Lumpectomy Lounge....let's talk!
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Bon voyage, Elizabeth! Enjoy Fiji!
We got to the Pisa airport, returned the rental car, and confidently walked to the self-serve bag drop kiosks, since we already had downloaded our boarding passes. Two hours before departure, no problem.....only no kiosks: Pisa is too small an airport.. Just a long, long line at check-in, filled with families and only one single sporadically appearing desk agent. Screaming babies, confused students. The Sky Priority line was empty--but this leg of the trip was coach-only. Nonetheless, I convinced Bob to reluctantly abandon his strict obedience to authority, and we split between the lines. Directly ahead of me was a family with a toddler and an octogenarian (not as plucky and sharp as our Ducky)......and FIVE overweight oversized suitcases--they had patronized every clothing and souvenir shop in Tuscany, I overheard the dad say proudly. Nevertheless, they were challenging having to pay extra for excess and overweight bags, so the agent called his supervisor and shifted himself to the Sky Priority line. The supervisor calmed them down, but proceeded to chattily converse with them at length. Meanwhile, the guy ahead of Bob at the other line had an expiring Russian passport, so the agent had to consult his handbook and decided to ignore the Schengen rule (the one that kept my friend from going from London to Geneva with our tour group last March) and let him board. It was now only an hour till boarding and we still had security to go through. We breezed through check-in and headed to security--which was full of stealthy line-cutters and millennials taking selfies at each step of the process. The ID-checker saw my cane and shooed us over to the handicap line. Kept our shoes on but had to remove the iPad. Bob breezed through the detector, but I of course set it off. No rotary scanner, so the full wand-ing and pat-down. Every bit of metal in or on my body (including bra underwire & hooks and the zipper on my jeans) was beeping. It was now 20 minutes to boarding. Made it to the gate......only to find our flight would be 40 minutes late. Bussed to a decrepit turbo-prop Ethihad puddle jumper, where we had to gate-check everything but my purse and cane and climb up the plane's own rickety drop-down stairs. My seat belt was frayed and tray table was hanging by a bolt. Fortunately, it was only a 45- minute flight. Got to the terminal, went to the loo, and our suitcases were first off the belt. A 15- min. walk later and we were checking into our hotel room.
After a lovely nap, we're headed to Happy Hour late lunch in the Executive Lounge. We have a 9pm reservation at Glass Hostaria (Michelin-starred) in Trastevere, which should be less than a mile walk from the shuttle bus drop. Bob was the one who insisted we dine "top-drawer" tonight, as we need to go to sleep early tomorrow night: Sunday's flight home is at 9:30 am and they're suggesting we check in at Alitalia by 6:30. Oy. Tomorrow's dinner will be Happy Hour. We will probably take the hop-on/off tour tomorrow and revisit spots we'd passed by last Dec.
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Sandy, I almost feel as though I'm on this trip with you, tagging along and hiding in your suitcase - really enjoying your posts! It's fun being a "vicarious traveler".
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Thanks 614 - was it optional to get your ovaries removed? I am worried about taking the estrogen blocker when I haven't started menopause yet - so would be interested in this. Any pain or issues with removing your ovaries and inducing into menopause that way?
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KDTheatre, I thought you were going on Tamoxifen after surgery. That's entirely different than AI's (aromatase inhibitors). Usually (but of course not always), Tamoxifen is given to women who have not gone through menopause. AI's are for those after menopause (again usually). However, quite regularly menopause is chemically induced or surgically when AI's are the best treatment for that particular woman. And Tamoxifen is given to post-menopausal women for various reasons. You might check the articles here on BCO - there are many that may clarify the uses of each type of drug.
Sandy, good heavens! That airport in Pisa doesn't sound like anything I'd expect, nor the airline. Ugh. What a mess. I'll bet those stairs into the plane were fun for you...NOT! At least you made your flight and got your luggage quickly. A good meal and plenty of even better wine ought to calm the frayed nerves. Hoping your flight home is much smoother. And I love your travelogue. Like Grazy said, we can experience the wonders you are seeing and eating vicariously and it is such fun.
HUGS!
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Sandy... The menu at Glass Hostaria looks amazing! Enjoy!
