Starting Chemo September 2015; join us!
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LindyC- lol! Yesterday it was so hot here we rolled down the car windows for a bit and I joked that my hair would get blown away haha
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Good luck too you today fidget. Your getting the same regimen as me. I'm anxious to hear how the on body injector works as I am doing that next time. The beauty of it is that I can go home a day earlier instead of waiting around for the shot. Remember to take claritan tonight and the next few days to help with the bone pain. I didn't have any bone pain to speak of.
I'm glad to hear the class was good. I'm going in a couple weeks.
{{{Hugs}}} to everyone!
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charm, you will know when it's the time for you to do something with your hair. My hair is short already but I'm waiting until I absolutely have no choice. 😀
The fat, round, tired, pimpled bald look is not appealing to me. I have always been an extremely minimal makeup user so I'm hoping the LGFB class will help me.
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Ugly bald dude...oh my, that made me laugh hysterically. Yes, thats it exactly!
And I've gone from wearing makeup to not wearing any. I'm getting people used to seeing me without tinted eyebrows or mascara covered eyelashes so when they're gone, it won't be such a shockingly new look.
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Southerncharm - I agree with twiggy - go with your own comfort level. ((Hugs))
twiggy - I enjoyed the LGFB class. lot's of nicedrugstore and department store freebies!!
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I am from the August Chemo group but have a tip for you guys. I rinse my mouth with Club Soda and so far this has kept my mouth sore free after 2 infusions.
You guys will all get through this. It is scary as hell but you can do it.
I had a head shaving party.....started losing my hair day 13. It was dropping so fast I ended up shaving it on day 14. My girlfriends came over, we drank wine and we had a few shots and a few tears. It made a crappy situation more bearable. On the plus side having no hair has made getting ready every day real quick. I do get up everyday and put makeup on. It makes me feel less like a sick person if I at least look good. You get used to wearing hats. I wear my hats more than I wear my wigs.
Good luck to all of you. It is nice to know we are not alone.....
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First day of infusion was interesting. I felt like I was on the edge of nausea starting about 5 hrs after coming home. Did all the meds aggressively and they helped. Lots of water too! I was trying to go to work this AM but realized that was ridiculous! Still laying around - going to try to go for a walk.
All my best to those starting to day. Watched Joan Londen on Today and hoping I can look half as great as she does after this journey is over!
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Sailorgirl1- glad to hear you're done with first infusion and thatyou're managing well with meds and water! And try to walk even 5- 10 minutes. You'll really feel the difference!
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Hi Ladies dropping in with a huge bottomless basket of hugs, use as needed it will refill! One year ago I was all of you, and you got this. Keep your eye on the prize, your health. Treat yourself well, rest as much as you can, and try to eat well. It may be the same menu every day, but that is ok too. Whatever it takes, you are way stronger than you think. Lots of love, Cheryl
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Tried the baking soda & water rinse. Almost gagged, but I think it helped ease the soreness. Sour cream and milk products are working well too. Made myself a cheesy egg burrito with sour cream for breakfast. Lots of hugs for everybody starting this week. "Blow me one last kiss" by Pink came on the radio as I was driving home and I just started cracking up in tears and laughter. It was definitely my theme song of the moment.
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I wore this hideous wig all morning out in public. Jimmy sat at the chick filet and played gin with me for a couple hours while we waited for Levi to get out of preschool. It was so hard. I was so self conscious. I really need a better wig and one that was cut and length of my normal hair. When I chose this wig I thought I'd go short so while it was growing out it would be similar. I was wrong. I just want it the way it was. The bald is bad. I feel just really weird. I emailed the hair lady to set up an appointment. I'm just sorry I didn't do that last month.
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Aww Annie I understand. I just went out to the deli in my scarf and got lots of stares. I was overwhelmed by the smells in the deli and had nausea waves and hot flashes. I tried to lean against a refrigerated display case to get cool but kept getting looks from people. I wanted to puke in the aisle from the stares I got.I also feel like my wig is not me. It's too long and too fake. It looks like I am wearing 80's rocker hair.
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You know if it were winter I'd just wear a Peruvian flute band hat and be done with it but Wth do you do when it's warm? Cancer caps and scarves are gross. Baseball caps are gross with a bald head. This wig is itchy and eels like if I raise my eyebrows it'll just pop off. Ugg I'm just in a bad place today. Maybe I should just go the opposite. Instead of trying to look normal I'll get a pink or blue hair wig and just roll with it. Idk. I need a vacation.
