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Lumpectomy Lounge....let's talk!

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Comments

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,338

    Mari, that's WONDERFUL!!!  Hold on - next week it's over!  Thanks for the cheer!  I'm really excited about my oncotype too.  Looking forward to the rads and being done!

  • panthrah
    panthrah Member Posts: 140

    PontiacPegg... Im from Mi  (moved to ca when i was 2) most of my family is there :p 

  • ndgrrl
    ndgrrl Member Posts: 645


    MRI results were good :) I am so relieved. Hard time with IV- 3rd times a charm- I am a problem child.  I was a bit disappointed they only gave me ear plugs not music so it was a loooong 45 min and my face got so hot , but its done and I am happy!! Finally feeling as if I can more on and not worry as much.  :) 

  • Lorrilynne
    Lorrilynne Member Posts: 7

    psalm - I'm also scheduled for 2nd lumpectomy to get clear margins and will also be doing SND this time. I asked my surgeon if I should just be doing double mastectomies and she said it was up to me. Didn't help me any! UGH!  I've now decided that if this comes back needing more, I think that will be it. So hard to not second guess yourself! 

    I'm also meeting with plastic surgeon before the next surgery for a consult. I've already got implants and I've heard radiation can have an effect on them. Also, my concerns are that if I should have a recurrence later that previous radiation treatments can make reconstruction difficult or have a higher chance of failing. Lots to think about! 

    Trust that when you make your decision, it's YOURS and not to make anyone else happy!

  • Jo6202
    Jo6202 Member Posts: 165

    Psalm,

    I had to have a re-excision also. I was like you and questioning if I made the right decision. Now a year later I feel more confident that I did make the right choice for me. However, I wish I would have known some questions to ask like how much more tissue are you going to have to take?  Will I likely need to have a plastic surgeon there also? How much longer of a recovery willI be needed before I can start my radiation? I had well meaning friends ask why I didn't just have a mastectomy and be done with it?  Well, they have never been in our position and until they are, they will never understand what a hard decision it is with so little time to weigh and discuss options. I see my surgeon on Sept. 9th and she is going to give me a plastic surgeon referral as I am at least a cup size smaller on my bad girl side and my nipple is pointing off to the side. Hope this helped and you can always personal message me if you want. Best of luck!

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,338

    Panthrah, I was born in Long Beach and moved to Michigan at age 6 months :)

    NDgrrl, glad about the MRI results!  YEAH!!!!!!!!!  it sure is long though, I agree!

    Lorrilynne and Jo6202, such awful decisions we have to make.  I'm sure Psalm will appreciate your thought processes in deciding how you did.  And Lorrilynne, you're right - the decision you make has to be right for YOU and no one else!

  • Psalm34-4
    Psalm34-4 Member Posts: 22


    I hate to be brief, but I am in bit of hurry with getting things ready for surgery tomorrow, (still at work). BUT I have to say you ladies are so so so awesome!!  Thank you so much for the input, it is so wonderful to be able to get input from others who have walked in your shoes!! I am feeling at peace with lumpectomy tomorrow, have prayed for God to give me the same peace He did with my first lump.. and He has!! Look forward to getting to know you amazing ladies more, and praying for all blessed day, whether facing surgery, rads, chemo, post op pain, or just sitting at home enjoying life.

    Thank you all!!

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,338

    Palm, Peace!

  • Rosiesride
    Rosiesride Member Posts: 197

    Jo...you are so right about people not knowing our decisions to keep lumpectomy....it's so easy to just say " I would just get them cut off"....you are spot on about the time frame of things and all we are faced with at dx as well as a much harder surgery and if recon is involved, longer getting back to normal!  I am happy with my decision and when the dust settles and my worries become too great I can always re think it but for now I am living life as a lumpy!! Rosie

  • ncollett
    ncollett Member Posts: 753

    Good luck Psalm we will be thinking of you. Rosie you are so right. When my sister heard I had to have a re-excision she told me its no big deal you just need to relax. I am still kinda mad at her for that because its not her going through this at least not right now and I would never tell her that BC is no big deal.

  • SailingWind
    SailingWind Member Posts: 59

    Ps happy you are at peace with your decision

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,338

    Nancy, breast cancer is no big deal until you have it.  Then  you realize it's not as easy as everyone seems to think.  The decisions that have to be made aren't cut and dried - they are complicated.  Perhaps your sister was trying to make you feel better.  It is hard to know what to say when you haven't walked this path.  To someone not in the know, surgery seems a snap - take it out.  We know there are plenty of variables there.  I would cut your sister some slack.  Hopefully she will never know how wrong she was.

  • ncollett
    ncollett Member Posts: 753

    Your right Peggy it just hurts when she says things like that. I do hope she never has to deal with this. Hope everyone has a good night. Time to watch the Colts.

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,338

    Wrong team, Nancy!  The DETROIT Lions :)  And we're winning!

  • ncollett
    ncollett Member Posts: 753

    LOL Peggy no I got the right team alright and when we put in our starters we will be winning too !!

  • ncollett
    ncollett Member Posts: 753

    image

    GO BLUE!!

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,338

    Nancy, let's agree to disagree :)  Anyway, it's nice to have football.  Our Tigers seem to have difficulty in staying in first place (or even in the running for the playoffs) - damn!

  • ncollett
    ncollett Member Posts: 753

    Ya we do too. Lol.  I love football, Im glad its football season again. We can agree to disagree and I still love ya Peggy ")

  • Dogsneverlie
    Dogsneverlie Member Posts: 164

    Hi everyone!

