Pinktober Revolution
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Ran across this on another site... What do you think?
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Yikes. A picture is worth a thousand words. Re the photo above on Jackbirdie's post: Good slogan, but I am still bothered by the sexy image. Re scrunchthecat who went to a Komen event wearing her Pink is Not a Cure shirt: Wouldn't it be great if we could move that huge powerful bus onto a better course? Get them working for the right things?
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Marie, powerful picture!!!
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I haven't seen or heard a peep about the St Pete Komen thing. Yay!!!!
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"The party atmosphere often surrounding pink ribbon promotions and campaigns conceals the harsh, devastating effects of breast cancer. We are not celebrating a holiday. This is not a sporting event where the side wearing the most team colors wins."
TheDivineMrsM, since diagnosis I have searched for what it is that makes me so averse to pinkwashing, but never have been able to articulate all the specifics. Your entire letter resonated with me, but these three sentences really, finally, outline the exact problem I have with pinkwashing. Thank you for finally putting it into words I can use to explain myself. I'll be quoting you heavily!!
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Cheesequake, it's nice to know I've put into words how you feel. I have also experienced the same thing in reading what others write on the topic.
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What site is that image on Marie? It would make a good billboard.
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Iiked the poster ( since I have had 2 Mx's) but I think putting it out as a poster would cause more problems. I cannot tell you the number of terrified women I have shown my mix scar to , asked by my therapist. These women were so scared of having the mastectomy they needed to have because they had no idea what it would look like after. One had postponed her surgery and postponed it as the tumor continued to grow. Her doc (also mine asked me if I'd let her know what it looked like after having a mastectomy. Better a scar than an immediate after surgery shot as some people have no perspective that their scar will heal in time. Just saying I hate the pink too and joined Breast cancer action back in 92, I'd just wouldn't want to see someone avoid getting treatment because of a "scarey picture " I know that when I had my first mastectomy back in 1990 one of my doctors who'd also had had breast cancer showed me her healed scar so that I could see it was nothing horrible ( I was in my 30s at the time)
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I've been ranting my head off to everyone I know for week over pinktober. I came across a link that has some excellent positive guidance on how to choose cosmetics that are safe.
BTW, Cosmetologists a have a 5 X average risk for bc because they handle them all the time. Scary.
I sometimes think the only way Pinktober can be stopped is to vote with our wallets. Here are some great ideas how to spend your October $$$, pink or not.
http://www.learnvest.com/2011/10/your-guide-to-gre...
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It's too bad that my last post here was deleted.
Censorship as an arbitrary action, without even an explanation or consultation, is a bad thing IMO.
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Travelttext,
Who deleted your post? I haven't seen it. I had no idea stuff could just be taken off here...
Meanwhile I just saw two ads about women who were told their biopsy were positive and then they pass out or faint or something???? Pretty dang disturbing, one would thing there are better ways to get the word ou
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Sula.I don't know who or why.
Basically, I just agreed with you that Marie's pic was too graphic for a public poster. And I said Bmx images were easily searchable on Google images (I included a link). Then I added a couple of points about my scar.
I don't have a copy of what I said unfortunately, so if anyone was receiving email notifications that included the post, could they please PM it to me. Thanks for asking Sula.
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Travelttext,
Yeah, I think half the time I find myself fighting against the jokey nothing to see here folks pink, and the rest of the time trying not to scare people so they're afraid to get treatment!!
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If a post is removed, what appears normally is this text: "This post was removed by the community." The actual slot or space and poster's name do not usually disappear.
Is it at all possible that you thought you hit "submit" but didn't?
Diana
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Think Diana is right - the mods don't remove posts without notification - e.g." this post was removed by the community". Suggest you contact the mods and ask them directly - betting you didn't hit "submit" - it's happened to all of us.
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I actually remember seeing Travel's post about it being a bit graphic. It might have been the Google link to pics that was the problem but it is strange as I have seen several cases where "intruders' " emails had their text deleted but not the whole post. I'm sorry, Travltxt I don't get email notifications on this thread, otherwise I would look for it.
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Traveltext, I think there are two ways for posts to be deleted, one is by the Mods., and I think they will notify you, the other is if several posters click on the "Report this Post" button, which is next to the "Reply to this Post" button, could be an error too. I have never had one reported or deleted, but frequented a topic back in 2010 where this happened often, and I just took that topic out of my favorites to stay out of the fray, since I don't post much but read alot.
dsgirl
Edited to add: Traveltext, I don't see any of your posts deleted, the text would be gone that you posted, but your avatar etc. would still be there, and it would say deleted by the community, or deleted by mods, a blue line would be around that message. So probably like someone suggested, you forgot to hit SUBMIT. That is good news, right?
