PASH - Pseudoangiomatous stromal hyperplasia
Comments
-
ana,
How big was your PASH? Did you have drains?0 -
Hello all,
I have found this thread pretty comforting as I'm about to go in for my 6 month check up after being diagnosed with pash. As with some of you, it's also been a confusing road for me. I discovered a lump about 2 years ago, a general surgeon recommended a biopsy via lumpectomy which I had done in feb 2012. When he explained my diagnosis, the only word I understood was benign - which was obviously a relief but he didn't give me any other explanation. A few weeks later I had a ton of pain and a huge mass which my general practitioner determined was a hematoma. That went away after a few weeks of wrapping and icing my chest. However, since then I've had breast pain near where I had the lumpectomy. It's constant pain, I can't lay on my stomach, and I feel as if there are constant masses. So six months ago, I went to a breast specialist and that's when she diagnosed me with pash. She didn't think my masses were anything to be concerned about and I trust her but I'm just worried and have been freaking myself out since the first time I felt a lump. I'm mostly concerned because I'm 24, had an unnecessary mammogram (miscommunication with doctors) so there was radiation, and the pain in my breast has not gone away nor has it gotten even remotely better. Also, I now feel a small lump in my other breast and have always had a sharp pain come and go in that breast. I don't know if I'm overreacting but I just want to see if anyone has had these same issues. My doctor seems sure I'm having a reoccurrence of pash and I don't know if I should be concerned or just it be and deal with the pain. Thanks!0 -
My PASH has grown significantly so I am having it removed in early January. My breast surgeon prefers the wait and see approach, but since it is growing it seems better to remove it with some margin now. I have also had it biopsied. I don't think you are overreacting and a breast specialist is your best option. I wanted to avoid surgery if possible, but now that it is growing I rather have it out. Mammograms have very small amounts of radiation so I wouldn't worry about that. I hope you get answers
0 -
hi...sorry for the delay in responding. i since then had a double mastectomy and going to get reconstruction. i have drains in now, hopefully coming out today. how are you at this time? what happened to the swishing of the fluid? why did they say they didn't put drains in? please let me know....
0 -
hi..i just read your post. How are you? i had a double mastectomy and recuperating. How do you feel now?
0 -
EJ,
Hope that recovery is going in a non-complicated way…
You may want to send Grace a PM. It looks like by her profile page she has not been on since the beginning of Nov.
0 -
hi!
Last December I found a lump and immediately went to my OB. That same day I had a mammogram and ultrasound then was sent to a breast surgeons office. The following day I was told I had breast cancer and had a biopsy. The biopsy result came back benign but my dr still wanted to do surgery to be certain. A week later I had the lump removed. About three months later in the same breast, I found another large lump. About a month after finding this one my dr again wanted to remove it. Again coming back benign.
In October I found a third lump in the same breast. Not feeling comfortable with my breast dr and not wanting a third surgery in a year, I decided to get a second opinion. She reviewed all of my records and had her pathology team look at everything. She called me to confirm that I have pash. She then had me have a mammogram and a breast MRI. I was called the following day to confirm that there are no signs of cancer. Great news!
I go this month to discuss pash, the new lump and the next steps. I fear being told that I will again need surgery to remove the lump. I cannot find any information on pash recurring so often and growing so large, so quickly.
Has anyone had any issues with pash recurring in the same breast?
0 -
Kelleen hello and welcome.
I too have PASH. I can give you a brief round down of the varying paths PASH can take.
For me, it went away on it's own.
From my research, that can happen. What also can happen that it keeps reoccurring and can grow quite large.
It IS a B9 condition. It doesn't turn into cancer. It can *however* hide cancerous conditions.
The spectrum of how PASH is treated is quite large. I do recommend research and serious discussion with your breast surgeon.
But PLEASE, don't panic. Just do the research and decide what is best for you.
0 -
thank you! I'll continue my research and hopefully after my appointment with this breast surgeon I'll have some answers
0 -
Does anyone still use this forum? I was recently diagnosed with PASH. It's extremely large. I'm so torn as to what to do
0 -
Hi MaryAnn…
I was Dx-ed with PASH in 2010.
PASH that is extremely large in particular is usually removed. What kind of questions can I perhaps answer?
PASH is a B9 condition, and doest NOT become cancer. What can happen with PASH is that is can hide areas from imaging. It can sometimes grow. (Mine went away on it's own, which it is known to do sometimes as well)
PASH is sometimes an incidental finding along with cancer, but PASH is NOT cancer, and PASH does NOT become cancer.
