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Cytoxan Taxotere Chemo Ladies- February/March 2013

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Comments

  • FairyDogMother
    FairyDogMother Member Posts: 154
    edited November 2013


    Thank you all for the suggestions and humor. Sorry to hear about other’s peoples boobs. I think I will print this stuff and take to my MO. Right now I’m going to call my Dentist and a guess an otolaryngology. I guess I should look for another oncologist if this one doesn’t take the Side Effects seriously.

  • audra67
    audra67 Member Posts: 127
    edited November 2013


    I agree, I think you should get another oncologist.


    I have had sore throat and ear pain and tooth pain off & on this 1st round as well. It is a side effect..


    I am rinsing with baking soda and salt after I brush my teeth and gargling on my throat....it really helps.


    My oncologist I LOVE, he is kind and told me to call at 3am if I need to as that's what he is there for, he said they can treat most side effects and I do NOT have to feel bad through this...so I do like that!


    I used to be a nurse years ago, and worked in a large clinic with different specialty docs...I would say probably 5 out of 25 were compassionate and kind and really cared about their patients....so you really do need to find one of the 5!


    Happy Thanksgiving EVE...it's going to be 'different' this year...but still have so much to be thankful for! right??!!!

  • keepthefaith
    keepthefaith Member Posts: 856
    edited November 2013

    FDM, I hope you find some answers for your SE's! I agree, your MO is working for you; you are in the fight of your life. You need to be treated with respect and compassion. Don't stop until you get what you need. This BC is hard enough to deal with as it is; no need to feel pain when you don't have to. So far, my whole medical team has been wonderful. I did change MO's after my first visit and am glad I did.

    QG, I hope you can resume your treatment soon!

    headeast, so glad you are getting out again. I hope the rest of your recovery continues on a postive note. It sounds like you are finding your balance:).  I know what you mean about the infections fear, etc.  Trying to push BC to the back burner is hard when you face it every day in one way or another.

    Wishing you all a Happy and Blessed Thanksgiving!

    ((HUGS))

     


     

  • KBeee
    KBeee Member Posts: 695
    edited November 2013


    I was thinking about what everyone has said about compassion, etc. I am guessing that many of the very compassionate oncologists have had a personal experience with a family member going through cancer treatment. Until you have actually gone through, or lived with someone going through it, I do not think you can have a true appreciation for what really is involved. I almost think it would help during their residency to have them live with a family of someone going through cancer for a few weeks. I think it would change their perspective a lot. Going from room to room with a bunch of other residents at a hospital does not adequately prepare them for what their patients are truly going through. I work on an ambulance, and there are severL coworkers who are truly nice people who love what they do. Nevertheless, I do need to remind a few of them that though this may be the 5th call for XYZ today, it is this person's first time calling for this, and they are scared, nervous, and sick...just as much as the first patient. They sometimes need that reminder, and I sense it is the same thing with many MOs. I am hoping at they have comment sheets to fill out at the end...but I doubt they will.


    FDM, Hopefully the specialists will give you so some solutions. Maybe they have some tricks up their sleeves without the tunnel vision of the MO. I hope you will find more compassionate doctors. For your doctor who said chemo would not cause certain side effects, you could say the same thing I said today. When I had neupogen in the hospital, it made me very nauseas...both doses....it started the same amount of time afterwards, and it persisted for days. I have had zero nausea from chemo, so I knew it was from that. When I asked at the last appointment if I could have something else for nausea, MO said that Neupogen and Neulasta do not cause nausea. He told me to take compazine...i told him it did not work. He told me to take steroids. So...long story short, I called today as instructed to update them on my temp, and while on the phone I asked for something for nausea and vomiting from the Neulasta. They repeated that Neulasta does not cause nausea and vomiting. My response was, "I am glad to hear that the majority of people do not get nauseas from this. I see in the literature that it is not a common side effect, but apparently my body did not get that memo because I have been nauseas, vomiting, and am dizzy, just as I was from the Neupogen, and would appreciate avoiding any further ER trips." I did go on to add that my PCP office was still open, and I would be glad to just go there and get a prescription if that was easier (and my PCP would do that for sure). MO called in some Zofran. It is working. I am not sure why it came to that...I was polite, but was direct and did finally get my point across.


