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What percentage ER+ and how many years NED?

TectonicShift
TectonicShift Member Posts: 102

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«134

Comments

  • nancyd
    nancyd Member Posts: 556
    edited September 2015

    Wow, it's been so long since I thought about this, I had to go dig up my medical records.

    I was 100% ER+, and it's been seven years.

    Edited to add that the PR was positive too, but not as much as ER. And at least one node had extranodal extension.

  • Momine
    Momine Member Posts: 2,845
    edited August 2015

    100%, close to 4 years so far.

  • jenni__ca
    jenni__ca Member Posts: 77
    edited August 2015

    98% ER+ (PR and HER2 negative) and eleven years dancing with Ned ....

  • sbelizabeth
    sbelizabeth Member Posts: 955
    edited August 2015

    98% ER+ (can't remember the PR%), almost four years.

  • Momof2inME
    Momof2inME Member Posts: 249
    edited August 2015

    11% ER (4 years in Nov.)

  • sas-schatzi
    sas-schatzi Member Posts: 15,879
    edited August 2015

    Deleting b/c I don't fit Thanks, Good health to all

  • kathleen26
    kathleen26 Member Posts: 10
    edited August 2015

    95% ER, NED for 5 years.

  • KSil
    KSil Member Posts: 7
    edited August 2015

    95% ER - Approximately 2 1/2 years and doing very well. :)

  • Elizabeth1959
    Elizabeth1959 Member Posts: 78
    edited August 2015

    99 % ER and PR positive. 5 years. Doing well. Still worry about future

  • sas-schatzi
    sas-schatzi Member Posts: 15,879
    edited August 2015

    Tect, I had a brain tumor and thyroid cancer. They are not supposed to be connected. So, I can't specifically say I'm NED. What was nicely amusing is when I first posted, I said I'm NED 6years, 94% ER+, 6% PR so technically per the doc I'm a ER+ 100%. then I remembered the other two problems. Nice to forget that kind of thing.

  • wrmbrownie
    wrmbrownie Member Posts: 14
    edited August 2015

    Wow! You guys have really large numbers! Mine is 80% for both ER and PR.

  • weesa
    weesa Member Posts: 78
    edited August 2015

    This is interesting! Thanks for thinking of this,Techtonic. I was 95% ER and 85% PR and have been NED for almost 13 years. weesa

  • wintersocks
    wintersocks Member Posts: 434
    edited August 2015

    100% er, will be dx 3 years at end of the month. 

  • SharonMH
    SharonMH Member Posts: 46
    edited August 2015

    Hi, I am 96% ER and 73% PR and Ned for 6 years and doing very well. SharonMH

  • Annette_U
    Annette_U Member Posts: 13
    edited August 2015

    I was 100% for both - dx April 2013- 2 1/2 years. So far good but getting prophylactic total hysterectomy and ooph in September. I have SE's from tomoxifen.

  • Holeinone
    Holeinone Member Posts: 1,418
    edited August 2015

    I am 69% ER, 4% PR.

    2 years post dx......


  • hopefour
    hopefour Member Posts: 104
    edited August 2015

    Hope you share any wisdom you gather from all of us stating our %!! I am 95% ER and 95% PR...It was interesting to see some say "am" and some say "was"...I went with am! I was four years since DX this past May.

  • Madicyn
    Madicyn Member Posts: 7
    edited August 2015

    95% ER 5 years post diagnosis.

  • yatcomw
    yatcomw Member Posts: 57
    edited August 2015
    100% ER and 98% PR

    Stage IIIC.....17 nodes.....8 cm tumor

    Finished 11 years this may......going for a dozen;) and then some.

    Jacqueline
  • lucca06
    lucca06 Member Posts: 17
    edited August 2015

    100% ER 50% PR - 4 1/2 years since diagnosis and 4 on Sunday since mastectomy.

  • Lolis
    Lolis Member Posts: 294
    edited August 2015

    95% ER and 85% PR - just over a year since diagnosis :-)

  • kayarose
    kayarose Member Posts: 35
    edited August 2015

    All these high percentages have me worried. I'm only 25% ER and 50% PR. I just finished a year of treatment and am now on anastrozole. I hope with such low percentages, it's worth taking. My MO said the guidelines say any positive percentage makes it worthwhile. Fingers crossed.

  • peacestrength
    peacestrength Member Posts: 236
    edited August 2015

    80% ER, 70% PR and another test indicated 80% ER, 2% PR...2+ years and counting...stage 3a. Anyone have androgen tested?

  • caaclark
    caaclark Member Posts: 19
    edited August 2015

    I actually can't find my stats in my files but I am fairly certain I was 95% ER+, slightly PR+. Extra capsular extension too.

    9 years 7 months out from diagnosis-but who's counting?

  • 123JustMe
    123JustMe Member Posts: 169
    edited September 2015
    Bump
  • AusUSA
    AusUSA Member Posts: 18
    edited September 2015

    Thank you TectonicShift for asking this question!

    I'm just in the middle of my TC * 4 chemo treatment and have been on a rollercoaster ride of thoughts going between "I'm going to die next year" and "I'll live another 43 years!" One of my big questions is the ER+ and lymph node involvement (including extra nodal extension).

    I'm 95% ER and 75% PR positive.

    Huge 96mm/3.8 inch ILC tumor and 4/13 nodes (one 6mm with extra nodal extension).

    Will have radiation after chemo which will finish Christmas. LOL

    So, I'm not contributing to the stats of the thread, but I hope more people respond.

    I've looked at those of you have have put your BC diagnosis at the bottom and was "happy" to see many of you were like me, in Stage 3 with large tumors, both ILC and IDC, and nodes involved.

    IT GIVES ME GREAT HOPE!!!

    I have 2 young children to raise into young adults and future grandchildren to spoil. ;)

    Thanks all,

    Chris (Milwaukeean in Melbourne, Australia)

  • mary625
    mary625 Member Posts: 154
    edited September 2015
    I'm at 4 years now. I believe I was 100% ER positive on both biopsy and path, and 80% PR positive on biopsy but 100% on pathology. I had 10 positive lymph nodes even AFTER chemo, and all of them had extra-nodal extension. Feeling good and planning to make that 4 years into 8, then 16, etc. Oh, yes, on Femara for sure.
  • 123JustMe
    123JustMe Member Posts: 169
    edited September 2015

    bump

  • TectonicShift
    TectonicShift Member Posts: 102
    edited July 2020

    .


  • 123JustMe
    123JustMe Member Posts: 169
    edited April 2018

    Bump