Starting chemo July 2014
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oh no Mags, I'm so sorry. Keep us posted and I hope the doctors come up with a plan for you. I'll keep you in my prayers.
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Mags,
I'm so sorry to hear that you have lung mets. I hope that your team comes up with a plan very soon and that the side effects are minimal. In other bad news, our Stage IV July 2014 sister, kebab, was recently diagnosed with brain mets and is considering hospice. Prayers for you both! Cancer sucks.
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Oh no, I am so bummed to read all this bad news! Cancer sucks, indeed. Thinking of all of you.
So sorry for your loss, Puffin.
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Mags, so sorry to hear about your progression. Praying that your team settles in with a treatment planand that the side effects are minimal and gets you to NED for many years .
Love across the miles,
Angie
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thanks Coyote.
Mags! I thought I recognized u on the head count thread
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box, ur baby is so cute. It's wierd to see how u went through this pregnant! Nice to see pics of u and ur baby now.
D
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Mags and Kebab - wow, prayers to you. Remember, stage IV is not what it used to be. So many new drugs out there. A lady in my local support group, is on a chemo pill that she has no side effects from and she still has her hair. Why can't we do that first instead of all the crappy infusions we were complaining about 2 years ago.
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Dancing 'head count thread', are you mets too? How many of our July 2014 Chemo sisters are? I've been out of the loop for a while. Praying for all of us.
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Ladies, how do we find out that the cancer has come back? I have implants, so no more mammograms. I now see my oncologist every 6 months and my breast surgeon every 6 months. I have them scheduled, so I'll get a good boob exam every quarter... but that is it. Well, normal lab work including liver enzymes, and vitamins and minerals, but no cancer markers or anything. Still trying to get me back to normal from chemo and probably tamoxifen is messing with me too. Currently taking prescription folic acid, vit. D and B12 shots. My onco says the B-12 shots might help with chemo brain. I sure hope so. I hate not being able to find a word and by the time I find it, I have forgotten the rest of the sentence.
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Kmntwins,
I don't know how we'll know cancer is back. Since I had a lumpectomy, I still get mammos, every six months. I'm seeing MO every three months for now; will switch to every six months soon. Essentially, we wait for some kind of symptom, some pain that doesn't go away after two months. I believe that kebab had some episodes of dizziness and the like which led to her brain mets diagnosis.
Sorry to hear that you still have some chemo brain! I may not be as sharp as I once was, but I'm much better than I was when on AC.
Hope your implants are working out and look great!
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Puffin, so sorry for all the loss this year.
ElaineThere - thanks - my MO thinks that the B12 shots should help with the lost words then thoughts. We just put so much crap in our bodies to kill this stupid cancer that I guess it takes a while to get everything balanced again. As to implants, they are finally done, after a TE deflated, so had to replace it, 5/15, then implants port removal and nipples, 8/15, then revision for symmetry 12/15. (I think that was the order) I now have a dog ear on the left, but oh well. SO out of money and done. I think 'if I know now...' I wouldn't have done nipples and just gone to Vinnie for tattoos. Heck, he is only 60 minutes away from me. The nipples not looking like nipples is still a problem for me when I walk by a mirror. I'm also having 'clothes' issues. I have always had super big boobs. They balanced out my bottom. Now, with my 650 cc boobs, my bottom appears bigger, but the largest issue is my clothes look horrible. Seems I have a wide back, so still need size 16 or 18 jackets, but there is no longer anything to fill them out in the front. I guess my issues are the same a teenage girl faces, but it has been decades since I was that, so I'm learning all over again.
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Hi ladies - I just wanted to stop by and say hello. I am so very sorry to hear about the progression.
Puffin - my deepest condolences to you. You have had it rough the past few months and I hope you are doing ok.
Mags - I am devastated. I hope they come up with a treatment plan that will kick this in the butt. Hugs my friend
Dancingdiva - I am sorry to hear of your reoccurrence. I hope they can bring you to NED. You are in my thoughts.
Kebab - if you're reading this please know that I am thinking of you and am hoping for a miracle. I wish I could make this all go away for you and everyone.
Hugs to all
Nancy
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Hi ladies,
I haven't been here for a while, and I was so excited to see this thread was active again when I logged in, only to be so sad to see why. I am so sad (and angry!) to read of Puffin's tragedy, Dancing Diva and Mag's recurrences and Kebabs progression.
I still wear Coyote's bracelet and reflect on how much this group meant to me in my darkest days.