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Dear KDTheatre:
My MO told me that I was not able to metabolize Tamoxifen (I had a blood test for this) so therefore, I have to take an Aromatase Inhibitor (I am taking Arimidex/Anastrazole) rather than Tamoxifen. AI's work slightly better than Tamoxifen for Lobular Carcinoma so I am glad that I was medically induced into menopause and that I am taking an AI. (One must be in menopause to take an AI.) Since I was not in menopause, I started ovary suppression with Zoladex injections to medically induce menopause. I did not want to take an extra medication and the shots freaked me out, so I had my ovaries removed as soon as I could. My MO told me that I had to wait at least 2 months before having my oophorectomy. (I had 3 Zoladex injections and then I had the oophorectomy.) I had absolutely no problems from my oophorectomy surgery. I had it done laparoscopically. I felt 100% fine the same day. I am lucky because I did not have bad side effects from being medically induced into menopause. The only issue that I have from menopause is weight gain which is HORRIBLE and I am VERY upset by this. It has been 1 year and 7 months since my oophorectomy. I no longer look like my Avatar which was taken when I rang the bell when I finished rads. My hot flashes are not bad. My sex drive has dramatically diminished but luckily, I still have a sex drive. I would bet that your doctor will prescribe tamoxifen to you since you are not menopausal. Good luck.
When I was first diagnosed, I was told (in Florida) that I should have a double mastectomy. I went to M.D. Anderson Cancer Center in Houston, TX and the doctors there said that I did not need to have a bilateral mx. They said that a double lumpectomy with a breast reduction/lift (so that I would not be disfigured - my tumors were not near each other either and a great deal of tissue had to be removed. They went back in a second time during my surgery because my margins were not clear and this stopped me from having to have a second surgery.) plus whole breast radiation would be fine. I am VERY happy that I had a double lx plus rads rather than a bilateral mx. (My first inclination was to have a BMX.) When I returned to Florida AFTER having had my double LX surgery, the first RO whom I saw told me that I absolutely must have a bilateral mx or my cancer would definitely return. I fell apart. (He called me while I was at work after he took my case to the team. This phone call was AWFUL! I was terrified.) I am sure that he did not actually say that but that is what I heard. My doctors at M.D. Anderson Cancer Center reassured me that my surgery and tx plan was fine and that I did not need to hav a BMX. My BS actually told me that having a BMX after having the LX surgery that I already recovered from, would be "barbaric" (but that she would be happy do perform a BMX surgery if I wanted to have one. She said that a BMX was totally unnecessary for me.) As I posted to someone else, I went to 3 MO's for opinions and I also went to 3 RO's for opinions before I decided upon my surgery and rads plans. The problem that I had was that none of the doctors said the same thing and ALL of the tx options and rads options were different. (Who knew that I would be given 3 different radiation treatment plans by 3 different RO's???) My first MO told me that I absolutely had to have chemo. (I did not actually need chemo because my oncotype score was low. I am so glad that I listened to my mother and found my current MO. #MomRocks.) It was VERY stressful. In the end, the MO in Houston and my MO in Florida were in 100% agreement which gave me peace of mind. I love my MO in Florida and my RO in Houston. I am glad that I did not choose to have the BMX. I am very lucky because I now have excellent doctors whom I trust. I am very happy that I went for so many opinions.
In your case, you will need to find out whether you will have to have chemo. You will have a Sentinal Lymph Node biopsy to find out if there is node involvement. (The SLNB surgery was harder to recover from than the LX surgery for me. I felt totally fine after my double lx and breast reduction/breast lift surgery.)
Good luck with your decision. Breast cancer is extremely stressful and scary so I am sending you prayers and hugs.
Sorry for such a long post but I was dx at the same age as you and I had two lumps that were not near each other too. I wish you the best. I hope that this will help you.
Hello to everyone else. I finally finished reading all of the posts. I cannot reply to everyone else until later today. I have errands to run now. Sorry. Hugs to all.
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Dear Molly: I am saying prayers for you and sending you hugs. It is so hard to lose your Mom. You have been through so much so I am in your pocket to give you support.
Sandy: I love your travel and food stories, but not the airport ordeal. Enjoy the rest of your trip. I love your "autocorrect is my worst enema" quote. LOL.
Dear Elizabeth: Sorry about your HER2 status and that you will now have to have chemo and take Herceptin. Nothing like being thrown a curve ball. I am sending you hugs and prayers. Enjoy Fiji. Your DH sounds wonderful.
