Starting Chemo in July 2017
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LoJo, I did a five mile walk today, too. I've been laying in bed since we got back, but it was good. I hope I didn't get sunburned.
I didn't know what PFC was either, and kept forgetting to ask-thanks for the definition!
Paulette, I am so glad you went out with a friend! Do that as much as you can. It does lift the spirits!
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Leatherette- I can't let BC takes over my life, I think we suffered so much already. During taxol infusion it finally gives me some normal days so I can have some energy to go out. Will try to enjoy more before the winter comes.
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Right Paulette!
I am having a morning where it is really hard to be around my family's energy-nothing bad, actually all good stuff happening, just finding the noise level and expectations (mom 'looks' fine) overwhelming. About to hide in the shower......
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Happy Sunday !! Life isn't bad on taxol # 3 ...... I hope everyone are having a good weekend
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anyone get what i am assuming is nueropathy in my hands? All day my left hand ha tingling and numbnes, knew i had it in my feet but the hand is new
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proud - I take B6,12 and L- glutamine. However I'm only on taxol #3 maybe too early to tell
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i take b complex vitamins along with a ton of other suppliments, not sure another one wil help
I see my onc next week, for another taxol, #5 i think so guess that will be new complaint
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hey all... busy weekend, sorry for not being here much. Family wedding, kid marching band event...it's nice to be able to do all this stuff again, unlike when I had the A/C! I even got a 3-mile walk in yesterday and 5 today.
Paulette, glad to hear the thyroid is good
Noticed a small black-ish spot on my big toe nail... hoping and praying it doesn't get bigger. I cannot lose a nail.. I've got walking to do! Chugging my L-glutamine water, taking B6 and B12 too. Just don't know what the nail fix is. Started using the OPI nail polish on (instead of color), which I've been using on my fingernails. Hopefully that helps.
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Proud, since my last AC my fingertips of my left hand have had tingling that comes and goes, for me I'm sure it's neuropathy, just watching it and praying it doesn't progress.
Jen, I had 4 dark spots on 4 fingernails show up after third AC, MO said it will grow out and not cause any problems. It is growing out, no pain or lifting.
Leatherette, loved the visual of a rambunctious Sunday morning at your house, brings back memories. Only noise here are my two kitties complaining to go out, I do love these kitties though.
Oh No! Just turned on the news, such horrible news out of Las Vegas, I have no words.
Hugs and prayers
Theresa
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teresa seems my tingling is less this morning so guess it is like you and comes and goes, been sort of massaging my hand, figure it cant hurt
Next chemo is friday, just checked in with a pal about a ride that set now
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Ugh, I feel horrible. Have not been able to get out of bed hardly at all today. Day 5 after fourth infusion. I thought I had this, but apparently it has me..super weak, nauseous. Hope no one else is feeling like this today.
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Bummer Leatherette! I was more tired after chemo #4 than I was after the other 3 combined. Hope you rebound soon
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Leatherette- we are in different chemo I was tired after the 4th AC but I feel better on taxol. I hope you feel better soon.
How's everyone doing? Some of you might finish chemo already and move on the radiation, let us know how are you doing please.
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so sorry you're feeling crummy, Leatherette! It truly sucks dealing with the ups and downs (more downs) of chemo. Hang in there. 💕
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Hi all! I was in the June group but due to two treatment setbacks I am not finished my chemo yet; so figured I'd hang with you guys.
Get taxol #3 on Thursday Dose dense.
looking forward to end of month when i'll be finished! MO says they will pull my PICC line after last dose- hooray!
DD taxol causes fair bit of joint and muscle aches day 3-5 then I'm ok. taking Tylenol 3's for it which makes it tolerable. Then I get constipated so have to take restoralax!
Bld work has been OK. Asked my MO re: DD verses weekly and efficacy. Told her that some on the message boards here have read that weekly is slightly better at killing the beast. She says the research is still inconclusive but could be slightly better! Wasn't told that before I started DD! Anyone know anything about it or some sites I can check out....perhaps I don't want to know as there is nothing I can do now
hope little SE for those of us getting chemo'ed this week!
Teresa
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welcome!! You'll find these ladies to be quite amazing
I'm doing weekly taxol, so can't speak to the DD aspect. I wasn't given a choice either 0 -
Tpralph- don’t even think about the different between DD and weekly now since you almost done with it. I’m on weekly and I still have 9more weeks to go. I hope I can complete all 12 it takes for awhile to complete but overall SE isn’t much, could be it is too early for me.
Hope you have an uneventful infusion on Thursday.
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TPralph, Good luck on Thursday, I'm right behind on Monday. Tomorrow morning you wake up and say to yourself, "2 weeks till I'm done!" Congrats
I think the Taxol fatigue is beginning, had an active morning yesterday and then just completely ran out of steam. I don't usually just veg all afternoon but that's what I ended up doing. So now I plan on getting my stuff done early and going slow for the afternoon. I'm not complaining, I'd rather have this over AC SE any day. Hoping I finish before any real neuropathy begins.
The end is in sight. Woot!
Hugs and prayers
Theresa
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Hi All!
Just popping my head in to say hello and wish everyone well. I just had radiation treatment #3 today. So far, so good. It is so strange to hear the machine, know it's doing something, but feel absolutely nothing!
Also, I'm still feeling the upswing, which is nice! My taste is getting better each day, no real nausea, still a little more tired in the afternoons (need a power nap), but that is getting better each day, as well, so I know it's chemo related, not radiation related. Tomorrow will be two weeks PFC, which is hard to believe!
