peritoneal carcinomatosis
Comments
-
Southerensurvivor how much of Promethazine do you take?
LindaE so sorry you are feeling so crappy. Something gotta b done and soon.
Dianarose do you take meds for migraine? Something like Imitrex.. I don't think they get too scared when platelets are low, Dani also had treatment, not it was not the chemo, but it was 50, what's the HGB? how soon can u retake to know it's going up again? It really must be zapping you, hope you feel better soon.
0 -
hi everyone, so sorry some of us are not feeling great at the moment. After 7 months of chemo it has been decided i am taking a break from chemo. I will have another ct scan when I get back from holidays and then plan to move forward from there. I have had Ned on my last 2 scans and the chemo is causing bad joint pain so we decided to give my body a few weeks break. Hope everyone else starts to feel better soon xxx
Thinking of you all.
Tanya
0 -
My hemoglobin was 7.9 which is better then when the admitted me at 5.1.
I ask why she has me scheduled for a bone scan if it is not going to change my treatment plan. I have enough demons in my head so why tell me I have more bone mets for no good reason . The scan has been canceled . I am happy with this. I'm on chemo and get Xgeva so no news is fine with me. I think we are all over scanned. More stress, crap out in our bodies and no change to the plan. I had two CT scans this past month that didn't tell us anything different . Lobular doesn't scan well to begin with. It's all torture
0 -
right right Dianarose. At 7.0 they would do a transfusion. Yeah, that in itself could make you feel crappy and weak. If they would know of a new treatment that could help then scanning would make sense, otherwise...yup
0 -
Gee Dianarose, another ocular migraine! Rest up. I get them once in a blue moon and it's sheer hell. Funny my MO is also insisting on a bone scan, cancelled the last two because I was so weak. They rescheduled another one for next week, sigh. Do I care about more bone mets at this point?
Tanya - Very encouraging to read you are NED. Enjoy the break from chemo!
I managed to keep some food down with my new concoction of anti-nausea pain meds. Now if I could just regain some strength and be less dependent. Chemo this afternoon.
Thinking of you all.
0 -
Hello all! Just back from my trip to see family. I started Xeloda last week. Had terrible abdominal pain on Friday evening but felt better on Saturday morning and got on that plane. Had good days Saturday and half of Sunday--long enough to visit with sisters and brothers. By Sunday afternoon I was racked with pain again which lasted until yesterday. Finally figured out it was probably the Xeloda. Oncologist gave me a 2 day break but wants me to start up the same dosage again. I don't think they understand that if you already have abdominal pain, the last thing you want to do is add to that. I just keep thinking of the damage that must be happening. I am now having the runs but the pain has subsided. I also had to skip my dosage on last Wednesday and some of the ones after Sunday because I didn't feel good enough to put anything in my stomach to buffer the pills. Maybe this won't work for me. I had such hopes!! I'm so sorry so many of us are having issues right now. Hang in there!! HUGS. Cathy
0 -
LindaE could we cheer? I would love to hear what really worked. So glad, hope it's settling down.
Cathy could be the dosage? Xeloda is suppose to be very good, I was so looking forward for Dani to have it, there were a lot of off days, her platelets went crazy, on and off, the wbc, anc...the works, unfortunately she didn't last too long on it, but def see what you could do with dosage and days taking it. Hope you had a nice time with fam.
0 -
Momall - yes I think a little cheer is in order! Kept food down again today and feeling hungry! Haven't felt hunger in a few weeks. I take 16 mg of Zofran in the morning, 8mg 8 hours later and Zyprexa at bedtime. Zyprexa is an anti-psychotic drug but has proven to be effective to control nausea and vomiting in chemo patients. And guess what? Bumped into my MO at the hospital today and liver biopsy results are in (only took a week!!!). Still ER+/PR+, so no change.
0 -
Linda, so glad the nausea is getting better. Zoran does not work for me. I am still so weak from the initial Dx of ascites I can barely walk across the room. Had a third round of Abraxane and think it may be helping to slow down the ascites. First week I have not had to schedule a paracentesis yet. This Tx though makes food taste like rotten something. Very few things I can get down but I make myself. One thing that remains a good choice for me is Chocolate Ensure Xtra on ice. Lots of protein and calories. However my WBC went way down so he put me on a strong antibiotic, Cepro which is playing havoc with the nerves in my hands and adds to the muscle weakness. Thank God only 3 pills left.
