Shadow in chest is recurrence
Comments
-
Apigenin
http://static.springer.com/sgw/documents/1345443/a...
Hopefully one can open link
If you're time short scroll down to Breast cancer segment - isn't it amazing that a substance found in chamomile tea, parsley and celery plays with the CDK2/4 and 6 ....
(())
😊🌷
0 -
Hi all! All clear on my scan results.
Liz that is good news!
0 -
great news DiV!!!!
😊🌷
Hugs to all
0 -
Hi Everyone,
I've been a bit quiet lately - lots going on with work. Liz, I'm so happy to hear about your results and you too DiV although I was saddened to hear of your loss. I'm so sorry.
Things are going well with me. I have been having trouble with some ongoing pain which I am attributing to the adhesions in my pleural cavity from the draining. It's been pretty intense and persistent but my GP has me on a combo of Aleve (naproxen) and Tramacet. I'm using them judiciously but it has been keeping the pain more or less under control.
MO had me undergo an ultrasound about three weeks ago which came back clear. He reiterated today that if the ultrasound was clear he wanted a CT scan so that's next. I expect to have it in a week or so but don't expect it to show anything. Amazing how we go from one symptom to another, often with little connection to the actual cancer. But the really good news is my shortness of breath is completely gone! No coughing, no wheezing when I go up a hill. I'm like my old self with a military gate to my walking. It feels wonderful.
Hope you all have a lovely weekend. Take care. Pat
0 -
Pat
Good to know you are feeling better.
I am assuming your MO has you on antihormonals only at this stage? Ibrance stopped...I really like your MO - gutsy and clever to give you a chance to recover.
School holidays here - a week at the snow, splashed on some private ski lessons (I will never finish paying off my mortgage...) - which meant lots of exploring outside usual slopes. Worked today, but will take Monday off.
Hugs to all - wishing you are all very very kind to yourselves this w/end!!
Yes Rosellas 😊🌷
And gum trees
0 -
Pat, glad to hear your sob is gone! It is such a bummer. I'll bet Sadie is glad too.
0 -
Sadie is happy my SOB is behind me, particularly after dinner when she thinks I should chase after her and the ball. It was a tad challenging for awhile but I hated the sad look when I couldn't really play with her.
Yes Ioana, my MO is pretty great. I am only on Anastrozole at this point - we stopped the Ibrance several weeks ago when my hemoglobin became ridiculously low. I find it fascinating how long it is taking to recover. After this lengthy break my hemoglobin is still just over 100.
I'm thinking of starting a betting pool on the date for my CT scan though. I plan to take next Friday off to lengthen my Thanksgiving weekend break but now my MO has ordered a CT scan. What are the odds that they will want me to have the scan next Friday? This year, every time I have taken vacation days I have spent part of that time at the hospital with tests. In July it was a CT that they were trying to wedge in between scheduled patients (which required me to be there for hours waiting) and in September it was a bone scan. Sigh.... But I do appreciate his vigilance (and actually thought it was a bit funny that I was painting this rosy picture in my response to his email and he gently reminded my of "the plan" which did not include simply ignoring the problem)
I hope you enjoy the time off Ioana. I'm just trying to wrap my head around the thought of ski lessons in Australia. 😉
Pat
0 -
Pat,
I am so pleased that your SOB has gone- really pleased for you as this must have been horrible.
I am enjoying a quiet weekend.
Beautiful pics Ioana. Your skiing lessons sound fun.
Love to you all.
L x
0 -
Hi all! Everyone has such great news the past few days! We all need to have good news while fighting this disease.
Hope everyone is enjoying their weekend.
0 -
Thoughts and prayers for the familiesand friends of those lost and wounded in LA.
0 -
Liz,
How are you doing??
Any time for winter walks??
Pat - with you to that next scan, good to hear you are walking well again.
I love mountains so for me it was a great break
(()) 😊🌷To all
0 -
Hi all,
Terrible news from Las Vegas. I feel so much sadness over this awful shooting.
