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Cytoxan Taxotere Chemo Ladies- February/March 2013

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Comments

  • audra67
    audra67 Member Posts: 127
    edited January 2014

    Momat927-

    Same thing happened to me last week!  I called on weekend and he was sortof snip and said,'well it's hard to tell if bladder infection since it's 700 on a Saturday'...he did give me antibiotics and it is better...I had urgency only and was drinking tons at that point (week 3) so I know it wasn't lack of liquids...I have read the Cytoxan causes bladder problems...

    He also told me the hormones or lack thereof and changes to those can contribute to urgency feeling...

    Hope you feel better!

    I had a bad night, up til 1for New years as husband and daughter up and couldn't sleep anyway...then up at 0500 then up at 0800...feeling less dizzy this am but still tired....HATE that dizzy feeling, I was having them help me to bathroom as I thought I might collapse...

     TeamKIM- I have the loccitane hand and foot creams too and they are wonderful!  Also using argan oil on my head and nails....I really haven't been that dry except my fingertips last round...this not so much but I'm only on day 6...

    I feel like I have a sinus infection!  I had one before chemo started and took antibiotics and it was gone.  Now lots of stuffiness and dripping down throat and discolored drainage...I am waiting til tomorrow when Dr in and hoping he won't withhold antibiotics...seems he is stingy with them and at this point when immune system is so down I want anything and everything to not be infected!  He said they will give me yeast inf...no kidding...I am ok with taking meds for that too...

    Geez I signed up to be poisoned basically, does he really think I care about an antibiotic?  I am rethinking this poisoning too...is it really effective?  Other than killing all of my good cells and flora?  I hope so...sigh.

    Happy New Year girls!

  • schoolcounselor
    schoolcounselor Member Posts: 229
    edited January 2014

    Audra and Moma I think they don't realize how hard it is to call which is why they get do snippy. What a shame. 

    I hope you feel better soon, dizziness is such a pain.

    I use Argan oil on my face as well. 

    I just started my premeds for tomorrow's chemo and there is a storm coming. I am getting chemo regardless because this is my last one. I also want to talk to my MO about his plans for my back pain. 

    Starting the new year with chemo, fun! Not!Loopy

  • momat927
    momat927 Member Posts: 88
    edited January 2014

    THANK YOU dear sisters.  I ended up not taking the antibiotics we did buy, but drank a ton of cranberry juice.  It is amazing!!   It just feels so much better to hear from all of you. & I LOVE beautiful photo!!

    For skin I use a combo of Cetaphil and xtra virgin olive oil.  So far so good

    This is to us!  May this year bring health and hope 

  • QuirkyGirl
    QuirkyGirl Member Posts: 67
    edited January 2014

    you're doing the right thing Audra!   Hang in there!   

  • keepthefaith
    keepthefaith Member Posts: 856
    edited January 2014

    momat, minus-two, hope you are getting over your UTI's.

    Sc, good luck with your tx tomorrow! Is this your LAST one??

    audra, hope you are feeling better today.

    BGH, thanks for sharing the pic of your beautiful family!

    My DD and new grandson are doing well today. He was born at 2:07 this morning. I am so blessed. I am feeling very well today, except for no sleep waiting on baby, but it was worth it!

    Happy New Year sisters! Let's make 2014 a good one to rememberSmile


     

  • schoolcounselor
    schoolcounselor Member Posts: 229
    edited January 2014

    Yeah congratulations Keep!!!!!

  • Headeast
    Headeast Member Posts: 393
    edited January 2014

    KTF, Congratulations, how wonderful!

    SC, last one, yay! Let us know what he says about back pain. I read somewhere that certain chemos weaken bones. Ask him if calcium is needed and how much.

  • audra67
    audra67 Member Posts: 127
    edited January 2014

    Keep- SO happy for you ! A new years baby too- wow!!  Glad you are feeling good and want to know your secrets...I am same day as you and weak and dizzy still...on couch..sigh

    school- praying for a joyous wonderful LAST chemo day tomorrow!  You are done!!  WOOOOHOOOO!!

    momat- glad you are feeling better....!

