Starting Chemo September 2015; join us!
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Sat at the ER all afternoon. Practically hemorrhaging from a period 15 days late. Gyno tells me go to ER. My blood counts are very low but just above the level to need a transfusion. I'm supposed to rest all weekend with my feet up and go back to the ER if I get dizzy or faint. I could have stayed home for that helpful suggestion.
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oh no Annie!! Please rest. I hope you feel better. I certainly understand about frustrating ER visits!
Hazel... I'm told I'll be on Tamoxifen for at least 10 years. I'm nervous. I haven't heard much about what it's like...
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my onc said AI for 10 years. He thinks that has better results than tamoxifen. I haven't researched it yet. I'm just so overwhelmed with info atm.
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annie rest up & feel better!
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Annie, follow doctor's order and rest and stay hydrated. Don't hesitate to call your MD if you are consistently soaking a pad in less than a hour. Hope you feel better soon
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Hello Beautiful Ladies!!!
Wishing everyone and healthy and low SE weekend!
Lets keep fighting! the ONLY choice we have!
Hugs
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Bleh. Chemo on Monday. Bleh.
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I have a challenge for our group
Lets make a it a MEME weekend. We all need a little something to carry us through. I will Start.
Too true Too true
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Annie I'm so sorry you are being hit with all of this! Hopefully you will be able to relax and feel better this weekend. Big hugs!
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Well...............no worries on how I'll feel on Mon after chemo cuz there will be none! Postponed yet again! Onc called me today saying my 'crit and hemoglobin are dangerously low and instead of chemo infusions in that chair on Mon, I'll be in that chair getting iron infusions on Mon, Tues and Wed! I told her about taking slow FE for a month now and she says it's placebo junk. I guess she'd right since my #s are so low. If I don't do this asap then chances are for needing blood transfusion..
On top of this greatness is insur isn't auth'g neulasta! Because I'm on the every 3 week for chemo instead of 2 they aren't auth'g it. There is nothing in the research that shows every 2 weeks is more effective than every 3 weeks. She's trying to give me more good days before you're hit again esp since I'm alone and on my own. So I told her how about tell them it's every 2 weeks now and then when it's almost up, if they ask for auth again, say I had a bad reaction or something to where it has to wait another week before next round. She said great idea so we'll see.
And what is neupogen? Does it do the same thing?
So on Mon after I get my first infusion of iron I go to help my friend set up for her sister's memorial service that eve. I'm looking through sites for nice standing spray flowers tonight.
Hope you all have a great weekend! xo
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Ahh that truly sucks. My counts are very low right now to. I am hoping I can avoid a transfusion Tuesday which is my next Chemo day.
Annie I hope your counts are good too.
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I am so tired but can't sleep. I really hate that.
I'm really hoping I don't get postponed too. My counts are low and I still have bronchitis. I have 2 days to build myself up.
I tried to eat some chocolate and it tasted wierd. That's disappointing isn't it?
I think Twilight might be the worst movie ever made and yet i can't stop watching. Gawd I'm soooo bored!!!!
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Yes, Twilight is awful.
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My preteen daughter started reading Twilight .. Lord help me. We call it twilight trash at our house.
I know the boredom and trying to distract myself suck. I have binge watched The office,seinfield, arrested development. I am running out of drivel to watch. I need to rent something that will make me laugh.
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3rd infusion of AC done! My counts were low going into chemo which was very stressful and worrisome. After I saw a naturopath we changed my diet. The 2nd infusion nurse said they expect my counts to drop every time and we could try and bring them up with diet or supplements but it probably wouldn't be successful. Well today my RBC went up proving them wrong. It was only a .01 increase but still an increase. It felt like a small accomplishment. I like the night. Without the dark, we'd never see the stars. Gazing at them now smiling.
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special gentle strength-giving hugs to AnnieB43 (((((((hugs))))))) what a nightmare they ER put you through
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You women are my superheroes:
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Artista, neupogen is a different drug but does same thing. I am on it. Five shots for five days after chemo delivered to my home. So hubby gives me shots ( in my stomach, no big deal but would be if I had to do it myself)
I get it every three weeks but different tx than you
I had issues with insurance once but MO called and got it fixed right away; so I think your solution is the right one. The doc should be insisting you need this!!
