Starting Chemo September 2015; join us!
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I must be blind. I'm not seeing it under the wig I'm looking at?
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Happy Friday, all!
Thought you might enjoy this story: https://www.facebook.com/clarembee/posts/103782006...:0
Wishing everyone a no-SE, restful weekend
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I read that story MinnesotaLisa the other day. It's just hair! Great story.
I swear mine started growing back but I'm scheduled for another treatment next week so that should take care of that. I might have to shave my legs in the meantime.
I have always had nails on the soft side. They break easily and never get very long. Lately though, they are much stronger and getting longer. And I noticed that a patch of spider veins on my calf is smaller than it used to be.
There's always a bright side if you look hard enough.
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Hi ladies! I haven't posted in so long, but I think of you all daily! I tried to just keep going and keep up with my kids every day but now I'm in isolation 7 days out of my last AC with a ANC of .1 (100).
I'm not exactly sure why I'm not in the hospital, except that I don't have a fever. Anyone else house-bound for the upcoming week? Hugs to you all!
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Cajun I have chemo on Monday, Nuelasta on Tuesday. After Nuelasta I'll be home in bed for at least 5 days. Nuelasta kills me!
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neulasta is such necessary evil. I'm sorry it puts you in bed for so long, ugh. I asked the Dr why it wasn't working with my counts so low and he said, "Imagine if you didn't have it." I can't start the Taxol if I'm not up next week and I have yet another infection.
I have become obsessed with taking My temperature. Why am I so weird?!?
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when I was sick I carried a thermometer in my pocket and check constantly. It's not weird at all.
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I am not proud of what I did but I didn't want to end up in jail, trying to get out. I feel violated because he actually felt my breast scar and smiled at me. I have been having a problem with this. I skipped my neulasta shot and my infusion appointment because I just don't want anyone touching me. I was afraid I would be put in jail for being exhausted. And I didn't want to be in jail where everyone and everything has their way with you. I feel violated...
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Grey - I am so sorry this happened to you. Do what you need to do (or not do). Don't worry about your pride. Survive. Live to fight another day. Sending you love, compassion and hugs.
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Fever first thing in the morning of 38.4C and then down for most of day. It spiked up again to the same temp around 6pm and I just don't know what the hell is going on. Blood work shows I'm ok so I just keep taking the antibiotics for another 5 days and then see. I still have slight congestion from the cold but its not that phlemy gooing stuff that indicates infection. I'm scheduled for the 2nd taxol next Thursday but thats unlikely to happen if this keeps going.
I remain a medical mystery.
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thanks, Annie, that makes me feel better!
lindy, my friend who just completed trx for triple negative had similar experiences. She called it "flirting with fever."
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Guess I'm lazy, but all this discussion about wigs, and I haven't bought any. I've haven't been " out in public" except for that one trip to the movie theater last Weds., doctor, lymphedema therapist, and lab appointments, and dogwalks. Just use a friend's gift chemo cap, or self-made tricot caps or nothing at home. Maybe if my hair doesn't grow back after chemo..
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Hate fractured sleep. Can get at most 4hrs at a time. Usually can fall back asleep, but not tonight. And starting to feel a bit nauseous..
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Tessu, I don't wear a wig or hat either...just don't care, lol, and I was going out a lot until isolation. Very little sleep here either. But no fever yet. Hugs!
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okay, I'm getting up. I'm going to have a good day, damn you cancer!!!!!!
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I was just considering going back to bed. Now I have to get up because Cajunqueen declared it. Ugh.
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You're the best Annie, thanks for the smile today!! It's a gorgeous day here in south Florida. Although I can't really leave the house, I can go in the backyard with the kids and enjoy it!!!
My mother in law has schizophrenia and believes government lasers target and zap her and I swear that's what I feel like. All these random zaps and pains almost feel electric. Or maybe I'm just going bonkers....hmmmm.
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I bought a shirt that's not pink (yay) and says "No Hair, Don't Care. "
I want people to know what cancer looks like.I go out bald and I don't care.
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cajunqueen missed you. Sucks about the isolation.
Tessu I can't get a full 4 hrs of sleep either. Damn hot flashes.
MinnesotaLisa cool story
Edwsmom wiggy it is.
Southern I really like the wig in your avatar. All that matters is how you feel in it.
Grey good to see you post. Hope you are hanging in there with us crazy ladies.
Lindy maybe you just run hot? Sorry the fever continues. Hang in there. My taxol #2 was not as tough as to first. Still sucks but I think lowering the steroid helped a lot and summoning Annie's poo fairy. Damn c.
And Annie that rude person who said that to you about being a stay at home mom was rude and ignorant. You are a funny, caring person who takes care of your family while still dealing with cancer. That makes you a superhero like all of us in my opinion.
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YAY! Annie's poo fairy visited me too! Only a little, but that's far better than nothing
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The poo fairy and I have established a cautious, but civil, relationship after our horrid breakup a couple of weeks ago. Aunt Flo is giving me the silent treatment
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Weekend poo fairy!
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Weekend poop fairy!
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Having a bad day. Overwhelming nausea and just feeling awful. Nothing is working right. Feeling so weak but have to take care of my poor pup's swollen paw. I am praying for an end to my suffering.0 -
shopgal, I missed you ladies too! I just couldn't keep up when life was mainly normal. But the 4th round of AC did me in! Although I did paint my bathroom this week, so that's something I guess.
Grey, I'm sorry you're sick. I got horrid nausea this last round. I don't eat simple carbs, but I caved and kept saltines and tums by my bed which helped, but didn't totally fix it. And I wore my Sancuso patch for 5 days. I hate the Zofran and won't take it.
All 3 of my kids are napping, praise God!!!! A triple nap is like winning the lottery.
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((((hugs for grey and her sick dog))))
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So my next door neighbor, who was 55 at diagnosis, to told me that she worked through her entire chemotherapy treatment which is the same as mine. And she is a school teacher. How is that even possible? If you don't feel completely crappy how is it that your white blood cell count doesn't go so low that you can't be out in public? She said she would get treatment on Fridays, stay in bed all weekend, and then work Monday to Friday again! I knew I was making it harder on myself by pushing for chemo right after surgery while my wounds are still healing from my bilateral (MO almost said no), but sheeeeeesh. That story seems crazy to me!
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cajunqueen: I think we are all different in that respect, and remember that not only are we different, the treatments are different. The AC/T is apparently harsher than the four rounds of TC I had, for example. That said, I worked full time throughout chemo, although I did work from home a few days, and did take a few days off, but only a few (usually infusion day). I am not a teacher but I am in a job where I am around crowds of young people a fair amount. However, my WBC *never* went below the normal range (helped by neupogen shots after each round).
I even travelled for work during chemo, although not too far, and hubby came with me to drive. A longer work trip that involved air travel was cancelled at MO's orders, during the one round where I kept spiking a fever. MO was fine with me going, till the fever hit, btw, then said, no it wasn't worth the risks. And I am glad I didn't do it: would have been too exhausting! They never did figure out what the fever was from but I may have been fighting off a virus of some type.
I did have my chemo postponed due to healing issues from surgery (at BS's insistence), but still, I think the biggest issue is that bodies and regimens differ. It is what it is. I mostly post this so that others coming in know that not everyone has the worst case and experience. My advice would be to hope for the best but be prepared for the worst. ((((HUGS)))) to all!
Octogirl
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Cajun are they giving you Nuelasta?
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Wow, octo! Keep on keepin' on!!! ☺ I haven't been hospitalized yet, so I consider myself blessed. One of my best friends, who was a marathon runner diagnosed at 25, went to the hospital after every single treatment. We are all different!
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