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LVA surgery - bypass surgery - Have you done it?

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  • lw422
    lw422 Member Posts: 1,411
    edited July 2022
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    Barb--you're welcome. I believe a main consideration is whether you feel comfortable with the doctor. Get all your questions answered... how many of these procedures has the doctor done? Are there any stats on the success rate of her surgeries? Any online reviews? What type of screening have you had done so far?

    I'm beginning to notice some changes in my cancer side arm (right) and I'm very concerned that I might be developing LE in spite of the pro-active LVA. My surgeon successfully connected four lymph channels during surgery so I'm fairly confident that those are providing some level of drainage, but I'm well aware that none of these procedures come with guarantees. I have an appointment with my surgeon next month and I'm going to inquire about having additional bypasses done. Good luck to you and let us know how it goes.

  • pennsygal
    pennsygal Member Posts: 264
    edited February 2023
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    Hi all -

    i had the surgery last weds so typing one handed. all went well but the non activity/wrapping/elevation is challenging. Two incisions are healing well. would love to hear how others are doing.


    barb

  • mavericksmom
    mavericksmom Member Posts: 1,259
    edited March 2023
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    Hi Barb, I somehow missed this post. I just had my exchange surgery and my surgeon, who is a lymphedema specialist as well as a PS, did mapping of both arms at the same time. My husband said after the surgery the surgeon said my right arm is good, and he will discuss my left arm at my follow up visit. He talked to me about the bipass surgery. I know he said he wanted to do some “debulking” via liposuction and venous bypass. Then I would need to wear garments 24/7 for the rest of my life. Ugh

    I would need to wait until next year anyway because I am on Medicare and they won’t start paying for garments until 2024. I am not sure they will pay for the venous bypasssurgery because it is still considered experimental. So I won’t be having it any time soon.

    I am very interested to here more about your experience. I hope you post here again!

  • nickel103
    nickel103 Member Posts: 17
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    Can anyone recommend a surgeon in NYC who does lymphovenous bypass? I

  • homemom
    homemom Member Posts: 830
    edited July 2023
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    It seems now they are a little more proactive when you have your surgery then they were when I went through all this just 8 years ago. Having a bypass surgery wasn't an option. They took out over 20 lymph nodes, so lymphedema was inevitable. I believe transferring one or two nodes isn't going to do anything for me. I'd love to get surgery to help with lymph flow, I just don't know if it is even worth the effort.

  • mucki1991
    mucki1991 Member Posts: 77
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    I had this surgery a few years ago after a mild case in my left arm. It took several months for the healing to be completed but it worked.. Fluid is greatly reduced . Not wearing a sleeve or glove unless it flares up which is not very often.

  • mucki1991
    mucki1991 Member Posts: 77
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    7 I think ..

  • homemom
    homemom Member Posts: 830
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    I had 26 removed. It might not be helpful for me. I'd like to find a doctor who does this and find out.