Dear Janet: Good luck with rads.
Dear Beezaboob: I live vicariously through these ladies too. I would ask your MO whether you had a test for your Her 2 status. I think that with DCIS that sometimes doctors do not check for Her2 status. I am not sure though. However, my cousin was diagnosed with DCIS in October 2015 and she does not have a Her2 status either. She was treated at Sloan Kettering in NYC. She had to have a second lx because ALH was detected in her pathology report and they had to make sure that her margins were clear. Nothing was ever reported to her regarding her Her2 status. I would ask your MO questions and go for a second opinion if you are concerned. Good luck.
Dear Poodles: I admire you for always being so positive.
Dear LG: I agree with your philosophy regarding a potential recurrence. BC is so stressful and scary.
Dear Balding: Congratulations on getting your motorcycle license. Enjoy.
Dear Nancy: Good for you.
Dear Fran: I am glad that you are ok.
Dear 1Step: Good luck with rads and with your LE tx. I hope that you feel well.
Dear Fightergirl: You have such a great outlook.
Dear Peachy: Are you still in the clinical trial? If so, how are you feeling with the Ibrance? I hope that you are doing well.
Dear Moondust: I am so happy for you that you were finally able to finish your appeal. I hope that your insurance pays the bill and that the issue is resolved in your favor quickly. I am also relieved that the bump in your neck went away. How many more chemo infusions to you still have to have? Feel well and good luck.
Dear KDTheatre, Brit, and Fightergirl: My children are involved in theatre too. I love the theatre.
Hello to HH, Sloan, Grazy, Tsoebbin, Dara, PlanB, and everyone else whom I neglected to mention.
Hello to LTF: I am hoping that you are enjoying life and feeling well. I have not seen you post in a while so I want to let you know that I am thinking about you. Same thing goes for MLP and Melclarity.
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614.... You are amazing to reply to everyone! Hugs to you all!
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Tsoebbin, hi!
614, you're so thoughtful and do such a good job of remembering everyone. Thank you for reminding me that we haven't heard much from LTF, MLP and Melclarity. Hope it means they are getting on with their lives.
Moondust, very glad you have all the paperwork in for your insurance appeal. They'd better not deny it!!
HUGS!
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I'm at my Dad's house again, and we're almost DONE cleaning out the rooms!
Whoever gave me the AWESOME advice to have a last dinner on my grandmother's table before my Dad sold the table, I have to thank you! It was such a nice dinner with my dad and sister. Thank you.
Molly -thinking of you!
Sandy - your airport story was hilarious. I'm glad you're enjoying your trip. I haven't visited the other thread you sent me the name of, but I will. I'll be up at my Dad's house for another week, then I'll check it out. I have to say that 45 degrees at night is a welcome change from my town, so I don't mind being out of the loop for a while longer.
614 - hello back to you. You're a busy woman!
Welcome new people!
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Sloan, I think of you cleaning out your dad's house as I've also been in the process of cleaning out my mom's. After her unexpected health issues in the Spring, she decided to sell her home and move into something more manageable. She's a two-hour drive from my home, so it's been a job to peck away at 60+ years of treasures whenever we have time to get up there. We've all taken our special items now -- and the china has gone to me, being the only girl. She attends a church with lovely people who have taken it upon themselves to hold a two-day garage sale for her - it began yesterday and concludes today. We three 'kids' were not needed - phew!!! - but we've been up now and then over the past several weeks helping her sort and pack what she wants to take with her and what will go into the sale. It's quite a job, isn't it. She's going into a lovely seniors complex in three weeks, so this is the last hurrah, getting rid of everything so all that she'll have left is what will fit into a one-bedroom suite. She's 92 so is hanging out indoors while her stuff gets carted away, which is probably less painful than being outside and watching it happen - most of her furniture went yesterday, she said, and a consignment shop has taken her antiques. So, I'm leaving in an hour, hoping to get there by ten and show some family support or just to keep mom occupied inside the house. Anyway, what I wanted to say was that I loved the idea of a family dinner using the china -- that's something we couldn't have done at her house during the last few weeks because everyone wasn't there at the same time, but I'll be hosting Christmas this year and plan to set the 'adult' table beautifully with her china - hopefully, it makes her happy and not sad or wistful to see it set up in my diningroom. I'm really looking forward to using it though and showing her how much I'll treasure it!
