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Starting chemo July 2014

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Comments

  • Hi ElaineTherese! Congratulations on finishing herceptin! It's a long haul, isn't it? I hope you have a happy holiday season too! Smile

  • boxofrockstar
    boxofrockstar Member Posts: 54

    Hey, everyone! Just checking in to say Happy Holidays, and see how you all are faring. Sorry to see this is still dragging on for some of you guys. I haven't seen my oncologist since last March, and I don't know if I'm supposed to be checking in with her or what. I did have a mammogram yesterday, which was all clear, so I'm just assuming I'm healthy, for now. And here's an updated photo of my little chemobaby, who turned one in October!

    .image

  • elainetherese
    elainetherese Member Posts: 1,635

    Congrats, boxofrockstar, for a clear mammo! And your chemo baby is a sweetie! I'll bet you're having lots of fun with him this Christmas.

  • puffin2014
    puffin2014 Member Posts: 979

    what a Merry Christmas for you this year with that darling little one. My onc is having me come in every 4 months. She does a physical exam, a breast exam, asks how I'm doing on my arimidex - no lab or tests.

  • CoyoteNV
    CoyoteNV Member Posts: 286

    Wishing you all a Happy and Healthy New Year!

  • magdalene51
    magdalene51 Member Posts: 2,062

    And the same to you, Coyote, and to all of you ladies!

  • puffin2014
    puffin2014 Member Posts: 979

    and a Happy New Year from me too!

  • knmtwins
    knmtwins Member Posts: 438

    Happy Happy everyone! boxofrockstar - he is too cute! His progress was certainly a cheery thought when I was down doing chemo. We are so lucky that our chemo start month included a lovely baby. Dag he is darling! As to when to see the oncologist... Chemo ended 10/29/14, BMx w/ all cancer gone on path report 12/2/14; Herceptin ended 7/16/15; then was on every 3 months and breast surgeon every 6. Now see MO every 4 months, for labs, bs every 6. I had my port removed at my Dec 3, 2015 recon surgery, so no more needing to get it flushed. I have already had another core biopsy, on the 'good' side's foob, all OK. Seems a lot of people w/ fat grafting get nodules from necrosis. Who knew. My MO follows me for symptoms and does blood work. Menopausal Status, CBC, and some other stuff based upon symptoms. Seems my Vit D is low, so 50,000 IU for a while till she re-tests it. I'm 50, so I've also had baseline bone density, colonoscopy, endoscopy, had headaches so brain MRI, tummy pain when pushed on, so abdominal ultra sound. All OK, except escophogus was wrecked by chemo, so on Omneprozole for next 6 months, and here I thought that was fine.

  • slappy-squirrel
    slappy-squirrel Member Posts: 200

    happy new year and the best of health to everyone!!

    Shirley

  • magdalene51
    magdalene51 Member Posts: 2,062
    Happy New Year, Shirley! I was just thinking about you, and Coyote, as the moderators have started a thread called "Calling All Artists" and you two need to share your work over there. It's got all kinds of arts and crafts.
  • CoyoteNV
    CoyoteNV Member Posts: 286

    Hi Mags,

    I did post some stuff over there pretty early in the post. I've started working on a jewelry order for one of my galleries, so I'm in the studio several hours a day until I complete it. Thanks for thinking about me!


  • magdalene51
    magdalene51 Member Posts: 2,062
    Always.
  • slappy-squirrel
    slappy-squirrel Member Posts: 200

    thanks Mags, I'll check it out

  • dancingdiva
    dancingdiva Member Posts: 317

    Happy new year ladies! I've been taking a break from this site and decided to check in. I'm back to work and it feels good. Box of rockstar , I can't believe ur baby is 1 yr old! Time flies. He is adorable! What a head of hair.

    Went to see Onc today and just ran blood tests to see tumor markers hormone levels. I'm still post menopausal. If I continue this way , he wants me on tamoxifen for another yr and then switch to femera.

    Happy to see threads still active

    DD

  • slappy-squirrel
    slappy-squirrel Member Posts: 200

    hello to all my July ladies!

    Today is my 2 year cancerversary and I've been thinking about all of you. Hope you are all doing well!

    Shirley

  • elainetherese
    elainetherese Member Posts: 1,635

    Hi Shirley!

    Congratulations on two years out! One of our July 2014 Chemo Sisters (Dancing Diva) has recently had a recurrence. Remember her in your thoughts and prayers.

  • puffin2014
    puffin2014 Member Posts: 979

    Congratulations Slappy Squirrel, I got my graduation papers too from my surgeon since it was my 2 year anniversary.

