patty
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Thank You Mominator. We all worry so when one goes MIA.
Praying for you Dear Patty.
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Thanks so much Mominator! We are all waiting for you to be sprung from that dang hospital Patty. I pray they are keeping you comfortable and you are able to at least read or something......super hugs
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Thank you, Mominator.
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Patty hugs
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Gm bco sisters.
Thanks for all the support. Sorry I haven’t sent thank you cards
I have composed 2 long post but loss them both. Too exhausted to try again right now
The short version is wbc , platelets ex. My liver enzymes continue to rise , bilirubin also too high.
I was admitted for extreme dehydration etc.
since liver so off they did ct showed liver diffuse with cancer. Too many to count etc. then did mri and that hurts too. Mri said highly suspicious of cancer. Doing biopsy today. Then mo would like to start taxol the next day while I still in hospital. No be since last Thur and vomiting slot etc.
I have said I would not do iv Chemotherapy again but it’s that or stopping treatment. I don’t wanna keep holiding on for crappy lives.
So the question is to taxol or quit trying ? Any experiences on taxol ?
Thanks. They are doing biopsy before lunch today.
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Oh Patty, sending love and hugs.......
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how wonderful to see your beautiful face. I hope that taxol is the answer. I had its sister abraxane. Wasn't as bad as AC!! ❣️To you! ~M~
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Hi Patty,
We haven’t really ‘met’ but I watch the thread and root from the sidelines. I had three cycles of Taxol with no issues. Lost my hair but that is not a big issue for me. We stopped because it didn’t seem to be working for me. All this to say, I wouldn’t be afraid to try.
Sending gentle hugs. Pat.
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Patty, so good to hear from you but so sorry you've been in the hospital. Gentle (hugs) and saying prayers for you.
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Patty, I was diagnosed with widespread liver mets, too numerous to count. I also had tumor cells blocking my lung arterioles so I couldn't breathe. I was started on emergency AC and hospitalized 3 weeks. The IV chemo brought the cancer under control quickly. Now on Ibrance/ Letrozole. It was rough, but you've seen rough before. As long as there are options and my body can handle the aftermath, I will go for it. Seek advice from your medical professionals as they know you and your body the best. You are loved by all of us here.
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Rooting for you Patty. Sending best wishes and hugs. MJH
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Patty, I know this is a difficult time for you, and the decision about whether or not to begin taxol must seem overwhelming. I wish I could tell you what to do, but it is a devision we each have to make for ourselves. Many of us think or have thought that we would never agree to IV chemo. The fact is, until we come face-to-face with the choice, we cannot truly predict what we will do. Sometimes we are surprised by the path we take. I do want you to keep one thing in mind. No decision is irreversible. If you decide to try taxol, and you find that the SEs are more than you are willing to endure, you can stop treatment at any time. On the other hand, if you decide today that you want to refuse taxol, but next week regret that decision, you could talk to your MO about starting chemo. I am sure you feel a lot of pressure right now. I am lifting you up in prayer and asking God to guide you.
Hugs and prayers from, Lynne
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Patty - so good to see your post. Hopefully some people will weigh in soon who have been on Taxol to help you. Sending you gentle hugs, love and support.
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Hi, Patty! So good to see you up to posting a bit today! Praying for wisdom for your docs and God's guidance with your thoughts and decisions right now. Hugs and much caring always, Deanna
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thanks for the support
I am looking for people with taxol experience
Thanks
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Hi!
Though not Stage IV, I did 12 infusions of Taxol. I felt better and more mentally-alert on Taxol than I did on Adriamycin + Cytoxan, but it did give me mild diarrhea. It is also known for causing peripheral neuropathy. In my case, Taxol had a mild effect on my fingertips (it was hard to button up shirts, e.g.). Perhaps its most annoying side effect was that it affected my taste of food, though I understand that if I'd sucked on ice chips, I might have avoided that. I had already lost my hair, but I lost my eyelashes on Taxol. They grew back, but are too sparse for mascara.
Hope you feel better soon.
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Hi Patty,
I did taxol for my initial primary cancer. I did 12 rounds, one each week. I found it to be totally doable. I would have infusions on Wednesday, work on Thursday (steroid high) crash on Friday, rest Saturday and work again on Sunday, Monday and Tuesday. I have 3 kids at home and made it to everything. I was just thinking about the whole experience today and would do it again if I had to. You lose your hair, you get tired and food tastes funny but it isn't horrible. The have good premeds to keep the side effects to a minimum and neupogen a couple of days later to keep white counts up.
PM me if you have any questions (or ask them publicly).
