January 2014 Surgery Sisters
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Ok ladies....
need your help!!
My cancer side breast was feeling a bit itchy and ...well, I don't know...weird. Bigger than it did, I guess. So I just went into the bathroom and was looking for any lumps...I squeezed my nipple and out comes a bloody discharge. Oh holy CRAP!! Now I am scared.
I had a pelvic US ..no problems there....see the gyno on Monday....so we'll see where we go from here.
can I say SHIT!!!!
Where do I post a question on this site to get some feedback? any ideas?
Eve
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eve I'm just taking a shot in the dark and I hope I'm way off, but maybe try the inflammatory breast cancer thread. That's where I would start. It could be nothing. It could be residual fr the surgeries.... Saying a prayer for good news my frien
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well dang, Eve! I hate hearing this but keeping hope that it is nothing but an infection. It would be rare to have it be anything else after bmx. Maybe search "nipple discharge after mastectomy"?
So glad you see your gyno Monday so you don't have to wait long.
We have been through enough already, right?
I will be thinking of you and sending healing vibes--- keep us posted!
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hi eve, thinking of you and your appt today. Hugs!
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eve,
Hoping to hear from you soon. Hope all is well
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Eve, hope you are okay. I dreamed about you last night. You came to a yoga class I was attending in someone's home and I saw you on the other side of the room. I recognized you and gave you a hug and asked you to come practice beside me. You agreed.....and that is all I remember, lol
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Hi all,
Oh wow Ann......interesting dream. I would love to try yoga and have you next to me in a class. You'd die laughing watching me get my 15lb heaver body into a down dog position....akkkkk! lol
Thanks for thinking of me Beverly and Ann.
I have been camping for the last few days at Ft. Desoto State Park over in St Pete Fl.
Just an absolutely beautiful area. Our dog gets to swim in the ocean to her hearts content. The beaches are pristine and mostly empty. Very relaxing. The sunsets are breathtaking. Last night, right before a thunderstorm, the evening sky looked as if it was on fire....just spectacular! The only drawback was the bugs...no-see-ums. Nasty teensy-tiny biting flies. I have at least 100 bites on my legs even after using bug repellent. I itch like CRAZY. oh well this too shall pass. I also was able to finish 2 novels....I haven't read anything in awhile so that was a treat.
As far as the gyno appointment...all is well. Kinda weird that my ovaries have disappeared. And I laughed in finding out my uterus was "unremarkable" according to the US and the doctors report. Hey that uterus was home to two very remarkable babies for 9 months...I think that is pretty remarkable...lol
I have an appointment on Tuesday the 18th with my breast surgeon to evaluate the bleeding from my nipple. She will order an ultra sound or MRI depending on what she feels and sees. I am thinking I have a seratoma (sp) or infection and the gyno said I might still lose the nipple. It is not unusual even after all this time. I am ok with it. As long as the cancer hasn't come back. If I lose the nipple I'll have the implant removed also. As you all know I had implants before breast cancer and my implants are part of a law suit against Dow Corning (I think). So the implant will be sent to be identified and I'll recover some money. I don't believe that implants cause cancer but ,well, if the money is there I'll take it....
Any how, I'll keep in touch.
I truly hope everyone is well and getting on with life. Yes, things are different but somehow better.
have a great weekend...
love you all
Eve
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thinking about you eve! Hope all is well
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Thanks Beverly and Linda (via facebook)
Saw my BS today....I have what she thinks is a papilloma in my nipple. May or may not be cancerous. Soooo here we go. I will see my PCP to get referral through the clinic for a breast MRI, x-rays of my spine and a bone scan. Appointment on Sept. 2. Then get the scans and x-rays then surgery to remove.... the nipple . (poop) Surgery is a given...have to get a pathology report to make sure it is not crappy cancer. I am not overly worried...just a major pain in the nip..
Just want to say ...while I am a teensy bit worried...the upside is that I'll get all these scans and have a good picture of what is going on with my back and hips and nip...I am looking forward to having a definitive answer as to the pain in all areas. Doc thinks the spinal pain is due to arthritis aka getting old...lol. She is thinking because I had such a bad break to my tail bone as a kid that I have been compensating for that for 52 years ...just threw every thing off and now the chicken has come home to roost. She is pretty confidant that the cancer has not metastasized given my initial dx.