    I am really questioning if the nuelasta shot does anything...I still seem to feel like death a few days here....??

    Headeast- I read an article today about bone density being weakened/ bone marrow damaged by chemotherapy and the need for calcium and vitamin d....it said eating the vitamins in food is better than supplements...and other info...

    But great suggestion for her back pain!


  • momat927
    momat927 Member Posts: 88
    edited January 2014

    keepthefaith, congrats!  How wonderful!  momat927

  • Headeast
    Headeast Member Posts: 393
    edited January 2014

    Audra, yes, my OS told me that it is much better to eat right rather than to gake supplements. He even mentioned that vitamins are 'the most expensive urine'. He says just daily suplements are fine.

  • schoolcounselor
    schoolcounselor Member Posts: 229
    edited January 2014

    Thanks head. I will ask. I want a PET or bone scan. I'm in so much pain!

  • Headeast
    Headeast Member Posts: 393
    edited January 2014

    SC, yes, I read you other posts. I am so sorry Sad. Hopefully they will run some tests tomorrow!

  • Bluegrassharp
    Bluegrassharp Member Posts: 73
    edited January 2014

    KTF -- with a New Year's grandbaby, this must already feel like a happier new year to you -- and it certainly made the rest of us smile, too!

    SC -- hope you get some reassuring answers when you see your doctor tomorrow. I know you will tell us what s/he says. We've all been thinking of you often.

    Each time I catch up on all the posts here, I'm amazed by the courage and genuine concern of this network of women. I would be lost without you!

  • QuirkyGirl
    QuirkyGirl Member Posts: 67
    edited January 2014

    Woohoo KTF!!!! So so exciting and life affirming. ❤❤❤

    SC - hope you get answers soon!

    Audra - I had bad pain with the Neulasta but six days after my first shot I was at 11 and likely running that high due to an infection I was fighting.  On Monday (2nd chemo day) they were up to 22.  MO thinks its due to the steriods.  I definitely think the shot works.

  • TeamKim
    TeamKim Member Posts: 301
    edited January 2014

    Hi chemo sisters -- 

    Keep -- Congratulations on the new year's grand baby -- what a way to start a great year!!

    SC -- We are all in your pockets tomorrow.  I hope they find a solution for your back pain.  I am so sorry you are having to deal with this!

    Momat -- so glad the cranberry juice did the trick.  My MO gave the Ok for taking cranberry pills throughout chemo -- it is a way of getting the benefits of gallons of cranberry juice without having to drink all that juice ( but you still need lots of fluids!)

  • keepthefaith
    keepthefaith Member Posts: 856
    edited January 2014

    Tatum says Happy New Year!

    image

    Had to share:)

    ((HUGS)) to all~

  • schoolcounselor
    schoolcounselor Member Posts: 229
    edited January 2014

    Beautiful!!! Adorable!!! Thanks for sharing!!!!

  • TeamKim
    TeamKim Member Posts: 301
    edited January 2014

    OMG, Keep!!!!  What a cutie patootie!!!  Thanks for sharing the pic!

  • Melrosemelrose
    Melrosemelrose Member Posts: 607
    edited January 2014

    Love that pic..... thanks for sharing!!!!!

  • QuirkyGirl
    QuirkyGirl Member Posts: 67
    edited January 2014

    So darling!!!  

  • audra67
    audra67 Member Posts: 127
    edited January 2014

    What a little doll!  congratulations Grandma!  My oldest is having a baby in June, I am super excited too!

    SC- Praying for a great outcome on your tests !

    I am still exhausted and on couch, tired of being tired!  


  • schoolcounselor
    schoolcounselor Member Posts: 229
    edited January 2014

    it's over!!!

    imageSorry it's sideways!

