. I had mine go so high (it was never high before) after about a year on it and had to switch off to Effexor. Good luck!
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SOS! Please someone lift my fog!! I just went to my onc check up and told him the Femara isn't working out...too stiff, painful, hot flashes I never had with Tamox or surgical menopause. He suggested trying Aromisin. If that doesn't work going back to Tamox. I had Tamox 4 years and Femara 2 months.
THEN...he said we can do Megace for hot flashes...WHICH IS PREGESTERONE!! Although he tried to explain to me why this is ok (and he is head of a great hospital)...why is it ok to take Pregesterone if you are PR/ER positive? I can't understand that.
Doesn't it seem crazy to stop estrogen and add pregesterone?
And although I loved Tamox...no problems...do I want to go back there now that I know it can cause stroke and blood clots and I have had 2 immediate family members die of vascular issues in their 50s?
He said my chance of recurrence 10 years out with nothing is 10% and with a drug, 5%. Is that really enough to live with the side effects?
And can you counteract those and still get the benefit by eating the right foods (I'm getting into the super smoothies etc) and losing weight and exercising?
What do you think? I'm so very confused right now I'm just not taking anything for a while.
Thank you!!!!
Snapple
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Granellie You are having the typical SE. You should see me walk to the bathroom in the morning. I walk like a duck but by the time I get there I'm less stiff. As far as the sitting thing I'm actually better this year than last. I work out more. Seriously it does help.
Snapple I know someone who is doing much better on Aromisin. As far as the testosterone I don't know but if you are uncomfortable with this I would get a 2nd opinion.
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For more info on San Antonio you can check out the
Breast Cancer Answers
and
Pink Ribbon Blues
on Facebook
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Well, rats. I seem to have caught the flu from my FIL, Mr. "I'M NOT CONTAGIOUS!!!
All day yesterday and all last night I was in such pain in all my joints....I had to wonder how much was the flu and how much was the Anastrozole?
As for taking the AIs for ten years instead of five, I am hoping and praying that as the years go by there will be more and better research on how to treat ER+ women.
Who knows if something better may be just around the corner?
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Blessings… like a cure or vaccine? wouldn't that be nice!
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When I saw my MO last week and got my first rx for anastrozole, I asked her where the research was going and were more than 5 years likely on AIs. She said we just don't know yet, but when my 5 years are up, we may know more....
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I just realized when I stopped by here today and read some posts that I don't walk like a duck in the early a.m. anymore. It has been 5 months and counting!
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Skittle: When I was first diagnosed, by BS said I would be on an AI for 5-10 years.
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Well it's been a short visit but I've enjoyed chatting with you all. My results for bone density test just in show that I tend to osteopenia. The MO now says 'no' to Arimidex and is now prescribing Tamoxifen.
Guess I'm glad to find this - I can redouble my interest in milk...yuckie. have to stay positive.
cheers for the weekend
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Have caught glimpses of suggestions--prunes, chocolate, oatmeal. Do they really help with se's? (Oatmeal resembles/tastes like a lumpy glop to me. I would like to like it, and maybe I just "fix" it all wrong!? But i'll learn to make it part of daily have-to's if it's that beneficial.) Thanks for any/all ideas.
Kjiberty--wow. five to ten? My mo just said five. Maybe will change as more research comes forward. (I'm on board with the maybe there'll be a cure by then?!) Wouldn't that be beyond words? I don't want my dd's going through this mess, ever.
Happy weekend, all.
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Going to try some Claritin. Hope it helps.
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Skittle - A really good baked oatmeal recipe can be found at this link:
http://www.acasarella.net/search?q=baked+oatmeal
Although, I like to cook up a pot of the old fashioned or steel ground oats with chopped dried fruits and cinnamin added. Then a bowl at a time can be heated in the micro wave. A chopped banana and/or a small handful of pecans are good additions after it's been warmed.
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Galsal - good luck with the Claritin. DH and I have been using Costco's Kirkland brand 10 mg loratadine for years now. (WAY cheaper than Claritin!) Who knows, maybe I've spared myself some joint pain? Good luck to you!
Ooooh, granellie - that looks like....DESSERT!!! And I could imagine eating that with a big ol dollop of whipped cream on top!!!! Er, maybe it wouldn't be a "healthy breakfast" then, would it...
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That looks delicious...chop up the prunes and stir them in with the pecans
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^ Yup she's the prune lady
Or does "Dried Plum Lady" sound better? Maybe Ms. Ciruela Pasa0 -
okay, got the correct kind of Claritin. just take one daily, right?
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Claritin...right...just one 24 hour kind WITHOUT the decongestant!!! Good luck..worked for me
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Thanks...will start on that!
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Granelli--never saw oatmeal look amazing! I'll have to try it. (wondering how to cut down the sugar, though.) And--will mince up prunes instead of craisins--though I'd prefer your original recipe! :-) Thanks for taking the time to post it! Will make for a quick and easy breakfast. Way better than gooey paste!
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That looks like a great oatmeal recipe. You could also eat it them as bars (try adding choc chips - yum). I love oatmeal and I am definitely going to try this.
Just in general, after having read so much about the SEs and bone loss on this thread, I want to talk to my onc about maybe going back to Tamoxifen. I'm not even sure if she knows I have osteoporosis. It was never something I stressed, because I figured that chemo treatment was just more important than anything else, but now I wonder if the same effects can be achieved with Tamox alone. I have an appointment end of month so I will keep you ladies posted after that.
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You might want to add an endocrinologist to your team.
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Ruthbru, who were you referring to concerning the endocrinolgist? I was too lazy to scroll back a lot of posts to see a connection. If you meant me, please explain why you think that.
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Yes, dassi52. A friend of mine had full blown osteoporosis & she did add an endocrinolgist to her team for an additional point of view. Oncologists pretty much just think about the cancer aspect (of course). She did end up switching to tamoxifin. She is stage I, grade I. She had already had a hysterectomy. All of those things may have played into the decision to switch.
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