    Jo:  I am in the same boat as you as far as by lumpy side being at lease one cup size smaller and my nipple points down.....such a bummer.  I didn't really give it too much thought until I went bathing suit shopping and you can REALLY tell in a bathing suit. I had a PS consult and we are going to do fat grafting in November.  I am seeing my rads onc on Oct 1, 3D mammo end of Oct and meet with surgeon to make sure I am good to go because I don't want to have this done and then have another issue..........two stereotactics and two lumpectomies is plenty enough!

    Psalm: Thinking of you and hope all goes well!

    Football Girls:  NE Patriots fan here!!!!!  :)

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,338

    Dogsneverlie, I'd say you'd had enough!  My nipple is also pointing down - maybe it will perk up in a month or two.  i can't really tell yet how much smaller my bad breast will be compared to the good one.  I'm an A to begin with so anything smaller and I just won't have a bustline :)  Good luck with all your appointments!

    Looks like we have the makings of a real football league here :)

  • Psalm34-4
    Psalm34-4 Member Posts: 22

    hi my lump-partners!! Had second surgery ( excision/lumpectomy) today, all went well. Home taking it easy. So far pain isn't as bad as first, the sentinel node site from first surgery seemed more tender/ bothersome than breast incision &  this time was only breast so...

    I said after all my poor boob went thru before surgery that it was toughened up & surgery was piece of cake, lol! ( 2 breast ultrasound guided needle biopsies & 2 wire mammo markers of surgery, plus seemingly gazillion mammograms all in 2 week time frame!)

    Now just continuing to pray for CLEAR MARGINS!

    Hope you all have a relaxingly marvelous weekend!

  • Rosiesride
    Rosiesride Member Posts: 197

    psalms...prayers for clear margins! Rosie

  • Jo6202
    Jo6202 Member Posts: 165

    Psalm, 

    Glad to hear things went well so far. Prayers for clear margins this time. Take care.

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,338

    Psalm, so glad it went well and that you are comfortable.  I'm sure you're right about this being a piece of cake compared to everything else you've gone through.

    Now positive thoughts going your way for clean margins!!

    Take it easy tonight and for awhile!

  • PoppyK
    PoppyK Member Posts: 1,275

    Hi Everyone!

    I have posted in other areas of the board, but just found my way here.

    I had a lumpectomy, sentinel node dissection, and oncoplastic reconstruction (reduction and lift) on both breasts on July 23. The doctors expected to find clean margins and negative nodes. The margins were clean by 1mm, but the node was positive. I had a rough reaction to the anesthesia and pain meds, but am feeling much better now. It's been about 5 weeks since my surgery, and I am still bruised and swollen... sore, too.

    Next week, I have my first appointment with my MO to discuss my treatment plan. Just the thought of chemo, the port... everything that goes with that... terrifies me. I will also meet with my RO. Any advice regarding chemo or radiation?

    I've always been fearless and determined, but BC has really unsettled me.

    Wishing you all continued healing!

    Poppy

  • rmlulu
    rmlulu Member Posts: 1,501

    Labor Day Weekend Lumpies 

    I've been MIA...hubby very I'll:( but playing catch up...forgive not shouting out by name to all...but in my thoughts&prayers 

    Ooo who....time for healing and just soaking in life...breathe:))) WELCOME new Lumpies! Glad you found our lounge, but sorry you qualify to enter :(((

    Congrats! 1 yr out anniversary !  Happy Dance....L2grl

    Fingers&toes crossed for those clear margins...:)))

    Kuddos for those playing laser tag! Hydrate Hydrate Hydrate! And free boobing...soft cami girl out to the air:)

    Poppy - breathe! Give yourself time to heal.  Don't get ahead of yourself.  Stay focus on today.  You will be ok and you will be able to do this...just breathe and give yourself some grace.  Chemo will come before rads, but right now it's healing time.  So as best as you can take a NO C vacation between each step of tx and focus on things that make your heart smile!  Really, tell everyone ask now because I'm not discussing or focusing on c until the next step...don't let your joy get stolen...today...enjoy today! In your pocket {{{squeeze}}}

    Busy thread with so many things happening....gosh were s my magic wand...zip zap click heels...all better now...puff:)))

    Ok, play some ball!  Kick-off!

    (((Hugs)))

    Cindy

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,338

    Cindy, hope hubby is doing better.  That's difficult.  You take care, too!

  • Debster
    Debster Member Posts: 42

    Cindy sorry to hear your hubby is sick. I hope he gets better quickly!

    Poppy I know it can all be overwhelming but try to just take it a step at a time and remember you are not alone. The chemo and rads are not as bad as we sometimes think they will be. Write down any questions you might have for your MO and I took a friend with me to write down what she told me and to ask questions as well. That worked well for me.

    Have a great weekend everybody!

  • charusa
    charusa Member Posts: 13

    I am just doing some catch up reading here since I have mostly been in the rads forum. Just a thought for those of you who are care givers to their husbands. Most nursing homes....I know everyone hates those words but I worked in a good one that was also a rehab facility, offer what they call respite care. Respite care is just a temporary admission while the primary caregiver is unable to offer care in the home. It can be set up for as long or as short time as needed and is usually covered by insurance. Might not be the best solution but as a last resort to keep in mind. Taking care of a spouse with Parkinson's is no walk in the park for a healthy person and during this process of recovery for yourselves you need as much help as you can possibly get.

  • pontiacpeggy
    pontiacpeggy Member Posts: 6,338

    Charusa, I'll have to investigate further on that because, plain old respite care without a medical reason on the part of the caregiver is not covered that I can see.  Hubby is having a cancerous tumor on his kidney removed on the 15th and there is a good chance he will have to go to a rehab facility since even 1 or 2 days in the hospital weakens him terribly.  So that may turn out to be my respite care.  I should be able to manage 2 weeks of rads without extra help.  But it's an excellent thought.  Thank you.