Triple Negative Stage IV
Comments
-
Steph, do tell more if it helps cuz I just don't really even understand what's going on. What does the Mayo onc think and have to offer that is different? Is it something that your local onc could do but won't? Are you able get treatment from the Mayo onc? Or are you just trying to decide which advice to take? Is what the Mayo onc believes what you most believe? I think what I'm hearing from you is that your local onc is pretty much throwing in the towel but the Mayo onc is not. Is your local onc's pattern of putting people on doxil when there isn't anything else to do standard treatment? I hadn't heard so much but like you, what do I know? Oh, I am so sorry to hear your pain. With all the questions we all have, there is one thing I know for sure. You are an amazing mom...nothing horrible about it. Take heart, friend. Come vent, cry and find hope. I'm praying for you!
0 -
Steph - You've only had taxol so far? There are many other treatments to try. No one throws in the towel so fast. When CMF, Adriamycine and Gemzar all haven't worked for me at all so far, I asked my onc if I'm now hopeless - She said she chose breast cancer to specialize in cause there are so many options of treatments for BC!! (I guess less for TN but she's not giving up hope yet). Like Kaay, I also don't exactly understand the situation. Go to the best breast Onc you can find. I would think Mayo is, no? (BTW, what's an MO? - I see it all over this site and don't know what it is). Steph - have faith. Taxol worked for you (even if for only a short time) and your body will respond well to other treatments too. Keep fighting this monster. The cure is almost here. That's my plan - Hold on till there's a cure. It's coming in our lifetime
0 -
Nrsteph, I tried to write a post but with chemo nerve damage my fingers fail me sometimes and I deleted my typing and had to go away to calm down for a bit... I am so very very sorry for your dark place.. you are not a horrible mom! take the time on the couch, watch movies and cuddle with your 3 little ones..that's quality parenting and living mindfully and deeply grounding for everyone.. It lets kids feel valued for who they are and showing them they can nurture too. No matter when we leave their lives, that has to be a lasting core they will hopefully have as adults.. (I am tearing up here as I am believing this to ideally be true with my family - and for other people living with mTNBC too)..
a kind, wise friend recently told me I don't have to try to live 30 years, but instead try to live to the next new trial, or the next new treatment, and that gies me some peace at times.. Which brings me to my next comment:
Thanks minxie, sherriw, kaayborg, donnad, amber and anyone else I've missed, for the resources, info on new drugs and links to trials and emerging info..it helps me feel better prepared when I meet with my onc... and to carry on from nrsteph's post:
I also am angry on your behalf, having been there too with crazy info and mixed directions.. I think Onc.'s need to be held accountable for their conflicting, contradictory treatment plans. This is all a big muddle that's so unique to each individual. We are experts on our bodies (and you are trying to relearn them, and to again trust your instincts that seem to have let you down so drastically - speaking for myself).., but Onc.s have wider exposure to other people with TNBC -- they should have better skills with people to address all the confusion and pain. I get tired of feeling I have to be so clinical and informed to participate in this process .. I feel sometimes I am having to get information and have to ask my questions in certain ways and use certain buzz words to get a fuller briefing - come in with my reference numbers, researchers' names.. and I am so tired sometimes..!!!
TexasRose, so sorry that CMF stopped working.. I will cross anything that can be crossed that good results give you stability on your next recipe. I got the first good news in a year about my health that my 3 CMF doses are doing something! A whopper liver met found in the spring had doubled from 1ish cm to 2ish cm , and other developments in my lungs and aorta area etc had lead to my stopping Xeloda and starting a clinical trial in July. during the 4 weeks between scans on that trial, that met became 8.3 cm! CMF started the next day and that met is now halved, as are most others; bone mets are stable - and nothing new found!!! phew for now..
