CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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welcome egg roll,
You have the perfect name for this joint! Yum yum!! This is a crazy rambunctious, fun group. It's the perfect place to rant and rave and bark at the moon.
Ducky,
If I ever get to Pa, I'll come bearing cookies or whatever you desire.
Rose,
Yes, certain it's cancer of the taste buds... Why oh why would I be sooooo sick of chocolate?? They keep giving me more and more to play with. I need a break from chocolate. I'm going to be creating some desserts for people who don't want chocolate... At this point I have to.
Poppy,
That is a horrible story about the shelter. I can't imagine who'd do that!!! Actually , I can and I hope the catch the sick bastard soon.
Tom,
Glad you're keeping cool down in LA. So sorry I never met you when we were down there. Maybe next time!
Slow, blue,
I had the same thing happen to me, right after finishing chemo 25 yrs ago, like a week after. Another lump. My MO was pretty certain it was B9 but I wanted that thing out.. and yes it was B9.
Tonight we've been pretty much glued to Twitter and news because of the big fire north of us which is now over 50k acres and 0% contained! It's really terrible. Thousands have had to run for it and it's really scarey. Hopefully we'll get some rain in the next couple of days which could help.
I'm just totally burned out after this weekend and I have the dentist tomorrow. I will be glad to get back to the script tomorrow as there is zero chocolate involved!
Sleep tight crazies.... See you on the flip side
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Good luck with dentist tomorrow, Sula, I am sure we will meet one day!
Poppy, yeah, I just saw that on the news tonight. What a creepy- headed doodie man would do that, apparently, there might be film of it at the shelter , what a fuhnker that person has got to be...I do hope they catch that monster.
And the fires are just crazy..only one life lost so far, but many homes...just awful, and one reason I am hesitant about living in canyon country.
I meant to say spiculated up there, dum 'puter
Up late cause I keep hearing noises outside, but that time it was a police cruiser, I guess it pays having the mayor live on the same block. Apparently, there have been people who get this amplifier thing, that can 'amplify' the signal from your car key, and record the signal, and use it to get in your car, the keyless entry kind. So you have to make a faraday cage for your key. At home, we put it in a brass box, but my experiments show that two layers of tinfoil work just as well. But there were some weird noises out there, I have been out to look a couple times already. See? My crazy town brain goes crazy over many subjects! Even my stomach rumbling. oops more strange sounds
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Welcome Eggroll. I love your image of the magic wand: Don't we all wish for one at times.
JAN69, I'm pretty careful--as in freak-out, obsessive compulsive meticulous--with the tomato water bath canning. Danger is greatest for imperfect/damaged/old fruit, and I'm buying it from a local farmer at the height of the season.
Tomboy, I LOVE your description of swimming in the ocean. That is something I have promised myself for next summer.
Poppy, that is a terrible story about the animal shelter. Horrifying.
On another topic, your son's 9/11 assignment sounded great. My DS's history teacher led a discussion on Sept. 11. He has done it every year; this year's class is the first not to have direct memories of the day (they would have been toddlers). But of course they all have things they were told and have seen. My ds's elementary school was 1/2 block from a fire station that lost 7 men, so every day we'd walk past a mural commemorating them. And his high school is a short walk from ground zero; it was closed for weeks after 9/11 and was used as a center for first responders; many of the teachers at the time are still teaching there, including the history teacher. No getting away from it; we can even see the twin blue lights from our front stoop.
Katy, aw, thank you. I am in awe of your strength, personally!
Sula, I want that soup! I use a recipe for smoked salmon chowder just once or twice a year and love it so. Good luck at the dentist.
Reading these posts about the forest fires that affect so many of you: I hope you and your loved ones are safe!
Last night we went to see Casablanca at a local movie theater that's having an Ingrid Bergman film festival (Gaia: it's BAM if you're interested.) It had been a couple of decades since I'd seen it and never on the big screen. My word, it was wonderful! All of those lines that come one after the other, the performances large and small, light and shadow and camera angles. Took me right out of Crazytown!
Happy Monday to all!
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hi, if you are going for rads, then I would surely bring the lump up to the RO, my RO was so nice and comforting so hoping yours is the same. I am all for bringing up any crazy thought to the docs! good luck
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Littleblue: only sympathies and 'let us know' at this point--others have said what else I might have said.
Eggroll: another 'welcome to Crazy Town'. This is exactly the place to panic.
