Team ILC Warriors
Comments
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Shary,
Feel free to check on me prior to Monday. I look forward to hearing from anyone wishing to talk. I know its a part of the process that keeps us going strong. Your FRIENDSHIP is greatly appreciated!!!
Hugs and love,
Mo0 -
Molinda Im here and praying for you. It WILL be ok. Get some meditation music and candles and spend your weekend watching the stars listening to nature and just relaxing. Give yourself some mental shutdown time. Healing hugs
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Melmcbee,
Thank you for your encouragement. All of you ladies are awesome and getting to know you all is actually a perk from having breast cancer. I am thankful for all of you. Actually some friends and I are taking our kids to a country western bar tonight as it is family night with dance free lessons...kind of a last hurah so to speak. Looking forward to some goofy down time from all of this. Then I plan on finishing a book that I started when I was dx. Then just enjoy family and friends taking it easy. I will heed your advise on the nature/relaxation music to help keep me in check...
Hugs and love!0 -
I've had two surgeries at different times for fibroids. They are driven partly by estrogen, which makes sense that the tumor I had was highly ER+...
This past Monday I had the nipple "delay" ala Angelina Jolie (hopfully I get to keep my nipples if they don't have any cell activity going on under them--PS took biopsies) I have surgery on the 3rd. Apprehensive.
Claire
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Claire, hugs, it will be wonderful and you will look beautiful and you will finally be able to put this behind you. Prayers going up for you.
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Thanks, Mcelbee, I've been posting on the July 13 surgery thread but they seem to already know each other and aren't offering much support for me in particular. I'll keep all of you in the loop as I can since I the ILC warriors understand me, already.
Claire
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Yeah, my NorAz friend....I got pretty much the same response on the surgery thread.
How are you feeling? I have to say that knowing all the big stuff is behind me feels darned good and some days I almost feel like my old self again. Mel is correct....moving forward is wonderful!
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Hey just a thought but im on the may surgery thread and it is dmall and close and you feel free to post there. There are people on there who are still going thru procedures and you are welcomed there. hugs positive thoughts coming your way and ive had 3 surgeries in the last year and im here if you need anything.
It will help me to think about you so I dont fall into depression so you would actually be helping me and please drop in the may surgery thread. hugs0 -
Hi Claire -- you are in my thoughts, and best of luck to you. I hope you don't mind my asking if a pathology will be done on your breast tissue? Wasn't sure if this is done when the MX is prophylactic.
You are so healthy and fit that I'll bet you have a smooth recovery. Still, sending you healing thoughts. xo0 -
Claire, been following your story (and everyone on this wonderful group that Lemon started.) wishing you luck and an easy recovery. I've had a unimx. Haven't done recon yet (long story) but still may...or not. Among other things the year right after my dx was spent with my Dad being seriously ill, then dying from leukemia. Frankly, I just needed a rest from drs and hospitals. Now I and my very supportive hubby are kind of used to me assymetrical, and we are both enjoying the hiatus. But wanted to tell you that I do understand the lift you'll likely get from doing the mx and then rebuilding. Mx is a relatively painless op. except for the drains which are a bit annoying, you'll be fine. Thinking of you. Keep us posted.
Shari0 -
Sorry you're not feeling welcome in the July surgery thread, Claire.
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Hi everyone, I've never posted on this thread but I have tried to start a thread on the beginning of my dx because I was new and scared. Mrs. Claire you've always stuck out to me and I've been following y'all ladies without logging in....I just want to say I hope everything goes good for you and your in my thoughts and prayers tonight. You inspired me to not be scared when I started chemo. You told me to embrace it as if the tx was my soldiers going in for battle and attacking cancers a**!! not exactly in those words but I remembered it. Here I am, 3 treatments down, bald:) and broke out with shingles after this last weeks treatment, but that ILC in my breast can't even be felt anymore and that sucker was huge at one point. I give you credit Mrs. Claire for making me braver and even though I unfortunately got shingles with my treatment I'm still fighting. I wish you luck and a speedy recovery also! I just wanted you to know that you had a positive impact on me when I first logged in. I was so scared and knew no one with this BC. I have learned so much from all of you ladies. I also met a lady in Louisiana that was diagnosed at 26 with stage 2 ILC and is 38 years old....12 years out:) That meant a lot to me being I'm 32. I just wanted to drop in and say hi and I'm thankful for this active thread. I have 3 more tx of TAC before my double mastectomy/ reconstruction in Sept. Chemo is doable despite the painful shingle outbreak on my head, face, and neck:/ I'm still bouncing back!! Y'all ladies keep fighting too! I hope y'all can see my picture:) that's me!! Lol.