    Quirkygirl, I hope your wounds heal soon.


    Wrenn, I hope you are still feeling good.


    Wishing everyone here in the US a blessed Thanksgiving. Wishing everyone some side effect free days.





  • TeamKim
    TeamKim Member Posts: 301
    edited November 2013


    FDM -- Don't be surprised if your specialists are not really able to cure the SEs -- oncology is not their specialty. But I hope they can help to treat your symptoms. When you see them, take a detailed list of all the drugs you have taken, and print out the side effects of Taxotere and Cytoxan for them. IMO it would be wise to also change oncologists, but in the meantime, maybe you can get some relief. Keep a journal of your SEs, what you take, what you eat, etc. just in case you need it.


    Buckle your seatbelts -- I am about to let loose with a rant!!!! Bluegrass -- there's a puff of angry steam goin up in so cal as well!!


    We deserve to be treated as the strong women we are, not as petulant crybabies. Chemo just plain sucks, and a lot of how it works on an individual is guesswork, even for the most experienced and cutting edge doctors.


    KBeee is right, those with personal cancer experience often are are most compassionate. My first tx resulted in a rash in my perianal area, which I initially thought was a yeast infection. The onc nurse suggested I call my GYN since my MO was out of town and I was at work -- she was just trying to figure out how to get some relief to me ASAP. My GYN is a prostrate cancer survivor, and he called me back right away and called in a prescription for some cream with a little steroid in it. Turns out that my rash is actually an allergic reaction to Taxotere, which I have gotten all three infusions, but the cream remains part of the treatment -- Vagisil (for numbing) and Desitin (to keep the meds on the rash) have been added, and for the same rash which occurs other places on my body, I combine cortisone 10 cream with benedryl gel and rub that on. Arriving at this treatment was a trial and error process which even involved taking a photo of the rash with my phone can emailing to my onc nurse (haha) but the MO, BS, onc nurses, GYN and on call MO were all part of the team working to help me find some comfort. "Your body just doesn't like Taxotere" says my MO (can't imagine anyone's body does like it, but I appreciate his acknowledgement that my reaction is not a figment of my imagination). He is a biological chemist, and he went off on a musing that it may have something to do with the fact that I am allergic to Biaxin, and there is a slight chemical similarity between that antibiotic and taxotere. Hmmmm.


    I have the sore boobs too -- in fact, it scared me at first because I thought maybe there were tons of dying cancer cells in there where my margins were supposedly clear. At a follow up appt with my BS, I asked her about it and she said the nerves are sensitive in healing breasts (hence the zingers we get) and each subsequent treatment evokes some shadow reactions. She said they do chemo before rads for that reason, because if you have rads first, the chemo brings back the rads side effects. Rads can also bring back a little of the chemo SEs, but less so, she said. She chimed in on my rashes too and contributed the suggestion to use Desitin throughout chemo.


    I also get fevers from Neulasta (and my MO says that is the cause) -- but the on call MO over one weekend insisted that Neulasta does not cause a fever. "Well," I told him, " your colleague who is the clinical chair of your practice disagrees." That shut him up (though he grumbled a bit -- can imagine the Monday morning conversation after that -- I am probably labelled a cranky patient, but who cares). KBee gets nausea from Neupogen and Neulasta. I got heartburn from Neupogen, but Neulasta doesn't do that to me. We are different.


    How many times have we heard WE ARE ALL DIFFERENT? That being true, how can ANY doctor say that this drug cannot cause this side effect for ME???


