Pinktober Revolution
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Go Girl, that should shake the rafters
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Well-done, Mini!
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Mini! Yessss! You Go Girl!
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Cheesequake: thanks for letting me share your FB post. I don't have a lot of friends over there, but hopefully the sharing and the real "awareness" will continue.
BTW: October is Adopt a Shelter Dog Month,,, and it is also Pit Bull Awareness Month. Just wanted to mention for all you dog lovers.
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This was in the Tampa Bay Times this morning. I thought it was nicely done. No rah rah stuff.
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Good,,, that's the kind of awareness that is needed.
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I've had a good response to my posting. A lot of lot of like-minded people out there, it seems. Several have asked if it OK to share. I said absolutely. I'm all for "awareness," but it has gotten ridiculous.
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i definitely feel like the tide is turning a little bit re: pinktober. NFL giving their "pink money" to ACS not Komen, people are starting to speak up about how they're sick of pink month (whether they know about my dx or not), people are saying (on social media) things like "why isn't there a month for children's cancer?" !
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Poison Isn't Pretty- send an email here
I surely hope the tide us turning. There are many thoughtless campaigns out there (Ulta celebrating gorgeous hair on the cover of this month's catalog, right next to their proud proclamations and pink ribbon comes to mind) and I think companies now feel if they are the only ones not doing it they will be perceived negatively. I'm all for skipping Komen, but the ACS partners with the same nasty corporate sponsors in their Look Good Feel Better program.
Called the personal care products council, it is staffed with representatives from the cosmetics industry and the product they "donate" to cancer patients us full of carcinogens. There is a national campaign, launched this week, called Poison is Not Pretty (link at the beginning of my this post) calling for a halt to this repugnant practice.
If you click on the link, there is a tab to take action. They have made it very easy to send a letter/email to the appropriate person in your geographic area. No donation required. Just five minutes of your time. It made me feel less helpless and victimized to do something about it.
Sas- could you pin this link to the top to make it easier to find???
It seems we will not be free of this until we disconnect the profit-taking from the research funding. Why can't they just give whatever $$$ to the local charities who are screening marginalized women, and donating research funds directly to the research? It's been made impossibly complicated, and it's not working.
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lulu, September is National childhood cancer awareness month. I know because a former coworkers 8 year old son died of leukemia last year. But did we see even half the hoopla for that as we do bc awareness? It's symbol is a gold ribbon, and leukemia has its own color ribbon, orange.
Liver cancer awareness is also in October, and uses a green ribbon. How do you think they feel being overlooked this month?
Jackie, all those parabens and sulfates and other chemicals they put in beauty aids and cosmetics must be oh so super cheap so it ramps up the profits. If these huge companies like Revlon and Cover Girl would at least put out a line of paraben free, cancer causing chemical free cosmetics, they'd probably be shocked that many would buy them. There are reasonably priced cosmetics without all the cancer inducing chemicals, you have to look but they are there. Surely, LGFG programs could do just a bit of that research to obtain products that don't contain questionable ingredients.
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Divine- you are so right, and so eloquently stated. I'm so mad I probably sound like a madwoman!
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By the way, one thing to be very wary of is anytime you look at a label and it says "fragrance". My understanding is the FDA doe not require detail on what goes into "fragrance" and that is where there is almost always a problem. And it is hard to find cosmetics, lipsticks, etc. without "fragrance"
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To me, you do not sound mad at all.
Another thing I'm noticing is how many local awareness promotions in my area seem only to relish the media coverage. Already, each day, one or two newspaper photos of women from this or that organization standing in front of pink ribbon displays. The accompanying article tells who they are, where they can be found, ect. But it says nothing ever about bc facts. Just a bunch of happy women relishing free publicity. Today's paper showed a photo of women from a health center promoting their "Breasts and Booty La Boum" party raising funds for underprivileged women over 40 who need mammos and Pap smears. I mean, it's too much.
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JackB, definitely will link in box. Please, write one sentence that describes what you want to say. Plus, the link again and I will cut & paste. You are not Mad, your are mad for a perfectly good reason. Your thread about the LGFG program will change lives, and bringing it here will do the same. So many here on BCO have items/subjects/thoughts etc. that just caused them to take to spreading the word. We change the world each day, each one of us. I have a mantra, one of many, it's an old saying "A pebble thrown into a pond creates a ripple, we know not how far the ripple travels".