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ok, the above post was in regards to the woman who found a lump while doing rads. Dang but confused here today,
planning on a day off but plan on a visit to my fav farm stand and then some soup making
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Proud: it is Crazy Town, no? (I figured that's who you meant, though clarifying wasn't wrong)
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yes, crazy town is now an extension of my sofa~~
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Absolutely horrible about the shelter. I cannot imagine how someone could do that. it makes my heart hurt. I hope and pray they find those awful people!
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Anyone else here having sides like muscle spasms, neuropathy, stiffness and joint pain from herceptin / perjeta? I've been getting these infusions every 3 weeks since last November and can hardly walk. Love, Jean
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Wow what a great response. Very inspiring. And thank you!
I have an embarrassing memory when I was having my second child without any kind of pain relief, and I lost control and started begging people to kill me, and I was serious. And I just never want to be in that place again... what kind of surgery are you having? I didn't recognize that term.
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Littleblueflowers,
When I was going thru treatment the Onc found a lump in my axillary. Sent me to the radiologist who did an US guided biopsy. Turned out to be a seroma.
I love this CrazyTown!
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Thanks ladies- I saw my Onc this morning and he poked and prodded and said it felt like scar tissue formed at the end of my incision to him. He said I could have an ultrasound if I wanted to ease my mind, since at that point I was crying. So I got one scheduled for tomorrow at 1/30. Think I can eat an entire bottle of Ativan between now and then???? Bet I can!
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Good morning to all you wonderful crazies!!
First things first.
Sula, Good luck today at the dentist!! Hope it is a good experience for you, free from pain.
Rose, We are all in your pocket for that CT scan today!! I Thinking of you!!
Gaia, First day of Herceptin.....Hope all goes well!! Luckily, Herceptin alone doesn't require any premeds so that does help. Sending good thoughts your way!!
If anyone else has any tests or procedures coming up this week, please let us know so we can pool all of our good thoughts in your direction.
Eggroll, I'd like to officially welcome you to our Crazy Town thread!! You picked a good name "eggroll" to hang with these crazies!! We talk about everything here, but most conversations center around food. So pull up a chair and get comfy. Spiculated.....I've never heard of most of the terms they use, and honestly, I'm a crazy that prefers not to know most everything about BC. I'm glad you have a persistent GP. I ALSO had pronounced veins in my left breast after surgery. In fact, I still have pronounced veins on the surgery side that weren't there pre BC. I asked my surgeon about the needle track and was told that radiation would take care of that.
z, YES. I also had very bad bone and muscle pain while on Herceptin. One of the wonderful ladies here on BCO said I should slow my infusion to 90 minutes. That made a big difference for me. At the time they were giving me the infusion over 30 minutes. Towards the end the pains came back, and my EF was starting to drop again, so my MO decided to stop me a month early. Turns out the bone pain was from my RA and not the Herceptin. At least that is what they told me.
Littleblueflowers, It's nerve wracking isn't it??? I would be so surprised if you got anything other than a B9 result!! Ativan with a whiskey chaser.....hahaha....that cracked me up!! I'm glad they scheduled you in quickly for your US. Less time spent in Crazy Town!!
I have so much catching up to do with you all. Will be back later after I've read everything from the weekend. You're a busy bunch of crazies!!!Love to all!!
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Love that Party in Your Pocket!!!
I will be there: Christine, Sula, Rose, LBF. Sorry about the crumbs (that I will leave in your pocket)
Bringing the mojo drip too!
Thinking of you all today.
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LITTLE BLUE, I remember on one of my mamos, it was done at a dif branch of my rad center, dif eyes looked at the scan and wanted like 6 areas to be biopsied! sure needed Crazy town then! but when my surgeon looked at it she decided to biopsy only one spot as she was sure the rest was scar tissue, dang but she was right as that was like 5 years ago and no one has questioned anything since....I did go back to my regular mamo center
ok, on food, headed to the farm stand, got butternut squash and it is simmering now for soup. Yummmmm, also picked up a big head of kohrobi, never made it so looking for ideas, did see one recipe that said to eat is sliced and raw!
In the middle of a lovely tomatoe bacon sandwich, oh so good
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Katy, My DH and I have made many road trips to Washington State throughout the years. One year we did the whole trip back home driving along the coast. I seem to recall stopping in Coos Bay for lunch along the way. So beautiful up there. How fortunate you get to live there!!! I really must dig through my old traveling pictures. The picture in my avatar was taken on one of our trips, but for the life of me, my chemo brain can't remember the name of the bridge. It was right off of I5.
staynsane, Nowhere else can I get wise advice balanced with hysterical witticisms and recipes to boot! hahahahahaha......That is so funny and true!! Loved that!! I've misplaced many things over the past few years, but I must say the stand mixer takes the prize. Not too often I sit here with my mouth wide open. There are only so many places a big, heavy stand mixer can be!! Maybe you lent it to someone????? Maybe you NEVER had a stand mixer and it was all a dream??!! hahahahahaha
Gaia, I will most certainly try some bone marrow broth!! Once the crazy 100 degree weather goes away, I'm making some.
