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Comments

  • EndoraFTW
    EndoraFTW Member Posts: 8
    edited July 2021

    Hello, all.

    2013: Stage 3A

    2021: Stage 4, mets to bone, but first PET tomorrow will tell the rest of the story

  • carolina_girl63
    carolina_girl63 Member Posts: 11
    edited July 2021

    Just diagnosed Stage IV on June 17, 2021

  • MushroomTurtle
    MushroomTurtle Member Posts: 2
    edited July 2021

    Hello

    1.Stage 2b 7/2014 age 39

    2 Stage IV Mets to liver 6/30/2021 age 46


  • smallmoments
    smallmoments Member Posts: 54
    edited July 2021

    Hello. Diagnosed De Novo Stage IV, extensive bone mets on November 2020

  • moderators
    moderators Posts: 8,741
    edited July 2021

    MushroomTurtle and SmallMoments, we're sorry you had to join this group, but glad you found us. We know that you'll get tons of support and understanding here, so please stay connected and keep us posted on how you're doing.

    Best,

    The Mods

  • moth
    moth Member Posts: 3,293
    edited July 2021

    MushroomTurtle & SmallMoments, sorry you're here in the suckiest of clubs. But we do have lots of info and small triumps and joys to share too!

    come join us on the specific mets threads:

    main liver mets thread https://community.breastcancer.org/forum/8/topics/...

    local liver treatments thread https://community.breastcancer.org/forum/8/topics/...

    bone mets thread: https://community.breastcancer.org/forum/8/topics/...

    & Mel's living room for hanging out. There's always room on her couch! https://community.breastcancer.org/forum/163/topic...


  • sondraf
    sondraf Member Posts: 1,701
    edited July 2021

    Small moments - there is also a de Novo specific thread, though it tends to be a little less active (not many of us!) and is usually on the second page of results.

  • mocogram
    mocogram Member Posts: 94
    edited July 2021

    Hi all,

    I was originally diagnosed in 2016 with infiltrating lobular (ILC, stage II, ER+, PR-, HER2-) at age 67. Now 72, recently confirmed stage IV mets to bone.

  • katyblu
    katyblu Member Posts: 223
    edited August 2021

    Hi!

    Stage IIIa May 2017 at 36

    Stage IV Aug 2021 mets to bones at 41

  • moth
    moth Member Posts: 3,293
    edited August 2021

    hi Katublu, sorry you've joined our sucky stupid cancer club. We have a bone mets thread you might be interested in. Hope to see you there https://community.breastcancer.org/forum/8/topics/...


  • LizLemon
    LizLemon Member Posts: 191
    edited August 2021

    Hi all! I haven't posted in a long while. Original dx in 2000 with Stage II.

    I'm Stage IV, dx in Oct 2012 - lungs and bones. This nearly my 9th anniversary from that dx. From 2014 to just very recently I was stable, and only took Letrozole from 2013 on.

    Just found out I have progression. Doc to do a PET scan and also a bone biopsy.

    Starting: Zometa, Faslodex and Ibrance in 2 weeks and very scared about all the side effects I've read about. I know it's not the same as a chemo drug, but a lot of the SE's look familiar. I have read that I-F can do great things. I am really hopeful too.

    I am so grateful that these threads exist and for each of you.

    Love -

    LL

  • cocomo
    cocomo Member Posts: 6
    edited September 2021

    Hello. Diagnosed a month ago.

  • beth1965
    beth1965 Member Posts: 203
    edited September 2021

    2012 3C Lobular

    2021 august.Mets to bone

  • meiard
    meiard Member Posts: 6
    edited October 2021

    Hello

    May 2021

    Mets liver bone and chest wall

  • justg22
    justg22 Member Posts: 18
    edited October 2021

    Stage II - 2006 and Stage IV - 2016 Texas

  • kcadeau1969
    kcadeau1969 Member Posts: 1
    edited October 2021

    kathy here

    Starting all over after 18 years.

