My Husband, My Life, My Love, My Family, My Cancer
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no pink~ welcome to our second home. Good advice for the popsicles, I have issues eating as well. My mouth gets real sore on Ibrance. Like eating hot hot pizza! And burning your mouth with the cheese Ouchie! I’ll have to get somE. Nice to see you here.
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Mel,
I think this was posted on the Ibrance thread, but if your mouth is bothering you, I have tried two different things rather than the prescription mouthwash -- 1) rinsing out after brushing just as a matter of course with salt water (or using an OTC product for that); 2) Colgate Peroxyl or the CVS brand of the same thing with peroxide in it really tamps down any mouth sores, or, if you get sore gums, etc., like me, it works on that too.
Feel better soon. I had a nasty something a little over a week ago and my nose is still running a lot, so I can understand how you feel!!!
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BevJen~Hi there darlin! Thanks for any suggestion. It makes eating an issue. Do you experience lack of appetite as well while taking Ibrance. I’m starting to think it’s accumulative. Don’t get me wrong. I am not in any way.complaining. About Ibrance. I am blessed to be taking it. I just don’t want any of us to have side effects. I know we’ve had enough!! Thanks again for the 💡 ideas!
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I don't know what my problem is. I am having a fit of crying. Started with finding a slightly leaky faucet which I have reported to property management. Should not be such a big deal right? This past weekend also involved fits of crying. Crying last night because DB and family are off to Scotland in the summer. DB and SIL are renewing their vows. Nothing wrong with it as only immediate family are invited. Totally understand that but it still makes me sad that I am not included. As I said, this is immediate family which I am not. Parents and kids which is fine. Exercise and sun are not helping. I need this to stop. I don't want to tell others because they will simply tell me to take depression drugs and I don't want those. Not posting to my facebook because I only update there if scans have been done. Just don't know. Guess I have to keep plugging away on my own and hope this subsides soon.
Thanks for listening.
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Mara I think of siblings as immediate family! I'm sorry they didn't include you - that is sad and of course you are having crying jags. But as well, I wonder what you might be processing inside that makes you feel weepy and sad lately. Do you think it's the vow renewal itself, or could it be that not being included triggers some other feelings? I'm happy that you walked and got out for a bit in spite of feeling sad.
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Mara it’s so far in advance I wish they would’ve included you. Micmel sorry about your sinus infection. Traveling home today.
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Mara, I’m sorry about your crying fits and while I don’t have an answer, I can say that when those moments come up for me I give in a watch a sad movie to get it all out, then follow it up with a great comedy to set me straight again.
Micmel, being sick sucks, feel better soon.
Hello to all. I’m still having swallowing and voice trouble but I found a work around for the frustration. I’m drinking the nutritional drinks but also chewing some foods (like garlic bread) and spitting it out. This way I get some joy from the flavor and don’t feel like I’m missing out. It works for now.
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Mara, is it possible that they did not want you to feel *obligated* to do such a big trip? Re your health? It seems like they are really caring family members (from your posts) and would normally be inclusive. I am sorry you are feeling sad. It's totally ok to be sad though. Isn't it metaphorical that a leaky faucet started the tears, by the way! But sometimes we are just at the *limit* and even something very normal can be "too much." I hope you can find your inner balance soon... sometimes a big weep and a hot bath are what is needed. I know you will dust yourself off and feel better soon, you have a very good attitude and good self care, and I am sure your strong, calm core will still be there when the emotions calm down. (((hugs)))
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I did feel better after my walk.I also ate supper and had a long nap on the couch. I do feel better physically and mentally. Mae, I think you are right in the need sometimes to have a big cry.
When it comes to the vow renewal, they are only having themselves and their children. No other family members were invited along, including SILs mother or brothers. I know it is not personal or having to do with my own health. I guess what it is when it comes down to it, is that I have just focused on everything I have lost. DB and SIL and family have also lost my mother, but I lost my confidante since and I have few friends. Makes it harder to process things sometimes. Oh well, tomorrow is another day and hopefully it is better.
Mae, Moomala, Santabarbarian, Tanya, I know we have not met in person but I do consider you my friends and am thankful that I am able to talk to you about things.
Mae, hoping your recovery is progressing further along. Moomala, hope everything is picking up for you. Mel, I am also really sorry about your sinus infection.
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Mara, I think Feb in Canada is enough to make anyone cry. Our yard is glare ice so getting out to do any walking for exercise is just asking for a broken hip or dislocated shoulder. The most fun we've had lately is standing at the kitchen window watching as visitor's vehicles just slither and slide powerlessly around the yard and driveway, "Oh look, I think he's going to be able to make that turn by the hay shed and get up the drive..wait...no..he's sliding downhill. Is he going to miss that fir tree? Yes! He missed it! (BAM!) Ooooh, the birch got him." But when I feel my lowest, my most pathetic, I know I need a jolt of tunes and it pretty much always rockets me out of the blues. Today it was a radio hit, way loud of .... " Might as well go for a soda nobody hurts and nobody cries..." , love me some Kim Mitchell !