  • QuirkyGirl
    QuirkyGirl Member Posts: 67
    edited January 2014

    Wooooo for you SC!!!!!!  :D

  • audra67
    audra67 Member Posts: 127
    edited January 2014

    YYYYYYYYYYYYYYYYYYYYYYYYYEEEEEEEEEEEEEEEEESSSSSSSSSSSSSSSSS!!!!!!!!!!!!!!!!!


    Yay SC!!!!  LOVE the cute sign by kids :)

    Praying for minimal side effects, maybe you won't have any you will be sooooo happy you are done!!

  • Melrosemelrose
    Melrosemelrose Member Posts: 607
    edited January 2014

    Yippee.... SC!!!!!  You made it to the other side!!!!!  Doing the Happy Dance for you!!!!  Hope your side effects are minimal!!!!

  • schoolcounselor
    schoolcounselor Member Posts: 229
    edited January 2014

    MO also recommended a PET scan and to see a Psyiatrist. I have made both appointments. 

  • audra67
    audra67 Member Posts: 127
    edited January 2014

    I think we will all need those appointments...

    I feel absolutely crazed at times and didn't get pet scan to begin with just lots of ct scans...seems easier to do all at once...

    Praying for great results!  Hopefully back strain,

    I know my back and neck are hurting as I'm on the same couch daily in same position....

    getting a massage Monday...:)

  • Bluegrassharp
    Bluegrassharp Member Posts: 73
    edited January 2014

    Well, I had that great energetic day Tuesday after TC #4 on Monday, and it did go downhill from there. 

    All my muscle aches came back yesterday, more intense and more extensive -- shoulders and surgical sites (including September tooth extraction) as before, plus rib cage, lower back, and even hips and legs, which are new. My left shoulder now hurts as much as my right, which is where I thought I had a rotator cuff problem -- maybe it's all chemo, or just spending too much time in the same positions and inactive?!? 

    The ribcage achiness makes me aware that I'm also more breathless -- maybe my low RBCs? (My WBC numbers are fine without neulasta for some reason.) I might not notice the breathlessness so much if our house weren't at 7000 ft elevation, but it's still kind of scary.

    I'm hopeful this will all start easing up by Saturday as for the first 3 infusions, but in the meantime I'm just not doing much at all -- if I sit still, nothing hurts, but even reaching for a drink on a side table punishes me. I'm also trying to remember to be grateful I don't have other worse SEs, like nausea, infections, headache, etc, that some of you have.

    Anyhow, thanks for listening to me gripe. I try not to whine to my DH, since it upsets him and there's nothing that can be done except just wait it out. But I know that when you all describe your situations, it helps me put my troubles in perspective, and that helps my mental state more than I can say! So maybe I just did everyone else a favor by complaining (hah)!

    (((Hugs to all!)))

  • Bluegrassharp
    Bluegrassharp Member Posts: 73
    edited January 2014

    SC, your post came while I was b*tching about my own troubles. So happy you are done! And the sign from your kids is priceless! Go get that PET/CT scan ASAP -- I'm betting it will relieve your mind as it did mine!

  • audra67
    audra67 Member Posts: 127
    edited January 2014

    HOOOOOOOORay for you being done too Blueongrass!  Forget if I said it on the very day, but if I did not - SOOOO happy you are done!

    But awful you are having more pains...seems I get more each time too, and new ones...

    I am getting scared to death to do that last one...my esophagus and stomach are raw today and burning and cannot imagine what our organs and gi tract looks like from all of this! 

    You are lucky the wbcs stay up !  That is a plus...

    My husband, sweet as he is, is restless...outside doing things now...I know he can't sit with me 24/7 but sometimes that would be nice...I am SOOOOOOOO tired of being tired....I know I say it daily...

    Yes, LOVE hearing others trials and effects..It DOES help...

    We are all going to make it through and be on the other side soon!  I just know it!

    Praise God!