Ioana- walked for 45 minutes at a fast pace ( after my busiest day too)
Lessons going well and I leave at 4pm. The lady who I share classes with has been off so far this week so so have also had her students. Hope she returns tomorrow!
Going to walk/ run every other evening. I am very stiff from the Femara but what can I do?? Many have the same SE.
L x 🌷🌷🌷🌷
0 -
Well done Liz. Best way to combat the aches from AI's is to exercise it off. You'll start to see a difference I'm sure.
0 -
We love you Liz! Virtual walking with you, stiff legged or not. Your posts make me smile.
Hello Ioana - had a lovely glass of New Zealand Savignon blanc with tonight's Korean ribs from a lovely restaurant near my home. Today was my nephew's first day of preschool - I'm paying for Montessori while my brother is looking for a nearby medical job. Baby Dana is half Thai. Toasting you, Pat and Liz, Cive and Di! I start round #7 of chemo next Tuesday. Liz are you closer to London or Liverpool to meet me in early
June in the UK? I booked my cruise.
xx
Claire
0 -
Claire - thank you for posting - looking happy with Dana, it really shows and lovely to see 😊Raising a merlot back at you - it is also NZ and organic (yep, I have sourced some organically produced wine🙄).
Liz you are walking more then me - I can master about 20-30 minutes in the evenings.... some nights I skip the threadmill and just do a few weights and my yoga poses. Brilliant!!
Pat - how are you - when is that scan due?
I am following Z in Japan - generously sharing - thank you Z.
(Moving away from the nitty gritty of NKC immunotherapy/ fighterm posts on inspire ( worth logging in to have a pick) and Dr Terunuma - Z will elaborate - I wonder whether the initial connection is Grace Gawler - she works out of Gold Coast but seems to be of ? Scottish descent. Her exhusband is a Vet called Ian Gawler, battled osteosarcoma, survived, he does cancer counselling/meditation retreats in Victoria - he is mentioned "Gawler effect" in Anticancer:A new way of life by David Servan Schreiber - I liked the book - the Gawler effect amounts to keeping positive things in your life, but I feel it is deeper then that)
(()) to all,
😊🌷🐣
0 -
Hi All,
No date yet for my scan but I don’t think it will show much. This annoying pain has not gone away but I am, more or less, managing it. I really don’t think it is related to the cancer but rather the adhesions in my chest cavity, which are extensive.
I also feel pretty positive that there will be no signs of progression. I had to laugh at the bone scan report which essentially said, all previous lesions identified in the January bone scan have disappeared but.... the last CT scan showed significant progression. ??? Not clear on the advantages of the different modalities but really? Shouldn’t we compare a bone scan with a bone scan? As you can tell, not exactly panicking.
Tonight’s menu includesa nice British Columbia red blend. Good way to unwind from another crazy day at the office. I’m off on Friday and Monday so looking forward to a short break. Oh, admire your dedication Ioana. I walk a lot (Sadie insists) but beyond that, exercise is pretty limited.
Take care all. Pat
0 -
Gosh - the weights I bought for $29 online - there is a pair (among the three set) of 1.5kg and I just do biceps, triceps, and some shoulder lifts - takes 10 minutes. The Yoga poses are from Z's post on her fitness thread - I do about three or four standing and about the same lying down - another 10 minutes.
The threadmill is because I can not leave my 7 year to go for a proper walk/run....🐣
It's good to hear you sound solid for lack of a better word 🌷
Yes scans are a pain to interpret - for all, it's not so much that they don't want to ...is that you can only report what the scan shows or doesn't show - and some patterns are hard to read - mammograms in dense breast being one of them - you can't really comment on what is truly going on, as a radiologist - none of them see the patient unless it's a biopsy.And if you see something you have to report it even if you believe it has no clinical consequence - follow up scans to determine is the terminology most used........
0 -
Hi everyone,
Just as I am starting to work and exercise, a heavy cold has landed and I am at home.