Micmel. hope that cold shoves off to someone else's sinuses. Which is likely what it will do. Isn't that what colds do? Spread?Mae. You? Spitting out garlic toast? What has the world come to? I worry that this seems an extreme reaction for too long a time and I feel for you.
Moomala, hope you got that do-nothing nap. We all need those.0 -
Runor, I love that song too! Your are right, music does help. I will be happy when winter is over. If it's icy, I will do cleats. I love your stories too.
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Morning all. I read all your posts, but sometimes I don't know what to say.
Mara- Hope your feeling some better today mentally and emotionally.
I have noticed my moods swing wildly anymore. I have NO hormones circulating with the Lupron and Letrozole use so it cannot be hormonal, right? Maybe it is the stress of having MBC and all the strong meds. Or maybe lack of hormones through chemical menopause. Some times I feel so overwhelmed and I cry over everything. and other times I feel angry with everyone. My emotions are stronger than they used to be and they swing from one to the other quickly. Good grief. Jekyll and Hyde.
Mel- Hope that cold moves on soon.
Mae- Bless you and sorry you have to be fighting this throat thing.
I had a busy day yesterday and was exhausted last night. Today I have several small things to do, but some downtime in between. Just more leisurely feeling day today.
Edited to add- Tomorrow is CT and bone scans. I think all will be ok since the Nov PET showed no uptake---just 3 months ago. But the what ifs are there. What if in the 3 months things changed. What if this is the scan that shows progression. Getting nervous.
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Candy, thank you for asking. Yes I am doing better today. Started walking right away and just not thinking about the stuff that brought me down yesterday. If a thought starts to invade, I start counting up from one. That has kept them away for the most part. Going to the grocery store to get beef patties and taco seasoning and that will be nice to walk there as well. Having a piece of cheesy garlic melt pizza for lunch as well. Should be good. Edited to add, cheesy garlic melt pizza was DELICIOUS!
Mae, I am still hoping your throat settles soon and Mel, hope your sinus infection gets the hell out of your head.
Candy in your pocket for scans. Bringing some of the garlic pizza and nachos done up anyway you want.
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Good luck tomorrow candy - in your pocket with some good pizza!
Sad to read the news about Shannen Doherty becoming a Stage IV sister, although it sounds like she was Stage III her original go round a few years ago (and potentially even IV then). Hopefully since its also been announced shes been Stage IV for a year already, folks will realize that this isn't an immediate death sentence. Some pretty terrible reporting all around though, no wonder no one knows about what really happens at IV!
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Yeah I heard about her Stage IV dx in the news. I agree, hope she gets some quality years out of it. I am sure she is under the best care. Sorry to hear it. Also heard that Rush Limbaugh has Stage IV lung cancer. I don't like his show, but that is a rough dx and empathize due to my mother's experience with it. Sorry for him and his family.
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Mae, glad you can at least taste the food and that was a clever work around for sure. Is it possible to blend it to an almost liquid consistency too? Just wondering if that was an option, or even something you wanted to try out. If not, your option is definitely sound for at least the tasting chewing.
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Mara and Sondra- Yes, to the pizza and nachos !!!!!! I love pizza. Could eat it every day. We have a pizza place - Dominos - here, best pizza ever. They have a sale every so often of a large, 2 topping pizza for $5.99. I live alone, so that large pizza will feed me for 3 meals. Yum and cheap.
Has anyone heard if they are announcing where Shannon's mets are?
Sorry to hear about her and Rush (though I don't particularly like his show). But no one should have to go through Stage 4 cancer.
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We have Dominoes here too. My garlic pizza was 7.99 from a place called MM foodmarkets. Lots of really good food. I enjoy their quesadillas, garlic bread and lasagna the most besides the cheesy garlic pizza which will last quite a few servings. I was not able to cut it evenly so some will be add ons to something else and some will work as meals. Still not a good cook but doing a credible job of keeping my menu interesting.
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in Manhattan a small Dominos pizza is $20,00...enjoy all the pizza you can....
We have not seen those prices since the mid seventies...
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Got my stitches out! No lifting more than 10 lbs is the only limitation remaining but that’s fine for now.
Follow up with MO yesterday was good, Ejection Fraction up to 59% (Herceptin is Cardio toxic but I remain close to normal, yay!) The scope is planned for tomorrow morning, more info then, for now, the neurosurgeon is pleased with my recovery and is confident that all the swallowing issues will resolve soon. CT & Bone scans booked for next week, not sure if I’ll be able to drink the oral contrast though, we’ll see. Looking forward to a good nights sleep and finally washing my hair.
Hi to everyone 👋😃
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illimae, may you continue to recover and to find the results of the various scans most uplifting.