Octo, Your get-away sounds perfect .I hope you get some relief from that smoke soon.Your DH does sound like a keeper!! I hope you continue to have minimal SE's from the chemo!!
Rain, I purchased a Foodsaver last year and it's the best investment I've ever made. I'm able to freeze my sauce/gravy flat, so it doesn't take up too much room in the freezer. When my DH and I make homemade ravioli, we always make it ahead of time and freeze it. So much easier around the holidays. We did get freeze happy when we first got it though. hahaha We were freezing EVERYTHING. It comes with a built in sealer, so it's really great when you open a bag of pasta or anything in a package. YAY for your break from steroids!! Double YAY for no chemo!!! I love those old movies Rain. What a great distraction from Crazy Town. My dad recorded so many old TV movies on VHS. I still have them all. What a treat to get to see one on the big screen!!
PTS, That coast lunch sounds wonderful.You can never have too much seafood in my opinion!
M0mmy, My DH and I are big crock pot cookers when it gets cool.
Sula, Just now, I saw you gave the same tip about the 90 minute Herceptin infusion!! I should have read everything first!!The Salmon chowder looks wonderful. I am extremely partial to soup. I could have lived on soup growing up. It was so bad, my dad nicknamed me soupy. It's always been my comfort food. The foob, mixer , sock and pillow case must be in the black hole of lost stuff. My mom used to pray to St. Anthony when she lost something. I used to laugh at her, but oddly enough, it ALWAYS worked.I've done it several times when I've lost something important, and it worked for me too. It creeps me out a little, but I try not to question something that seems to work. My dad taught me to play the uke. He loved all those old songs....My Bonnie Lies Over The Ocean....Five Foot Two, Eyes Are Blue. I learned to play them all. I have his old uke, but one of the strings are broken. It's on my list of things to fix. haha
Ducky, I agree!! My mom used to say that same saying about the horse!!
JAN, Strawberry/Rhubarb ......YUM!! I've always loved PB&Jelly or Jam when I was a kid. Actually, I still love it!! I so hope they get those fires under control soon. With all the rain they are predicting, it makes me worry how it will all play out. Can't wait to see your quilt!!!
Tomboy, You lucky girl!! I know you are enjoying every moment of beach you get!!
Lucy, Hi!!
Poppy, I saw that on the news about the animal shelter . Made me sick to my stomach.
Eggroll, I'll take one of those magic wands too!!
sewingnut, Good to see you!!
Littleblueflowers, I think this says it all for me. hahaha
For those I didn't mention directly, you are all ALWAYS in my thoughts. Such a great group of women!!
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What term, Eggroll?
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How you doing, Katy?
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Lynn- better today thanks. I have bipolar disorder and got pretty cranked up. I have Ambien and use it when I get like this. Finally on the third night, really tired, it took 2 clonazepam, 2 Ambien and an oxy. The Ambien about 4 hours apart because I wasn't getting any love. My shrink's number 1 thing with me is when my sleep starts to go off. I am on much less medication than I used to be due to my choice, SEs, cancer, etcetera. So I am watched like a hawk. I watch myself like a hawk. It, like my truncal lymphedema is now something that will never go away. It is something that has to be "managed". Forever
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Jackie, well glad to have you back and feeling better, folks worry about you and miss you when you are gone or I sure do
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Katy, I agree with PTS, you are very missed when you're gone. You're such a huge part of our CT thread and we all love you!! I so enjoy your humor, and you always have such wonderful words for all that are struggling. You've got a gift of saying just the right thing to make people feel better.
When I was going through treatment, I thought Ducky had that same attribute. She made me feel better when I was stressed. Her stories made me laugh, and she always had the best motherly words for me. That was something I really missed not having my own mother here. And Tomboy....oh my goodness....we've had some great laugh sessions!! One of the kindest people you will ever meet. I could always count on her for a belly laugh when I was feeling....panicked!! There are others that don't post too much anymore, and some post on other threads. I will never forget the support they gave me throughout my treatment.