All the best,
Mary
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I also had peripheral neuropathy, which was getting better but was exacerbated by Xeloda. The biggest issue with that is to walk carefully so as to avoid falls. I didn't have pain just numbness in hands and feet.
Mary
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And I've read if you ice your hands and feet during the infusions you can lessen or even avoid neuropathy (just like cold caps for the hair).
M
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Hi Patty...I did Taxol. But, went every 2 weeks. Which is *supposed* to be less tolerable than every week - but - I just wanted to get it over with.
I found it MUCH easier than A/C. The worst part for me was feeling achy for a few days after an infusion and food not having much taste. I can't say I had a lot of energy while on Taxol - but - more energy than when I was on A/C.
And, I iced my finger-nails/toe-nails during the infusion - it was a real pain - but never lost my nails. I regrew a little hair on my head during this time - but lost my eyelashes...
We're in your corner Patty...and always good to see your pretty face on here!
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patty I'm doing Taxol and feel great, cancer is stable or smaller, and over all feel better then I did on any other treatment and I failed last 2 miserably..message me with any questions.
Amie
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hey Patty! I had taxol as my first line treatment. 18 weekly infusions. Every week got harder. Had to take a break week 15 because of low counts....I had terrible diarrhea the entire time. Neuropathy became an issue at the end. I was miserable, BUT it worked and I have been NED since. If I had to do it in the future, I wouldwithout hesitation. Another BIG BUT, I was an extremely “healthy" and active person BEFORE taxol. You are going into this with an extremely weak body. I'm not saying this to be ugly, but honest. I guess my question is what will your QOL be without treatment? Taxol is one of the oldest chemos. Usually very tolerable. And it works! But at what expense? I'm so sorry you are at this crossroads. We are here for you no matter what! Call, text, or pm if you have any questions or need to vent ❤️
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Hootie hoo Patty. Trying to decide is the worst. It is a girls perogitive to change her mind. I know it takes a few days to wrap your mind around everything. It's hard to make a decision when you feel like crap. You'll get some strength and peace of mind once you have a plan in place.
I completely understand your reluctance about iv chemo. Ask and ask again whatever questions and concerns you have. Can you make a pro vs con chart? Quality of life is very important.
Whatever you decide, we are behind you 200 percent. Someone will be here night and day to virtually hold your hand.
Peace
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Good morning sisters.
Thanks for sharing your taxol experiences and the wonderful support I continue to be amazed. Thanks
My sister from Alabama arrived yesterday and I am so happy to see her. Always wonde if each visit is the last one. She will be a huge help when I get home. I see the fear in her.
Yesterday they took biopsy in liver. Waiting on results. Mo said he will be in this morning to see what I am thinking and if I take taxol or just quit treatment. We are expecting 2-3 inches of ice today so praying it won’t prevent mo coming in. We don’t get much snow or ice.
Now it’s just the waiting game. I have changed my mind prob a dozen times. I know I can stop taxol if it’s making me worse. But mo said would lose hair after first treatment.
Anyone know about cold caps. I looked around but looks like their over $2000. Can’t / won’t do that.
Well more to say but brain and fingers don’t seem to be working together
Hugs
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Hi Patty,
lalady1 used cold caps throughout her Abraxane treatment and managed to keep most of her hair. She’s super helpful so I’m sure will answer any questions you have. I think it takes a lot of effort but if your hair is important to you ...
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Patty, I can't tell you how happy I am to see your smiling face! I have never had Taxol, but I will tell you what my NP said to me. She told me that I could stop it at any time, but if I chose not to have it, that there is a small window of time in which to change my mind. I have refused IV chemo so far, but who knows what the future holds. One thing I would say, is if I was going to start it, I think it would be best to start it in the hospital. That way you are getting care, with no demands on you, and you have access to any and all meds needed.
Peace be with you!
Hugs and prayers,
Claudia
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Patty,
We all support whatever decision you make! Hoping you can quickly regain some strength and enjoy QOL.
Sending hugs
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Sorry to rain on the parade, but my wife almost died from a toxic reaction to Taxol. It was in the infusion room and she'd just started her second treatment when it happened. Crash cart, doctors and nurses running, every "beeper" beeping, etc. Dr. Said 12% have an allergic reaction to Taxol and not all are so severe.
I have to add my wife has had an allergic reaction to Nulasta as well; ER, doctors & nurses running, every beeper beeping, etc.
My wife is on Xeloda for last 8 months. Her ER+ turned triple negative and now she joined that club. Last PET/CT showed most lesions to spine gone with a few stubborn ones lingering. Next PET/CT in March so keeping fingers crossed. Xeloda has some severe SE's.
MikeW.
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