Kaption, when my blood counts came back low my Onc lowered my 2nd dose and they popped back up. He also requested a Neulasta shot for me but the rats haven't approved it yet although I can barely function at the moment. Next week I have no apps, Tx or anything and am hoping for a miraculous revival.
Dianarose, that stinks. Migraine on top of everything else has got to be hell. I'm sorry, I hope it subsides.
0 -
Oh Artist I'm sorry you're feeling so crappy. It's the pits isn't it? Try to ask other meds for the nausea if you can because that's hell. The hospital pharmacist thought my mix of n/v meds was heavy duty but I don't care if that's what it takes. Good news on ascites! I know what you mean about our taste buds, everything tastes off. I lost about 20 pounds since I started Taxol. I had mashed potatoes last night - they were divine! It will be on the menu quite a bit now that I found something that tastes good. Rest up next week and let yourself be pampered!
Dianarose - feeling any better?
0 -
Have had the best weekend I have had in forever. Was sitting on our farmers porch Friday and a car pulls in. It was our daughter from California. We had no idea she was coming. Best surprise ever. Last night our neighbor had his annual party. People come from everywhere and pitch tents in the field, live band and all the food and drinks you want. Had a big fire so no bugs. My brother and wife came. Haven't laughed so much in so long. Almost felt normal! Hope everyone is having a great weekend!
0 -
FABULOUS, Dianarose!! It sounds like you had so much fun! My tummy felt good over the weekend so I went and cracked and ate crab. YUM!! It's those little things that make me feel like I'm thumbing my nose at cancer!! HUGS, Cathy
0 -
Diana-I'm so glad you had such a great weekend. Seeing our children is such a wonderful thing, I hope it have you a huge boost to keep on keeping on! And what a fun party! I'm glad you were able to enjoy it.
Aussimum-welcome! I have learned a lot from these ladies and the support is so nice. I haven't chimed in much yet, I'm having a wonderfully busy summer. I have 6 children ranging 23 to 9, My 2 daughters are home from college so I have been trying to soak up every minute. Once the kids are back in school I'm sure I will be around much more. I'm not sure if my current treatment of.Kisqually/Faslodex is working. This is only my second month and I got very sick at the end of the first month. I had stomach pain, bloating, dizziness, Diarrhea etc. It is so scary because those are my original symptoms so o don't know if it's the meds or the cancer flaring up. I try not to worry😉
I hope you all have a better day
0 -
What a nice surprise Dianarose!
Star - I vote for cancer flare!
I'm pleased to say that I'm still keeping food down but I am still soooo tired, life revolves around bed, sofa and recliner. Do we ever regain strength with peritoneal carcinomatosis? This week I will finish 4 cycles of Taxol (12 tx) and I don't know if that is what is getting me so tired and weak, although I'm sure cancer is not helping either.
0 -
dianarose, so glad you had such a wonderful surprise and a great get together with friends and family. Im sure it has helped your spirits heaps. Linda i also was getting more and more tired the more chemo i had...it certainly takes it out of you, hence why after 6 months i am enjoying the break. Starbright i hope you start to improve and they can give you something that can help. Only 5 days till my hubby and I fly to Edmonton Canada for our 14 day holiday in Canada and Alaska. I am not looking forward to the 14 hour flight but am prepared with my special socks for circulation and my arm guard against the dreaded lymphedema . I hope everyone who is feeling no good at the moment starts to feel better soon.
0 -
Thanks for your reply Aussiemumma. I admire you doing 6 months of chemo. I long for a break already - will discuss at my next MO's appt. Have a great trip!
0 -
Hi all - I wanted to check in to see how everyone is doing. Seems so many of us have such fatigue. It is exhausting to live life with all these side effects. I also think it's interesting with all the different types of treatments we are on, including Xeloda, Abraxane, Taxol, Halaven, AC, Kisqali/Faslodex - just to name a few! Does anyone else think these treatments are a crap shoot?? Truly, we all react so differently to these various meds. I so pray each of us finds the med that works!
