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January 2014 Surgery Sisters

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Comments

  • Dtkd
    Dtkd Member Posts: 422
    edited September 2015

    Hi Beverly,

    I know this weight loss thing is hard. I'm trying to do it without really being able to exercise due to my knee, which starts to swell if I spend too long grocery shopping. I have had very good luck with just changing what I eat. I have been using Dr.Fuhrman's "Ultra-Metabolism", and have cut wheat, processed sugar and dairy out of my diet. It has been really easy. I'm not counting calories or using portion control...just eating until I am full. Although I probably should cut alcohol, I chose to cut back to wine only. I've taken off 16 lbs in 2 months. One of my friends is also doing this and has totally transformed herself in about 3 months. Both of us feel like we will just keep eating this way. Anyway, it's worth checking it out.

    best of luck!

    Diane

  • Mommyathome
    Mommyathome Member Posts: 876
    edited September 2015

    thanks Diane! And congrats on a healthier lifestyle and loss of weight.

  • Mommyathome
    Mommyathome Member Posts: 876
    edited October 2015

    imagemy sons baseball team. They honored me before the game... Talk about emotiona

  • Dtkd
    Dtkd Member Posts: 422
    edited October 2015

    Hi Beverly,

    Want a nice thing. I'm sure that was very emotional. Thanks for sharing.

    Diane

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited October 2015

    Many here have donated . Thank you !........Wandering around and cheerleading again :)


    Donate today, make a difference directly in all our lives. By supporting BCO, we support each other. Thanks and Hugs :)

    image

    https://community.breastcancer.org/forum/110/topic/834331?page=1

    Link to the mainboard donation page

    https://secure3.convio.net/bco/site/Donation2?df_i...

  • Mommyathome
    Mommyathome Member Posts: 876
    edited October 2015

    hi ladies. I had my six-month follow-up today I felt a lump in the left-hand corner of my left side which was the one that had cancer and the doctor also felt it and ultrasound it and realize that it was a fluid pocket from the fat grafting so she aspirated that area this morning . She sending that off to pathology should find out next week if there were any problems with the fluid that was aspirated and I also got the panel, the new panel done today so I should find out in about a month if there's any hereditary genes in my family

  • mmtagirl
    mmtagirl Member Posts: 325
    edited December 2017

    wishing you the best, Beverly

  • Mommyathome
    Mommyathome Member Posts: 876
    edited October 2015

    thanks

  • pinktiara
    pinktiara Member Posts: 716
    edited October 2015

    yup..me to Beverly...hope all will be well...

    what a great tribute from the team...smiles...you deserve it!

    do you know we are on facebook? Janurary sisters?

    If not we'll get you an invite..everyone has migrated over there.

  • Mommyathome
    Mommyathome Member Posts: 876
    edited October 2015

    eve,

    No I didn't know you headed to Facebook!! I was wondering why it's been so quiet on here!! Can you friend me

  • Dtkd
    Dtkd Member Posts: 422
    edited October 2015

    Beverly,

    It's a closed group that Ann put together. If you want to send me s private message with your contact info, I think I can just add you, or Ann can. Many, like me, don't want our BC issues discussed on our Facebook, so a closed group is perfect.

    Diane

  • mmtagirl
    mmtagirl Member Posts: 325
    edited December 2017

    yes, Beverly, pm me your fb info and I will add you to our private group. If any other sisters still check out this page please pm me as well

  • girlstrong
    girlstrong Member Posts: 299
    edited October 2015

    imageHi friends, just checking in! I think of all of you so often..we started this thread together as January surgery sisters. Can you believe it is almost 2 years since our surgeries? Every single day I'm grateful. Grateful for all of you as we helped each other through the all the "stuff". Although much time has passed, I still think of cancer every day. But take it day by day and am so happy. I'm doing well and living my life. We truly are warriors. Xox

  • Mommyathome
    Mommyathome Member Posts: 876
    edited October 2015

    looking good girl strong

  • anneb1149
    anneb1149 Member Posts: 821
    edited October 2015

    Girlstrong,

    Ditto to what Eve said- you look great. I, too, have trouble remembering it was two years ago. I am still active on another thread here, but days or more will go by without any mention of BC. We have just become good friends and share our daily lives and activities. It is still a great place to "rant" about something bothering us and , of course, a great place to share good news. Some of the ladies are still having problems with the BC, and there are a few who have loved ones that have been DX with some type of cancer and support is readily available. We welcome newcomers with open arms. We are all 60 or older and while some do a lot of travelling, or are active in other ways, a lot of us pretty much stay put so we share in the adventures of the others. The group is especially important to me because I live both in Ft Lauderdale, Fl and Atlanta, Ga. Wherever I am, my friends are with me. Wishing you the very best,

    Anne

  • Dtkd
    Dtkd Member Posts: 422
    edited November 2015

    Hi Marissa: You look fantastic! Next week on Veterans day marks the 2 year anniversary of my diagnosis, yet some days, it feels like yesterday. I'm hoping that 2016 is a year of emotional healing for all of us. You seem to be heading there already. Love and hugs 💜 Diane

  • pinktiara
    pinktiara Member Posts: 716
    edited November 2015

    Yup..looking good..to everyone..you all are so amazing.

