Faslodex Girls Thread
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Dear Roses...I hope to you know who its not just i smell myself better. I would like to smell like lavender and lilacs and pass on the eau de loamy mushroom but I so believe this stuff is extending my life that i could be smelling cow manure 24/7 and be absolutely grateful.
Naturegirl...My tumor markers went from over 800 to 90 and still going down. anything is good that can do that! Got a small # of side effects (reference last statement) oh and i take femara with it...but I, for one, couldn't be happier.
Working on people for you Myra!
Love you all ! :^)
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Hi Nature Girl - I stayed on the A/A combo for only three months - it did stop the progression and dropped my TMs quite a bit but OMG it nearly killed me with se's so I was able to talk my onc into letting me stay off treatment for six months and am now on Faslodex - had my second loading shots yesterday and no se's really but am a little more tired than usual - could it be that I am starting to hate winter??? I have a new to me dog and she needs to be walked four times a day which means slogging through uncleared sidewalks, worrying about falling on ice, freezing, etc., etc. but compared to other treatments I've been on these shots are a breeze - I have a great nurse who is very experienced with the shots and she takes her time so that helps. Hope we all get lucky with the Faslodex.
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PET scan in a few hours. Starting to freak.
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Myra - don't freak - we're "holding your paw" (my DH used to say that to me when I was freaking out) - let us know how you make out and don't forget to "treat" yourself tonight.
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Thinking about you Myra, hope it's going great and your results are nice and positive
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Myra, I assume the scan is all done. I hope the results are reported speedily and that they are excellent.
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Spoke too soon - I had loading shots on Tuesday and today I feel very weak, unable to do much which is killing me and my type A persona - have barely been able to walk the dog - need to do laundry but can't get down the hall to the laundry room - does this last long or is it only few days after shots? I've been having hot flashes again too - geez, you'd think by my age nothing could give you a hot flash (but you'd be wrong!)
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thank you all so much for the kind words and good vibes. Results on Monday....keep praying
Sandy I too am a type A, but this is the time to be a type F. Relax and don't fight it. I did not have that type of fatigue, but it will go, hopefully as quick as it came.
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Hey ladies..... Guess what? The new drug Placo.... ( bad speller but good news) approved day before yesterday and will be going into bottles as quickly as possible to keep up with demand. Should be able to get hands on within a few weeks. This should help us a lot! Since Faslodex/letrazole is working for me...I'm sticking with that but WOW ...... Back off chemo .... Better meds ahead!!!!
Have a great weekend!
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Sandy, I have a lot of fatigue with the Faslodex. Just had my 2nd injection a few days ago. I do find that it gets better 3 - 4 days later. Hope the same is true for you.
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Sarah - thanks for that - I was worrying that I'd be laid up the whole time I'm under treatment. The first injections didn't give me any se's at all (at least not anything I noticed except for the odd hot flash).
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208sandy, hope you feel better soon and the SEs pass quickly.0 -
The faslodex shots are so painful. I tell myself it will get better but seems as if the next time it hurts worse. The nurse is trying to go slow and all. Just wish there was something that wasn't so painful.
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I have had 3 sessions of the shots...and I haven't had any se or the pain...it just feels like a shot in the butt...sorry ladies that are having difficulties with the shot...
They just take them out of the package...alcohol rub my areas and fire away...takes them about 5 to 8 min and they both do it in sequence..No pain....
I hope they shots get better ladies...Love and Respect Carla
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I haven't had pain from the shots at all - mine are done one at a time and the nurse is an expert at going slow - that may be the key - also shots are warmed up slightly. My only problem was that this time I got hit with se's two days in and am just now recovering - it was weakness, etc. but better now and back to getting the backlog of chores done.
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I feel lucky too. No Faslodex pain BUT just threw up 3x from radiation this AM.
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results good basically stable PET scan and normal physical exam. Gonna keep on fasolodex for a few more months and hope the TMs finally start to fall
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Myra,
Sound like great results to me. Congratulations.
Mary
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That's great, Myra! Congratulations!
And Valerie, I'm so sorry about the nausea and vomiting--here's hoping you feel better very soon!
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Happy days, Myra!
Sad days Valerie, but this should pass as soon as radiation is over. Meantime when you go in tomorrow (presuming you have less snow than we do) ask for better anti-nausea meds.
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Great news Myra - now hoping the TM's get the message!
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thank you all....I am so grateful
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Dumped the rads cuz Faslodex and Femara has taken me to 51 TMs. Now my only problem is a honey combed spine, a herniated disc and osteoporosis. I lost an inch and a half! Anyone else have collateral damage?
Much love!
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great news.
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Valerie, It just isn,t fair....a treatment to help us should NOT start a "nasty". What is the RAD Onc suggesting for the nausea? Poor Valerie...hope that you get relief soon. Peggy.
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I took compazine and Zofran and got relief but then muscle and joint pounding. Sooooooo I decided to skip the last two treatments and great relief! The rads folks had little problem ,it was there to just relieve pain in my spine and since my TMs are so low....quitting a bit early doesn't effect it much. (I made that last part up...I researched the hell out of it and that's what I, Dr Valerie, have decided. I am not a doctor either but sometimes one just "feels" when something is more harmful than helpful and I've been living with this for six years....that's my only degree but I'm taking it! School of hard knocks as they say. Thanks for the well wishes and much love to you all
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Valerie, My 38 radiation session back when I was Stage II knocked me on my butt. I have spent a fair amount of time thinking about under what conditions I would do it again. For pain, I suspect I would decline. To zap a tumor pressing on my spine, I would accept. For me, and many others, radiation is not without a large cost.
Tomorrow is month 61 for me. Small bowl of soup for supper so I can have some salty popcorn with copious amount of water later. Got to plump up the veins for the blood draw. Forgot last month and paid a huge price.
*susan*
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Valerie, good for taking control of your life. Susan ,good luck tomorrow
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Susan, do you have a snow plow? Good grief, I feel for you hardy New Englanders!
Bottoms up, brave Bostonian!
Tina
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I think all this snow is a lot like MBC, nobody wants to deal with it but it's here anyway so what are you going to do?
Susan, good luck today! And Valerie, here's to feeling better in the very near future!
(also, just for the record because everyone's different, I had very little trouble with my radiation at stage III or for the mets in one of my hips (no major organs in the line of fire, though), and in my mindmore rads for pain would be an easy call--I'm sorry for the bad experiences but glad you guys are posting about it so other people reading get the full picture!)
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