  • moderators
    moderators Posts: 8,741
    edited October 2021

    Sorry to hear you are all back here. We're here for you!Medicating

  • Yolys
    Yolys Member Posts: 2
    edited October 2021

    hello everyone,

    My mom was diagnosed with breast cancer in 2017, it has returned to her bones and now the bone marrow. Shen was having trombocypenia after each cycle of palbociclib and the shot of fulvestrant. We went to the hematologist oncologist and she recomended a bone marrow bipsy that she did and it came back positive. The oncologist is prescribing Vincristina for clean the bone marrow and corticoids. The oncologist says it is better for my mom to be hospitalized so they can run all treatments, radiation, vincristina, palbociclib and block pain, but my mom is not sure about being hospitalized, since she was before and developed and bacteriamia and had covid in the hospital.

    I appreacite Any input, idea, support . I adore my mom

    Love and strength ht to everyone

    Thank you

    Juliana

  • moderators
    moderators Posts: 8,741
    edited October 2021

    Dear Juliana, we're so sorry to hear about your mom, but wanted to send you a warm welcome to the BCO Community!

    You might want to check out the Bone Mets Thread topic where you can reach out to others regarding treatment options for bone mets. Also in the following thread, you will find other family members sharing their ups and downs coping with a loved one's stage IV diagnosis: For Family & Caregivers of Loved Ones With a STAGE IV Diagnosis.

    Please come back to let us know how you and your mom are doing.

    Sending love to you both,

    The Mods

  • puppers
    puppers Member Posts: 12
    edited November 2021

    Hello - just diagnosed with Stage IV last week, beginning treatment 11/8/21.

  • Nell19
    Nell19 Member Posts: 3
    edited November 2021

    Hello.

    Original diagnosis 2001, stage 1

    November 2017, Mets to sternum

    August 2021, Mets to lung

  • BarbTheBCBarbie
    BarbTheBCBarbie Member Posts: 29
    edited November 2021

    Mets to contralateral lymph nodes 10/13

  • dancemom
    dancemom Member Posts: 407
    edited November 2021

    hi. March 2021 de novo Mets to sternum

  • LindaSueH
    LindaSueH Member Posts: 14
    edited December 2021

    Hi Met Sisters...

    Original Diagnosis Stage 2 Grade C May 2009

    Mets to lymph, bone, lung Feb 2021

  • kris_2000
    kris_2000 Member Posts: 93
    edited December 2021

    De novo stage IV with mets to liver/bones, April 2021

  • pjb61
    pjb61 Member Posts: 38
    edited December 2021

    Hello. I guess I get to advance to the Stage 4 club. Not a club I really ever wanted to join, but I'll bet there are lots of wonderful people here, regardless. Smile

    Feb. 4, 2020, dx Stage 2, Grade 3 ER/PR+, HER2-

    Nov. 4, 2021, dx Stage 4, mets to liver and lymph nodes, ER+/PR-/HER2-

    I'll update my profile when I can. The page wouldn't open for me today, for some reason.


  • kbl
    kbl Member Posts: 3,016
    edited December 2021

    pjb61, so sorry you have to join the Stage IV club. As you say, there are so many wonderful people in this group. Hugs

  • MickiC
    MickiC Member Posts: 1
    edited December 2021

    Hello there. After going it alone for years, I've decided to check in with others that have MBC.

    2007- Stage IIIB

    2018- Mets to Bone Marrow

    2020- Mets to Bones; Hip, Femur, Pelvic and Spine

  • liv120
    liv120 Member Posts: 2
    edited January 2022

    Hi! 40 year old. Diagnosed September 2021 De-novo bone mets to spine (multiple) and iliac bone

  • kbl
    kbl Member Posts: 3,016
    edited January 2022

    Hi, Liv120. I’m so sorry you’re here. Please hop over to the thread I started for those diagnosed de novo. Here is the link.

    https://community.breastcancer.org/forum/8/topics/876918?page=42#idx_1238

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