    Beverly..you have to give us your face book name so we can link to you!.

    I miss posting on BCO...not a fan of facebook...but will keep it because of you all.

    love you all...

    E

  • Mommyathome
    Mommyathome Member Posts: 876
    edited November 2015

    eve is it just my name?

    Beverly Johnson


    So my bs called on Friday to tell me that there were 3 variant genes when I did the gene panel test: rad51c and rad51d and msh6. One is breast, one is ovarian and one is colon! Of course I've been having stomach issues for months now, I'm worried about colon cancer. I went to gi dr today. He wants to do a ct scan and colonoscopy. Gosh!! Always something!

  • pinktiara
    pinktiara Member Posts: 716
    edited November 2015

    I'll look for you on FB.. I am Eve Thompson....Good luck with the tests..funny I have had an intestional problem for quite a few months.

    My colonoscopy came back ok...so more blood tests next week..sucks for sure.

  • pinktiara
    pinktiara Member Posts: 716
    edited November 2015

    ok, Beverly..there are quite a few of you on FB. Try to find me...

  • bc101
    bc101 Member Posts: 923
    edited November 2015

    Marissa - You look awesome, girl!!! Wish I looked half that good, lol! I'm in desperate need of a makeover. Congrats on moving on from bc and I wish you all the best. Yes, I think of cancer every day, too. Kind of hard not to. If you're interested in connecting with us on Facebook, too, PM one of us with your email address.

    Beverly - same for you..... If you PM one of us your email address, we can send you an invite to Facebook. What does it mean when you say there are 3 variant genes? Did you test positive for those 3 things? It's a good thing that you are being vigilant and getting things checked out. There are so many new gene tests now I can't keep track of them all.

    Eve - hope things go okay with your blood tests. And I hope you ladies keep the thread going. I don't want to discourage anyone from coming here because this site is wonderful. I just haven't been online here much at all since my hubby's diagnosis. I had to cut back somewhere.

    So much has happened since July that I can't even begin to describe.... But I am trying to stay hopeful because it certainly could be worse. We're told he is curable and that is what I am hanging on to, but we won't know until his first scan and that isn't even scheduled yet. One day at a time. We got through the icky part - now for the recovery. It's been slow but we are seeing improvements every day. To stay busy, I've been cleaning out my house big time and getting rid of tons of things I don't need or want. It feels good to purge.

    Life is so uncertain for us now. Everything has changed, but oddly enough I feel okay with that. Well, not totally. I worry that my DH won't be able to get back to work. So, early retirement is always a possibility, but that means an end to the great health insurance plan that we've enjoyed for so long. Can anyone here attest to decent coverage through the Affordable Care Act? That could very well be in our future.

    Love you all! xoxo

    Mary

  • Dtkd
    Dtkd Member Posts: 422
    edited November 2015

    Mary, I just love how you just dive in and get going on your next project. I'm sure purging is very cathartic eight now. Hopefully John will be able to get back to work, both for your finances and healthcare and for him.

    I celebrated my 2 yr anniversary of my diagnosis yesterday, taking Veterans day off with my son. We had a really nice day, but late I the pm I had my annual gyn appointment. The exam hurt foe the first time and the PA, who is the one who found my BC, said that I was very"fragile" and would likely bleed. It was a good visit over-all but it's just depressing to hear that my lady parts are probably not going to perform the way I want when and of I ever meet someone new. I know I should be thankful to be alive but it's hard. BC has taken so much of who I was away. I'm not giving up, but it's a struggle. Going to have Botox injections in my bladder next week to help with overactive bladder and am getting referred to an acupuncturist for my knee, which is still swelling and keeping me from rehab, let alone Taekwondo. Sorry for the pity party. I just didn't know where else to do this. I will take some time this weekend to regroup and continue on in a more positive way, but feeling tired and beat up today.

  • bc101
    bc101 Member Posts: 923
    edited November 2015

    Oh Diane, I'm so sorry - you're really going through a rough patch, too. I know what you mean about the lady parts. I blame it on the AI due to 0 estrogen. But there is hope. There are lots of things you can do if you see the right provider. I had started seeing a specialist, but after John's diagnosis, it fell by the wayside. I think I had mentioned that they recommended DHEA suppositories for me. I'm still too scared to do that, but they say it doesn't get absorbed beyond the area. I don't know....It's truly one of the most depressing things about getting older. Hang in there, my friend. Better days are ahead of us all....I just gotta believe that!

    HUGS!


  • pinktiara
    pinktiara Member Posts: 716
    edited November 2015

    Well I am having a pity party too...so I am in good company....

    Diane I agree..mary just gets 'er done...fabulous Mary.

    Man o man...I hope your knee gets better soon..I know how much you must miss TDK.

    I used relpens for a bit which fixed the lady problems..having abit of a problem now but KY helps...for what its worth.

