How are people with liver mets doing?
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@intolight - I think that's a real good thing that your oncologist goes to the tumor board when you have progression. I'd never heard of that before, and it would be like getting a second opinion. Best thing is that your oncologist is obviously open to both doing it, and the opinions of those on the tumor board. She sounds really good. My oncologist did suggest the consultations, so I too essentially got second and third opinions. I think his original intent in suggesting them though, was to encourage me to be more amenable and confident about doing a localized liver therapy. I had been wary and wanted more positive information, while he wanted to arrange for some sort of procedure down the line when progression hit. I think he was a bit taken aback by what the surgeons had to say, but at least he was open to their assessments and suggested to me that it looks like their opinions are the ones to go with.
Getting routine CT and bone scans with contrast later this morning and am of course hoping for nothing new. It's always so scary, stressful, and anxiety producing to get these scans!
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@threetree I'll be thinking of you today as you go through your routine scans and praying they come back clear. The scanxiety is very real for all of us. An interesting note about the tumor board is that other physicians, etc., in my health system can view the tumor board meeting video. My PT who was an oncology specialist PT told me she saw my case reviewed and was able to customize my therapy accordingly. I would love to be able to see it but probably can't for FEMA laws. Still, I think there are some good medical things happening.
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@intolight - I really appreciate your good wishes for me for today. I'm sure you know all about the trepidation that comes with getting them. That's really interesting too about how your tumor board can be viewed on video by others. I haven't really heard much at all about my facility's tumor board lately. Maybe I'll ask around. I'd never heard of a PT being privy to things like tumor board meetings. Very interesting and makes sense. Thanks again for all the positive thoughts and energy - I will carry it with me on this dreary rainy day we are having here.
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