Feeling a bit low despite my best efforts guys. The co- worker, Tracey who is 'assisting' me in my phased return has turned out to be a thorn in my side; controlling and quite calculated. I have overheard her undermining me to students. We have a meeting every Wed aft and yesterday's became her platform for teaching me how to deliver a technique to a Year 11 class. Anyway I am beginning to take back ownership of my classes now, which leaves her on general cover. She is contracted to stay until Christmas.
Now to some really good news: the brother in Wales, who gets married in January, called me last night. His fiancé, Clare is pregnant and so so am going to be an auntie. Thrilled to bits!!!!!
The baby is due on Monday 20th May and I am hoping will be on time. I have plans to meet a certain LA lady in early June!!!! Claire- will PM you.
Pat, your scan result is really positive and it seems to me that you are doing very well. As we know a positive attitude does help; something I regularly struggle with.
Life here moves on at a pace- the leaves are turning and Autumn is well and truly upon us. I will be crunching through the leaves as soon as this cold goes.
I hope you are all ok. My brain is a little befuddled today so forgive me if I have missed anyone out...
Going to grab some soup and rest up.
Liz x
0 -
hi liz great to hear that you have got your teacher mojo back ... take care to always record such interactions ..super congrats on family addition xo B
0 -
Hi Bright
Good advice about recording incidents. I do feel vulnerable at times.
L
0 -
Liz,
Great to hear from you - congratulations - love births/ love babies!! 🌷🌷🌷
I think you make an infinetely patient, clever and sassy teacher.
Be on guard but YOU soooohHAVE IT over this Tracey.
Just give her a look and know there is a crazy Russian in Australia who thinks she is toast. And Please!!! no mercy, there is no excuse for that behaviour - you are doing your students a favour showing how to bid your time and hold your post with dignity.
When are you seeing Dr P again?
My onc app is the 30th ...
0 -
Hl Ioana,
My crazy Russian friend....
Ha! Your post made me smile. Today is my second day off with another bout of sinusitis. I feel truly terrible and at this point that woman is way down on my give a damn barometer!!
Treatment is now 6 days away so concerned I will be well enough. I have put myself on Amoxicillin because of last time when it was so bad I thought I had brain mets. This time the pain is all over my nose but as yet my head is ok.
Meeting with Dr P over half term. Didn't want that date and tried to change it but no other slots.
You will be apprehension about the 30th I'm thinking? But you are going to be fine
0 -
Hi Liz,
Sorry you are having trouble with your sinusitis. Hope you can get past this in time for the next treatment. And I agree with your crazy Russian friend - that woman is toast if she continues to behave badly. You have a posse willing to come and stomp on her if she steps out of line. I am constantly amazed by how willingly women will stab each other in the back in an attempt to move up professionally. Sad really... we all know that in the grand scheme of things it means so little.
Scan results I mentioned are a bit dated but I now have a date for another CT of my chest and abdomen - next Thursday midday. Not the best timing work wise but I will fit it in of course. I’ll be interested to see how much fluid is left. I suspect, judging by how great I feel, that it is now minimal.
Played golf today for the first time since July. Just nine holes at an executive par 3 but happy to get out. Bit painful unfortunately. There were a couple of holes when the issues with my abdominal muscles (?) caused some problems. Not sure if it was a poor stroke that made me hurt or just the swing that hurt causing a badstroke. Regardless, I refuse to give up that easily so intend to try again on Sunday using a cart so I am not standing asmuch. In case you hadn’t noticed, I am seriously stubborn if nothing else.
Thanksgiving weekend here in Canada and I feel there is much to be thankful for. Hope you are all well and enjoy a lovely fall (or spring in the case of Ioana) weekend.
Pat
0 -
hi Liz,
Is your sinusitis settling on Amoxil or do you needsomething with a broader spectrum??
Unlikely to be delayed unless you have systemic symptoms...fever etc.