    We are all vulnerable, worried, needing to trust in our team, and scared -- but we are also strong women, educating ourselves about our treatments and working to get better. We deserve a patient, thorough and COMPASSIONATE answer to every question. And thank God we have each other so when we get the run around, we have some hands to hold!! Go get 'em sisters!!!!!

  • GrammyR
    GrammyR Member Posts: 297
    edited November 2013

    wrenn - do not hesitate to ask for something  stronger  than Tylenol  Bone pain can be pretty bad.

    FDM- sorry you had such a rough time. Afraid yku will hear a lot of go another Dr or dentist. My MOs still say that. They believe nothing much is related to chemo- wrong.  Most of  them have NP or PAs that will deal w/ sid  effect issues. I got tired of telling my complaints like 3 times an still not able to talk to my  MO personally. Only your BS team can advise on your incision area.

    I am a retired RN and bitch at tbem until I get a satisfactory answer. 

    Just a quick comment on pre dental work and flu shots. Do not wait until a few days before chemo, as you could get really sick when you  body defences go down during chemo.

    I too only wore scarves but had a syntbetic wig which I took to my hair stylist wbo trimmed it a little . Still this was Fl and way too hot.

  • schoolcounselor
    schoolcounselor Member Posts: 229
    edited November 2013


    Ladies, great fro all of you standing up for ourselves.


    My Dad was a surgeon , he died of stomach cancer in October, after one of his surgeries he remarked to me how he could not believe how hard it was to get out of bed after surgery and his mentioned regret about making his patients do it for the last 40 years. So it took him being in the actual shoes of his patients to get it.


    Fortunately my team is compassionate but some of these doctors are just downright mean!!!


    Does anyone fingers hurt? I have 4 nail beds that have become gray, but my fingers hurt and so it is hard for me to open jars and bottles.


    While I wear my scarf, I find myself over heating, the other day I pulled it off i my car ad drove home with my bald head. I can see myself yanking t off my head in public, I just don't want anything o my head sometimes!


    Going to my mom's for thanksgiving tomorrow, think I might take a Xanax to keep my mood under control. People are starting to say things to annoy me, how it's almost over etc. I just dont want platitutes anymore

  • FairyDogMother
    FairyDogMother Member Posts: 154
    edited November 2013


    Thank you all for the uplift. I will definitely fight on this one. I did spend an hour of my time today talking to my densest who told me the teeth pain and such is due to the chemo. I might want to start eating soups or things through a straw. He said there a s nerve that runs the whole way of the mouth and if the chemo I’m taking causes allergic reactions or nerve issues that is why I have pain. There is nothing he can do for me, except take some aspirin maybe that would help. He was insistent to keep harassing my MO.


    I have read up on the SE of TC and the ones I have are less common and sometimes rare. So, maybe I”m the first for my MO to have someone have these side effects. As for my boobs, I freaked out I thought, “There is cancer in the right one too.” I had a nightmare of waking up to cancer coming out of me like the alien in the Aliens.


    I am going to print some of the SE from this discussion board and take them in my MO. I will give her one more try for the 2nd chemo. I don’t know expect her to fix my SE but I want to let her know what is going on.


    Thank you for everyone. Have a Happy Thanksgiving!


    She did approve 1 glass of red wine a week, so tomorrow I will have my wine. Since I can’t taste anything I figure I should drink the cheap stuff :)


    Cheers.


    FDM

  • Melrosemelrose
    Melrosemelrose Member Posts: 607
    edited November 2013

    If you are wanting to have some ammo on side effects to give to your MO's who seem not to know what the side effects are, here are two websites:  http://www.drugs.com/ and http://chemocare.com/chemotherapy/drug-info/default.aspx.  You can put in any chemo drug name and read up on the side effects of the chemo drugs.  I'm so sorry that some of your onco's just don't want to hear that it is possible to have certain side effects and possibly because they just don't know.  However, you will always be your strongest advocate so please keep pushing to get some help. 

