Lumpectomy Lounge....let's talk!
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Jo, I agree. The caregiver part of our lives are definitely a huge issue for us. I couldn't find help to keep Chuck at home and that's why I've applied to Medicaid to keep him in the nursing home. The process sucks for couples but should be okay for your mom. Remember, she is not able to think clearly about what is best for her. And once you decide (if you decide) that she has to go to a nursing home, don't let her guilt you into changing your mind. That's what Chuck was trying to do to me this morning. He's depressed knowing that he will never come home. But I cannot take the stress (physical and mental) of caring for him.
I would tell your mom that she's going to a nursing home after she's gotten in the car and not a moment earlier. Given any time at all, she will try to make you change your mind even though it is the best thing for her. Gotta be strong and it's so hard.
We'll definitely get together when you come back in May! HUGS!!!!!!!!!!!!!!!!!!!!!!!!!!
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IF YOU ARE IN SOUTHERN MICHIGAN, NORTHERN OHIO OR NORTHERN INDIANA (OR JUST WANT TO TRAVEL), A GROUP OF US IS HOPING TO GET TOGETHER AGAIN SATURDAY MAY 30, 2015, 11:30 AM AT Sand Hill Crane Vineyards Jackson Michigan.
It's a wonderful venue and we had a great time meeting each other. Be prepared to talk non-stop!!
If you think you'd like to come, post on this discussion board SE Michigan Meet Up May 2015 or PM me.
Everyone is welcome!
HUGS!
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Gypsijo,
it is my understanding, that if a Dr. will admit the patient to the hospital for 3 days, then sends them to a care center, the center has to take them in....Haven't had to try it but was just talking with a friend a few days ago, whose husband has Alzheimers and that is what her Dr. told her.
Vickie
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Vicks1960, That is partially right. Once hospitalized, a patient is eligible for up to 100 days in rehab from Medicare, but it is based on where Medicare beds are open. Our situation is Medicaid beds which are even more limited and have long waiting lists at the better facilities. Medicaid pays even less than medicare so only the minimum beds are offered. They would find a bed for her in the county, but may be far from family and friends as well as a very unpleasant, understaffed environment. We have been through hospitalizations to rehab twice already. At the end of the 100 days, you either go home or a long term care nursing home with an empty Medicaid bed. If you need to be hospitalized from the facility, they will not keep your bed for you and you will have to return wherever facility has an open bed.
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My DH had 42 days in rehab under Medicare and then the facility decided he wasn't going to improve. By that time we had decided that we would apply for Medicaid for him. So we looked for a facility that would take him first on Medicare and then on Medicaid. We had a choice of two - one 20 minutes away (which we chose) and one 45 minutes away. He transistioned from Medicare to Medicaid in mid-January, when we applied for Medicaid and as of today, still have not heard on our application though our lawyer says it will be approved.
So working with Medicaid is challenging. The staff at the nursing home is great but the facility is old and lacking in the amenities that others have had where he's rehabbed. However, no complaints.
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So it seems I am now fighting a runny/stuffed nose.. no cough no fever. Surgery is suppose to be this friday. at what point do i call and tell them my nose is stupid? wednesday? My husband had this first.. I avoided him .. but i guess I did not avoid him well enough
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Panthrah, you might call and see if it matters. Perhaps they don't care. Or maybe an allergy pill will do the trick for the day of surgery. Hard to avoid DH's
HUGS!110 -
I would think you could wait until Weds. and see how you feel, then call and ask?
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just took a sudafed to see if that works. even the DHs "sickness" didnt progress into anything more than a runny nose and it didnt last long . its always something isn't
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Panthrah, certainly worth a try. Fingers crossed! HUGS!
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sudafed fail. DH got the generic which doesnt work for me. I need the real stuff, behind the counter. oh well.. Ill get some tomorrow. until then Im drinking lots of water and eating soup.. yay me
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HAHA!! Oh well.
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Peggy--Now that I am back online after a long silence because of an editing deadline, I want to apologize for inadvertently making you sad on your 49th anniversary. I just wasn't connecting your husband's Parkinson's with the celebratory photo, and therefore thoughtlessly looked ahead to "the big one" next year. It was truly a case of not putting the brain fully into gear before using the fingers to type on my part! Trudi
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Trudi, don't apologize. It's hard to remember what's going on with all of us. Do not worry about it. I really do just go day by day. That's what I've been doing for nearly 5 years when he had a massive "widow-maker" heart attack. That exacerbated his Parkinson's symptoms and screwed up his short term memory. It's all a pisser. I'm glad that you've met your deadline. Feeling "freed"???
HUGS!!!
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Hi, Kay--Those blue and white Horse Show flags are now flying above the stables and country fair buildings, and the big sign is up saying the dates of the show are May 21-31 (early this year, probably because of the early observance of Memorial Day). So between your book revising and my seeing the my editing through to printing we have a meeting to think about and plan for! Infinitely more fun than the kinds of planning we had to do for our bc, and this planning fits in easily between your riding times and my visits to the gym and (newly added) yoga sessions, offered to our church members as a gift by another parishioner, a certified hatha yoga instructor (it's always more fun to do it in a group than alone in front of a TV). Hope all is well with you, your husband. and your daughter and son-in-law--we grannies know that all is always well with 4-year-olds! Trudi
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Peggy, that just stinks about what happened to your husband. Life is so very hard sometimes, but it's stunning how people still rise to the occasion and, in some way, overcome. Like you.
Trudi, we do have to plan our May fun! How lovely about your yoga sessions! Yes, very happy not to be having to shoehorn things in around daily rads anymore. My editing job is going to continue into fall at this point. But May is almost here! We'll coordinate schedules and hope for a beautiful day to meet at Devon. I might see if my friend Judy can come along; pretty sure you and she would hit it off.
