Triple Negative Stage IV
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@rlschaller You are the perfect person to lead meditation and I sincerely hope people will join. I would like to be there, but I will be out of town that day. Hopefully, I will be able to retrieve it on the site!
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Thank you @hippmark ! I’m looking forward to it. Pretty sure they will record the session and make it available . It’s a good program and list of speakers. My bit is all of 10 minutes at the end, and will probably do a body scan meditation .
Finished grading field final trip reports from my students, and now enjoying sitting on the couch, feet up. Made a pot of green tea and am tired lol.. the post radiation fatigue has settled in a bit. But happy I can sit, drink tea, and check in with you all ❤️
Went to MSK dermatology yesterday and saw my NP who did the biopsy, who specializes in skin Mets , for her to check the radiated skin, and she said it looked great though it is uncomfortable. She prescribed a topical steroid cream and gave me these foam patch dressings which help. Since it’s under the arm, it is a sensitive spot to begin with. But the nodules responded well. Which is great. Everyone is happy with the results .
Unfortunately though I have a new lesion/ skin nodule, on the breast that we radiated in November , which can’t be radiated again. My MSk MO saw it, and made a face ! Oy vey. So Doxil here we go. Hopefully the systemic treatment will get it. I start Doxil tomorrow. He did tell me , that we might in a few months look into a skin Mets clinical trial at MSK, that would not require I go off Doxil. So we might try for that in a few months, if the new nodule gets worse.. which hopefully it doesn’t and clears.. but I like that there are options. So we’ll see. My NP Dermatologist, Cara Norelli I saw yesterday actually runs the clinical trial he mentioned, such a small world, and said if / when I’m ready my MO should reach out to her. Though I would have to have more than one lesion to be eligible for it she thought , and hopefully that does not happen… so just Taking it all one step at a time. So many pieces in my puzzle lol. MRI came back clear NED , waiting on the PET.! @scgal08 How are you doing on Enhertu?
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@rlschaller Glad to hear you're able to relax and have a cup of green tea. You have been pushing through rads and I admire your strength. Sorry to hear you are having discomfort , that definitely i a sensitive area. I hope the cream works quickly to reduce your discomfort. Cheers to the nodules responding well to treatment, that is certainly a positive in the pain.
So onward to Doxil tomorrow, I hope you are well rested and it treats you well. So glad to hear you have options with the potential of adding clinical trial also. There is nothing more favorable then having your whole treatment team work together for you. Your are in great hands at MSK and you have the right mindset in taking things one step at a time. I always say don't look at the whole staircase but focus on each step. It has helped me tremendously.
I will be in your pocket tomorrow as you begin Doxil. Sending peace and strength to you❌⭕️
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