0 -
MaryAnn,
You're not alone. I was diagnosed with PASH (and ductal hyperplasia) last month and the general surgeon I saw really didn't have much information for me. He suggested we do nothing for 6 months and re-do the imaging and biopsy and discuss then. I decided on my own that I would follow up with a breast specialist because this clearly wasn't in his wheelhouse. I'm planning to do that in 3 months rather than 6 since I really didn't get any information from my last doctor. I'm not sure how much of my 3cm mass is PASH and how much is the hyperplasia, so not sure how big it is. I feel your pain about not knowing what to do. I'm hoping to find out more when I see a specialist but I will say that if yours is fairly big, surgery is probably the answer.
0 -
My story: I found a lump after I was done breastfeeding. I was sent for an u/s and they said it was a cyst and some tissue changes normal with breastfeeding. 3 months later I could tell it was getting bigger but I thought it was the cyst. My OB sent me to a breast surgeon specialist (thinking I needed the cyst drained). The surgeon knew it was "something" sent me for an u/s during the appointment. That u/s radiologist said "it didn't look scary" and just repeat in 6 months. The breast surgeon said it was something and had me schedule a biopsy (important to note that a biopsy can be done different ways, mine was vacuum assisted and they took four samples). It came back as usual typical hyperplasia (not atypical) and PASH. She said because it was small she was comfortable with me coming back in 3 months to have another u/s and then discuss if I needed surgery (sometimes they go away on their own). Well in 3 months it had grown significantly and the surgeon wanted to remove it (and I agreed, it was making it me nervous since they don't know why in some people it grows). Mine had grown enough and I had small enough breasts that it was going to cause asymmetry so I opted to have implants placed at the same time (my insurance paid for the implants since the size of the tumor was big enough to cause issues). My surgery took about 3 hours and went well. The plastic surgeon was able to fix the area so I didn't need to have a drain or anything (he was able to pull the tissue back together and sew it together). My recovery was pretty smooth - I took some Percocet for 4 days but was back to normal by day 5. The hardest part was not picking up anything for two weeks since I have young kids. My pathology report came back as PASH, typical hyperplasia, and one other benign issue. My surgeon said I have "busy breasts" so I am going to have some follow up u/s. At first I didn't want surgery and wanted to avoid it at all cost, but in the end I am glad I had the surgery because since it was growing it was on my mind a lot. As someone said, they do not become cancer but can hide it. I highly recommend having a breast surgeon vs a general one
0 -
I know this is an old thread, I apologize for bringing it back to life. I just need to vent.
I've had three excisional biopsies on my right breast. One, I lost 1/3 of the tissue due to a huge radial scar and papillomatosis. MRI indicated it was probably DCIS so huge margins were taken but it wasn't cancer. This was in 2011.
Another big lump last fall in the same right breast. I had just had my annual MRI a month prior so I blew it off. Saw my surgeon for my mammo/ultrasound a few months later (that had been scheduled). He took one feel at it and wanted it out (which I did last spring). It was at the 9:00 position close to my armpit. Turned out to be PASH. Well, fast forward today. The dang thing is back, bigger than ever. I just want to scream. I'm an RN and I work with this surgeon (he's a friend of mine). I saw him for an appt in September for a follow up for an issue on the left and he felt this area and said it was probably scar tissue but was iffy about that and said I could go for an ultrasound if I wanted. I said no. I have one scheduled in four months for my annual crap anyway. Well, now it's growing and way more distinct and not just a dense area.
How many of you have had a recurrence of PASH?
SOOOOOOO FRUSTRATED!!!!!!!!!!0 -
Good morning: I am new to this post. I am 62 years old and was just diagnosed with PASH. I had invasive ductal carcinoma back in 2008. I opted to do breast conservation surgery to have the tumor removed followed by 40 radiation treatments. I did opt not to do chemotheray and I am so glad. I also opted not to do femera or tamoxifen.
My breast care team at the hospital disagree with my PCP and think I should have the PASH mass removed. My PCP thinks I should wait. He feels I've already had too much radiation and like others have stated on this post - it could go away. He told me a very interesting fact which I'll share with you - each mammogram is equivilent to 20 X-Rays! Wow!
Anyway, I'm wondering if there is anyone out there who has had a similar history of breast cancer and then developed PASH? I am a DES daughter and my mother who was also exposed to the drug developed breast cancer. I'm one of those women they consider high-risk so they don't want to take any chances. Would greatly appreciate any feedback anyone can give me.
0 -
Hi ladies, I was diagnosed with PASH in my left breast in April 2017. I was originally alerted to a large circumscribed oval mass in the upper left quadrant of my left breast appearing on a 2015 mammogram. The mass at the time was approximately 2.5 cm. Had a biopsy of the mass in 2015 and was told that it was benign and pathology came back as a complicated cyst. Unfortunately (will never do again) I skipped a six month followup mammo in 2016 and went back in 2017 for my annual mammo and also was alarmed because it had gotten bigger.
