Lumpectomy Lounge....let's talk!
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Has anyone had problems getting their path reports after surgery? I didn't get to see my BS yesterday, and nothing today either.. it's frustrating not knowing even the basics... so far the only thing they did is send referrals to the onc drs.
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From your diagnosis, there is nothing alarming. If something were wrong, they would have notified you immediately. Otherwise, they wait until your followup appointment. You can also sign up for access online to your records.
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Thanks Michelle, Wednesday was my follow up appt. and i got the online portal right away, i know i won't get it all, but i'd like to think it was important enough to tell me something..
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Both eczema and psoriasis are auto-immune skin diseases. Certainly our immune system is compromised. I've had psoriasis for about 25 years, and it can be "a heartbreak" as they used to call it in ads. I had a biopsy of it to determine exactly what the issue was. I sure hope you are able to get to the bottom of it and find something to ease the symptoms. I guess it's a good thing they ruled out mets and shingles??? Feel better!
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IHGJAnn, it is thoughtless of surgeons etc to not issue your path report as soon as it is available. They seem to think it doesn't matter that you are sick with worry about what it might say. They wouldn't like it one bit if they were in your position and they wouldn't stand for it either. Still I agree that it likely doesn't hold any surprises. Some women here have had to wait for a month for their report. That, to me, borders on criminal. I was extremely lucky that my BS called me on the Friday evening after my Wednesday surgery to tell me my results. Fingers crossed that you get your report soon.
HUGS!
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The nurse called this morning and said she had talked to Pathology and although they still didn't have it, she will call as soon as she gets it.. so something anyway..
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Judy, at least you know you aren't being ignored!
HUGS!
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Everything helps.. Thanks!
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IHGJAnn - Though can usually go to the front desk of where you had the procedure and sign the paperwork to see your medical records. The problem is that most hospitals send out their tumors and it takes a week or two for the reports to come back. But try calling medical records at hospital and doc office.
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Judy, hope they call you soon with good news. Maybe because they know I’m a lawyer and a doctor’s wife, my docs call me right away with test results, even before they appear in my portal. Never had to call them to ask.
Mary, you might want to ask your derm for an anti-inflammatory cream such as ketoconazole (which my derm prescribed for my seborrheic dermatitis--sorta like dandruff on the sides of my nose and corners of my mouth) or a steroid ointment (like the triamcinolone she gave me for my breast redness and radiation fibrosis--which my RO offered to prescribe at my second session but I didn’t think I’d need). And this might sound really weird, but......try gently washing the area with Head & Shoulders and then applying a tiny dab after. That’s what Bob’s derm had him do for the flaking rash he got from eyeglass frames.
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LovestoFly - what is zoladex?
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Sloan -- That is awesome...
KD -- http://www.breastcancer.org/dictionary/z/Zoladex_t This will explain what it is.
IHGJAnn -- I went to the records department and filled out a form. I am getting my test results and the doctors notes..3rd session of AC today only one more to go and I will be switching to Taxol. I know it is bad to wish your life away, but I wish this part was done.
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My BS just called and said the two nodes taken were negative and the margins were clear!!! Now to finish healing and forward to therapy.. it's going to be a good weekend.. I can relax...and enjoy it
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IHGJann, that is so good to hear. Congrats on your good diagnosis. We are twinning, my mammogram and ultrasound were done on August 1 and 2nd, with my biopsy on August 3rd. Surgery was on August 30th, got results on 9/6. I am glad you got clear margins and negative lymph nodes. So radiation and hormone therapy? Michelle
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How does one get on this Zoladex? Do I ask my MO about it? Or do I have to wait until chemo is over? Seems I need this too!
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Sandy, Peggy and Dara...yes.. thanks for all of your very good ideas and advice. It is actually much better and not itching today. Goodness..who knows?!? Am def looking forward to the next apt once all is cleared up to discuss shingles vaccine as well as flu shot.
What is everyone doing about getting a flu shot?
Hugs all!
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Sandy- just saw your most recent post- we have Head and Shoulders- so will use it tonight...funny...I ran out of the shampoo I had been using for my very short hair about 3 weeks ago...was using Kevin's H&S...3 or 4 days ago I remembered to get my shampoo and so 3 days ago started using it...then, the rash....makes me wonder if you are right?!? SO, will use Kev's H&S and call PCP abt the ointment you recommended on Monday. Thank you SO much for mentioning this!