The answer to your question is Yes - I abhor going to the doctor - many reasons for that in general, and plenty for oncology specifically. I am not planned to be scanned until early next year - also not sure my onc is crazy about scans for follow up - they are often tit bits that show that no one knows what to make of...but I am sensing he is going outside his gentle supercool self - because I work in the area. I have tried to not ask or push and let him lead, and for most part I have held my tongue. I like him, who knows in time lightening might strike 😱 I will come to respect him.
Pat it is good to see you on a golf course. Please keep up posted on the scans.
My take on it is that what showed up on prev CT was quiet or healing - hence the sclerosis - and bone scans won't pick up that stuff, unless the cells are rapidly dividing - which yours, unless it does a major route change, don't seem to be given the time lag to recurrence.
I spotted Z taking about local hyperthermia - just waiting for someone to ask her how do they do it ? I have always wondered why it is not used more often.
Hugs to all,
😊🌷
0 -
Pat,
From the Ibrance thread - often been creative with my blood slips - I hate asking, and then ending up in a semi apologetic stance because you see I have cancer and wouldn't it be good to know...the path nurse believes me when I say we discussed it, he meant to put that down, would you mind??
And even more sad - as part of the Pallas trial I was having this "onc 20" blood test - I asked what it was? The answer is all cancer patients have it, pink tube. Good so what is it? The trial coordinator for Pfizer in Brisbane could not list them.
Should I have told her?Did she care to remember? Am I being a little tough?? 😊
0 -
Hi Ioana,
Interesting comment about the bone scan. I was unclear as to why both tests are needed and didn't realize the bone scan picked up rapidly dividing deposits. That makes sense as the report noted that ares from the first scan were gone (I think likely due to healing - I do feel I am responding to the Anastrozole). Of course, the report also noted that a bone scan significantly underestimates the burden of my disease based on the CT scan. But since the CT scan can't tell the difference between healing and new sclerotic lesions....
I’ afraid you lost me on the Pallas trial. Not familiar with the onc 20 blood test. Could be different terminology here.
Unfortunately, yesterday the pain was really humming. No golf today but will try nine holes with a cart tomorrow.
Pat
0 -
Yay Pat! Getting out golfing at least, bet you Sadie would love to go. I think the tightness I feel in my ribs would probably affect my swing, until I got used to it anyway, but I haven't been in years. Glad to hear your feeling better, I'll be interested in your scans next week. I have no MO, scans etc. other than faslodex shots until late December, TMs willing. Wishing you all the same.
0 -
Oh Pat - I used to be a keen golfer. Had to give it up after BC, since onc said not to be swinging too hard with my spine. But I love my Callaway clubs which are still in my coat closet. I wink at them from time to time. Please play 9 holes again soon, the fresh air will be good for your lungs and use a cart to save energy. The 19th hole could include a nice glass of something! Ibrance cleared up my pleural issues after round 12 - I hope the same for you. Liz - don't let that witchy TA get the better of you, make sure to write her up or something to that effect, so she stops undermining you. It's your classroom, so glad you are back at work. I'm still working from home, but am planning an office visit on 10/30 and hosting a panel on 11/3. I get a 2 week reprieve from IV chemo for scans - so seeing clients is good therapy. And the event is near the beach in Santa Monica. Fresh air and good food. Last night my sis cooked chinese chicken with a glass of Santa Margherita pinot grigio. Toasting all you ladies and Z who is still in Japan.
0 -
Hi Claire.
I have been hanging on to as much of my life as possible but worry that golf may not be in the cards in the future. I have played so little this year between the shortness of breath and infection. I was never very good but now...oy! And these stupid adhesions are now seriously cramping my style! But, I’ll keep trying for now. Oh, I don’t need an excuse like the 19th hole for a glass of something. 😉🍷 That I am NOT giving up.
0 -
Just catching up on the posts. Just the tonic I needed. Claire- love the "witchy TA" comment and Pat you are right to spot how some women will screw you over, even with cancer!
So grateful for the support you guys give me. Keeping this short tonight. I have started to feel better after bad cold and sinuses. Perhaps the amoxicillin has worked.
Love you all xxx
L
0
