Lumpectomy Lounge....let's talk!
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Tresjoli, OMG, that's so perfect. What a precious little one you have. Have a cuddle fest with her. That might calm the steroid-fueled emotions. Glad it is better.
HUGS!!!
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I had my third lumpectomy 2 days ago with the intent of getting a clear margin. At the same time I also had a biopsy on my left side as well to investigate an abnormality. I don't get the results until next week. In the meantime, my well-meaning brother sent me some inflammatory material printed in the NYTimes suggesting that the lumpectomies for DCIS are not particularly warranted. I have already gotten a second opinion, mostly at his instigation and it was in agreement with my course of treatment. I don't know how to respond to him. I know he is well-meaning, but why try to make me second guess what has already taken place. My next step will be mastectomy.
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Ohhhhh Tresjoli! you must cut and paste or take a screen shot of your last posts to keep in the memory books. It doesn't get much better than that. words of love, promises of innocence, and belief that the future brings ....well, that the future is something to look forward to like opening a wonderful present.
(Am I just being sappy in my bereavement, or does anyone agree with me)?
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DTMData, Welcome to the warmest, most supportive, most comforting forum ever! We're sorry you're here but glad you found us. To give your brother the benefit of the doubt, perhaps he was trying to tell you that you've had enough surgeries. You didn't post or make public your profile so that makes it a bit harder to respond (please consider doing that). Dr Susan Love wrote an excellent response to that article Dr Susan Love Response that you may want to read when you feel a bit stronger. Don't respond to your brother right now (or read and then send him the article without comment). You have enough on your plate waiting for path reports which is never easy and more so since you had that biopsy, too.
Don't rush to decide any future steps until you know more. And even then discuss it with all your oncologists (not your brother for the time being). Read and gather all the information you can on what choices you have and the pros and cons. Take your time. When you DO decide what you will do, no matter what it is, don't ever look back; no second guessing yourself. You will have made that decision with the best input and information you can get and decided what choice is best for YOU! Not me, not your brother, but YOU!
If we can help, we'd love to. But again, please update your profile and make it public so we know exactly what you have, what you've had done etc.
HUGS!!!!
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SweetMamaJ, you are being sappy but I'm right there with you. That's a wonderful idea!!
HUGS!!
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Wheeeee! Thanks Peggy, I could kiss you for the validation
) heheh. Sometimes sappy works. As long as teenagers are not witness. DTMdata, Welcome to a safe and supportive place!! Here in the lounge, we do not judge; we offer support and help where we are able-and if you are second guessing your decisions, feel free to "write out loud", to vent, question, and just talk about things with sisters who have been there. Are some of us are still there. Hugs!
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Tresjolie, I think I am in love with your 3 year old. How sweet! Sunflowers, I know I saw a thread around here with links to help for cancer patients. Please do call the American Cancer Society and your hospital social worker. When was the last time you tried tapering off your hormones? Maybe a compromise of a very low dose? Mustlovepoodles, I used 3 ice packs at a time after my Lx. I was very swollen and ended up with a large seroma. The ice made me so much better. Outrunning big hugs. Sweetmamaj, I am praying for you. If I missed anyone my apologies. You all are wonderful.
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SweetMamaJ, No teenagers here to witness sappy. Kids are now firmly middle-aged (how can that be since I still am?) so they get sappy, too.
Ladies, all of you have a calm, comfortable evening! Hopefully you can all feel the hugs I'm giving. I think we all need them tonight.
HUGS!!!
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These are my babies. My son is 8 .His name is Michael. My daughter is Samantha. She's 3 and She keeps me honest. This was being silly after a Red Sox win where dessert was free at a local restaurant
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This was her at her third birthday, and why she's very excited To get to Cinderellas castle. We had an Elsa party and Elsa came all the way to see her. A week before lx after just being diagnosed.
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What cute kids you have, Tresjoli! Definitely keepers!
HUGS!!
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tresjolie, your pics brought back such good memories of my granddaughters Disney themed picnic in a park...her visit was from Rapunzel (she is seven now). The light of my life. And your kids are Adorable!
I know what you mean Peggy on the middle aged thing..my kids aren't to that stage yet but it always throws me to see the reference to middle aged in one of the thread titles here and it ends at sixty. How can that be? just simply not possible
Hugs to all but tonight especially hugs to you Peggy because your warmth pulled me into this incredibly special haven...
Xox Octogirl
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Tres....your children are adorable.
Sweetmamaj....sap away...I was just looking at my 17 year old daughter tonight and remembering her as a toddler...the years go by way too fast.
DTMdata...I just heard the discussion on lx for DCIS today on Fox....I was still confused as to whether or not it was advised. So many different opinions and so many other factors that go into making that decision.
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Trejolie- your children are adorable!!!0
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thanks guys! I don't get the dcis thing. If you remove colon polyps why wouldn't you do the same for dcis? My dcis was high grade with comedo necrosis and already had a single focus of microinvasion when they caught it. Unless we could know for sure what dcis will stay put and what will be idc...why not treat. But maybe there is something I'm missing
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sweetmamaj So sorry about your Dad. Losing a parent is so difficult. I lost my Mom 8 years ago in September. Suddenly from a post op infection. She'd havd a hernia fixed before a trip to China to see the pandas at the preserve. Didn't want it to risk it strangulating while there. It does get better but I still miss her every day. My son was only 1 and doesn't remember her and my daughter never knew her.