SO I am going with that idea. Another upside, my son Steven took me to my appointment today. We spent the better part of the day together just chatting and shopping at my favorite Fresh Foods Market. Good times.
Thinking of you especially Mary and Diane...gods speed.
peace and love to everyone
E
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August 18th was the last post???? I know you all are on Face Book but not everyone is.
Just wanted to say hello here....I miss posting here but of course understand the migration to facebook. I am not a huge fan of FB but stay there because of you all and my BFF...the pics of her grandbaby are near and dear to my heart.
So tomorrow I will get the x-rays and Mri images and the radiologists report. The imaging center didn't want me to have them before I saw my PCP? That is weird for me....not at all like past images from a different center...hoping that is not a bad sign. I've had to put off the bone scan due to the tropical storm/hurricane coming on Monday or Tuesday. Maybe the reports will be conclusive to NOT being anything more than arthritis so I won't have to have one...fingers crossed.
Hope everyone has a wonderful weekend...
love
E
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saying a prayer eve! You're in my thoughts!!
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Eve, so sorry I don't logon here anymore and missed your posts. I've just been so limited with the time I can spend online, so I use Facebook.
I"m glad you're getting things in hand quickly. I have never been able to get scan results before the docs, so that's unusual.
Thinking of you and sending positive thoughts your way.
Love you!
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BCO just seems like home dontchaknow.
I know Mary...You have a lot on your plate...hope today found John doing better.
Hellooo miss Beverly, I bet you are super busy with school starting up, have fun with it.
I have always been able to get my imaging results within 10 minutes. Not the radiologists report but the cd's. I guess this new place just does things differently.
My BS surgeon always called me with any results. She never made me wait until I could see her in person.
HOWEVER... I had a PAP done on the 10th of August. I was told they would call me if something was wrong or I would get a letter stating everything was AOK.
Got nothing.
My breast MRI, you know, for the papilloma came out ok..yay!!! but still have to have that puppy resolved.
My neck x-rays show a defect in C2-C7. yay! narrowing of the space that contains my spinal cord...but most interestingly the C2. Radiologists "thinks" it "may" be a congenital defect...but it does explain the ringing in my ears and occasional vertigo and migraines.(mostly just an aura). He wants me to have a CT scan to confirm. pfttttt
Now the lower lumbar x-rays show a compression fracture in the L4. REALLY? who knew...that IS where all my pain comes from though. Radiologist says it is old. That is good...so not from metastatic BC. Degenerative disc disease through out my spine..I think that means I am getting old...lol.
SOOOOOO here's the BIG deal. This past Saturday I received a letter from the clinic I go to that says...simply..."One of my recent tests came back ABNORMAL"
What the heck does that mean. WHICH TEST!!! I've had all these tests....arrrrrrgh.
I called them today and they WON"T TELL ME OVER THE PHONE.
I am ready to go back to drinking and smoking and living like a wild woman......eating bacon everyday! Yes Ann your BLT sounded wonderful.
So I will see my doc on Wedensday...in the meantime I sit here and WAIT again. I still need to get the bone scan.
So frustrated. Can you tell?
Thanks for letting me vent.
Love to all....I'll be ok...just wanted to put how I am feeling into words...
E
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hugs eve
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thanks lady
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Just received another letter from the clinic. PAP test is negative!!! YAY!!
We'll see tomorrow just what the heck they are talking about with abnormal labs/imaging.
I am soooo relieved.
Thanks for letting me vent ...I'll try to be more positive from here on out.
E
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YAY!! Wonderful news! Hope they're all good and they had you mistaken for someone else. BTW, you can vent anytime, girlfriend!
John's getting some meds for all his various SE's, which are helping a lot. I'm running out of gas, though, and am really burned out already. I reached the breaking point last night and I think he finally realizes that he needs to go easier on me and do more for himself. Last night he apologized for the first time ever for being "so mean" to me. Aha, a confession! Hopefully things will improve in that arena making it easier for both of us to get through this crap. We are halfway done - 4 more weeks to go!
Anyways, glad you got good news Eve!!!
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Thanks Mary... tomorrow should be interesting.
As you know I went through a lot of the stuff you are going through with Rob. Men are so alien to us women. We tend to talk, sometimes too much, about our problems. Men tend to want to be the strong guy even when they want to fall apart. In my experience with my husband that had the colon cancer and then a brain tumor he had to get angry at me. I came to understand that the anger wasn't with me but that he trusted me enough to express his feelings through being angry at me. Like with John it was fairly short lived. Heartbreaking none the less.