    I used blank monthly calendars that I printed off the internet to write down my daily side effects and how I was feeling moodwise.  It was also a way for me to track my temperature which did fluctuate off and on.  This made it easier for me to tell my onco and the clinical trial research coordinator what I was experiencing and how I felt.  It also gave me an idea of how I felt after each round of chemo.  I also kept a daily food diary so I would eat on a regular schedule and would know what I ate when and what agreed with me.  I had a drug diary also so I could keep track of what drugs I took when and how much.  All of these things were ways to help me keep track of me. 

    Always know that you can take a time out from everyone tomorrow at family gatherings.  Just excuse yourself to breathe a little and take a moment for yourself.  It's okay.  Be easy on yourselves.  One of the most difficult things to remember here is that like you,  family members and friends have never been on this kind of journey before and they don't always say the most appropriate things and act in the most caring and sensitive ways.  I know first hand how frustrating that can be and understand how hurt you may feel..  If there is any consolation to you, there are many here who get how you feel..... I get it.   You will have eyes opened up here and you will continue to experience changes in relationships and hopefully for the better.     

    Sending gentle hugs to all and wishing for a side effect free peaceful and calm Thanksgiving.

  • Jtrosesav
    Jtrosesav Member Posts: 13
    edited November 2013


    I feel like I can't take how I'm feeling any longer. I had TC #3 last Friday. For the first two, by today, Day 6, I was almost back to myself again. Well, this time, after dealing with constant nausea, intermittent cramps, gas, constipation, etc......., I started feeling a lot better yesterday and then today was struck with something new and extremely unpleasant. I'm going to describe it and if any of you have felt this way, please reach out to me and tell me what helped. It's hard to describe, but, it feels like nothing I eat is digesting, it turns into a sour feeling after I eat it, no matter how little in amount or what food it is. Nothing tastes good, and even if it does, within 5-10 minutes, this sour feeling just sits from my belly all the way up through my throat and it's really disgusting. I've tried ginger tea, a pill for indigestion, ginger tablets, papaya tablets. I burp more often. If anyone can help, please post on here or pm me, please. I'm going away in 2 days for two nights at a nice hotel for my birthday and I don't want to feel this way!!! Should I call the doctor on call? Why is this happening on day 6 for the first time?

  • GrammyR
    GrammyR Member Posts: 297
    edited November 2013

    SchoolCouns- I had a day like that too way back then.  I got a huge panic attack, although at home alone.I got in the shower which did not help. Ran outside - clothes on but bald head. I finally took one of the Lorazepam that I had never taken before. In 15 mins I started to breath and relax some. Turned out to be a reaction to the Percocet pain pill which was a new Rx. I hated it when people said its almost over. How in the heck can they relate. Finger pain could be the start of neuropathy which I felt in my feet starting after the first dose. I am now 7 years and still have it. Anyway everyone extra hugs for the holiday to all and pamper yourselfs.



  • Jtrosesav
    Jtrosesav Member Posts: 13
    edited November 2013


    Thank you, Wrenn. Just getting a response of caring helps some. Do I really want to bother an on-call doctor on Thanksgiving? I don't think so.

  • Palameda
    Palameda Member Posts: 91
    edited November 2013


    jtrosesav, I'm guessing you've already tried it, but I'm living on gas-x. I'm only on #1, hopefully another veteran will respond...

  • TeamKim
    TeamKim Member Posts: 301
    edited November 2013


    Jtrosesav -- I hope some people can chime in on this. I am having more heartburn this tx (my 3rd) as well, and this is day 6 for me too. This morning I woke up with the feeling that my mouth was coated with that yucky taste -- no amount of brushing or rinsing seemed to help. I have been belching a lot too, though I drank some ginger ale, which brought on a lot of belching, but then the taste was better for awhile. Mine seems to get worse when I eat anything with butter or any kind of fat (which is everything). Even pretzels and saltines seem to do it. I had some painful heartburn during my first tx, but this isn't painful, just yucky.