    So now my silly rant...Still have another week until I get the blood tests and then the same day I will see my BS about the lump and papilloma...They were thinking they could take care of the papilloma in the office but now that there is another lump ???doubt it...so more money spent on this boob stuff that is put aside for our property and house....hate hate it.

    I have a stupid cold and I am sewing a night fury/toothless dragon from the movie how to train your dragon....not a good combination...totally screwed up his head and have to start over. It is a request from my son for a B'day present for his girlfriend...I'll get it done...but it is still a pain..

    Speaking of my son..younger one...he has a lump under his nipple....SHIT!!! REALLY!!! I am praying it is nothing...but.....well you know. At least he can go to the VA here...we have a good one and he really likes his doctor...she listens to him...so one plus. I don't know when his appointment is..will find out tomorrow...please send good thoughts his way.

    Sorry for just spitting this out there...but needed to unload.

    love you all

    Eve


  • pinktiara
    pinktiara Member Posts: 716
    edited November 2015

    Steven is going tomorrow for his exam...fingers crossed!

    E

  • mmtagirl
    mmtagirl Member Posts: 325
    edited December 2017

    omg! Here we are all back on bco! Beverly, thanks for the pm . I tried to find you on Facebook but could not find the correct Beverly Johnson. I will keep trying.

    Marissa, you loo beautiful! Still would move to meet you in EL!

    Diane, those lady parts? It is bad enough I have no feeling in my new foobs. Hate the dryness and lack of mojo no matter what I try with the rest. Momma never told me that part! I am trying to keep up,with replens but it is not the same.

    Didn't you try femara , Diane? I was on Tami for 6 months and my brain didn't function. Have been on femara for 4 months and can't stand the joint pain and muscle aches. Stopped taking it 48 hours ago and feel so much better! Waiting to try the next AI. Am not yet prepared to give up but I need to be active.

    Eve, what is this about another lump? Shit! Does it ever stop!

  • Dtkd
    Dtkd Member Posts: 422
    edited November 2015

    Eve, Don't worry. Small lumps near one or both nipples are very common for boys in puberty. David has one too. They eventually go away. I'm sure it will be fine 😊. I hope you fee

    Thank you ladies. I so wish I was the only one with withering lady parts :-(.

    Ann, I took Femara and hated it for the same reason. I think that was the one responsible for my thinning hair too. They all totally suck. Tamox was probably the least horrible, but I couldn't handle that either.

  • Dtkd
    Dtkd Member Posts: 422
    edited November 2015

    oh crap Eve, I thought you meant Daniel, not Steven. I will say a prayer. Hopefully it will be nothing serious.

    hugs to you my friend 💜


  • pinktiara
    pinktiara Member Posts: 716
    edited November 2015

    lol Diane..

    No Steven will be 29 on the 26 of Nov. He is still a kid to me. So no appointment yet...he was going to make an appointment today, but got home to late from school. So, Monday...I hope. He hates it when I tell him what to do, what to ask for in the way of tests...they are all so smart ...you know..

    Just to say it here...I de activated my FB account...I don't like zuckerburg and don't want to contribute to his fortune.

    Guess I am getting old and standing up for what I believe in....grumpy old lady....lol

    love you guys hope you will be checking in here...just seems more comfortable for me

    I have lady part problems too...just no real desire....some dryness....hubby buys lots of "stuff" from the adult store.....so funny a sampler pack of gels...$75 bucks....I just laugh...he tries..the coconut oil is really good for my back pain....sigh. I miss the old days.

    love

  • bc101
    bc101 Member Posts: 923
    edited November 2015

    Hey ladies, glad I'm not the only one with defective parts. Can I get a refund, lol?

    Ann - sorry to hear that the AI didn't work for you. Aromasin seems to be the ticket for me. My only complaint is hormone brain. At least that's what I'm hoping it is and not early Alzheimer's. Between hubby and I it's comical the things we forget and the words we come up with in our conversations.

    Eve - When are your appts? I wish Steven all the best. I hope by now he's called and made an appt. I know what you mean about FB. The reason I use it is because all my out of state friends are there and I know I'd probably never keep in touch any other way. The thing is...it seems like once you've opened Pandora's Box, it's hard to quit. Good for you for walking away from Zuckerberg's Empire!ThumbsUp I know I spend way too much time there and my house would be a lot cleaner if FB had never been invented, lol!! But yes, this site is great. Nice to see it's still going strong. I found a thread much like this one for "talking" with others who've had or are dealing with cancer like the hubs. It really helps to get support from others who've been there and know exactly what you're talkin' bout.

    Tomorrow we are getting out of the house for a few days. Nothing too exciting...just to the cancer clinic for DH's first follow ups, yay. We're stopping by to see mom on the way down and then staying overnight at a hotel. I'm bringing my swimsuit for the pool and hope to get in a quick swim. DH's appts. are early Thursday. Boy, this crap is getting really old. It's like an endless loop. We're both getting depressed, so I'm gonna try my best to get DH to take some antidepressants. Me, I gotta get back to Yoga and walking! I've been totally sedentary since this all started. Not good.

    Luv to all!