Hugs to all
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Thanks Octogirl! MO did give them a piece of her mind and the guy even felt bad after but they didn't budge. Unbelievable that everything is auth'd no problem but now a hiccup with this. If I can't get it then they night as well check me into the hospital for the 6 month duration! :X
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I'm so pissed off about the ER yesterday. I wasted 5 hours there. I told the ER doc that the bleeding wasn't continuous and came and went. The gyno office sent me there for ultrasounds, but since I wasn't "actively" bleeding the gyno on call told the ER guy to send me home and just follow up next week. The ER MD did the most painful pelvic exam of my life and sends me home. Just like I said the bleeding started again a couple hours later. Haven't slept in 2 night. So I'm supposed to wait until I need a transfusion before someone helps me? I went in worried in the first place because the chemo tanks my counts already. It's not like a normal heavy period where you recover. If I wait until I faint isn't that a bit late? So no one helps unless you're an actual dire emergency and nearly die? Isn't cancer enough suffering?
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Annie..given your cancer diagnosis, I can't believe they are treating you so badly. Can you call your MO and go off on him/her and get some help with the ER team? I know what you're going through with this bleeding. My pre-menopause symptoms included non-stop periods. I was lucky if I had a week off each month. I couldn't leave the house because of the all too common flood right through my clothes (sorry for the gross depiction). My gyno put an IUD in 2 years ago and that stopped it but I had to remove it before chemo because of the estrogen component. Luckily, I have now progressed to menopause (I'm 54) and no bleeding.
There is a medication that I tried first to help stop the bleeding. I just can't remember the name of it. I will try to find it. It didn't work for me but it is commonly used for this purpose. Did anyone suggest it for you? I don't think it would be contraindicated with the chemo treatment but I'm not sure.
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They didn't do or suggest 1 damn thing other than rest. I didn't even see the gyno on call. The office sent me over there for an ultrasound but the gyno on call just sent me home and by then it was too late to call the doc in the office back. I just sat there in a chemo fog knowing I should say something but couldn't figure it out. This is why people hate doctors. My dumb ass husband just sits there like a lump. He never said a damn word. How the hell are we supposed to get through all this with diminished brain capacity and no one to advocate for us!
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My brain fog continues..I was actually prescribed the med by my family doctor and then when it didn't work, I went to my gyno for more options (ie hysterectomy etc). Try your family doc too. Anyone that will answer the phone this weekend...keep trying and play that "I have cancer" card. I'm using it for all its worth too. Geeze, if that doesn't get you immediate action, you are right, these health care providers are shit. And they shouldn't be...good luck honey.
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Thanks. I'm alright now. I just needed to blow up somewhere. I can't help but think how men don't get so easily dismissed about anything.
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Annie I have brain fog so badly that this week I went to pick up my young son and I forgot he was riding with friends. I was positive he had been kidnapped. I could not find him anywhere and my brain would not engage to call his friends. my husband left work to try to find him and I bawled and panicked. I just could not figure out where he was and what happened.
Then yesterday I could not find my Ativan perscription for sleep. I argued with the pharmacy for 30 minutes because they were sure I had picked it up. One hour later I found the perscription.
My brain is fried. Stupid hospital for not giving you anything and that is an overwhelming and very serious symptom. Why the hell do they send us to the emergency room! Those doctors are not trained in cancer patients at all. That is a very frightening thing to happen.
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Tessu - Hope you are doing okay - keep us updated. I am sending loves and <<<hugs>>> east across the Atlantic to you.
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Thanks, Minnesota, I just feel like crap. Like so many of us here. Nothing near as awful as what poor Annie went through at the ER, though, but pushing the limits of what I can handle without bursting (again) into tears. Not sure why this round is hitting me so hard, maybe because I went into it with an "I've got this!" attitude instead of my usual fear/misery? Brain fog, painful lymphedema that I can't treat right now except with pain meds, surprise nausea (usually doesn't come so early in the cycle), headache. Waiting for the bone pain from the Neulasta, usually hits around midnight. Husband was out for 5 hours watching back-to-back ice hockey games downtown, wish it hadn't had to be exactly this evening. Thank god for my neighbor who came to pee and poop my poor dog when I felt to wobbly to try.
I feel so ashamed for not being able to handle this with as much grace as most of the women here, especially since my younger son, whom I saw last in the summer just before my mastectomy, is home from college for the weekend. I hope hearing me cry before doesn't scare him away
At least part of this is the narcotics speaking, but at least they are finally kicking in, maybe I'll get some sleep soon (11PM here now).
Wishing everybody here an easier tomorrow than today has been (((((hugs)))))
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