    I had some Lemon Ginger Probiotic hot tea (Bigelow) and that seemed to help for awhile. Been popping Tums too, which briefly quell the taste. I have decided to wait it out, but then I don't have anything fun on the agenda. You should definitely call and see what you can do to resolve it so you can enjoy your birthday trip.

  • Bluegrassharp
    Bluegrassharp Member Posts: 73
    edited November 2013


    Jrosesav, yes, I agree that you should to call your doctor about your new SEs ASAP, even if it's the middle of the night! Although we've heard about some exceptions, most doctors are compassionate people, and would welcome a chance to ease your symptoms, especially on a holiday. I wish I could offer some concrete, sure-fire remedy, but I'm a cycle behind you on this journey and have not (yet!) experienced these SEs. But I can offer my thoughts and genuine hope that you soon will feel better! Please keep us posted on your progress -- you have sisters all over the country who care about you!

  • KBeee
    KBeee Member Posts: 695
    edited November 2013


    FDM, Taxotere definitely causes nerve issues. Be sure to share the dentist's comments with your MO. Keeping a daily log of symptoms can be helpful too.


    Jacquie, It sounds like heartburn. That has worsened for me with each treatment, and prechemo, I never had any issues with heartburn. It does make my throat very raw. As some have suggested, Tums may help, but you may need something stronger too. Zantac helped me a little, and my MO suggested Prilosec as well. I hope you get some relief. If not, do not hesitate to call. When you work in medicine, you know that somedays you work the holidays. That's just the way it is. Our side effects do not take the holidays off, so if you need something, call.


    Teamkim, I hear you on the rant.


    SC, I am so sorry to hear that you lost your father to stomach cancer so recently. You have had way more than your share to deal with in these past few months. Your father sounds like a very wise man. The finger pain can be from the Taxotere or from neulasta, but it also could be a sign of neuropathy, especially since it is affecting function. You definitely need to mention it to your MO prior to your next chemo because sometimes they will adjust your dosage if they believe it is neuropathy.


    It is Thansgiving. I am thankful for a lot, but specific to BC, I am thankful to have had all of you here to get me through these challenging times. You all just "get it.". Venting here has helped me to keep more positive with my DH and kids and such, because once I let my frustratious out, I generally feel much better. I am thankful for my BS and PS who have always been incredible through this ordeal...both talented and compassionate, and very willing to do whatever they could to get me back to my job. I am thankful for my MO. Though he really, really frustrates me sometimes when he does not take some of my odd symptoms as seriously, I do feel that he gave me a voice in my care, and some of the more typical side effects which could have been more serious he did evaluate thoroughly to rule the bad stuff out. I am thankful to my coworkers...they showed up at my house with a fire truck 15 minutes after hearing of my diagnosis...bearing flowers, ice cream and pie... 24 of them shaved their heads with me. I am also blessed with an amazing group of friends who have filled our freezer with more food than we can possibly eat...without ever being asked. My Dh and kids have been amazing as well. I am feeling very blessed today.

  • ckmoss
    ckmoss Member Posts: 95
    edited November 2013


    Hi,


    I wanted to chime in and wish all of you a Happy Thanksgiving and hopes that you feel ok, or close to it, today. I am thankful for this board helping me through my chemo and prayers go out to all of you still going through.


    Quick note on yucky mouth taste....only 2 things helped me...orange juice (and that only for about 10 min after)..but mainly icebreaker spearmint mints. Its the only mint that would help me..and did work for about a hour..at which time, I would pop another..lol.


    I hope you guys have a great day!

  • Headeast
    Headeast Member Posts: 393
    edited November 2013


    jtrosesav, I have suffered form ulcers and heartburn and stomach issues are a common SE with mt tx. I take Omeprazol 40mg daily, Gasx and believe it or not one yogurt a day. I added the yogurt (greek, no fat) on the tx2 and helped with the heartburn. Might be that we are missing flora and probiotics help.