I was thinking of you on your patio in Texas when I was bundled up Monday night looking at the Super Moon here in Ottawa...Kaayborg, your inlaw event was too, too real 2 weeks ago. We learned - while updating wills and financial planning (based on my onc's very blunt info - and our "prepare for the worst, hope for the best" approach to life) - that my dh's health wasn't what last year's regular annual physical had left us believing.. He had a nosebleed that wasn't stopping -72 hours off and on- and our GP luckily took a BP reading, and then 3 others. She wouldn't let him leave the appointment without a prescription. The "tightness" he hasn't told me about (his thinking it was stress with all our cancer stuff, just self-managing through deep, calming breaths) - all have started good solid steps: testing, bloodwork, prescriptions, 6 followup appointments at 2 week intervals. His mother: "They don't what they're talking about.. don't fuss - look at your father and me", implying they are the picture of health. they are not. We have always lived healthy and ate sensibly, but this is a big tap on the shoulder that he needs not to handle everything, and keep quiet to shelter me.
sister-sister, I am glad you are out of hospital. my lung situation is improving but I was close to all that in the summer. I am learning from what you share..
and I again want to repeat that this thread is so necessary to me and how much I appreciate everyone's comments and participation. Even just knowing that others are out there and just, like me at heavy times, viewing the thread, helps.
good wishes to all, J.
0 -
To all, I could really go for a ladies night out, good conversation and a cup of coffee or whatever. We'd all have a really good cry and the wait staff would have to awkwardly let us know it's closing time. And Josie wouldn't have to spend so much typing (but I am so glad you did anyway). I seem to go through these periods where I feel everything so deeply. It's probably in some way drug or hormone related but at any rate, I'm in the thick once again and I just want to hug all of you, and rip a few other people to shreds. The good feels so good and the bad so unacceptable.
0 -
Hey Steph, I am with Donna. You have only had Taxol....how can there only be one more option. Taxol was my first chemo when diagnosed stage 4 and it failed me. So we moved on to CMF, which kept me stable for 1 year, now CMF has stopped and we are moving on to GEM/Carbo. If that fails me my ONC said we will move on to Havelan. And that there are more options beyond that. What did the Mayo say??
Josie...so glad the CMF is working for you. I will also cross everything that you have a long relationship with CMF.
I know I am not on here very much....but I too really enjoy this thread and keeping up with each one of you! God bless you all!!!
Julie
0 -
I am so willing to meet anyone at the top of the empire state building (I watch too many old movies) anytime for an annual stage IV TN meeting of minds aka girls day or two!!! Doesn't have to be empire state building;)
0 -
I just love you Steph!
0 -
Right back at ya Kaay! I think I could get anywhere for a couple hundred!
0 -
truly a forum for wild, wild women!
0 -
Hello nrsteph, 1st Get Off the Couch! Remember you Guide your Care, don't believe any Doctor that say this is the last Chemotherapy Available to Help your Condition. You Don't Need a Doctor that's So Wiiling to Give Up the Fight. I have Metastasis to the Lung and Brain, I'm currently on Oxygen as I write. Live Everyday with Hope, Love and Laughter. Make Memories, My Saying Is, Never Lie Down, until You No Longer Can Stand. You're not a Bad Mom for laying down if you're tired, but please don't give up the fight. Go with the Doctor that want to Help You Fight. Praying for you
0 -
I've decide that the Halevan is working for me and my onc plays along with me. My scan was pretty much as expected. I have a large ugly tumor on my breast so there's no question when it's growing. Plus I was having strong pain in my chest bones and then the tumor started oozing...We knew the CMF, Adriyamin and Gemzar hadn't worked even without a scan. But then I started Halevan and there was some improvement. The oozing stopped, which was a really good sign, and the pain is really much much less. Well that was two cycles (3 weeks = 2 treatments each). But now the oozing started a little. Did it only work for 1 cycle? Monday is chemo again and I'm really praying very hard to see more improvement. Halevan is an amazing easy treatment (for me). Treatment is half an hour of steroidoids and then about 10 minutes of Haleven. No nausea. I finally got up the nerve to skip the Emend - (The onc said I didn't need it but I didn't trust her so I kept taking it
. My hair's not falling out, but might. It makes me tired a little, but nothing big. So I like this drug. I just wish it would really work for me.I'm still living in denial. Barely told anyone that I have cancer and no one knows the seriousness. In May when my stage 4 was diagnosed I didn't think I'd live through the summer. Then I found this forum and stopped reading articles on the internet. Everyone here was so upbeat (then anyway) and it rubbed off on me. I'm talking treatments, WBCs, ports... but not thinking about what might happen. I'm really expecting a miracle. I pray a lot and work on my religious life. always trying to improve on what G-d wants from me. If you're connected with a religion, now is the time for it. Won't discuss religion here since everyone's is different and it's personal so I'm just saying that I personally am finding myself glad to have this outlet now. Makes me feel like I'm doing something.