614, I'm very impressed how you list absolutely everyone in your posts - you're incredibly thoughtful.
Have a good day, everyone!
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Sloan- are you in SC?
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Second lumpectomy this summer completed. Lets hope the margins are clean this time!
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614, Hi... and I agree, you're amazing both to remember everyone and also to comment on what's going on in their lives.
Sloan and Grazy, I know it's hard for parents to downsize and move but you are being very sensitive to them and thinking of ways to keep the memories even though the things may be elsewhere.
Moondust, I get so frustrated with instance companies! That and pharmaceutical companies! I've had moderate psoriasis for 25 yrs. For the past 1 1/2 years, I've been on the newer drug Otezla which was amazing. After trying every other treatment, it finally put it into remission. But no insurance will cover it for me now. I saw my dermatologist yesterday and told him the Otezla would be $2,645 per MONTH out of pocket, and the topical lotions are $600 and $900 per bottle. And now with the bc dx, he said I can't use any of the "big guns." I really hope your issues get straightened out. It sounds like your claim was denied more on a technicality.
Last weekend for me before I FINALLY am able to make my decision re chemo or not. My prosigna test should be back when I see my mo on Monday. I'm 98% sure I will either skip chemo or not need it. One way or another, I'm moving forward next week. It's been crazy hot here, as Sloan mentioned also, so dreading rads if it's still so hot, but can't control the weather.
Sandy, so wonderful hearing about the trip. I've had family members travel through Italy and they loved it. My nephew and his wife have spent the summer traveling through Istanbul and then biking through Spain. Their photos have been remarkable.
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dlg1, Welcome! Praying for clear margins this time! You've probably read enough to know this is the best group ever. We are caring, informative, funny and nice. Please help us by filling out your profile on all your treatments, diagnoses, etc and making them public! We have a hard time remembering each person's particulars.
HUGS!
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Grazy, I know what a hard job it has been to clear out your mother's home. Thank heavens that the church people are doing the garage sale. That has to be a big help. I do have one suggestion: Use the good china for everyone - kids even! They need to share in the history it represents. Of course there's a chance something might get broken but, for me, I've always felt that it's more important to use such special things than to keep them on the shelf or in the linen cupboard. A gravy stain on my very old linen tablecloth is a reminder of the the great time we had one Thanksgiving. The wine stain on my prized Irish linen tablecloth, the joy of celebrating Christmas with family. Of course, I'd be sad if something got broken but children are quite capable of being careful and appreciating them. That's my take, anyway.
HUGS!
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Dara, the cost of Otezla is mind-boggling! Are you saying that now you can't take it (even if you could afford it) since your BC diagnosis? Hopefully chemo is not in your future and that you'll sail through rads. Remember a lot of us don't have issues with them - I didn't. I didn't wear a bra (mostly) during them but I'm really small busted and don't need support. After turning up allergic to Tom's of Maine deodorant, I also didn't bother with deodorant. Of course it helped that it was fall so I didn't stink I used Aquaphor starting about halfway through rads. Good luck with your decision!
HUGS!
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Yesterday I decided I would just "live" in my new home. No unpacking or anything remotely like it. Just normal things like laundry, ironing, changing bedding and putting the pretty stuff on. It was nice. Today, however, is an unpacking day. Need to tackle the den with all the books, DH's collectible steins and mugs, and assorted boxes of tax records, and office stuff. Whee! It's to be 93 again today - the pets don't like the heat but I don't mind.
Everyone have a wonderful weekend!!
HUGS!
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My sister just sent me an interesting article about new trials. I thought of Poodles when I read it, knowing her DH is in a trial at MD A. It also just reminds us of the fact that new treatments and studies are constantly evolving with cancer, and the hope is that any recurrence in the future may have new possibilities for treatment. I've listed the article here in case anyone is interested. It doesn't deal specifically with bc, but I think the idea of immunotherapy is certainly an interesting one.
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614, you're awesome!!!
Sandy, enjoy yourtravels!! Many people (like me), only dream of such travels will probably never leave the country as I have never flown. The farthest I get is to north and south carolina. I love the mountains!!!! I have family in Kings Mountain.