The companion thread that I did to this one " Topic: List Organizations: That fund research & help Patients directly". Uses with permission the questions developed by Breast Cancer Action. It's a mechanism to evaluate how people/organizations pink. Not many were done. The range is from BCRF, Komen, to a tee shirt company. It helps to figure out who's doing what, why, and how the money's being spent. Of the organizations that are done, StandUp2Cancer done by Ruthrub(sic sorry). SU2C is the best BC organization. Sorry, I always get their acronym wrong.
https://community.breastcancer.org/forum/110/topic/794711?page=1
The best overall organization IMO is the Leukemia and Lymphoma Society. They are huge. They amount of money the gather and they redistribute is huge. My last look at Charity Navigator (CN) was 271 million. Their CN rating was digned b/c of transparency. They are so big they can thumb their nose at CN. What is special about them from my personal experienced is the grants they give to people with the diseases they cover. My DH had lymphoma. He was given a 5000.00$ grant the first year. The 2nd year it was approved again, but he didn't survive but 3 weeks into the 2nd grant. Every penny was spent on the approved items for coverage.
Their is no comparable organization in the BC community. Komen could, if something like 21 people didn't receive six figure salaries.
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Cheerleading for BCO again. Think how your life would be different without this place. A few bucks from all of us will help.
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Click the link above and the tag that says "take action". By entering your zip code an email going to the correct person in your community will receive a letter detailing a request to stop this terrible practice.
Thanks, Sas:
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Hi all....I just wanted to thank everyone on the thread. I have been following it, not a lot to add, but I just realized as I read the posts I've missed the past few days while I try to get over chemo Round Two SEs...that the sexualization of bc, in a way that other cancers are not sexualized, is a big reason I haven't been public with my bc diagnosis. I've kept it off of FB, social media, and haven't told very many folks at work, even though now that I am on chemo and the hair is gone, people must be talking. My sex life is my own damn business, nor is it something to joke about, and it has nothing to do with this fucked up disease that is screwing with my well belong. and the last thing I need is unicorn postings or whatever. Thank you for helping me to understand why I hate the pink as much as I have even before dx.
Octogirl
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Octo- I'm so sorry. I can't think of a worse time to be smack dab in the middle of chemo, thanduring "Puketober".
You take care of yourself first. This bullshit isn't going away any time soon, and when you feel better let's try to fix it together. In the meantime, warm hugs to you and just keep 🏊🏻🏊🏻🏊🏻
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Octogirl sorry, you are going through this ----sucks. Nothing about it is easy. A few hours at a time. Sometimes minutes. Hugs...............
JackB, it's in the box )
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Thanks, Sas!!!
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My tennis team is concocting a lunch for Thursday's match with pink pasta (boiled in food color), tinted cream cheese and pink tinted butter for bread. Can't even......
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geewhiz--they mean well right? Here is your chance to inform--
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oh, geewhiz,, that sounds totally gross.
Do y'all know Ann Silberman of the "Breast Cancer? But Doctor I hate Pink." blog and on FB? Well, she has a letter to the editor published. Go Ann!!!
http://www.sacbee.com/opinion/california-forum/article37676358.html
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Thanks for the link to Anne's article! I also sent a letter to the editor of my local newspaper which was published today. I started a thread to post it, here's the link:
Topic: My Letter to Editor-Pink Promotions Conceal Breast Cancer Truths
https://community.breastcancer.org/forum/8/topic/835507?page=1#idx_1
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MrsM: Great job!!! Excellent letter!!
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Anne's article is simply excellent.
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This weekend, 10 days after my last chemo, I participated in the Komen Race for the Cure 5k in St. Petersburg, FL. About 5000 people showed up for the festivities in Albert Whitted Park for the evening run, and the weather was perfect (mid-70s). I finished the 5K, although I had to walk half and it kicked my ass.
I wore my black "PINK IS NOT A CURE" tee-shirt, and while I clashed with the tu-tus and the sea of survivor pink, everyone treated me nicely. A few even complimented me on my message. The pink was overwhelming, but I was happy to see restraint. I saw cheerleaders but no "ta-tas." There was a "remembrance" booth, where you could write down the name of someone who had died from breast cancer. I racked my brain and wrote down the two breastcancer.org usernames of women who recently passed that I could remember - fuzzylemon and freedomchild82. I sometimes read the postings and blogs of those in our community who have been taking by this terrible disease – looking for hope and inspiration. I'm sorry I did not remember others, but next time I run a Komen race I will keep a list. I recommend this for anyone participating in Komen race. Media reports make me think that Komen may be starting to change its stripes – the recent studies that show mass screening and early screening simply do not reduce the number of breast cancer deaths may just be enough for them to focus more on research.
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Thanks for the links to both articles.
Divine- a powerful, but not hysterical message. That is awesome you got it published. Congratulations and thank you.
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finally....this: stick this on our FB and stoke it
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Brava, Mrs M!! Well said
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