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KD -- Definitely talk to your MO about it. Here are a couple of more pages that talk about it:
http://www.breastcancer.org/treatment/hormonal/wha...http://www.breastcancer.org/tips/menopausal/types/...
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Yay, Judy. Wonderful news on the clear margins & negative nodes. Such a relief! As you said, relax, get healed and move on to the next step
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Yes, they already sent the referrals in for the radiologist and mo
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Judy, FANTASTIC news!!! What a relief!!
HH, I just got my flu shot yesterday from Walgreens. No charge since I'm Medicare. I've been getting them for 10-15 years.
HUGS!
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Congrats IHG, that is awesome news. I know that feeling of relief when you get that report about nodes and margins!
Re flu shot, I was told I have to wait until after chemo, not sure about anyone else. I've heard that at least in this part of the country, the flu season is predicted to be really bad this year. Yuck!
HH, so glad the rash is improving. If you try the Head and Shoulders, you might want to make sure to moisturize afterward. Any dryness can irritate many rashes.
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Congratulations, Joanne! What a relief for you.
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f you are pre-menopausal, then definitely ask about Zoladex. Until a few years ago women like me ( premenopausal and oestrogen receptor positive) would've been put on tamoxifen for five years, then 10 years. There was a pretty recent study called the soft study and it found that premenopausal women had a significantky lower risk of recurrence if they did ovarian suppression with tamoxifen then tamoxifen alone, and even lower if they did ovarian suppression with an AI, which is the kind of hormonal medication they give women after menopause. Scary for me to take all the steps, I'm doing OK on tamoxifen but I didn't expect to be forced into menopause 10 years before I anticipated it, but if it lowers my risk of recurrence then it's worth it, at least worth trying. So far I'm fine, but I've heard it takes a while for the effects to kick in, about a week.
Little bit TMI, I was worried about my sex drive, and I probably should be, but I am strangely in the mood today even though we just did the deed a couple nights ago, and we are not particularly active!
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Jill, not TMI here. It's good of you to share. I'm sure others have wondered what effect it would have on their sex drive. Nice to know it's still working just fine. And where else can you share this and have everyone understand exactly why you are?
HUGS!
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Jill...I have always appreciated your info about sex...I( just don't have many local friends who talk about it much less those with BC...we have not been intimate in abt 3 weeks and I was really nervous that it would be painful since I am on Arimidex and all...but I told my DH that and we were prepared...and, sort of laughed our way through it at first and it still worked! I am not ready to give up that part of our lives together at 57! Just wanted to report that it can still be fun/good/etc.
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ElizabethAM- I was there, too, with my third round of AC. I know how hard it can be to hang in there. My chemo nurse assured me that Taxol would be a night and day difference, and it really was. I had no nausea during Taxol, I started getting more energy, my tastebuds started coming back, as did my hair. I continued to have dry mucus membranes, although not as bad. I did get some very peripheral neuropathy. By that I mean, I had tingling at my fingertips not even as far as the base of my nails of my fingers and not typically past the first joint of my toes, except both of my fourth toes were numb by the end. I also had issues with mu nails. Luckily, my nails have always been very strong and healthy. They never got brittle, but they did discolor and pull away from the nail bed. So far, I haven't lost any, but I understand it can take several months to completely reattach. Overall, even though I had se's to deal with, I felt MUCH better with Taxol.
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IHGJann49 - Terrific news. May you truly enjoy the weekend!!
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ElizabethAM--how are you feeling after your third round of AC. I had my first today. Nurse told me that how you react to the first AC treatment is how you will react to all of them except maybe have a little more fatigue. Is that not true?
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Dara -- I found this on the website here about vaccines. If I can get them I really will, but I will discuss it with my MO first.
http://www.breastcancer.org/tips/immune/helping
seq24 & 1step -- So far I'm feeling good. I still have the indigestion that started during Session 2, but my MO gave me medication for that. My low WBC is being addressed this time around by increasing the number of injections I will take this time. Instead of 7, I will take 10.
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