Peggy, have I told you lately how awesome you are at giving advice to newbies!! I alsothink your cuckoo for loving 93 degree weather, but then again, people probably think I'm cuckoo for liking cold weather lol!!!!
Sloan, so glad yal have made such progress! It's probably a relief to be about done!
Grazy, so glad yal didn't have to do the two day garage sale. Glad yal were able to get it done. Me and my sister in law have your outlook. We both use our inherited antiques to host Christmas dinner. Nothing matches but who cares!! No use having stuff you can't use is what I say!!! I think your mom will like her new place and she will have so much social interaction. Hope the move goes well!!
Dlg1, hope your margins are clear and you have a good treatment plan coming up!!! Let us know if we can help in any way!
Dara, I sure hope your test comes back low and you don't need chemo!!!! It's a shame when a medicine works so well, but insurance companies won't cover them. They sure don't care about quality of life. Rads fly by and you are done before you know it! Thanks for the article!!!
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Phew, garage sale over with! Wow, it was interesting, arriving and seeing all of my mother's things spread out all over the place - had a little lump in my throat, I must admit. I wasn't expecting that emotion because I had already taken the things that were most meaningful to me and I thought the other items would be just "stuff" and that I wouldn't care about them. It just seemed weird to see it all spread out like that, and then watching strangers just carting things away, felt strange. After a while, I found myself snatching a few items off the tables here and there like a crazy kleptomaniac, haha! I'm sure the old church ladies thought they were going to have to start nailing things down, lol. It was pretty comical. I pilfered a pewter serving tray, a favorite vase, a tarnished silver cream and sugar set on a tray (which I found out later belonged to my grandmother, so it goes back to the early 1900s) two framed original water colors, and an army bag with my late Dad's name and number from WWII - I must have looked like a a complete nutcase zipping around and claiming things that I didn't want strangers to have. I'm far too sentimental, I've realized
Off to brunch now to celebrate with my younger daughter who is 18 today! Where did all those years go..... Blink of an eye!!
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Grazy, It's not really the things that are hard to see leave, but all the memories associated with those items. Remembering where the pieces were in the house, your mom or dad using them, or telling stories about them. And even though the "things" are gone, the memories will still be yours. But the one item I can't agree more about is your dad's bag! That is just too special. And congratulations to you and your daughter. 18 is beginning a new chapter in both of your lives! So very exciting. It all does go by in the blink of an eye. My daughter is now grown and a mother of 3. Both of my kids followed me into education, and I'm very proud of both of them, their spouses, and my 5 wonderful grandkids. Enjoy every single minute with your daughter!
Lovinggrouches, I'm with you! It's been over 100 degrees here for about 2 weeks and I'm totally cooked and done! I always dread summer and even the fall through about Oct. No wonder I'm very low with vitamin D, it's too dang hot to be out in the sun! I just have to stay in with the AC blasting.
Peggy, I echo LG's praise for advice for newbies. I've so appreciated all you've offered, and even the reminder to complete the info in the signature lines. I always look there and also where the person is located. And I drop into several other threads but this one truly is the very best! Thanks to all who post here! You are helping keep my sanity and not totally lose it (except at the carwash:-) )
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Grazy, I totally understand your "lifting" things from the garage sale. Especially your dad's WWII bag. That's definitely a keeper. I also kept things of DH's that I absolutely have no use for that I couldn't bear the thought of someone having, just too personal. Glad the garage sale is done. Now you can say "goodbye" to the house and look forward to your mother being in a safer environment with the opportunity to make new friends and things to do. Happy Birthday to DD. Quite the milestone.
Dara, Thank you for the kind words. I remember how scary it was for me and what a warm welcome I got here. I agree this is the best forum. We talk about the whole spectrum of breast cancer and treatments - that certainly helps when our new members are facing hard, scary choices (such as chemo or mx), knowing that others have been there and are doing just fine even though it was hard getting there.
I'm sorry that's it been way too hot for you. It's been that way for my pets. My kitty who is being allowed outside for the first time since I got her 9 years ago loves being out but even she won't stay out but a few minutes. I have to walk my dog in the morning otherwise I'm worried she'll burn her little feet on the sidewalk. We cooled off today and will be below 90 for the next few days. However, no rain and our fire alert level is high. Since there is still quite a bit of "open" land, some being farmed, around me, I suspect that I need to be more aware than when I was actually living in a city.
