Afinitor/Aromasin
Comments
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Looks like Rx to go is for Florida and I am in California. I went to the largest CVS in the area and they couldn't even order it because it wasn't on the "list". Can anyone in California, especially SoCal let me know where you are getting scrip filled? I am calling pharmacies, but many don't open till 10 today, some not till Monday.
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Hmmm...can't the MO give you some information? He must have other patients on Afinitor.
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I tried yesterday and didn't get a call back.
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My daughter lives in Sherman Oaks. Is that near Ventura?
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I live in s. cal and get it from the local ucsd cancer center. It is a pain to get I though.
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I am about 45 minutes from Sherman Oaks. I've just talked to 4 pharmacies....big ones too....no one can get it. I would drive to LA to get it if I need to!
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Have you tried big hospital pharmacies? Like UCLA?
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what about calling your insurance company? You'll probably have to wait until Monday, though.
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Hospital pharmacies all seem to be closed today....will have to wait till Monday. Thanks!
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Romansma,
I'm surprised to hear you can't get Affinitor from CVS. CVS handles all my prescriptions through United Healthcare and I get it from them. They do have to order it specifically from the MFG. I can not get it just going to a CVS store. They ship it to me. CVS is Caremark and I believe their headquarters are in MT. Prospect IL. I'm in California. Try calling 877 408-9742 and select #5 for oncology. That's the number I call every month to place my order.
Terri
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Thanks Terri, I will try calling. Two of the Cvs stores here have said they cannot order it.
Just called.....they are open Mon-Friday. Will call Mon morning. Thanks again for the info!
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Hi:
Just found out today I have progression - now it's nodules in my pleural cavity - I already have skin mets - anyway I am starting on A/A - Aromasin this week and Afinitor in the next four weeks as I am the "se queen" and my onc wants to ease me into this treatment - I was a complete failure on Femera and Arimidex (2X) - so thankful you're all here - I would find it close to impossible to be on treatment without back up from BCO ladies - thanks for being here! Hugs, S.
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I'm with you Sandy. Swallowed my first afinitor tonight.. I too flunked arimidex and refused to even try femara. It's supposed to be that 60% tolerate those drugs just fine and 40% don't. I keep getting stuck in the 40% group. This is my 2nd go round with aromasin, short try the first time. So far so good. Packed cells tomorrow and I should feel better.
I wish us all luck. Prayers for well being. Hope Romansma found her meds. Good night all.
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Hi Sandy and Rosevalley! I hope this combo works for all of us! I don't have confirmation on the Affinitor yet, but I think CVS Caremark is working on it. I registered with them and then put my Onc office in touch with them. Thanks Terri! So, the two of you didn't have any trouble getting Affinitor?
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I got afinitor samples to hold me over from my MO. Insurance is still screwing around, but they will approve it. Then it will come from their specialty pharmacy and I will need to go and pick it up. Good luck on the merry-go-round! Frustrating isn't it?
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Hi, Everybody, and welcome to those of you who just joined this thread. I've been pretty sick for about a week and saw the PCP yesterday. He did blood work and wanted me to get a chest CT to rule out clots. He really thinks all the symptoms are from acid reflux, though, so we increased the Omeprazole and started on some other acid reducer. But...I'm allergic to injected iodine, so when I tried to make an appt. for the chest CT I was told it would have to be done in a hospital. The hospital called to say that starting 13 hours before the scan, I have to take 3 doses of 50 mg each of Prednisone plus a big slug of Benedryl. My PCP thought one cause of the increase in acid reflux is that I've been on Prednisone, tapering off now. I called the PCP and we're going to hold off on the scan. He doesn't really think it's clots anyway. I'm supposed to go to NC from Feb 1 - 10, so I hope I start feeling better!
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I've talked to the PCP twice today (He's young and not arrogant yet. Really smart, too). The blood work shows that the liver enzymes are high, so I'm going to repeat the labs on Thursday and also have a liver ultrasound. He said there are several possible causes, but of course, I'm thinking mets.
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MaryLW_ Why is your PCP involved with this? Wouldn't your MO be doing the liver ultrasound with high enzymes and the reflux interventions? Just curious.
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I really didn't know who to call, but with an HMO, I decided I'd better see the PCP first. He's sharing the test results with the MO. I really like this PCP, though. I just started seeing him early in January, and I wish I'd changed doctors sooner! I have an appointment with the MO on Jan. 12.
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MaryLW- Oh.. I have AN HMO too. I can't get a bandaid with out going through my PCP. Glad you like your new PCP that's important. I just heard from the specialty pharmacy and they will send my meds through the mail. Which is nice I don't have to pick it up. They seemed very helpful and the pharmacist spoke to me. I think she was surprised by the every other day dosing 10mg maybe that's unusual? I have seen 5mg every day and 10mg. What are most of you doing? Maybe this is the slow start for SE sensitive folks.. that would be me.
Hope Romansma found her script. Good luck all. Stay warm and dry.
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I've always been on 5mg every day. This is the 4th month. The MO keeps saying we should try to get to 10mg, but not while I'm having SE's from 5. I have something going on with my liver now. Side effect or progression, I guess.
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I received a call from my Onc office....they said they would send it to a specialty pharmacy in North Hollywood. Hoping no more setbacks and to have it by end of week. I went in for CT simulation for radiation. The mask and being bolted to a table is a bit more than I bargained for.
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Romansma- a mask and being bolted to the table would un nerve most any one! Is this for brain mets? I'm glad you will get the meds filled. Now lets hope it works for all of us. Are you taking the 5mg? Or the 10mg?
Wishing us all luck with this.
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My onc is having me increase to 10mg of Afinitor 3 X a week. I started getting mouth sores again & got bad acid reflux when I took 10. May try to take them in the morning instead. I did put honey on mouth sores--it totally relieved the pain even though the sore is still there.
Hope SE do not get worse.
Terri
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I will be taking 10mg everyday....when they get here. The mask that covered my entire head and shoulders is for radiation to my upper C and T spine. Not a good day. This pic isn't me, but this is what it looked like
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Romansma- Yikes, that would un nerve me big time. Good luck with the treatment.
I have a PET scan today at 12:30. sitting here sipping water.. breakfast of champions. It will be interesting to see what lights up. We know from the labs that it's in my bones. Not looking forward to the long drive.
Wishing you all a good day!
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Good luck with your Petscan. Hopefully they can figure out what's going on and treat some of it.
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I got horrific acid reflux from Afinitor. I didn't realize that was a side effect of Afinitor. I'm taking 80mg per day of Prilosec plus 4 grams of Sucralfate per day to try to get it under control.
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The PCP called with the results of my blood work and liver ultrasound. All good news! The liver numbers are going down and the ultrasound was normal--no mets! He thinks I've had a virus. I'm so suggestible that I started feeling better right away.
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I'm so happy for you! Does that mean no mets and no more Afinitor?
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