And thanks for the encouragement about getting results info. Clearly one of the radiologists read it because she ordered and ultra sound. I'll call on Monday and press for info. Im arranging coverage at work and I really need to know if there is a chance my treatment might get more aggressive and me need more time off
Also how do I put different info in my profile for each breast.
And has anyone had an MRI? Is it normal to have your arm hurt where they put in the contrast. I'm not just sore form the stick in the had but also halfway up my forearm
tres. Sweet children. Mine are 9 & 6. And Disney ismy favorite place so I'm down with the trip to Cinderella's castle when this is all over
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Tresjoli, those are some awfully adorable little kids!!
Plumster, Molly, Tresjoli, and all, thanks for your thoughts.
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Octogirl, thank you for the kindest of words. I appreciate them.
Outrunning, I believe you just keep adding DETAILS until you have entered all the information necessary.
Tresjoli, that study, as presented everywhere, was so screwed up. It essentially said nothing. I preferred the article by Dr Susan Love that I linked. THAT was clear and concise. My takeaway from her article is that you should treat DCIS until we can figure out why some turns to IDC and some does not.
HUGS!!
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out running I had to explain my port and my medicine and my Hair falling out to her. She has no concept of time, only things. So I explain my hair would be growing again by the time Santa came, and we would be all done with mommy's medicine we would go to Cinderella castle and it stuck.
I woke up in tears again this morning. It's funny I didn't cry when diagnosed. Now I'm a puddle.
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Tresjoli2, I find I am more apt to lose it over the small things. The big things we somehow manage to cope with (at least we think so). But then something small puts a big hole in our armor and everything we've kept locked up spills out. We then repair our armor and hope it stays whole. I also think that later I will drag out the "big thing" and examine it when it has been handled (as much as possible) and my emotions are less volatile. Then it doesn't hurt quite a much and if it still causes agony, I can put it back in its place until another day. That's how it is with me anyway.
HUGS!!
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Tres....my tears didn't come at dx either, but later when I least expected it. I dealt with what I could at the time and put the stuff on a shelf that I couldnt until I was ready to handle it later. During treatment I could only concentrate on each phase. When that was over I'd tackle the next. I didn't share my dx with many people because I couldn't handle the questions (that I didn't have answers to) and didn't know how to ease their concern (I had my own I was dealing with). But now I'm almost a year from dx and all is well. (((Hugs)))
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Nash, it sounds like we handled things quite similarly except I shared my dx with friends and family (and Facebook). Many details I did not share. Luckily I never had questions I couldn't answer (perhaps because they weren't asked). By the time I really had a chance to contemplate my dx and all the ramifications, my treatments were done and the stress of caring for DH resolved with him being placed in a nursing home so there wasn't much left to think about. So I didn't. Naive? Blind? Perhaps but it has worked for me.
HUGS!!
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Mind if I take a seat in this Lumpectomy Lounge? I'm having sentinel node injection this Monday, 8-24-2015. Tuesday is the big day -- lumpectomy and intraoperative radiotherapy. I've never had major surgery before. I've got a great surgeon though and that calms my heart quite a lot! Just wanted to be amongst you -- grateful for this Lounge!
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Radgal, welcome! Sorry you are here but our arms are open, caring and comforting. It is very reassuring to have a great surgeon. My SN injection was right before surgery and my surgeon did it.
You may want to wear a front closing top AND soft bra (or sports bra) for after your surgery. Have plenty of ice on hand. If you have it beforehand, get your prescription for pain pills filled. You may or may not want them but if you do, you don't want to have to wait. And always take something if you have pain - that does not help you heal. Plan on resting as much as possible especially during your first week. Even if you feel like taking on the whole world immediately, don't. Your body has had a major shock (well, so has the psyche, too) and it needs rest to heal.
Please take a few minutes and update your profile with your diagnosis (Dx) and planned treatments such as your lumpectomy and radiation and future treatments and then make them public. That helps us so much. When we know your BC diagnostic details we can tailor our answers to your particular situation. Also, you might want to make public where you are located. There might be BCO gals near you! There are several of us in Michigan (and one gal from Oregon who comes, too) that get together regularly. We share our tales and laugh a lot. It's wonderful.
Again, welcome!
HUGS!
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Lumpectomy plus Rad. 16 double doses.
Invasive carcinoma stage 1 grade2.
Was doing well till i split under my breast.
It wont heal, its just wet and wont stay dry.
Any advice welcomed.
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Teri, when did you have your lumpectomy? How big was your tumor? How many rads have you had? It sounds like you need to call your BS ASAP. Are you wearing a soft supportive bra? Do you have stitches or steri-strips?
We're glad to have you here because if you have to have BC, this is the best place to be.
Meanwhile, please fill out your profile for diagnoses, treatments and projected treatments and make them public. That helps us immensely when we are giving tips and information. You might want to include your location, again making it public.
As soon as we know more about you, we'll start helping you more.
HUGS!!
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Regardless of what the WSJ report says, I'm sure glad they removed my DCIS and found those 5 invasive tumors! Feeling thankful.
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Horsegirl, that article has done more harm than good in my opinion. Mine was the other way around: the IDC was what they went after and found DCIS as well. I'm glad it's out, too. A more realistic article was written by Dr Susan Love: DCIS Article
HUGS!
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Hi all! I'm new here and late to the party. The end is in sight for me only 7 rads left!!! Been through all the other fun stuff and just want to support anyone with questions especially any one wondering about neo adjuvant chemo and if it is a good idea.
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Beautiful picture (and dress) Midgie! So happy for you to be finished! Hope all is going well!
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