I still haven't gotten the approval to start taking that diabetes drug (For NAF1 from that news clip from that University in Texas). I still have the onc that is going to be doing the trial in her hospital in a few months trying to get me permission to start it now. My onc is also asking her hospital for permission but I know she's not trying hard. She really doesn't have a lot of faith in it. She told me I really shouldn't be expecting a miracle from this drug, but she's asking for permission (like, yeah, right). I'm not sure, but possibly it's politics between the two hospitals. because the trial is being done in the other hospital. So I'm waiting to see if either can get me permission to try it now already. Imagine if that drug really did work!! It's so close and such a simple drug to take. Like I said. I'm praying for a cure in our lifetime.
0 -
Nrsteph - I've been thinking about you. This crap is difficult enough, but I can't imagine the added stress of not having a good and trusting relationship with your mo. I hope you get the treatment options straightened out soon.
Donadd - I don't know about the oozing, but I can imagine all kinds of scenarios where the halevan is working and you still see that. I had my own small progression (one new bone met where my bone scan had been clean before) and onc recommended we try two more cycles and wait and see. It was torture, but the next scan showed a small improvement. I'm sending you all my positive thoughts.
Kaayborg - I know what you mean about the emotional ups and downs. Some days I am startled to realize if feel happy and want to yell to the world "today was a good day!" And then sometimes I am so weepy anything sets me off.
I've been flirting with a dose reduction due to the neurapathy. My onc says it's really a personal decision based on how it's impacting my qol. He leans towards wanting to avoid risking having to stop a drug due to se, all I can think is that's it's working so let's not change anything. Actually just thinking about a dose reduction makes me weepy and scared. Any thoughts or advice? Are there any actual studies out there for guidance? All I can find relate to curative settings.
I ended up taking an extra week break between cycles. Partly because I really wanted to move up my treatment day and haven't been able to pass the blood test a day early. Partly because I have terrible stomach aches on week 1 and 3 and this puts both thanksgiving and Christmas on low side effect weeks. Day 1 was Tuesday, so yesterday would usually be a rough day. I can't believe how good I feel. So yay, "today is a good day,"0 -
nrsteph - there's got to be more options out there for you. I'd check out what the second onc is recommending since the first one is being so negative.
donna - I'm hoping this round of chemo does the trick! I know what you mean, very few people know that I've progressed to stage 4. I plan on keeping it that way as long as I can.
I met with my oncologist today and the recommendation is that I do the Glembatumumab clinical trial. Only 2/3 of the participants get the drug. The other 1/3 get Xeloda, which I was interested in because of no hair loss. It seems silly, but I cannot stand to lose my hair again. They're going to test my tumor and see if it expresses gpNMB, which is what the drug works against. If so. I'll probably do it if I'm accepted. But I will use a cold cap this time. I'm pretty unhappy about the thought of chemo again as I was so wretchedly miserable on it 8 years ago. Here's a link about Glembatumumab if anyone is interested.
0 -
What's an mo? Same as onc or something different?
0 -
Mo is just short for medical oncologist, so in most of our discussions, the same as onc. I had a surgical oncologist as well who did my mastectomy but does not advise on chemo or other medicinal treatments.
0 -
thanks
0 -
I don't think the Halaven is working and I thing my cancer is growing faster and faster. In my PET from two weeks ago they saw growth in my left hip bones, Yesterday I started feeling it and now it's painful for me to walk. I just got permission for medical cannabis. More and more pain relievers. That's not what I need. I need a drug that can slow down this cancer. So far nothing has worked for me. I'm the typical TN case that we're trying to beat. None of the drugs work for me. NONE!! Monday when I was in the hospital for chemo I met with a nurse who was so excited to give me instructions for caring for the oozing sores on my breast. We're not caring for a cut on your knee. The oozing will only stop if the cancer goes away.
How much time do I have left? How do I tell people the truth? How will I tell my kids? (5 kids ages 15-28). They all know that I have breast cancer but have no idea how serious (maybe they know more than I tell them). How can I tell my mother and my sisters? I'm sure that by now they suspect that it's more serious than I say, but we don't talk about it. We just talk about how I'm feeling and how I'm handling the chemo. I really feel OK... Sort of. How does someone respond when you tell them that you don't have long to live. I don't want to tell people too early. But when do you have to tell? I have a lot of old friends who I see "sometimes". The friends that you can't believe that so much time has passed since you last spoke, but then you pick up 10 year old conversations just like it was yesterday. So do I call them to "catch up". I don't want to discuss dying with people, but I don't want people to feel bad that they didn't know before. And, my kids... My son is out of the country for half a year. My daughter is going for a trip for a month now. I don't want to keep them from traveling but they'd feel terrible being away in the end. They'd ask me why I didn't tell them. I just can't. I hate to think of people suffering because of me.