I think, as women, we are hard-wired to take it. We are stronger than the guys...in a different way.
love you all
E
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hugs to you, Eve. We will be waiting to hear how tomorrow goes.
Mary, when I was going through chemo I would go through periods of 'roid rage where it got to the point I would go to our summer trailer the night before chemo so I could suffer in silence and not kill my husband. No matter what he did it was not going to be right. Then a few days later I would be chemo sobby and cry if he asked me to change the TV station. It is so tough to be a care giver during this time. Hang in there
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Ann...chemo sobby...sorry but I had to laugh. The steroids are EVIL.
As far as my appointment...thanks for asking...I have one word PFTTTTTTT.
What a major waste of freaking time. My hunky doc is getting FIRED! He was completely unprepared, had no idea about the MRI and Xrays let alone read the reports. I spent the time informing him of what was going on. I asked about exercises for my back and neck...he handed me a script for a pill and was more interested in my stupid blood pressure. He also had NO idea what "the abnormal test" meant.
The PILL, will make my stomach and intestines bleed and The main warning is .....high blood pressure, stroke and heart attack. Prescribing info says to ask your doc for something else if you can. NO WAY am I taking that stuff. I have to go back in 3 weeks for blood tests to presumably see how my body is handling the PILL. HA! Also for thyroid.
Sooo, I am going to do some gentle exercises to strength the muscles in my neck and lower back. Then get the darn bone scan and get the papilloma out!
After all that I am going to an integrative doc who will LISTEN to me. Maybe. I truly just want to walk away from all this and LIVE. Large.
I had a good time with my brother...he took me to the appointment...we went to the drug store so I could buy hair dye. Of course their a million choices...he pointed to a bright, a la Lucy Ricardo, orange....He was serious. I told him if he would do it I would. He said "sure, why not" lol. I didn't but I soooo love my brother.
So, I wake up this morning to a news report that we have a COBRA snake loose in our vicinity...ahhhhhh! So much for walking the dog. The idiot that owns this snake also has gators and god knows what else on his property. WHO needs a freaking cobra. I told Nate he must have a petting zoo. I guess I'll take the pepper spray tomorrow...if I had a CCW I'd take the 9mm.
Fun stuff.
Love the Kayaking and Alexandra..your singing in the choir. I wish I could sing.....I just make everyone cringe. oh well.
love
E
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Eve,
OMG, what a pain! I think we should be able to bop them on the head with a giant plastic bat - I mean the docs who are really useless like that. So sorry you are not getting the help you need. Please keep us informed.
Ann, thanks for sharing. I had no idea what to expect. Seeing him and others go through this has really been an eye opener. I realize now how much easier it was with my cancer, although surgery is never fun either. It helps being here at the Hope Lodge around others who are going through treatment. It's a wonderful place. Went to a caregiver support group last night and I finally made it to a Yoga class! That is the one thing that is going to save me.
Namaste y'all!
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Glad you are getting some time for yourself mary.
Ann when I lol about the chemo sobby I was thinking about kemo sabe...The Lone Ranger's friend Tonto. I hope you meant it as a play on words. I would never make lite of what you endured.
Have a great weekend all. Football is back..oooooooooooh boy! Hubby gets a little nutty.
I think the dog and I will go King Cobra hunting.:)
love
Eve
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question for u ladies... About a month ago or so I felt a lump after my fg and the breast surgeon took some tissue and fluid and it came back normal. Well now I have more lumps and one in particular that is about 3-4 inches above where my nipple used to be on my cancer breast. When I rub my breast in that area it feels weird, like something pushing on the nerve. I can feel the lump inside. The area is also itchy. I see the dr in October. Do u think I should and have her ultrasound again in October or call before then? Does it sound like something concerning? Damn it! Y can't we just move on?! I thought after the bmx I would be able to leave this on the past! Nope! Now I have lumps!! I didn't even have lumps before my diagnosis!!!! Wth?!?
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OMFG!! My notifications have been turned off since JULY!!!! I logged on because I thought maybe it was time to go in and take down some of the photos that I might have on here, thinking people had moved on to Facebook and saw all these posts. I feel so bad that I wasn't there to support you more, Eve, Mary and Beverly.