Thinking of you all.
Rain
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Kebab - I am thinking of you and you are in my prayers. Praying you are able to get additional treatment and get comfortable.
Rain, I still wear Coyote's bracelet too! Love it and still get tons of complements and good conversation because of it. Love to talk about how much the group helped me and what it means to me
Love across the miles,
Angie
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Ladies - I agree with Rain and LadyDew, this group SAVED me during chemo. All my July 14 chemo sisters are always in my prayers. Thank you all so much for being part of this journey with me.
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I still wear my bracelet too!
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I still wear mine
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Slappy, and we can't forget about the awesome hats you made for each of us!
Thank you all for your encourage, support, prayers, pushing and most of all taking me in when I needed it most! Wwe never know when or if this disease will progress. But I know where to come if it does --- BCO.
Dancing diva, Mags and Kebab, we are are for you
Love across the miles,
Angie
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yup I'm stage IV now. My doc felt my lymph nodes under my opposite arm be bigger. and voila.
Met someone at hospital who I knew 2 yrs ago. She got a petscan done because of abdominal pain. She was convinced it was ovarian. It wasn't. But they did find bc in her lungs.
Really is so random.
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I'm so sorry to read this dancingdiva. Thanks for letting us know. I really wish I could make it all go away for you. Please know your'e in my thoughts. What is the treatment plan for you now? I see you are ER+ PR+ originally. Were you doing tamoxifen or an AI? Will you be doing it now? Big hugs to you sweetie.
Nancy
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Caryn (exbrngrl) on the Stage IV boards posted that Kebab, our July 2014 Chemo Sister, has passed away. Blessings to Kebab's family, and prayers for them in this difficult time. Fly free, Kebab!
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My prayers go to Kebab's family, and we her July 2014 Chemo Sisters. How are the rest of us doing?
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Hi knmtwins!
I'm doing OK. I just had a clean mammogram, and saw MO on Wednesday. I'm taking my Aromasin and Zoladex, and am still crazy busy as usual. How is Tamoxifen going for you?
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Elaine Therese,
Don't like Tamoxifen, but if it keeps the cancer away, then oh, well. Once my oncologist checked my B-12 and put me on B-12 shots, the foot cramps dramatically decreased. Was it the B-12 or just that I finally got used to it... who knows. I'm also on Rx vit D, as my levels were so low. Currently on the 2nd 3 month round. I'm also on Rx folic acid. BTW the Vit D, makes you constipated (a topic we were discussing constantly two years ago), so I take an Rx magnesium with it, and all is OK. Currently job hunting, hoping for a call back next week as I had a wonderful interview last week. I really enjoyed the people I'd be working with, so hope they feel the same way and call me back.
Love to all of you, my sisters!
Kay
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I am so sorry to hear this. May she forever rest in peace. My condolences to the family. I am heartbroken.
Nancy
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😭I've just been sitting here looking through the threads kebab was active on and in a state of shock that one of my precious girls is just gone. Trying to just breathe.
I have a CT scan scheduled for this Friday and appointment with MO on Monday. Part of me hopes (but not really, of course) that the faslodex isn't working so I can switch to something else. Against the odds, the location of my bone pain is my jaw. It travels all over it: top, bottom, side to side, halfway down my neck and up the temples, I'm taking hydrocodone with ibuprofen, using my emla cream on the outside and a 20% benzocaine inside along the gum line. Sometimes it helps. But I have to be careful not to talk too much and tend toward soft food.
Dancingdiva, how are you doing?
Gentle hugs to all the July sisters. Love you all
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Mags,
Yes, kebab will be greatly missed. I'm grateful for her wisdom and kindness. I'm sorry to hear that you've had a tough time with Faslodex. Your jaw situation sounds so painful!
Hope your CT scan shows that things are stable! Maybe your MO has some ideas about how to decrease your Faslodex pain.
Praying for you.
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Mags, I too was just re-reading some of Kebab's post. I will miss her tremendously.
Praying that your CT shows stable and regression and that there is management of your pain.
Hugs to all.
Love Across the miles,
Angie
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hey mags, sometimes I just need a break from these boards and I just came back on to find out now about Kebab. I just can't believe it. Just sad to hear this.
I'm on Ibrance and Femera. Getting 2nd scan this wk.
we must keep chugging Mags. Hugs
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dancing diva -- hope that your scan shows that Ibrance and Femara are doing the trick. I pray for you guys! Keep chugging is what we have to do. ((Hugs))
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