It's been eye opening to start this thread and find there are so many of us that visit Crazy Town. I'm grateful for ALL of you. I love logging on and reading all of your stories, and getting to know each one of you. You ALL make the challenging days so much brighter. Plus, I take much less Ativan with you all around!! hahaha
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Jackbirdie: another "welcome back". Bipolar's a bitch (friend has it, and now her teenaged daughter has been diagnosed)
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Slow, and anyone who lives , 0r has lived, or has been to Washington State.......it is the most beautiful part of the country........now my probably boring story, but your gonna read it anyway......right.............LOL
When I was first married my husband ws in the Army....we had planned on getting married after he was done his time........he was restationed after "boot camp", and called me to tell me where his assignment was going to be........He told me in "WASHINGTON".................well I was beside myself with "glee"...........I said "oh you will be able to come home every weekend, and help plan the wedding which was set for when he got out.......................then he said "Duck, do you know where Washington is?????????........I said sure......its on the other side of Maryland, Virginia...somewhere near those places..............
Ok, all of you stop laughing.............I was 20, was not very good in geography in school, and had no clue there was another Washington.............but I digress..................when he first made the "collect phone call"....to tell me this news.....the operator said to me "I have a collect call for Ducky from Vince from Yakima.....................I thought "holy shit", his assignment is in friggin Japan and yelled it to my mother............so after I accepted his very expensive (back in the 50;s, collect call and he had heard what I yelled to my Mother, he said to me "what the hell do you mean I'm in Japan"............................I gathered my thoughts and said ............."well I guess Washington is better then Japan"........
So in 2 weeks he called again...........asked me to get married, and move out there with him...............being an only child........telling my mother was not easy.........so when she said "Are you nuts"........I said....."I don't care what you say, I am getting married and going out to Washington with him".......
As I think back, I am not sure at what point the "dinner plate she was washing came flying across the room, missed me, hit the wall, broke, fell on my leg and almost cut it off".......................when I said "OMG what did you do"...............the answer was....."You let that "bulldog mouth", run away with your Cocker Spaniel Ass, one more time, and you will have one to match the left leg on your right leg".
Funny thing is years later, after meeting my mother (their grandmother), my kids actually describe her as "the most lady like woman they ever met"................WTF........I guess all they saw was an old lady being nice so she could make sure she would get into "heaven"....LOL..
So I finally did marry "Vince", as I had planned......my Mother was a sweetheart, calmed down, and relaized I wanted to follow my heart,.............
So ladies that is how I know Yakima, Washington is just this side of "heaven".and that there are 2 Washington's, and Yakima is not in Japah....and Mt. Rainier is magnificent and I have pictures to prove it....I was only there for 1 year.........loved it, but came back to Philly, because I loved my Mother more...........but when she heard I was coming back pregnant .........again she said "ARE YOU NUTS"..................
The woman had a way with words...........of course my kids ....all 6 never saw that side of her....they thought she walked on water...........but to be honest.......so did I............
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Ducky, love your story and bet she is where you got your personality~
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Nonsense: that's one of the great lies perpetuated by residents of the Pacific Northwest. Ranier's not a mountain. It's a cloud. A really big cloud. One that doesn't move. Don't even ask about "Mount" Baker.
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Ducky. Your mum sounds like a wonderful, wonderful character.. hmm..reminds me of someone else I know? Like mother , like daughter :-)
Katy.. Glad you 're back!
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Great story Ducky!
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Ducky, Love your story!!
I think the mother/child relationship is always so complicated. The mother/daughter being the most complicated. I didn't really appreciate my own mother until I had my own kids. That's when I realized how difficult it is to be a parent. Mom's especially, take the rap for a lot of things. My dad was no easy man to live with, but he was my dad and I adored him. After having my own kids, I realized what a difficult life my mother had being married to him. Now I admire her patience and her determination to keep us all together. She was not always so easy to get along with, but looking back at her life, I understand it all so much better now. I had an Italian grandmother that many thought was mean (my mom included). I loved her feisty attitude, and she only got mad at me once that I can remember. In my eyes she was wonderful. If she were my mom, I may not have felt that way!! haha
Hahahahaha queen!!! My DH is from Washington State. I can't wait to tell him about the big lie of Mt. Rainier.
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Your gonna lose the argument Slow........trust me...its a mountain I have pictures from the sunny side.....taken back in 1956.....in May..........partially snow covered.............if I can find them I will post them..............LOL........its a think of beauty.............not sure where the "cloud" story came from...........haha.............0
