Take our poll: Caregivers, what do you find most difficult about caregiving?
Weigh in: What are the best and worst gifts for people with breast cancer?

What percentage ER+ and how many years NED?

13

Comments

  • kicks
    kicks Member Posts: 319
    edited July 2017

    I don't remember my %'s but was ER+/PR- and HER2-. In less than a month, I will 'hit' 8 yrs post DX and still NED (as far as I can know today and no reason to think otherwise). I've never been concerned about being only Stage IIIc but being IBC. So far I've beat the 'odds' and intend on "keepin' on keepin' on".

  • Waronbreastcancer
    Waronbreastcancer Member Posts: 11
    edited July 2017

    Wonderful Kicks! I'm so happy for you and the rest of us with an advanced breast cancer diagnosis.

  • traveltext
    traveltext Member Posts: 1,055
    edited July 2017

    100% ER/PR 2/23 nodes. Just hit three years post treatment NED.


  • tectonicshift
    tectonicshift Member Posts: 102
    edited July 2020

    .

  • weesa
    weesa Member Posts: 78
    edited July 2017

    Tect--what do you think this informal poll suggests?

  • tectonicshift
    tectonicshift Member Posts: 102
    edited July 2020

    .

  • Cindyjolinn
    Cindyjolinn Member Posts: 1
    edited July 2017

    not sure I have the meaning correct but but I had stage 3aer+ and so far no evidence of recurrence fours years as of this past May

    Tomorrow another check up...

  • dancingelizabeth
    dancingelizabeth Member Posts: 305
    edited July 2017

    It's SO inspiring to hear from so many Stage III'er's who have been NED for so long!!!

    I'm only 1 yr & 3 months from dx, but it seems like a lifetime ago!!!

    My Stats: 90% ER, 50% PR and high K-67 (31%).

  • Srh242
    Srh242 Member Posts: 139
    edited July 2017

    100 percent for both and pregnancy related 5 years out:

  • newnorm
    newnorm Member Posts: 54
    edited January 2018

    I’ve just found this post and it’s given me a real lift. Thanks everyone who’s commented. Having just passed my first cancerversary, I find the toughest thing to deal with is my head. Trying not to think about it all the time and worrying about recurrence. Lots of inspiration here has helped. Thank

  • DayLily15
    DayLily15 Member Posts: 34
    edited April 2018

    66% er and 66% pr

    Doing well at 3 years post surgery.


  • Roaming_Star
    Roaming_Star Member Posts: 66
    edited April 2018

    Hi ladies - thought i would add my stats - ER - 85% and PR - 80%. Coming up to my 1st anniversary in May (NED).

  • trinigirl50
    trinigirl50 Member Posts: 158
    edited April 2018

    ER100% PR- . Three years NED.


  • iamelaine
    iamelaine Member Posts: 40
    edited April 2018

    95% er and 55% pr and I am 14 years out now.

  • Meg101
    Meg101 Member Posts: 26
    edited April 2018

    I love hearing good news! Thanks for spreading the cheer. I just finished tx. I was 90% ER+. Do any of you have tips or tricks that may have contributed to your success? Thanks, Meg101.

  • stephilosphy00
    stephilosphy00 Member Posts: 161
    edited April 2018

    Almost 100% ER+ and PR+, more than 1.5 years NED! Good to hear so many successful stories!

  • dancingelizabeth
    dancingelizabeth Member Posts: 305
    edited April 2018

    Just realized I posted on here in July of last year...

    Anyway...its been 2 years now for me and still NED. (with my enormous tumor, Grade 3 and high K67!)

  • ausykaren
    ausykaren Member Posts: 64
    edited June 2018

    Bump

    Very interested in thi

  • Gudrun
    Gudrun Member Posts: 93
    edited June 2018

    my daughter (see profile below): ER 90%/PR 80%, almost 3 years NED.

    Myself (ILC): ER 100%/PR 0%, 5 years out and NED

  • preludesing
    preludesing Member Posts: 64
    edited June 2018

    Just over 1 year out...90% ER and 90% PR positive. Wishing everyone ay BCO good health forever!

  • Schweety
    Schweety Member Posts: 28
    edited June 2018

    KSil ~ Wow you have been through the ringer....and I hope you are doing well. I have a question for you and any one else who would like to answer. 

    Did you get yearly mamo's before and after your DCIS Dx?? I am asking because I had DCIS in 2000 and was just diagnosed in 2018 with IDC.  I have gotten my yearlys, and was amazed they found a1mm mass in the same breast as before. But because I had 6 weeks rads and the mass is in a little bit different spot, they are not calling it recurrent.(??) 

    They have not suggested I have an MRI. I found that odd being I have had it before even tho it was DCIS they said it was a cancer but not really a cancer...??? ok whatever the heck that means.

    So glad I found this board.

  • anna-33
    anna-33 Member Posts: 108
    edited June 2018

    Does the chance of getting mets decrease yearly or how does this work?

  • meow13
    meow13 Member Posts: 1,363
    edited December 2018

    95% er 0% pr and her2 negative, 7 years NED.

  • ck55
    ck55 Member Posts: 28
    edited December 2018

    100% ER/PR. Just passed 12 years NED in early November. ThumbsUp

    Cyndi

  • Nas
    Nas Member Posts: 76
    edited December 2018

    100% er/pr, one year out..

  • jenni__ca
    jenni__ca Member Posts: 77
    edited December 2018

    thought I would update and wish everyone a wonderful holiday season

    98% ER+ (PR and HER2 negative) and 14.5 years dancing with Ned ….

  • tri-lady7
    tri-lady7 Member Posts: 95
    edited December 2018

    Hi Everyone - I had ER 93% and PR 94% HER2 negative 1 and a half years out from dx.

  • graceb1
    graceb1 Member Posts: 56
    edited December 2018

    99%ER+ 14% PR+ 5 years NED and taking Femara

  • Artista964
    Artista964 Member Posts: 376
    edited July 2019

    95 ER 55 Pr ki67 I believe it is, 75. 4 years ned.

  • Nas
    Nas Member Posts: 76
    edited July 2019

    bum

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