And I hate the thought of being pitied and of being take care of. The only one I ever let care for me is my husband. I told 3 close friends that I have cancer. So they want to help. They want to take me for chemo. I don't want them! I only go with my husband. I let my kids help out a little but not coming for chemo. It's too personal. I've always been a very private person. I've had MS for 30 years. I kept it a secret as long as I could and no one has any idea what a major disease it is. That's just how I am. I don't like to stick out and have people discussing me. I would like people to pray for me but I don't want one of these weekly prayer groups (that's what we do).
Yes... I'm feeling down. I just don't know what to do. I just want this to go away. I want to live a long life like everyone else. No one in their 50's should be thinking of the end.
Sorry about that depressing post. Here's the only place where I speak honestly
0 -
Oh, Donna. I am so sorry to hear this. "How much time do I have left?" That is the unanswerable question the burns in us all. Just when I think it's the one thing I'd like to know, I second guess it, fearing too much the answer. No point really though. Don't get to choose, knowing or not. What I hear you most agonizing over is when and what to tell people. Of course, each is comfortable with a different approach, but what is yours? That's what you're trying to figure out, yes?
My two cents for your consideration, take or leave it, of course: In my searching about what to tell my children I came across a few writings from adults who were still hurting over the loss of a parent as a young adult. They had been left out of the loop. One had returned from school to find her mother on her death bed. No one had even told her she had cancer. Another saw her father thinning and ill but no one explained what was happening and they lived in quiet fear. This does make me so sad. I don't want that for my kids for sure. But my kids are 13 and under. I'm not ready to tell them my prognosis, though, I am in constant debate over when is the right time for my eldest. If things go south before I feel she's of an age to cope (whatever that means) with more reality of my disease, our plan is to tell the kids when my treatment options have been exhausted, hopefully leaving a few weeks or maybe months before my death.
For you I see two options. 1) Tell people now that you are growing concerned about the seriousness of your cancer as you haven't yet found a successful treatment. Let them know it is of life-threatening nature, that you hope a treatment will soon be found but are worried and wanted to let me know honestly how things are going. It would allow you time when you are feeling relatively well to deal with the emotional upheaval that this is. It was really, really hard for me to share my diagnosis and I hate doing hard things and thinking about having to do them, so I dealt with it in the same way I do everything I don't want to do. I do it as quickly as possible so I don't have to think about it anyone. I also did so very impersonally, via email, except for my siblings and parents, which I think is weird, but I decided that I'm the one with cancer and I get to choose the how I'm most comfortable to share the news. I could not imagine telling everyone face to face and weeping so many blessed times. I think you should also feel bold in telling people exactly how you'd like for them to respond. "I wanted to let you know honestly how I'm doing but I need you to respect my privacy. I don't want to talk about it unless I bring it up. I'd prefer to have my husband present for treatment and no one else. I appreciate all of your care and I'll let you how you can help when we need it. No prayer meetings!" Maybe I'll change my tune, but I'm with you on the last one for sure. I can't bear the thought of being present for a mighty prayer session, though I do appreciate people praying. I think this option might be too early for your style, b/c I haven't given up on your treatment yet, but I wonder if you might not just feel better for getting it out of the way. After a while the shock of telling fades and things do feel more normal. You may just feel more at peace having it out of the way. And, what you suspect may indeed be true that some people already kind of know.
2) Wait til you really are out of options and discontinue treatment. From what I've gathered most still have a few weeks to months after this point, where you could let people know with more certainty the time frame you have that remains. In the meantime, rest easy knowing that's the plan.
I have no idea if this is of any help to you but I've typed the long thing so I'll submit. Bottom line is, it's hard. I like to do things by the book, but there' no book on this. I've looked. Not much good googling either. It's so personal and only you can decide. I have to think even those grown adults wishing their parent had just told them sooner recognize the good intentions of those who chose not to tell much at all. And there are probably plenty out there too who knew all and wish they had not. Really we all have no idea and can only do the best we can. Just another unknown to swallow.
Always thinking of you, Donna. Oh, do be well!