Cyber Hugs, Cris320 -
Hi Cris, I loved your post. I'm sorry you have to go thru this crap. How awful you got shingles. I hope you have a good support system & just remember, all of the ladies here are wonderful & you can reach out whenever you need or want to.
I agree that Claire (as well as many others) have been brave & inspire all of us to get thru "with a little help from our friends."
I pray your shingles go away quickly & the rest of your chemo is manageable.
Hugs,
Deb0 -
Hi, Deb!
. I love your quote on your profile.
Cris, I, too, loved what you wrote. We are blessed if we have people to inspire us and encourage us on this nasty trip. I hope the shingles resolves soon and you don't get too discouraged by it. I like your photo and the look of determination on your face!
Claire, every time I see the quote on your profile, I buck up and feel stronger. Thanks for that.
Hoping everything goes well for you.
Jeannie0 -
I, too, have been strengthened by you ladies. By your signatures, your words...
I am a few years out, and feeling great! (hope that helps you newbies, just know that many many women have been through what you're going through, and though it's hard, you'll get through it, bumps and all, and be ok)
At times I need to be in a place now and then where others understand, and that's here.
Hang in, love, shari0 -
Hi Deb, Jeannie, and Shari:)
I couldn't agree more on the inspiration a lot of y'all ladies have given me to fight, to stay strong and to know that Faith isn't when everything is going right...Faith is when everything is chaotic, not going our way and refusing to quit because of our faith:) I hope these shingles go away soon. They hurt, but just a minor setback lol I tell you what though, after that chemo and getting sick with the shingles I was in some serious pain. I loved how the nurse told me at the onc office that its rare but it happens! Unfortunately I was the rare one lol I do have a great support system, my 4 girls take great care of their mom while my husband is in Korea:) I find myself looking daily at all the threads, the stories and bravery of you ILC ladies touch my heart. Very inspirational!! I was so scared at the beginning of this journey and everytime I go in for chemo I think of the meds attacking my cancer because of Mrs. Claire. It's the good stuff lol I seen she's been going through a rough time and wanted her to know to be strong and she's going to get through this. She's a fighter:) def. touched this ladies heart.
I wasn't sure if I loaded the pic right lol I wanted y'all to have a face with my post. I started out with a pink pic, soon came to realize their isnt a damn thing pink and pretty about cancer. I'm a newbie lol Nothing funny about this either, but I got to laugh sometimes, ya know. I sure hope all of you ladies have a wonderful day and hope you all have a wonderful 4th of July also coming up!0 -
Cris,
You are so right about all of the awesome courage and inspiration that of of these beautiful women offer us. I am grateful for each and every one of you! Don't worry about laughing because when we are laughing, we aren't crying...
Hugs to all!
Melinda0 -
wow, so I havent posted in a long time. I just began one day ignoring the boards here that I have visited daily for months, never missed a day, read as much as I could. Then nothing, just couldnt bear to sign in. I am so sad so many new have had to join but so touched by your posts I am in tears. I am not sure what I have been doing lately, putting it behind me? Pretending it didnt happen? I saw someone today that looked at me with "those eyes" asking how I was feeling, I said I am fine. She said really are you okay? It really got to me, reminded me all of this happened so recently and I have been kinda of hiding in a shell just pushing it to the back of my mind. I am scared, I am scared everyday. I also agree with everyone stating these tests we get are not perfect, not nearly perfect. I do think the smartest thing is to go with our guts. I am not so sure I did but now that I am so much more aware and educated I will soon. I dont see the BS until Oct. I know now what I want, how can I keep them and carry that risk with me? I know now I cannot. I was DX almost 7 months ago, so much wiser now.
Reality check going on here, it did happen and it may happen again. I cannot express my love for you ladies here, I have no words to describe it.
XO
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Hi ya'll, I have been on the road with my 31 y.o. daughter; we went on a weekend mini-vacation before surgery. I wound up breaking down in tears though at one point and cried in the car on the phone to my husband while my daughter was in the hotel room. She's worried about me--only child-- and I didn't want to worry her anymore. I haven't cried in SUCH a long time. It just feels like I'm going back in time, not forward--feels very much like starting treatment again. And fearful. What if they find a bunch of stuff that didn't show on my MRIs and PET scan? What if they find it's so extensive?
