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Calling all triple negative breast cancer patients in the UK
With so many forums and threads on this site to go through for information, I thought it would be a good idea for all of us in the UK to form a forum specifically for us, and to give our details and experiences in a compact manner. Anyone else in the world is welcome to join in. I was diagnosed with a very large tumour,…
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Neoadjuvant EC Regimen precautions
Posting this on behalf of my wife (aged 34) who had been diagnosed with TNBC in October 2023. She had recently completed her weekly 12 sessions of TC regimen : Paclitaxel (120mg) and Carboplatin (200mg). Although there was Hair Loss and slight nail discoloration from 3rd week onwards, she had Nausea from Day 1-4 post every…
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Battling triple-negative, non-hormone-sensitive metastatic breast cancer
Hello dear community, My name is Yvonne, I am 56 years old and from the Netherlands, and I am currently battling metastatic, triple-negative, non-hormone-sensitive metastatic breast cancer. After undergoing treatments with capecitabine and paclitaxel, my oncologists have identified Trodelvy (sacituzumab govitecan) as a…
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Experience with Keytruda for early stage Triple Negative Breast Cancer
Hi Since the standard of care for early TNBC has changed and now includes Keytruda (Pembrolizumab) with chemotherapy in the neoadjuvant setting, followed by Keytruda alone for 9 cycles in the adjuvant setting, I was wondering if everyone on the current regimen could share their experiences? How has it affected you? Have…
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Calling all TNs
I think that we tn's need to have a sign up list like some of the other threads have...maybe put your age, and also what treatment you have had or are now having. What to do you think? I can start: age 50, diagnosed at age 49 1/2, lumpectomy, 4 AC Dose dense (every two weeks) and 4 Taxol, Dose Dense every 2 weeks. 35 rads…
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Trodelvy vs Eribulin SDX 7320
Hi, I'm Vita.My mom is Stage 4 Triple Negative breast cancer, now metastasis to liver. We have to choose this week which chemo... does anyone have any experience with these 2 listed above? Any info will be appreciated...
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Neoadjuvant EC Regimen precautions
Posting this on behalf of my wife (aged 34) who had been diagnosed with TNBC in October 2023. She had recently completed her weekly 12 sessions of TC regimen : Paclitaxel (120mg) and Carboplatin (200mg). Although there was Hair Loss and slight nail discoloration from 3rd week onwards, she had Nausea from Day 1-4 post every…
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Triple Negative Diagnosis
My mother is a breast cancer survivor, but one of her sisters did not survive triple negative breast cancer. This diagnosis is frightening. I am 45, and it was discovered through my mammogram. I had a biopsy earlier this week, and the results were sent to my email after hours on a Friday. I won't be able to speak to anyone…
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Medicaid Application/Renewal Survivorship Anxiety
I am a 39-year-old cancer survivor, and due to my BRCA mutation, extensive family history, and the fact that my cancer was triple negative, my oncologist has me under observation for the foreseeable future. I originally lived in Wisconsin, but moved to Texas in early 2019. I was transferred from the Wisconsin Well Woman…
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TRIPLE NEGATIVE (Age 74) Lumpectomy (twice) ONE positive sentinel node - REFUSING TREATMENT
Good day, I'm writing on behalf of my 74 year old mother. She was diagnosed February 2023 with Invasive Ductal Carcinoma and Ductal Carcinoma In Situ (IDC & DCIS). Triple negative was our diagnosis. Ki67 is 20-25%, Grade 2, Apocrine features. First lumpectomy - (March 2023) clear margins, one out of six sentinel lymph…
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Feels unmotivated and tired all the time
I have stage IV triple negative breast cancer and is now on the third type of chemo drug, Paclitaxel. My life-long dream after 35 years is finally coming true, but I don't feel like doing anything. I am not motivated and always feel tired and depressed. I try to take a walk and bath to make a change in such emotional…
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TNBC for my Birthday! Scared and Confused.
I've been searching everywhere to find a peer to peer group, to maybe find someone who has been diagnosed with my same form of breast cancer as I figure out what treatment path to take. I was diagnosed with TNBC on September 18th. I have since been on a whirlwind ride of getting doctors to respond etc. Here are my details:…
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Metastatic Triple Negative
Hello I am new here, diagnosed Jan 2023, chemo, surgery radiation. CT Scan October 2023, 3 months after completion of chemo showing a liver met (confirmed with liver biopsy) getting PET scan tomorrow. Looking to connect with other mTNB.
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Breast Cancer Vaccine Update
Breast Cancer Vaccine Update Dec 7, 2023 Dr. Justin Johnson explains early results from three small studies on a vaccine for triple-negative breast cancer. Dr. G. Thomas Budd, an oncologist, and Dr. Justin Johnson, an immunologist, are collaborating on research looking at a vaccine to prevent triple-negative breast cancer.…
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Triple Negative Stage IV
This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)
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Triple negative breast cancer
I just had my port installed today & I start the Ac/t chemotherapy on Monday. I'm a bit scared about this but have a very positive attitude towards it. Trying to have the GI Jane attitude about shaving my head ! But still nerve racking about being bald men just don't get it !
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Wait and worry
hi everyone, I was diagnosed on July 24, I got the call on my first day of vacation in Maine, I have IDC triple negative grade 2 size 1.2 x .09 x 1 Drew blood for genetic testing Surgery is scheduled for August 15 so I have time to go to Dana-Farber for a second opinion, my appointment is Tuesday, August 8 I’m finding it…
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Can You Pause Radiation for Triple-Negative Breast Cancer? A Study Says No
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IDC Grade 3
Hi everyone, I’m new and just beginning this journey. Had a callback from mammogram, and then biopsy after. Got pathology report today and it’s IDC, Grade 3. Mass is 6.5mm. The report says lymph nodes not identified but is that because they haven’t checked yet? Will I find out more on that later? I have to call an…
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Misdiagnosed as Fibroadenoma
My wife noticed a family large lump (4cm) on her left outer breast on 8th sept. We immediately consulted a general surgeon who said he was absolutely certain that it was a fibroadenoma. He sent us to get an ultrasound, and the radiologist saw two lesions 3cm and 1cm next to each other, and said they're definitely…
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33 yr old TNBC Stage 2B and 13 weeks pregnant
Hi community, I'm: 33 yrs old and 13 weeks pregnant Diagnosed with TNBC, Grade 3, Stage 2B Cancer found in right breast and size 3.8 cm Cancer not found in lymph nodes yet I'll be in 2nd trimester next week and my husband and I are trying to evaluate the pros/cons of different options: Option #1: Keep the pregnancy and…
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After mastectomy problem.
Hi My mother has triple negative breast cancer,stage 1,tumor grade 2, no lympnode are affected . After the doctor said it was cancer, the operation was done. The type of operation was mastectomy. It has been 44 days since the operation but the seroma is still not closing. Now what can be done in this situation? What could…
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Triple Negative Bone Mets, and ???
Hello everyone, I posted not long ago when it was discovered after 12 years of NED of have mets in the bones. I'm having a really hard time navigating this new forum, so I apologize in advance if I'm not posting in the right place. Never had issues "before." I'm sure I'll figure it out eventually lol. So of course I don't…