0 -
Thank you Kaay. I'm just going to ramble on some more thoughts. I just remembered something. About a month ago I told my siblings and my husband's siblings that they could tell their kids that I have cancer but not past there. My nieces and nephews are ages 15-40 - Mostly young adults. My daughter told me that some of them wanted to know if they should call me but she told them Whatsapps were enough and they were. I certainly didn't want to discuss with them. They might be grownup already but to me they're always my little nieces and nephews. I actually saw a lot of them recently and I forget the situation when they say Hi, How are you? I now realized that they're thinking "cancer" while I was thinking regular greeting. That was a good way. I didn't have to tell them so when I speak with them I don't think we're discussing cancer. But it wo't be the same as friends find out.They'll call. - Those are all the people who know nothing. For the close family - My parents and siblings, I think they'll find out more soon since my hip is making walking very hard. I can blame a little on my MS cause I always limp a little, but today it was an effort to walk from the table to the fridge. My sister's husband died from cancer 10 years ago and the last thing was the pains in his hips. He was in a lot of pain so they replaced his pelvis but it didn't save his life. So if I say my hips hurt everyone will know what's going on.
I want to say more, but I don't have time now. Thanks a lot fo your long post
Wishing everyone.a Happy Thanksgiving
0 -
Spent the weekend with friends. I told them that I have breast cancer but not much more than that. Tomorrow I'm going to a different onc and hopefully he'll have new ideas for me -- Different hospital than the one I'm being treated in.
0 -
-
Donna- five children, you are an amazing woman. I have three and am a crazy person most of the time! I hate that you feel so alone but am so glad that you can express everything here. I have read the fight in your posts and know that you are a strong and determined person who will not go gently into the night. You have been a fierce poster and I know you will continue to fight. Like you told me when I was typing and crying...we just have to hold on until they find something for us, it will happen in our lifetime! I clung to those words and now that I know you have five children I appreciate the comfort all the more. I know I have said this before but I signed up for a google alert for TNBC and almost everyday I read an article about the progress someone is making somewhere. Doctors and really smart scientists are working on this around the world and making all sorts of progress. The article I posted above, says they are looking for a trial to begin in late 2017 just a year away!!!! I know that this may not be the magic TN bullet but it is progress and that is reason enough to hold on longer. Donna, I can't even imagine how you must feel. I know I look at my three babies and stroke their faces and it gives me strength to fight. I know you don't like to talk about yourself to your friends and family but maybe a professional or a very trusted friend, someone you can physically reach out to may help take some stress off of you. Stress is no good when you are trying to fight. However you choose to handle this I will be with you 100%. I am sorry for the delay in responding I took a break from checking in every 30 minutes over the Thanksgiving holiday. Keep venting here, we are with you!
0 -
Hi all..
Did any of you talked to your MO about IMMU-132.. https://www.sciencedaily.com/releases/2016/06/1606... is there anything else talked about apart from the old fashioned chemotherapy?
Great women here, you are fantastic! courageous and inspiring!!
Thank you for keeping this fantastic thread!
0 -
-
Hello donnadd, my name is Tracey, I understand what you're going through. I'm currently on Oxygen with a Catheter coming out my left Chest Wall, with Cancer Mets to myRight Lung and Brain. I've lost over 35lbs in 3 months. I have no appetite and everyone is telling me to Eat, but it's so hard, no taste buds. Nothing is working for me. My Husband Drains the bloody Fluid from my Chest ever couple of days you help me breathe better. My Oncologist don't seem to care as much as he pertrade at the beginning. I had TNBC 2012, Radiation only, then 3 yrs later Mets to Lung and Brain. My Oncologist never paid any attention to my Brain Mets, never did a MRI, until I was unable to walk a few days after my 51st birthday, nothing more can be done, what do I do now.0
-
Thank you NrSteph. My 5 kids are pretty big (15-28). They're more help than work now (YES, One day that happens). I can't bear the thought of my kids crying over me. They know I have cancer but I can't bring myself to tell them it's worse. My husband is wonderful but refuses to face the facts. Sometimes I say "You know I'm going to die". He says "Who said that?". I guess no one really said it. My husband chases after any doctor or lead (I would do nothing).