You can repost it.
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I saw the post live, my post pal Jackbirdie saw it too. The post was deleted without explanation, but that's OK. Here it is again as well as I can remember it.
I have to agree with Sula that Marie's post image is pretty graphic and as a public billboard it may indeed put people off surgery. I think its great that you've shown your scar around and that your doc showed you hers. I've seen heart surgery scars, and that wouldn't put me off life-saving heart surgery. There are thousands of images of breast surgery scars on Google (no link to the page in this post now, but the search 'mastectomy scars' brings you to the images).
Men are not offered reconstruction, and I've learned to live with my scar. When my young grandkids asked what happened, I told them I was in a sword fight. "Cool", they said.
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Marie, love the poster!
Traveltext, love your explanation! Cool 😀
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Back from a reasonably nice trip to Chicago; the hotel at which we stay is (more or less) across the street from a P.F. Chang's, so I was dreading walking about the neighborhood, but this particular franchise's nod to corporate headquarters was a reasonably non-intrusive sign outside their door, offering the 'selfies for tacos and a $1 donation" chain deal. (Not pink, and typeface small enough that unless you walked right by the sign (I didn't. I knew better.) you mightn't have realized what it was.
Two giant banners outside a couple of buildings, each with a three-story pink ribbon, was annoying, as was the fact that the Amtrak station was pinkified without any explanation of why.
Back home for a few emergency supplies to find that our local mildly upscale supermarket chain is selling pink popcorn, to raise funds for a local cancer group (a dollar of each bag's price)
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Last year my favorite grocery had the pink crap way back in the corner. I found the store manager and thanked him. This year, I haven't seen ANY pink crap in the store. I'm going to thank him again.
I was in Walmart today, and did not see any pink displays. YAY!!!
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At MO appt today receptionist gave me a K flyer "for awareness you know." I handed it back and said that I'm aware every day looking in the mirror. Laying low, haven't been to Wally world in 8 months or so. Must protect my immune system and sanity.
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Rose- sometimes I think protecting your sanity is harder than protecting your immune system. Sheesh! They really handed you something and used the word AWARENESS.? AYFKM?
Traveltxt- awesome explanation on the sword fight. I don't have grandkids, but if I am ever called upon to comment, I'll use that old bar fight joke, "you should see the other guy" hahaha.
http://www.nydailynews.com/life-style/health/makeu...
The NY Daily News ran the above today. This is getting some traction! Yay!
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Travelttext,
I LOVE the sword fight explanation. How great. You are cool!!
Jack,
Speaking of awareness... One of the oncology nurses keeps handing out flyers, in the infusion room? Like if you're getting chemo I think the awareness thing has jumped the shark!!!
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love that expression. Jumped the shark. Indeed. Coals to Newcastle, IMO.
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"A pebble thrown into a pond, the ripples are unknown how far they ttavel"
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Sula: really? that is unreal. I think everyone in that room is "aware". Good grief.
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my friend Evelyn and I ( we get our herceptin together) just are polite and take the flyers then secretly throw them out and laugh and roll our eyes. She really wants to get us to be involved but noooooooo. I've had bc twice and Evelyn has been stage IV for nearly 10 yrs!! I think we're pretty aware.
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Over 30 years ago, when Komen started the breast cancer awareness campaign, we had no World Wide Web, no internet. There was much less transparency with practically everything.
These days, information is at the tips of most everyone's fingers due to the Internet. Want to know how to fix your car, make a bomb, learn the history of the United States? It's all out there. Go online! Do we really need massive amounts of pamphlets giving a glossed over description of what breast cancer consists of? Vast information is available online. You want to know more about bc? Google it.
That's another reason why breast cancer awareness as it once was needs to morph into something more effective and focused on a cure. Yes, awareness brought the subject into the open. I would say awareness has done its job and now needs to grow into something more mature that has greater impact.
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An excellent point about awareness and the internet, at least in this country, Mrs M. I found BCO via google. I have encountered women from all walks of life here, and it has made a huge difference in how I approach this ugly disease. I have also made (presumably) life long friends here (I will note that making friends on the internet is nothing new to me. I met my husband on the internet SIXTEEN years ago, I might add).
I do think there is still a role for awareness (possibly in different forms), but as I think you and others have pointed out so effectively, both the mode and the tone on awareness for bc is off. and the tone is way off IMO.
Thank you for all you are doing.
Octogirl
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