A couple of days later I had a sonogram and the radiologist comes in saying that he was still giving it a BIRADS 4 and it looked suspicious and could be fibroadenoma or phyllodes tumor.
Was referred to a breast surgeon. The breast surgeon biopsied the mass about a week later. Found out that it was benign but this time pathology diagnosed it as PASH.
Because the mass was rapidly growing my breast surgeon recommended that I take it out within a month. I had an excisional biopsy on May 25, 2017. Went today for my post surgical follow-up and was told that it was confirmed PASH and that I should just follow up with a mammogram in a year.
This was a nerve-wracking experience however I am grateful that it's benign. Want to give hope out there to ladies with even large breast lumps that is not does not necessarily mean that it's cancer. All the best to you all. 😊
0 -
hi,
I was just diagnosed with pash too. Calling for an appointment with a breast surgeon on Monday. The area in question on my breast was 5cm. I'm hoping that having it removed doesn't leave me lopsided. Did they talk about checking your other breast for pash cells by any chance?
Glad your troubles are done! Everything I read says there is hardly any chance that pash recurs sonhopefully you're out of the woods
0 -
Hello-to TEE MONTY -I have a very similar story to what you posted about yourself. My surgery is nxt month and I was wondering how your recovery time really was. My surgeon is saying i could prob go back to work nxt day but she suggest i take that day off as well. Just trying to get an estimate of what its really like.
Thanks
0 -
Dear chispasgal,
Welcome to the community. We are glad that you reached out for support and information from our members. Let us know if there is anything we can do to help you to navigate your way around the boards. The MOds
0 -
thanks...still trying to find my way arnd here
0 -
Hello,
I'm a newbie to posting here but have read many stories and concerns over the years and feel this is a great community blog - very informative and inspiring. Always feels good to know you're not alone! Thanks for listening and hopefully sharing your thoughts.
So, I lost mom to invasive ductal BC in 2009. She was diagnosed 3 years earlier - Stage II/III had lumpectomy and radiation. Months later had some back pain - had CT scan - 4 spots consistent with Metastatis, then Bone Scan - same, then PET scan - ruled out as arthritis. 3 years later diagnosed with bone and liver mets. Was with her through each and every scan and treatment - saw cancer first hand on the screen in my sweet momma's face, legs, back and liver. Learned then to get a second opinion even for good news.
Just had my second opinion last week on my second biopsy in 2 years (same breast). I have had abnormal mammo's 4x that lead to further investigations (2 biopsies). #1 was a complex cyst at 10 o'clock - had drained. #2 - 9 o'clock same breast - path reports read fibrocystic hyperplasia with apocrine metaplasia (?). Second path report on #2 said same AND Stromal hyperplasia (PASH). Recommended complete excision on report but have not heard back from second opinion dr yet.
Prior breast surgeon I have been seeing for 10 years (same office as Moms), said I should consider preventative measures - Tamoxofen or mastectomy - oh and then, see you next year for your mammogram. Not feeling all warm and fuzzy here. Told I am at a 35% risk with strong family history and ATM gene mutation found last year. Thinking we should have a better plan and not wait until next year??? I am sure second doc will call soon but would love your input or experiences with PASH and being high risk and your preventative game plans.
Thanks,
Janet
0 -
Hi Janet,
I think it’s great you are getting a second opinion. I wouldn’t hesitate to even get a 3rd. I also have PASH and it does not put you at a higher risk for breast cancer. From what I have been told and have read Tamoxifen will not stop the PASH or make it go away. I think treatment for PASH depends on if it has grown or changed.
The Cleveland Clinic has a program that you can use to submit your scans a radiologist will interpret them and give you an opinion.
Might be worth it.
0 -
Hi! I was recently diagnosed with PASH at age 45y/o through and MRI guided biopsy. There are other terms in my pathology that worry me such as multifocal sclerosing adenosis. Anyone have something similar? My mother at 49y/o (1995) had a biopsy and they diagnosed her with lobular neoplasia. Nothing was done at that time and 17 years later, in 2012, she was diagnosed with Stage IIIB invasive lobular carcinoma. I am concerned that I am high risk since of my mom's history. I am meeting with the breast surgeon later this month. Is it worth removing my PASH or just watching it? The radiologist recommended one year MRI follow-up which I am not happy waiting that long to see if anything changes. Anyone have family history of breast cancer and being diagnosed with PASH? What kind of treatment did you seek? Follow-up? Thanks!
0 -
-
i was just Diagnose with Sclerosing adenosis and pash anyone know what’s happens next I was
0