    Call you MO on call. I am sure he is not sitting at an office. He can handle two minutes of his time and help you. I am sure he will tell you to call him at anytime, it is better than having a patient suffering.

  • Jtrosesav
    Jtrosesav Member Posts: 13
    edited November 2013


    This Thanksgiving, I am thankful to all of you. I was in a real crisis last night and posted even though I had not posted in a long while and had not gone on to see who I might be able to lend support to, and you were all there for me, encouraging me, making suggestions, and most of all letting me know that the doctor on call is there to be called!!!!! So first thing this morning, I read your responses to my fiancée which brought us both to tears, he agreed completely, and I called the dr. On call, who called me back in two minutes from the hospital. He was very nice! He told me to take Gaviscon 4 times a day and Pepcid Complete 2 times a day and he told me for how long and also to avoid spicy, citrus and tomato sauce. So my fiancée went to Walgreen's, picked the items up and some ginger ale, and before my breakfast of toast and organic Neufchâtel cheese, I took the doses. I feel somewhat better but am at least hopeful that continuing what he said,I just may feel "more better" by tomorrow and hopefully will be able to partake in turkey, etc today which my "f" is now roasting. Specifically, thank you to Wrenn, PatAlameda, TeamKim, BluegrassHarp, KBeee, CkMoss, And Headeast..........and......lesson learned....I will try to be on here for all of you. I hope that each of you are able to enjoy Thanksgiving, Chanukah ( for my Jewish sisters) in some small way and feel hopeful about getting through whatever phase of treatment you are in.

  • audra67
    audra67 Member Posts: 127
    edited November 2013


    You go Team Kim! I agree and LOVE it!


    My onc nurse acts like I am the 'only patient they've ever had that is anxious or sad'....it is unreal! She is sympathetic but sortof condescendingly so...although I do persist and get whatever med. I want in the end...she knows I used to be a nurse and I have told her how it's different being 'the patient' and how it sucks and then she sortof empathizes...not sure...but gives in at least.


    I am having a good week, still weak, and count wbc 2.4 yesterday but trying to suck it up and shower and have a Thanksgiving day with all of our kids..hoping they are not sick :)


    Next week a little scary as I get port put in, if my wbc is up, then chemo # 2 with neulasta this time...not enjoying the posts about bone pain, fever, etc...do we really need another side effect?


    I have rash on both hips and hands from my first infusion and my wrist and hand and left arm is still bruised and sore to touch from that infusion, it is going away amazingly slow.


    Having zingers from boobs too, glad you said something as I was worried they are getting infected...


    Happy Thanksgiving - very thankful for all of your knowledge and tips and encouragement!

  • Melrosemelrose
    Melrosemelrose Member Posts: 607
    edited November 2013

    Audra67- Please try to remember to tell you onco about that rash that you have on your hips and hands after that first chemo.  You may be having an allergic reaction to the Taxotere.  It means that they may need to give you Benedryl ( if you can take that) in your pre-chemo IV meds.

     

    Wishing all a very peaceful and calm Thanksgiving weekend.  A year from now you will look back and see how very very far you have come.  HUGS!!!!

  • schoolcounselor
    schoolcounselor Member Posts: 229
    edited November 2013


    Just wanted to pop in quickly to wish everyone a Happy Thanksgiving!!!! I am thankful for every single person here, you have all been instrumental and wonderful with sharing all your tips, wisdom and knowledge. To those not celebrating Thanksgiving, thanks also!! Happy

  • TeamKim
    TeamKim Member Posts: 301
    edited November 2013


    Audra -- I get my rash on hands, hips, nape of neck, and perianal area. Also a few other random places. Oral benedryl at night helped a little. Try mixing benedryl gel with Cortisone 10 cream to rub on during the day. Generally, each spot of rash lasted 36-48 hours, but new spots would break out. First tx, it was only during days 4-8. After tx 2, I was still dealing with it in the third week. My MO said it is a reaction to the Taxotere -- let me know if your MO says the same. Happy Thanksgiving!

