Starting Chemo in July 2017
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LOL Leatherette ... it figures, eh? I'm bald as can be there ... just weird to me.
This weekend was good -- lots of episodes of tingling hands/feet (nothing lasted long), some headache "pangs" (nothing persistent) and some weird body aches. And I'm tired every day between 3 and 4. Here's hoping it stays like this. I can't seem to find info on whether these type of SEs are cumulative, or if it's just the fatigue that is. Ah well. Wait and see.
Hope everyone has a good week ....
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Doing pretty well. Some fatigue, but was able to go to a friends birthday party yesterday, which was awesome! Now I'm just trying to keep small meals and water going and counting down the days to my last infusion, which is this Thursday!
Now I'm starting to prepare for radiation, set-up will be next Friday and radiation will start the first week of October.
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Friends, last time I logged in, it was pagr 26! You guys are sure busy!
Anyways, i am done with 9 weeks of TC.
And now my problem - was having no numbness or tingling so far, but since today morning I have started feeling something strange in my toes. No pain, or needles or anything, but just a bit odd..kind of heavy feeling and maybe numbness. I am on 3rd day of last cycle, so weakness and aching legs is also a bonus.
What is the solution/workaround for growing Neuropathy?! Any tips and tricks? I do try holding ice packs during infusion to avoid the same to my hands, but nothing for my feet. I am just trying to keep the feet moisturised.
Should I ask the doc to reduce dosage next cycle? Any tips? Anyone taking Vit E supplements?
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morning alll, i am determined to go to,the gym for a bit this morning.
Even if the only excercises i do are ones involving my jaw! Next taxol is not till friday.m
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For taxol fatigue is so common, I can sleep and nap so easily now.
Theantz- you should call you MO for Neauropathy, I am taking B6 and 12, I only did one taxol so I'm still learning what would be the best way to avoid neauropathy.
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theantz, congrats on minimal SE nine weeks in! For neuropathy, I'm using L-glutamine powder (1 tablespoon 3x day) and get weekly hand/foot massages. I have some light tingling, but I'm only one week in.
Proudtospin: hope you got to the gym
I've been walking every morning (30 minutes). Hoping to bump up my weekend walks a bit. Did 3 miles each last Saturday and Sunday... shooting for 4 this week. I'm registered and traveling to San Diego in November for the 3-Day for the Cure. I know I can't walk all 60 miles, but I'd love to be able to go into it knowing I could walk 10 each day (vs 20). 0 -
JenRuns- 👍👍🏃♀️🏃♀️🏃♀️ Good for you. Keep it up!!! Question about the glutamine do you take that daily?? Or just few days?
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jens, sounds like you have a good goal
Well made it to the gym and did just some stationary bike plus stretching,
Taxal fatigue, yeap i sure have it and not sure too much more
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I use the L-Glutamine powder 3x a day, every day. I throw a tablespoon in applesauce in the morning and in a flavored water bottle for the afternoon. Evening is either more applesauce, a smoothie or a flavored water. It doesn't taste like anything, but I just felt like I could sense it in plain water. I will say it's not cheap -- I got the jug from my naturopath and it'll only last me about 10 days ($40 I think?). I'm too nervous to try a different brand (they sell it all over the place - boydbuilders use it), so I'll suck it up and pay.
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I don't think I have neuropathy, but my hands and feet are often freezing! I was always a warm hands kind of person, comfortable when others said it was cold. I have lost 25 pounds since dx....is this a weight thing, because my anecdotal data from life supports thinking that thin people usually get cold easily.
Anyway, glad I could give you a laugh, Teese and Jenruns, and Teese paid me back tenfold with the phrase, "....smiling over your pubes."
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Leatherette - since I started chemo I always afraid of cold now. I kind of worry how I would act during winter. I still have to go through chemo in November. So you lost that much weight so far I lost about 6 lbs and I don't have good appetite.
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ugh. I've gained what you gals lost ........
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JenRuns, didn't you run every day before BC took over? May impact weight gain, I don't know. I can assure you, I was not running at all before dx.
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I was running regularly ... now I walk, but it's not the same at all. I am eating awfully though, which I recognize. Just don't always have the energy to make better choices. *sigh
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JenRuns - you must have appetites everyday can you share with us how you able to eat daily? i love to have my appetite back. I only walk 30 minutes when I have energy will love to do more walking.
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Remember how I was saying I was cold earlier? Well, it was chills. I checked my temp earlier and it was fine, but now it is 101. So off to Urgent Care I go. Ugh.
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leatherette- take your Tylenol! Hugs and prayers
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sisters,
You ladies made me laugh about pubic hair. Yes mine came back. 13 or 14 wks PFC. I am dearly hoping however, I don't ever have to shave my right underarm where it has been fried like crispy chicken thighs during radiation. No, It looks I fared well. No peel no blister just general ickiness all over. 5 days post rad completion.
Mimi
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Oh no Leatherette!!!
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time for home made chicken soup, or chinese soup
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Leatherette- how are you doing? Hope your fever went down!
Reba - I haven't have fried chickens for long time, would love to have some after chemo!! 😂😂😂
Glad we got some humors here .... 😂😂
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oh no, leatherette .... hope you're ok!
Inusion #2 this afternoon (Taxol) followed by high Schiller's open house and junior high band concert. Busy day/night... never really ends
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leatherette- waiting anxiously for update. Prayers and hugs.