I'm finding Halaven doable but much harder than Ibrance. I get that cruddy metallic taste with IV chemo and just the overall "don't feel very well." I am thankful it's two weeks on, one week off, so I always have the third week to look forward to.
Momallthetime - the Promethazine dose I take is a 25mg tablet every 4 hours as needed. I have only had to take it once on Halaven and very rarely on Ibrance. Previous to Ibrance, I was on Xeloda for over a year and I did tend to get waves of nausea on that; therefore, I took the Promethazine regularly at that time. For me, it works much better than Zofran.
Take care all - hope you can each enjoy the rest of your weekend!
Hugs, Sheri 💕
0 -
Southernsurvivor - Yep on crap shoot, trial and error. I also find the SEs exhausting, mainly fatigue. I'm on my week off this week and hope it will be better than previous ones. Weirdly enough, up until now I felt "better" on chemo weeks, probably because of the pre-meds. Hospital pharmacist suggested I test the anti-nausea meds I was prescribed so these past few days I've been taking Zyprexa morning and bedtime instead of only bedtime and Zofran during the day. It seems as if I am less drowsy and sleepy and n/v is still controlled. I wonder if any of you have those SEs with Zofran? Isn't that metallic taste the pits? The first 3 months of Taxol my taste buds were so out whack but this last month has been much better, most foods taste the real thing.
0 -
Hi Linda,
When I was on Ibrance, my off week was my worst week! But on all these IV chemos, I find my off week is by far when I feel the best.
I don't remember any bad side effects from Zofran, it just didn't work - nausea was still bad. So happy you have found a combination that keeps your N/V under control. That sure makes a difference in our QOL!0 -
Well, the good news is I skipped a week getting a paracentesis and there was way less fluid this time even after two weeks. I pray for the week when I may need it no more. More than my lack of energy it seems the Abraxane affects my nerve center. I am using a walker to walk around as my balance is affected. Along with the lack of energy/stamina makes it hard to walk very far without getting exhausted. My hands are also affected with neuropathy. They are half numb and small motor skills severely lacking. I hope this is temporary and at my next infusion tomorrow we try a lower dose to see if it helps clear it up. I have a wedding to dance at in October!
Linda, Now that I had a week off my taste buds are a little better and i don't really experience nausea at all so have been eating a lot to try and put some weight back on. I know who you mean about finding something that tastes normal so now "It's what on the menu"! I've been on a cottage cheese with nuts kick for about a week...hahaha. God, I hope we can eventually get back the strength as I feel so useless some days.
Dianarose, That sound like my kind of night. Kids surprise and a good old backyard party with live music, fire, food = divine!
Aussie, have a wonderful trip! Sounds beautiful!
0 -
LindaE you are so sweet, thx for the recipe. That's what a lot of docs have to do, care enough to break their heads and come up with a better solution. It's about time you have a chance in feeling better.
Sherri it's so good to know that you found what helps you, thanks so much for the feedback.
Dianarose oh boy, you make us so happy. For sure laghter is the best remedie. Good for you. Enjoy every minute with your daughter.
Starbright you really have to be on your best shape, these kids need you!! Crossing finger and toes that Kisaqli is working.
Artist so sorry you are having such a rough time, maybe try to spk to Onco again, let them figure out a balanced regimen of meds that could make a difference for you. This unbalance definitely is worrisome. Let's see what doc is gonna say.
Cathy yeeh yeeh you are holding your own.
Tomorrow is scan day for Dani, CT of chest/abdomen/pelvic and Brain MRI, not the PET that she usually has, she will do it, but she did not want to do it while the kids are home. We'll see if the trial is helping. She is very drained but doing the regular stuff.
0 -
Artist - I'm so happy to hear from you, I was wondering about you. When I first started Taxol the nurses always asked me about neuropathy. At some point I asked them why, they told me it should be treated with meds right away before it gets chronic. I don't have any but hate to read it's making your life miserable. I'm also using my walker - helps with the weakness. Cottage cheese was my thing for a while too lol!