Everyone have a wonderful Sunday!!
HUGS!
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It's official! Rads to me has been much more difficult than chemo for sure. So much for "the hard part is over, you will sail through rads!" I didn't find chemo that bad. A few days out of commission feeling lousy and some annoying side effects but rads.....I've been painfully sore for over a week now and I know there is an end in sight....just can't wait! Limited in what I can even do as it is under my arm area. It is purple / red and peeling by my underarm area and bright red all down where my boosts hit. Under my breast is finally feeling better but it was never as bad as my side is. I hope it's soon on the road to recovery. It actually Makes me nauseated at times. Thanks for letting me vent . No one really seems to understand
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Karen, that's awful. I'm sorry you are so miserable. Who'd have thought it? I gather that after rads are over you should heal up fairly quickly. Are you being prescribed a lotion/creme to help with the breakdown under your arm? That area is a royal pain, isn't it? And of course we understand and this is the right place to vent! We have ladies who have had the same rad experience as you, so we get it. Maybe some of them will chime in and have suggestions for you to survive your last few rads. Hang in there!
HUGS!
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Karen: for what it's worth, I remember the rads vs. chemo: which is harder? came up on the Fall 2015 Radiation board. Those on that who'd had both, said for the most part that chemo tended to be harder physically but the round of radiation(s) was harder psychologically--you had to go in every single day and lie, all alone, on the table. But that said, the radiation phase isn't a walk in the park, physically! (My guess is that it's usually one of the last treatments, coming at the end of an emotional and physical rollercoaster the likes of which most of us have NEVER been through. Our reserves are pretty much bottomed out by then.)
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Thanks Peggy! I am actually 10 days post rads! I just have the Glaxol based cream to use. I think air (I keep my arm propped up on a pillow or over my head) will be the best to heal this. It is just in such an awful place and limits everything, even what I can put on as a top, so I really have been pretty housebound. I am sure it should be better by the end of the week. I see my family doc Wednesday and can show him if it is still bad.
My eyebrows are coming back pretty good, one side a little more than the other but still all coming in, and a couple of eyelashes lol
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Karen, hope the rest of your rads go well. I started healing about a week after I finished. You re right, no one else understands unless they have been through it. I have 2 co-workers that can't understand why I cant work all day, drive 3 hours afterwards to go to out of state corporate meeting. They think because my hysterectomy was 7 weeks ago, I should be fine. They don't understand how miserable and swollen I am after lunch. At least my boss understands and my corporate boss has had an aunt with cancer and is ok with me going home early for a while if I need to because of the surgery and just sheer exhaustion from the surgeries and treatments the last few months. (I don't go home early, but it's nice to know I can if I needed, I still worked 40 hours a week through rads and that was with driving 2 1/2 hours a day!)
Grazy, if I was you I probably would have done the same thing!! Especially your dad's bag. Even if you can't use it, would make an awesome display!!!
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Karen, I was lucky, my radiation center was 10 minutes away (or 3 minutes when DH was in the hospital for 3 weeks during them). I was no more fatigued than I had been prior to BC - I was totally exhausted so no way to tell if rads contributed. I also didn't find rads psychologically difficult. It's hard to know if that's because they just weren't for me or if I was just so focused on DH and his dire straits that everything else faded into the background. I do agree that anything under the arm hurting, being sore is terrible. I had to give away quite a few tops because the armholes rubbed on my SLNB site and even after 2 years have to make sure they aren't too snug. I hope that you soon will feel terrific, be all healed and most of your active treatment behind you (since you are getting herceptin). It doesn't show in your profile if you were ER/PR+. Will you be taking AIs or Tamoxifen?
LG, Nice that your boss understands how exhausting all those surgeries are. One you can easily bounce back from but you've had 3 and your poor body is worn out trying to heal. Continue taking the time you need to get your strength back.
HUGS!
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DaraB....just wanted to share my experience. I had the "dreaded intermediate" score of 24. I also had the mammaprint and it was still in the middle...even though it suppose to be high or low. Anyway, thankfully I had an Onco (who is also the head of the Breast Center ) who was willing to give me his opinion. He said the risks outweighed the benefit and felt taking an AI was the right decision. However, with that said of course if i wanted to pursue chemo he understood.
No chemo for me...
Best of luck with your decision.
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