    Don't know that I mentioned it on this forum, my partner of 39 years, Lew, fell off our roof in March while laying the satellite dish down so that his son could shingle our house. He landed on his face, massive brain trauma, and we took him off the respirator 3 days later. It's been a hard 3 months, getting all the financial issues settled, going through the 50+ rubbermaid tubs of his stuff (I couldn't see 2 walls in the shop because of all the boxes and junk in there). I'm slowly learning to do those things he did - like mowing the grass, and dealing with electronics when they don't work, like when I turned on my ipod and all I got was a blank white screen. My sister-in-law died last week from her stage 4 ovarian cancer (she was diagnosed a year after my brother died of ALS) so this was my first long road trip without Lew. I NEVER drove in Minneapolis, so made sure I drove when it wouldn't be rush hour - had to remind myself to breathe, and my left wrist hurts from holding onto the steering wheel so tight.

    I hadn't heard about Dancing diva, I'll definitely add her to my prayers.

  • elainetherese
    elainetherese Member Posts: 1,635

    Oh Puffin. I am so sorry to hear about both Lew and your sister-in-law. A hard three months, indeed! Yes, I hate driving in the city, too, but I've forced myself to do so in order to help out with my daughter, who goes to school there. In the midst of all this heartbreak and adjustment, I hope and pray that you find some time to take care of yourself, too.

  • dancingdiva
    dancingdiva Member Posts: 317

    Puffin, so sorry for the loss of your partner and all these other things all happening at once. One day at a time.

    And yes it's back...:(

  • metoo14
    metoo14 Member Posts: 165

    I have never been a big poster, but I wouldn't have been able to have made it through this without all of you. Puffin, I am so sorry for your loss. You and your family are in my prayers. Dancingdiva, I'm sorry to hear of your recurrence, you are in my prayers. I hope you and your medical team hit it hard and you have many many many years of NED.

  • slappy-squirrel
    slappy-squirrel Member Posts: 200

    You are all in my prayers every night. This group of ladies have saved my life in many ways.

    Shirley

  • dancingdiva
    dancingdiva Member Posts: 317

    Hug

  • ladyb1234
    ladyb1234 Member Posts: 1,239

    Puffin, I am so sorry for your loss of your partner Lew and your sister in-law. You and your family are in my prayers. Take care of yourself!

    Dancingdiva, sorry to hear of your recurrence. Praying your treatment is the best and you have many many many years of NED.

    Angie/LadyB

  • newbcny
    newbcny Member Posts: 11

    Gee, I am so sorry to hear about your partner and sister-in-law.

  • newbcny
    newbcny Member Posts: 11

    May I ask your experiences on Arimedex

  • puffin2014
    puffin2014 Member Posts: 979

    newbcny: as for arimidex, initially I had ankle and knee stiffness when I'd first get up after sitting awhile, but once I was up and walking the stiffness would resolve. I made an effort to get to the gym regularly and walked 10,000 steps a day for several months to strengthen my legs. However, I got lax in doing the strength exercises for my arms and last week's followup dexascan showed I've lost bone mass in my left arm. My onc wanted me to start Prolia injections. Since my hips and spine were stable, I've asked if I could put off the Prolia injections and focus on doing my arm exercises again and she has agreed. I've gained about 5 pounds, but I think that's because I haven't been as active at the gym since Lew died. I need to get back to my regular exercise routines and quit eating so many cookies.

  • elainetherese
    elainetherese Member Posts: 1,635

    Puffin,

    I know what you mean about feeling a little stiff when you get out of a chair, but then having the stiffness disappear when you walk around. I feel the same on Aromasin. I've also gained some weight, and am trying to swim it off. Don't be too tough on yourself about gaining weight; I'm sure if I lost my partner of 30 years, I'd eat some extra cookies, too.

    Take care!

  • CoyoteNV
    CoyoteNV Member Posts: 286

    Puffin, I too am sorry about your loss of Lew. You are certainly a strong woman and will carry on. As we all know, life sometimes offers a rough road to travel. As your heart heals from this great hurt, I know you will find Lew remains there... safe and whole... perhaps out of sight, but never out of mind.

  • CoyoteNV
    CoyoteNV Member Posts: 286

    Dancingdiva, I am sorry that you are dealing with a recurrence. I do understand where you are on this. I wish you well and send lots of positive thoughts and wishes for strength to you.

  • magdalene51
    magdalene51 Member Posts: 2,062

    Checking in to update you and I'm sad to see Dancingdiva has had a recurrence. I have kept up with Puffin on FaceBook, so I knew about Lew. How are the rest of you doing?

    I have just been dxed with mets to the lung. Still processing the information, waiting on the results of hormone receptivity to see what treatments will be.

    Love you all, ladies