So last week after my depression here things picked up. I went for chemo (the halaven has no side effects on me and the treatment is under an hour). So I stuck in an appointment with my onc. She said she's not positive that the halaven isn't working cause she thinks my breast feels softer. I don't think she's right, but OK. I asked her if I've hit the end of options (so many drugs haven't worked for me). She said Definitely not. She gave me the names of the next 2 drugs she's thinking of (I'll write them here later). And she still doesn't want to try Taxol which she's sure will really affect my MS. I see that as a good sign. She hasn't reached her last option yet.
I'm going for Radiation for my hip where the growth is and maybe my sternum too. It's supposed to shrink the growth and help the pain. My husband is picking up my first month supply of medical cannabis. Now that ought to pick up my mood
. Last week I went to a Dr in the hospital that was supposed to have the trial with the diabetes medicine for the NAF1. Remember my $500 consult? Well it seems that they're not planning on doing that trial. Can't get a straight answer there, but that Dr sent me to another Dr there who's involved in the research and trials in that hospital. So I'm having a biopsy done there on Thursday and they'll look into all sorts of things. They send the biopsy to the Weitzman Institute which is the place mentioned in the article that you just posted right above here. After I spoke with that Dr. he had me do a blood test for all sorts of things they're testing. Actually, the blood was for their research, not specifically for me. Doesn't matter. As long as these scientists are excited to get another "guinea pig" giving them live TN blood and biopsies they'll try to cure it.
I'm letting my 25 year old daughter go on a 5 week trip to Mexico and Guatemala tomorrow. What does "letting" a 25 year old mean? It means I didn't try to stop her by telling her how sick I am. It means I plan to be around in 5 weeks too. And it means that I'm still not spreading the word.
My main issue now is that my very big tumor on my breast is oozing. It's disgusting. So I bandage it with all sorts of things. The nurses in the hospital are so involved. One is actually in the middle of a course on sores. I let her take a picture (for Show and Tell?). She wrote me a whole "book" on how to care for it. But the next time I was there, she wasn't there and the nurse there had a better dressing option. Something more waterproof.
So now I'm following my husband's lead. He makes appointments, fights the health fund, speaks to professionals he has contacts with, goes to pharmacies... Keeps me busy. (Sometimes he goes to work too).
I just wish there was a cure
0 -
Tracey (sister-sister so people don't have to scroll up to see who Tracey is) - Have you tried all the different chemos? There are a lot to try. If you don't think your onc is trying hard enough find one who will try harder. Pay privately if you have to. We keep trying. I'm being treated in a top hospital. I like my onc but she's young. The staff in the hospital meets once a week so I know she discusses me with the head of the department. I paid privately $500 for a second opinion with the head of the department in another top hospital. I took her recommendations back to my onc and made her look into them for me. Basically I'm keeping my onc on her toes. I also follow Kaay's advice of asking my onc What's my next drug if this doesn't work? This time I caught her off guard. She said she's not positive now (gave me 2 possibilities) - That's okay cause I'll do another 3 week round of Halaven before I come back to her, but now she will think hard and she'll also discuss it with the dept head.
About your mets to your brain - I remember reading a few pages back someone who had successful radiation to their brain... But overall, my theory on mets to different places... (This is my theory) - Once you metastasize it doesn't matter where. No mater where it is we're still treated as breast cancer cause that's how it goes. You don't have brain cancer. You have breast cancer in your brain. So you get chemo to treat your breast cancer and if it works it will work everywhere. I'm going to have radiation on my hip for comfort. It will take away that growth that is hurting my walking but it won't prevent the cancer from popping up in a different spot. The chemo is more important than the radiation and they can't do them together. That may be why your onc isn't paying attention to your brain mets.
Keep pushing your onc for the right chemo for you
0 -
Today I went to meet with the doctor for radiation My onc suggested it since my PET to take care of the pains in my hip. I said definitely my sternum too. So the doctor (I don't if she's called a radiologist - she's setting up my radiation) said that she can stop the oozing with radiation!! She called my onc and said she's setting that up too!! I don't know why my onc didn't suggest that before. She said she'll give me one super dose so I can keep up chemo (which doesn't work anyway)
0 -
We will take the small ssuccess!!!! I am happy you got hopeful news today. Also glad you are sounding more yourself!!! Fierce!
0 -
Quiet on this thread lately. I'll bump with good news that I've completed by 20th round of carboplatin (that's roughly 40 infusions, and a bit less than 1.5 years) and it's still shrinking those tumors, though just a few mm at a time. And, my platelets keep hanging in there just barely so still no more delays.
Wishing only the best news for all of you too!
0