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My girls are currently amusing themselves by rubbing the stubble off my scalp. Day 20, it's about time. LOL
Don't settle for 'cancer caps' or other things you don't like! There are plenty of options out there that are much nicer, even if they do cost a bit. As far as I think, I'm not getting cuts or color for the next better part of a year, so I'm letting myself. My favorites are anything from www.suburbanturban.co.uk or from Gypsy Love Headbands on Etsy. Super cute, very soft and wearable. I'm just not a wig girl.
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Here's my favorite! I just bought two more colors.
http://www.suburbanturban.co.uk/women-hair-loss/hats/womens-hair-loss-soft-cap-genevieve/0 -
I'm wearing gypsy love right now. Comfy but I'm not sure I can go out in it.
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Chemo #1 was remarkably uneventful this morning. Drank 48 ounces not including my coffee this morning. Awaiting the side effects rodeo! And my dog thinks I smell funny. She's probably right.
I'm currently a big fan of the port. A bit of numbing cream and I felt nothing, and it was sooo much better than having something on my arm or hand. I loathe IVs in my hand. I went straight to chemo from a parent/teacher conference for the 12 year old. I applied the numbing cream as soon as I got in the car and started scanning for a piece of plastic to put over it. All I could find was an unused dog poo bag. It worked just fine.
I was talking to the woman next to me, who had just lost her long hair after a couple of years of off/on chemo. She is not doing wigs. People she had know since childhood didn't recognize her. We couldn't decide which was worse: having everyone who sees you do the cancer patient startle or having the person in the mirror no longer looking like "you". I'm getting buzzed on day 10. I haven't had short hair since I was an infant. I am so dreading losing my long, dark curls. Guess I'd better learn to tie a scarf. On the bright side, this weekend I noticed quite a few women wearing knit hats. It was 80+ degrees here. At least we're losing our hair when hats are in.
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Scotland I hope you don't get too many SEs. Good luck. I'll be praying it's not bad for you
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AnnieB I love your hat and would definitely go out in it --- honestly
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my 4 year old is ASD and he keeps rubbing my head then rubbing his head then giggling. It's been a bright spot to a crap day.
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hi ladies. Just popping in to say hi! I'm still feeling sick from the antibiotics from surgery but I'm ready to get this show on the road. All this waiting is thumbs down! Hugs to all my gals!
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Thanks for the baking soda water advice; no mouth sores (yet). Throat is sore still, since day 2 after first chemo; looks normal to me, but just sent an email to my cancer nurse asking whether I need to go for tests (got cultured for everything last week at the ER, all results negative,but throat still hurts.)
This is day 12 post first dose, and the first day I feel almost normal again. Headache finally gone (yay!), stomach ok, and no longer as wobbly --- I walked my dog three times without needing to stabilize with walking sticks (another yay!). I don't think my energy level will come anything near normal until all this is over, but this is so much better than last week.
Hair looks limp but hasn't jumped ship yet. The Infusion Clinic said it might just thin until the meds are switched for the 4th infusion (from Herceptin/ Taxotere to CEF), when it will definitely leave, along with my nails probably (! eek!).
Scotland: My toller dog also thinks I smelt wrong for several days after my first chemo dose. To my nose my urine sure stank like chemicals, so my whole body probably stank to my poor Misty-doggy. I've read of dogs who can smell cancer, but mine didn't alert me.
Sending out hugs and healing thoughts to everybody in this group; you've certainly been helping me keep from losing my sanity over this cancer thing (((((hugs)))))
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Great hat, Annie! I suspect that the whole hat thing just takes some getting used to. Take the plunge and go out! (Feel free to remind me of this in ten days when I've just lost my hair and and curled in a corner in the fetal position.)
Feel better, cajunqueen!
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Cute, Annie!! I know it takes some getting used to--I startled at the mirror for quite awhile and kept seeing the fat, bald, chemo-acne sick person. Very discouraging.
Here's one of my favorite Gypsy Love ones. I'll post a pic of Suburban Turban tomorrow (though I have to take the pics off shortly for privacy reasons)"
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Ok I think it's a brim I'm missing. Commence shopping...
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And I need dangley earrings! And a new lipstick!
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Annie I love your printed cap. I'd definitely go out in that. You would so rock it even without new lipstick or earnings. And Carolina your hats are so cute. Esp with the smile and your daughter. I also find myself rubbing my stubbly head. I guess I still miss playing with my locks. But I find that if I leave the tails of my scarf long that works sort of. Most of the time at home I go topless head. I get too hot with hot flashes so off goes my head covering.
Southerncharm thanks for the shout out for being brave but I didn't really feel that way today. I hope you are feeling better about the hair stuff too.
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Day 12 starting to shed
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