Things are moving along, I guess. I feel as if I were recently released from the asylum, now that I don't have BC-related appointments to work around. And 4-year-olds are a hoot.
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Thanks, Kay. I really appreciate the kind words. I know how hard things are for you right now. The heart attack happened 5 years ago so have had time to adjust. But it is disconcerting to have DH tell me he was fired from his job; that there are stables in the basement (of the nursing home or wherever he thought he was) and he knew this because he saw the horses. Hard to keep up some days. Never dull.
I do have one BC appoint - on the 6th with my MO. So nothing big there.
DH's Medicaid application was approved so his nursing home care is covered. I can't tell you what a huge relief that is. My lawyer said there would be no problem but it took 3 months and he thought it would be 6 weeks. I was getting worried. Thank heavens for Medicaid, it's literally saving my life.
I'm so envious about you and Trudi going to the Devon horse show. Lots of pix and notes for me please!
HUGS!
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Peggy, I wish you could join us at Devon! We will take pix and notes.
So glad the Medicaid finally came through. It must be very disconcerting and disorienting, to say the least, to deal these cognitive changes in your partner of almost half a century, because he truly isn't the man you knew anymore. But parts of that guy must still be there, and I hope you enjoy the good moments as they come, day by day.
Life really throws some things at us, that's for sure. I've heard and read of folks who believe that a good way to deal with loved ones when they begin experiencing increased dementia is to kind of accept what they're saying (horses in the basement) and play along with it, allowing the person to feel both validated and having some fun with a story that can be embroidered without making the person feel more confused and misunderstood. There was a piece on NPR about this, must look for it. We will all, most of us, face this issue with our loved ones or ourselves sometime.
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I'm getting a walking buddy. He'll be joining our family May 10th!
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Nash54, how totally adorable! Is he purebred Lab, or something else? What fun you''ll have!
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Kayfry....he's a Golden Retriever. We got to pick him out this weekend. He's five weeks old and so adorable. Can't wait to bring him home. This will be our first family dog. This is very unusual for me because I'm not a "dog" person but my hubby and daughter have been wanting one so I agreed....and now I'm smitten.
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Right! Duh. I'm a huge dog person, but when they're that little, the Goldens can look a lot like a yellow Lab, at least to me. Adopting a puppy is a bit of a challenge, but I'm sure you and hubby and daughter will be up to it. And he'll be a blast. Enjoy!
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Kay, maybe another year I can join you guys at Devon. That would be a treat.
Nash, what a little cutie you're getting! My days of having big dogs are over. I need to be able to lift the critter and 70+ lbs isn't in the cards now. Loved it when we had big dogs and love the small ones (which keep getting smaller
). Goldens are the sweetest things.HUGS!!!
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My trainer (i.e., riding instructor/horse trainer) has a Golden/English Lab cross who is the sweetest guy. I love big dogs, though I've had small ones as well. Right now we have a 47-pound pit bull mix (refugee from L.A. via our son) and a 95-pound mostly Rhodesian Ridgeback sweetie who came from the Ridgeback rescue. Luckily, I rarely have to lift her!
(Am I the only one who finds that smiling emoticon just a tad menacing??)Here's our big puppy:
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Kay, he's darling! And yes, that smiling emoticon does look Jack the Ripper ready to attack and very happy about it.
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I'm going on 6 weeks post op for lumpectomy on my left breast. Right after surgery I developed hematoma under
the arm where the nodes removed. Then 2 weeks post surgery, I developed a hematoma in the breast, but now
the breast turned bright pink and they at first thought it was infection. I'm finishing my second set of antibiotics and
the surgeon now thinks that it may be some kind of vascular thing. The breast actually goes back to normal color
when I lay flat. They don't see a large hematoma, only size of a quarter doc says. He mentioned possible seroma.
I have an ultrasound again next week. Anyone have this happen. It is definitely tender and anytime they mess with
it it throbs and hurts afterwards for quite awhile.
Eva
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Eva, how awful. I also had hematomas at my lumpy site (and from the core biopsies). I don't recall that they were especially tender but I wasn't poking around either. To me, it sounds rather unusual. I hope they can figure it out and get you all comfy and looking normal soon.
If you wouldn't mind, please make sure you have filled out your profile with diagnoses and treatments and make them public. That is such helpful information when we are responding to your questions.
HUGS!!!
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Kay, Nice looking dog! Both of our current dogs came from the local animal shelter.
Nash, Awwwwwe! I love goldens! Ours grew to a huge 95 pounds. He was red. When the warm temps came and he shed his winter coat, I would brush him every day until I couldn't move my arm.
Eva, I hope they figure out how to help you. I had a huge hematoma that took a while to go away, but it felt sore (like a bruise anywhere else would).
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Speaking of not moving something. Saturday night when I got up to go to the bathroom, my right hand and wrist hurt. Not terribly but something going on. Still sore when I got up Sunday. So I ran down the list of possibilities. Carpel tunnel, Arimidex, who knows? Then when I picked up the meat mallet to smush the kitty's dry cat food (so she wouldn't throw it up), the lightbulb turned on. I'd been pounded away and the damn food was quite resistant to all my efforts to pulverize it. The food processor did a pretty good job. So no issues with the body. Of course, the pulverized food didn't really help kitty's tummy. Trying other things, liked canned. Luckily she will eat ANYTHING. Never had a kitty so food happy
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I had my one month follow-up with RO today, all looks good, so happy I will follow-up now with one of my doctors (RO, MO or surgeon) every 3 months for 2 years. The one thing I forgot to ask and no one has mentioned is when are you in remission? I will not have my follow-up mammogram until Sept., so will it be after that if everything is normal? Or after all treatment completed and no sign of disease - tamoxifen? Which will be 5 years?
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