Beverly - Absolutely call your doctor before October. You can phrase it just the way you did. They can decide if they think you should come in or wait. My guess is that they will want to see you. Hopefully, it's nothing but fat necrosis.
Eve - I'm so sorry sweetie. You have to know just how much I care about you. Even when things turn out okay, the process is scary. I will watch BCO more carefully. I'm glad you will at least recoupe some of the money with your implant. Will they replace them both?
Mary - I don't want to make you post. I think you have enough to do, but know that you and John are in my prayers and thoughts always.
What a roller coaster of emotions we have all been on over the past nearly 2 years...all of us struggling to take back control of our lives. When people hear me say that I had 5 surgeries in 18 months (4 BC and my ACL), they ask me how I could manage, especially with a full time job, a young son and no help. All I can think to say is that when I'm finally recovered, I believe that it will help me to appreciate what I have, so I will enjoy the rest of my life that much more. Maybe if I say it enough, it will be true some day.
Happy Labor Day ladies!
Love you all,
Diane.
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welcome backDiane
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Hi Diane,
I think one of my biggest lessons is "that I have no real control" I can only do my best and attitude is key. I also think following my instincts about ME has proven to be the best way to approach my health care. I've also learned to let my friend, Tonia, and my brother Jim,( and now my sons) help me with trips to the doc and the scans. I HATE to ask for help, but they love me and WANT to help. Go figure.
As far as being supportive......paleeeeese.......you are the best.
Beverly, wish I had some answers. I have had a lump...turned out to be scar tissue from the biopsy. Now the papilloma, which feels like a lump and now I feel a small lump next to the papilloma? Oh well...it will check out to be fine. Just another piece of the puzzle to put back into place. Like Diane said eventually we'll be done with the questions and mini setbacks. For now all we can do is take it one step at a time. If I were you I would call and get in ASAP, if anything for your peace of mind. Make it happen!
Mary. Think of you and John everyday.
Love to all
Eve
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eve,
Yes, now it's not only there as a lump, it's tender and a bit red. So I'll probably have to call. Ugh!!
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well it just keeps going!! I've been having very bad abdominal pains and swelling so my dr ordered an ultrasound. She just called saying I have fatty liver. Wth?! I don't even know what that is. Is it dangerous? I started looking it up on line... Could result in liver cancer, liver failure!!! I can't deal!!! I need to call her tomorrow and see what our plan is. I want off the medicine I'm on for migraines. It's probably causing it. Ugh I just sat her sobbing. My husband doesn't get it. He's like it's just another thing ... Like it's always something!!! I'm taking tomorrow off from work because me and all 4 kids have strep and I'm calling my dr to get more information on this. She had the assistant call me and just drop it on me. What do we do?!?! They just said lose weight and exercise.. Ok fine and then I'm cured?!?!
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Hang in there kiddo.
I did some research and seems as if this is fairly common. I am willing to bet I may have it too ( had a bit high liver enzymes at my last blood test)...but that is because I drink. Love my wine and bourbon on the rocks...oh well!
Losing weight and diet is the best way to reverse it. So yes, the assistant is right. It is hard to move on when you feel constantly drawn back. You aren't alone there.
Quitting drinking, for me, is also called for...not happening. ( K, I am not a lush, but a drink or two does help with the anxiety)
I can tell my husband is also ...hearing blah, blah, blah. lol I don't blame him. I am so over all this health stuff too.
I ordered a treadmill this past weekend and am gonna loose weight and get fit again. By March of next year I am shooting for a 15lb weight reduction and running a 5k. The dog is getting on there too.
I am waiting for a call back from my BS to schedule a pre-op. And then getting this weird thing outta my boob.
let us know what the doc says...hope you and the kids feel better fast
E
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well I told dr I'm not taking the trazadone or topamax for migraine and sleep anymore. I'm worried it's affecting my liver. They couldn't guarantee it was or wasn't so I said I'm done!
My blood work was actually normal! They did the ultrasound because I was having intense pain. The ultrasound showed fatty liver. When I looked this up it said that's concerning! When I questioned the pa she said no that's ok. Wth?!
The plan is to have blood drawn every 6 months and an ultrasound every year to make sure it doesn't progress. Oh yeah and I need to exercise and lose weight. Not the easiest when u have no energy and you feel like you're in labor!!!
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