And over two weeks ago I was running on the track after weightlifting and felt this sharp pain in my hip, outside. Came on suddenly. It hurts when I walk on it sometimes--so you know I think the worst. It's not getting worse and doesn't keep me up at night, and I hiked 5 miles on it last sat and felt nothing during or afterward so it's intermittent. I mentioned it to my MO and she said if it doesn't go away I'll have to have a bone scan. More worry, more fear. I feel like it's most likely muscular or tendons or something, but one website said mets can feel like a pulled muscle at first.
Cris32, you are a sweetheart. I'm not sounding very brave right now, but I'm glad some of my words helped you. I remember when my hair started growing back in--I looked like a buck private--but I wore my new hair proudly and didn't cover it up at all. I just wore really great earrings and showed off. I had some ladies on the street that I didn't know tell me they loved my hair! I was nearly still bald! So I hope that happens to you, too. That was an empowering feeling and I hope you'll feel the same way soon.
I'm not feeling very empowered right now--exhausted from all the emotion pre-surgery--, so all of your words, ladies, have helped. Thank you for your concern and love for me. I didn't feel exactly acknowledged on the surgery thread--my responses and posts didn't seem to get feedback, for some reason. I'm ditching that thread and will hang out here.
Hugs xxoo
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I should add my late husband (I'm remarried) died of cancer in '96 when I was in my mid-thirties. I was his primary caregiver and walked through it with him--tx, recurrence, more tx, hospice. I'm haunted by a lot of cues from that time, now, as well.
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Claire sending healings hugs to you for your hip pain. And prayers for your upcoming surgery. What is the surgery? Did you already have your bmx?
Molinda try to get some sleep tonight and let u know how you are doing as soon as you feel like it. Prayers going up for your surgery tomorrow.
Welcome Chris. You have a beautiful picture. I am so sorry about the shingles outbreak. I know thats miserable. Did they give you any pain pills or sleeping pills to help you get thru it?
Lemon good to see you. Hope you are doing well.
Healing hugs to all and I hope we can all sleep tonight.0 -
As I read your posts, I feel my heart swell with love for all you wonderful women. I just said my prayers for your surgeries this week, Mo and Claire. God bless us all.
Love,
Julie
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Thank you lemon68 for sharing with us and thank you for starting this thread, it has really been a blessing to me.
Mo, good lucky tomorrow on your surgery, you will be in my prayers and keep us posted when you are able.
Shary🎀0 -
Mcelbee, it is the day after tomorrow.
My hip seems to be fine right now, I'm hoping it's inflammation from overuse. I think post-surgery will tell me if lack of activity for a few days helps it heal. If not, then I suppose it's a bone scan next to rule out anything, or I'll go to my ortho and describe what happened and he'll xray.
I can't believe Im actually going to do this surgery.
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So much good energy in this thread. Thank you all for sharing... your experiences and your advice.
I appreciate you all,
Kay
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I know you had your surgery today and that you are unable to respond but just know that whenever you get back here that I have been thinking about you all day and I hope you are comfortable and that they are giving you Good drugs!!!!!!!! Blessings on your recovery👼
Shary🎀0 -
Best Wishes Claire! I didn't have the nipple delay, but the worst part about the surgery was the darn drains and lack of shower until they were out! I was pretty sore right after, but pain meds help greatly. Don't be a hero, use them!!! I was given a 2 week time frame to be feeling better and that was right on the money. Some people feel better sooner and I'm sure some later, but 2 weeks was a good judge for me. Good luck! Kelli
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Ladies, need your help in reply.
I have hit a roadblock. ILC, Stage IIIA, ILC, ER/PR+ Her2- LOW RS score--Luminal A cancer.
The research has stated that my cancer biology doesn't warrant chemo utility but the pathology of
my case at 6CM tumor and three + nodes, applies CHEMO. I am now 6 weeks post surgery and have
to move into treatment. Famara and radiation and NO chemo is what I would like to do and one oncologist
does agree to that route. Any one else having to make these decisions??
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CDSCRlobula,
I have almost the same diagnosis as you. 6 cm ILC with 4 positive nodes. Started AC x 4 two weeks ago and then 12 weeks Taxol. Then rads and tamoxifen since mine is 95% ER positive, PR positive any HER2 negative. kI-67 less than 5%. I think I would be considered luminal A?
Chemo is scary, but a short period of time when I finally wrapped my head around the fact that I'm having it and that is that. Ask for guidance and it will be given to do exactly what is best for you. Best of luck.
Karen0 -
I was diagnosed with ILC right before Easter. I got the news tonight that I will need chemo followed by radiation. (OncoDx came back intermediate). I am scared. Thinking since I am a nurse I should take a leave/go on short term disability while I am getting chemo. What is everyone's opinion.
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