  • audra67
    audra67 Member Posts: 127
    edited November 2013


    Melrose-Will check the rash with my oncologist...it has gone away but weird and looked like raspberry scrape as it went...lasted 1 1/2 weeks! I will ask about pre Benadryl...I HATE rashes...


    Thanks for tip- TeamKIM will get that at store..


    I am going to get out today for the 1st time! Driving! WOW...I have been so weak and told to avoid crowds but NEED to go somewhere...too bad it's black Friday.


    Taking my daughter to get eyebrows threaded...shouldn't be a big crowd there...and I guess drugstore would be less crowded than Target...so will try Walgreens or something...that should give me an outing 'fix'..:)


    Might feel like the old me a little too:) I know I'm still in here!


    Happy day you all!

  • SeattleTwinMama
    SeattleTwinMama Member Posts: 12
    edited November 2013

    Hi Everyone,

    Hope everyone had a good Thanksgiving! Mine was ok, although I'm dealing with a new rash that won't seem to go away. TeamKim, thanks for the tips on the rash, I'll try those. Oral benadryl helps but makes me so tired. I've call my onc's office twice now and they say it is a reaction to the Taxotere, and I just have to "wait it out". Ugh. I'm so itchy!! I wish there was something else they could give me.

    Just a week and a half away from my last treatment. Very surreal, as some of you have said.

  • indenial
    indenial Member Posts: 125
    edited November 2013


    SeattleTwinMama, try Pepcid for the rash. It's an H2-inhibitor and can actually help with skin reactions. I took it in conjuction with Benadryl & also took Claritin at the same time (ask your doc before taking 2 different antihistamines, but my doc was OK with it since I had a bad allergic reaction, not to the Taxotere but another med I was on at the time).

  • TeamKim
    TeamKim Member Posts: 301
    edited November 2013


    When I called my MO's office Wednesday and sent them a photo of my rash, I got a prescription for steroids to take -- I don't really know if it is helping the rash, but I have been taking it once a day. As usual, original spots are easing after 48 hours. Audra, like you, I get the raspberry effect as they heal -- not sure if I just scratch off the centers of the bumps when they itch or they get the little scabbing effect on their own. Two new places broke out in rash today (day 9), but the cortisone 10 mixed with benedryl gel seems to ease the itching. It is interesting that several of us are having this reaction -- my MO seems to think it is a rare SE.

  • TeamKim
    TeamKim Member Posts: 301
    edited November 2013


    Also -- rash ladies -- This morning I took a warm bath and I threw in some salt and baking soda (I figured it worked for the mouth sores, so what the heck) -- very soothing for the itching! And I bought Aveda "ultra calming" foam cleanser and that seems to feel good too.

  • SeattleTwinMama
    SeattleTwinMama Member Posts: 12
    edited November 2013


    Thanks for the rash tips, ladies, I will try them!

  • KBeee
    KBeee Member Posts: 695
    edited November 2013


    I decided yesterday that since...1. I could not taste the delicious meal DH prepared (though I do 95%of the cooking, DH loves doing turkey dinners, and kicks me out of the kitchen every year for thanksgiving)...2. I have not been able to actually eat mor than a couple tablespoons of food lately....and 3. The darn Neulasta had me nauseas,.........I made a heading plate of what I would have eaten, wrapped it tight, and put it in the freezer. In a few months when I have a day when i am feeling particularly thankful, I will take it out and have my own little Thanksgiving, and be able to taste it. Maybe that will help me to put some weight back on!


    I hope everyone's rashes clear up. Itching is miserable, and can drive you more crazy than pain. Taxotere is known for allergic reactions. Seattletwinmama, it is easy for them to tell you to wait it out. Bug them if you need to. Get relief. Eeeek. I would rather be in pain than itch. Scratching can cause infections too, which is yet another reason to get something stronger. I hope those rashes all heal.

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