Afinitor/Aromasin
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Hi, how are you ladies on this combo?
I'm getting a rash all over my upper back and back neck...anybody else experience it? I'm wondering if it can be due to this therapy as I never had something like this before...
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Hi amel 83. I hope the rash has improved. I don't have that but I have seen rash on the side effects list. I have sores on my lips and not healing very well. Last night bleeding lips trying to eat at a restaurant 😩 annoying and painful.
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Hi
I just got my TC scan result and look like the meds are working. I'm so happy! Scan showed no progression and in some spots light regression.
Markers and liver test stable.
The onco told me in only two months of therapy he didn't expect anything better.
No very many sides effects eather.
I'm too too happy, I hope it will last!
@mkestrel I hope you are doing well. How are your lips?
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I hope with a lower dose it will resolve.
You are using the desametasone mouthwash right?
They told me to do it 3 times a day, for 2 minutes each time. And not to drink or eat for a while after. It really help.
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Thanks! Yeah I've been using the dexamethasone mouthwash I'm cutting up my food and tiny bites trying not to touch my lips, drinking through straw...
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I just wanted to say here I'm doing propolis mouth rinse. I read they were good for chemo induced mouth sores, so I tryed it out. It seem to actually work. I diluted in some water the propolis extract and rinse 2 time daily.
Before having any new supplements I always read if they don't promote cancer or interact with my medicines, and I discovered propolis may actually have anti-cancer activity for metastatic breast cancer.
A little update on my situation: my ALT rise to 90, so I'm quite concerned. They never been so high before, and just last month they where down to 40. So I'm afraid my third line of therapy already stopped working, after only 2 months. I dont have markers results yet, they will only give them to me next month. I hate to wait, and i hate they know the results and don't give them to me, as I usually show them to another oncologist as well. But i giess I will wait...
Also I hope this ALT rise is due by something else than cancer, but I'm so scared it actually mean progression!
I hope other people on this meds are doing good!
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I just want to know what utter monster decided to flavour the gel mouthwash I’ve been given with aniseed? Bleeergh…
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Amel, my ALP was 161 last week. Incredible but they don’t seem to be worried at the hospital.
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So it may be due to the medicines I would think. Mine fortunately is now stable, but nobody is explaining why is high...they just told me it was ok...
And my mouthwash is just plain bitter...terrible! Why they don't make them just slightly minty...
Does it work for you? (other than the aniseed!)
I have a sore on the tip of my tong that just wont go away
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@amel_83 Same here. Tip of the tongue and some soreness on the lips. Otherwise not so bad so far…
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