Mommall - will be with you and Dani in spirit today.
0 -
Momallthetime- let us know how it goes today with Dani.
Linda - hope your off week is better this time.
You all are in my prayers. 💕
0 -
Hello all. So the gas and abdominal pain with very loud gurgling and then diarrhea have become a way of life. My weekend was terrible, had a better day yesterday and now I'm getting the gurgling again. I'm wondering if we can be treated with drugs for IBS? Has anyone broached this with your doctor? I have a call in to my Doc but am having trouble getting answers. The on-call nurse didn't understand my message and didn't ask the doctor what I meant. I guess I'm going to have to call again. I'm getting mad and frustrated as I've had the abdominal issue for forever and now with the addition of gurgling and the runs . I think it's damage from the cancer but since it doesn't show up on scans, who knows? Artist: hope you can hang in with the Abraxane. Hope it starts treating you better. Doesn't feel great when the ascites lessens?? Sheri: I was just on Halaven and it was tough. The neuropathy was awful. Hope you do okay on it. My love to all of you.... Feeling frustrated in Washington state, Cathy
0 -
Linda, had my 4th infusion yesterday and it seems to neuropathy has gotten a little better and the ascites has definitely lessened. I did not know they can treat neuropathy with meds? I went two weeks without a para and my Onc says it seems the Abraxane is working quickly on that. I pray it gets rid of it completely as it is the worst of uncomfortable feelings.
Cathy, It is BEYOND frustrating when you can't get an answer after that long with such a dire situation and worse yet when you keep getting the on-call nurse!
That was sort of my situation when I was trying to get them to pay attention to my ascites symptoms and they kept telling me for WEEKS to take another OTC for constipation. Let the problem get way out of control.....0 -
Cathy - that's enough to be frustrated! Keep on pushing until you get answers. I'm plagued with the big D and it always hits around 4:00 in the morning!
Artist - I am beyond thrilled to read about your ascites! Gabapentin is one of the neuropathy meds, so is Lyrica. There may be others I'm not aware of. I hate to remind you of ascites but can you explain to me your symptoms. Sometimes I wonder if I'm starting ascites too. My belly swells right after eating (I don't have a flat belly to start with) and stays swollen the whole day with pain in the middle of the abdomen right under the breasts.
My week off chemo is the pits, no energy/stamina and sleeping way too much.
0 -
I have been away a while, first on a camping trip which was great fun, haven't been camping in years but hoping to go again next week. The first day back I had my 28 day blood check for ibrance which was fine, so I am into cycle 2 on 125mg. Then I went into hospital to get my colon stent fixed, which is done via colonoscopy. For the 4th time this year the prep liquid just made me vomit and have violent abdominal cramps. Had a bad few days afterwards. I am refusing to ever drink that prep again, give me an enema any day.
Cathy so sorry to hear about your pains. Re IBS medications, I do use buscopan, a tablet for IBS cramps and find it does help. Sorry I don't know if it is the same or what the equivalent is in the US, this is the website https://www.buscopan.com/products, maybe ask your doc?
Momallthetime thinking of you and Dani I hoping for good news.
Artist great on the ascites.
Love to everyone.
0 -
Dear Blume!! Thank you!! I see I can buy this medication on Amazon. I was taking Motillium (domperidone) instead of Reglan for quite awhile to keep my system functioning and not blocking up but I can't even import it anymore. I will probably talk to my Doc first but this is more info than they have offered me. Love, Cathy
0 -
Linda, When my ascites is building up I get bloated, constipated and feel a pressure pain down in my lower abdomen which is painful when I walk. When it is at peak I also get the middle of sternum pains. I have no appetite or room for food at that point. If your pain goes away on it's own it may not be be ascites? Mine just builds until I HAVE to go for the procedure. It lets of pressure just like deflating a tire.....and such a relief. And suddenly i can eat again.
0 -
Thank you Artist for your reply. Certainly not constipated, quite the contrary with Taxol. I'm seeing MO next Tuesday and will bring it up with her.
0