Jen-so proud you are going to the 3-Day For The Cure. I remember it was your goal from the beginning. 10 miles would be awesome.
LoJo- just a couple days from putting chemo behind you. What a relief it must be. Don't forget us here, we'd love to know what rads is like, plus how post chemo is going. Another part of this journey done. woot!
Theantz- with 9 cycles done and only now feeling some neuropathy type symptoms I think your fortunate. Absolutely tell MO, send email if not seeing her/him before. There are the B vit and l glutamine. Let us know what your MO says.
Proud-I had the initial energy boost from all the steroids with this first dose of Taxol. I thought maybe when it wears off I'll still be fairly motivated. Nope, frustratingly, I'm feeling more tired, and I also have to force myself to walk and do yoga. I sleep better when I do, so that at least motivates.
Mimi- congrats on finishing rads. I'm glad your underarm is ok for the most part, however a crispy chicken thigh does give me pause. Is that how it feels? You mentioned no peeling or blistering, so I was a little confused.
My weight has stayed stable. Up and then down, but always the same weigh in on infusion day. For those that feel cold, when I loose, I'm cold. I've always been that way. As soon as I stop loosing my temp returns to normal. My hubby is the same way. It's a coldness that is like bone deep. I can put on extra layers to no real affect. It's unpleasant really.
Hoping for a good day for us all. Anxious to hear from leatherette, hugs and prayers
Theresa
Edit to add, Jen, yes, your days are non stop. Hopefully steroids will see you through today
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Hi ladies! Quick question...i am gearing up for my first DD Taxol infusion this week on Thursday. I tolerated AC very well...worst SE was major fatigue on days 3 & 4. Not like "I am tired and need to take a nap" feeling, more like those 2 days I could hardly leave my couch. But then I would snap out of it and be good and only mildly tired until next treatment. Our son has an out of town XC meet this weekend that I plan to attend and really want to. XC meet will be post chemo day 3. I know all of us are different but how bad was fatigue with DD Taxol compared to AC? Everything I have read says it should be better? I can handle tired but praying I won't have be the major fatigue with taxol.
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Runnermum, my guess is you'll be good. I had the same fatigue on 4 ad 5 on AC till I realized I needed to taper my steroids instead of just stopping them. I didn't figure this till the last infusion and no fatigue that time. I did the same with Taxol, I tapered it and no crash. So if you are taking steroids post infusion this may help, but like you said, we're all different.
Overall DD taxol has been easier, the wild card is more the degree of aches and pains. Mine were very manageable this round. Take OTC meds with you (Aleve, Tylenol, Advil) and I was even given a script for Percocet that I didn't have to fill. However it was there if I needed it. If you had surgery and have a couple left take them with you in case sleeping through the pain becomes difficult.
Good luck, to you and your son!
Theresa
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Thank you Theresa! So glad to hear you are tolerating it! I didn't have post steroids with AC. Just the steroids in my pre meds they have me in IV day of infusions. Not sure what I will have with Taxol. Interesting how all our drs do it a little different. I am sure so much depends on patient. It was interesting talking to my chemo nurse last treatment. We were talking about me doing DD Taxol...she mentioned very rarely do they see patients receiving it at my cancer center. She added that my Dr must believe I will handle it alright. I know that was supposed to make me feel good but it kinda made me anxious. LOL! But I am happy to say I half way done!! Have you received 1 or 2 taxol so far?
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I've only had one.
At my facility the majority get the standard schedule. I was given the choice as I live 2 hours away and it's a significant difference between 4 and 12 trips in. It was hard to decide, but my MO said if I don't tolerate it I can just switch to the standard schedule. In 6 days I get #2 which puts me at the halfway point. For Taxol, 75% finished overall. YAY!!!!
Last infusion is 10/23. (34 days and counting)
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teese, that countdown is awesome!!
I'm in the chair getting my pre-meds. They're cutting my Benadryl in half this week (panic!) and will cut the steroid in half next week. Hope that's possible... I didn't realize the steroid dose is double what it was for A/C, and it's every week (vs every other).
Nurse said my hemoglobin was a little lower than usual (10.8), so now I'm looking for iron-rich foods to add to my diet, without worrying about constipation! I figure making sure we have red meat at least once a week (we don't always do that) and maybe adding a lentil/bean salad to lunch ....
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Hi All,
I'm fine-it was basically the same thing that happened last round at the same time. I'm neutropenic and there was no infection to be found, so the theory is that the sore throat is just mucositis. So if this happens again, it will hopefully be during the day when I can talk to oncology staff, because the consulting nurses will always send me to urgent care if my temp is 100.5 or higher. I did call oncology today, and they are not worried.
We just found out today that my mother in law's liver is failing and she probably has less than a week to live. My poor husband is getting a lot thrown at him right now. And I am closer to my mother in law than I am to my own mother, by a long shot. It's not a surprise, and we started the grieving process a while ago, but it is still hard. Dang it!
Thanks for checking in and worrying about me-I need all the support I can get right now. You all rock. And I am so happy to hear that some of us are getting close to done with chemo!
L.
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leatherette- I'm relieved your well!
I'm so sorry about your MIL, having lost my own and my husbands parents I know how difficult this is. Is she nearby at least? My prayers are with your family for strength and comfort. Hugs.
Theresa
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