My nails seem to be growing a little more quickly, and I had to shave my legs last week! I lost pretty much all of my lower eyelashes on each eye, but the uppers, while thinner, are hanging in there. Eyebrows are practically gone, but I see new ones coming in (I also see new eyelashes coming in!).
I've been walking a lot this week. 3-5 miles every day, and it feels good! So, I'm hopeful that radiation will be uneventful, with mostly fatigue and slight skin irritation at the worst. I'm using my lotion religiously (For those who are curious, I chose to use Miaderm, and I really like the way it feels! I put it on right after the appointment and a couple more times throughout the day).
That's all from here. I'll still pop-in over here to see how everyone is doing.
I hope your SE's continue to be bearable. You're almost done and will join me in the radiation forums, soon! :-)
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LoJo by the time I join you in radiation you will be done. I will have 9 more weeks of taxol to do. I screenshot what you have so I can use that cream when I’m at your stage. You gave us something to look forward to. There are hope in the future.
I found Taxol makes my body more tiring Teese, I usually couldn’t take nap, however, with taxol I took nap from time to time. I hope my red blood count is not that low because fatigue could be related to RBC.
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Thought I would post an update on what's happening now that I am 7 weeks after last chemo.
I got my blood work results back today from a 9/20/17 blood draw. White blood counts are back to normal, so are platelets numbers. Red blood count is still low but is SLOWLY increasing.
My hair is growing back on my head. Started out looking like white peach fuzz but started to turn dark brown and not fuzzy. It isn't very long yet but I now have color on my scalp instead of flesh color. I can now see that once again in the future I will be able to go outside without a hat!! And can tell you guys that seeing hair really makes me feel that life can return to a more normal feel.
My eyebrow hairs are still gone/missing. BUT my eyelashes are growing back. It's funny how they grow back. Both uppers and lowers are all growing back at once. There are lashes all across my lids but they are only about 1/4 inch long at this point. I started that I could only see them in a 5X magnifying mirror but now I can see them in a normal mirror.
Still on hair - the stupid handful of chin hairs that used to like to grow on chin have also returned. I think they grew back before eyelashes or hair head. Figures, right!
Other than still having sore nail beds, most of my other chemo SE are gone. The downside of not getting weekly steroids is that my arthritis pains are slowly returning. Sigh. I did enjoy the break from arthritis pains. Even taste buds gave returned. And I can drink ice water without a connection to chemo!!
I am now almost a month out from surgery, too and really am starting to feel more like I felt prior to dx. Rads will be starting soon so I know there will be more SE to learn to deal with so the journey isn't over but there does seem to be life after chemo.
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Oh my gosh, you ladies just lifted my spirits. Just loving all the PFC updates and info. I haven't been this excited in weeks and I know we are all just longing to be done.
Theresa
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Omg..... DodgersGirl.... I still remember how we talked about the SE, now you are on your way to be normal again! 🙌🙌🙌 I’m sooo looking forward for the days I can feel like a normal person again!
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more good news ... this morning I see eyebrows growing back !! Eyelashes are longer and brows are starting. What a blessing it will be to have hair, brows, and eyelashes again!
Oh, and mouth sores went away within a week of last Taxol.... which I really was glad to be rid of.
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DodgersGirl- I’m so envy now ..... I really miss my eyebrows!
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Thanks for popping in, LoJo and Dodgers Girl!! It's great to hear you're adjusting to post-chemo life well
can't wait to be there too. 8 weeks of Taxol left for me, then on to radiation.Made the decision today that we're going to cancel our big trip to Punta Cana. We had booked with five other couples to go the first week of February. I'll be finishing rads that week (presuming no delays) and it's just too uncertain for us. Spending >$5k on a trip I might not be able to fully enjoy (i'm a "sit by the pool / in the sun and drink all day" kinda gal) just isn't worth it. We may look at a trip to Key West in March/April, when I'm more "normal." *sigh* This is the *worst* part of the whole cancer diagnosis (other than the fear of dying, of course). Missing out on the things that were planned before diagnosis, or missing out on the things that I would normally be doing but can't. I hate it.
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Jen, i so understand the issue of missing things previously planned but not comfi doing now with chemo. I had saved for travel plans in retirement but so far health issues keep travel only in the distant future. But confident the future will be better
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Jen - you and I will be on the similar schedule on taxol. I know how you feel about holding off travel because I did that also. I don't want to make any plans until I see how my health returns back to normal.
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JenRuns- sorry you will miss your trip in February. Hoping the next vacation you do take will be twice as sweet.... and maybe twice as long??
When I was first dx'd, DH and I had hoped to take a trip to the ocean prior to the roller coaster cancer ride but that didn't happen. So we decided to take a short "long weekend" trip after chemo but before surgery just as a mental break from cancer. Instead hubby suffered a heart attack and hadopen heart surgery. So at this point we are hoping for a trip to the ocean next year plus a trip to Food and Wine at Disneyworld in the fall..... after rads and hysterectomy (Jan/Feb 2018)
Hoping we all have a better 2018!
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I'm currently sitting in the chair doing my last chemo cycle. YAY! But I'm not looking forward to the SE I'll be having in the next week. This is #4 for me, and I've been seeing that the SEs for #4 are rough. But I'll be glad to be done with this! I haven't gotten in touch with my RO yet, so I guess that will be next. Anyway, looks like I'm just about done here, so I'll catch up with you all in a bit.
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