And may you soon start to enjoy all your favorite foods! Big hug!
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Hugs to Mae.
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Mae, Glad things are to looking good from your MO appt.
Candy, In your pocket for your scans tomorrow! I'll bring mini Reese'scups 😊, hope no peanut allergies. Cycle 27 sounds really good, I hope it just keeps on going and going for you!
Mara, You are such a strong person. You have so many strategies to apply when needed. I hope your coming days are brighter, literally and figuratively. 🌻
Moomala, Naps are good, take them when you need them. Are you teaching your piano students again?
Mel, Hope you're improving, maybe a little? Cold with sinus issues are miserable! (Forgive me if I'm wrong on what you're dealing with, I can't go to the previous page and I'm relying on my not so great memory.)
It's sad to hear Shannon D. is stage 4. But also, it's sad that we (most of us) are too. Sondra, you said it well, that most people don't really know much about MBC. She probably worries she won't work again in Hollywood now that her dx is out. (But maybe she doesn't want to.)
I'm still waiting for my start date for rads. I'm ready to get going, but not ready at the same time. I do myself no favors by reading too much about possible lasting complications. But yet, I want to know.
Marianelizabeth, I took a look at your linked page in your signature. Thank you for sharing so much of yourself. I can understand you saying no more chemo after all you've been through. I hope your pain pump (?) is helping and that you're continuing snowshoeing with your family.
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My neighborhood is stuffed with Italians so we have a fabulous local Italian restaurant that of course does pizza. Went to the pub for dinner as we have a friend in town visiting on business and we passed the pizza place and oh man - wish we had gotten pizza instead. I cannot be allowed alone with the whole pie from there - it took me two days to recover after the last time. All pizza must stay in the kitchen now and slices meted out on plates, two at a time.
Mae - that is some injustice that you get Fun Scan Times on top of all the other stuff. Hopefully in compensation by then you can drink and have a nice milkshake after!
Mara - I think you should pat yourself on the back for realizing your reaction to the situation and coming up with ways to cope and address them. People pay a lot of money to learn to do that in therapy, and here you did it on your own. Good job!
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Mae,
Yay!!! I am so, so glad to hear this news. I will not be content, though, until you tell me you have eaten a whole lobster by yourself. Then I’ll know you are 100%. Awesomeness, girl! Hoping for more to come..
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Hi All,
Mara, sounds like you’re picking yourself up, but have to say a good cry from time to time is essential therapy in my book!
Also as the one who lives in Scotland, we do live in a beautiful amazing country, but it rains.....a helluva lot! And we have summer which is usually about 3 days long. The whole country are out in shorts and flip flops when the temp is barely 15C .... we call that Tapps Aff ( tops off) weather!
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Good to hear your news Mae.
Karen, understand Tapps Aff. My daughter lives in Scotland. You don't need. Summer wardrobe, just remove one layer of clothes!
My thoughts with all ladies having hard times, or emotional times. I think it is the norm for us really
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Karen, I do agree about the good cry once in a while. As long it is not stopping me from doing other things, it is fine. If it is over missing my mom from time to time or even missing my younger brother, that is fine. If it becomes ongoing to the point of not functioning, then I have a problem. When it comes to the trip to Scotland, nobody but DB, SIL and children are going. No one else in SIL family is going so I really should not feel left out. After everything they do the rest of the time to show they care, dropping off supper, having me over and all that the whole family did to get my condo sold and packed up for the new place was amazing. Feeling sorry for myself is not actually reasonable as they do nothing but show they care. I just get insecure so I will keep distracting any thoughts about Scotland.
Sondra, and Rosie, thank you for the kind words. I always have been an overthinker. It can be good and bad. It allows you to work out your problems but can also make simple things complicated. In my case lately, it has been of more help and does allow me to work out feelings on my own without telling others my own feelings that are not needed to tell.
FYI, I have jokingly told them that I will hate/like their trip like in the Captain Obvious commercials.
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candy with you and your what if’s tomorrow. Everyone’s bringing 🍕 pizza. Maybe some chocolate 🍫 to add to the Reese’s pieces for dessert.
Mae I’m in your pocket for your scope procedure tomorrow.
Mel I hope you’re feeling less congested
Mara I cry in the shower. It’s easier to hide from my husband. I cry in front of him too but sometimes I need to be sad alone. Your DB and SIL sounds very loving and caring that’s a blessing.
SondraF I love Italian pizza from Italian restaurants. I grew up adjacent to an Italian neighborhood so I hate bad pizza lol.
Marianelizabeth I hope you’re feeling well today.
Waving hello to Runor Sandra Moomala Booboo
Karen Minnie Rosie Frisky BevJen Santabarbarian and anyone else I missed. Good to be home in my own bed.
Tany
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Tanya, being sad alone is easier sometimes for sure. Glad you are home in your own bed. That makes sleeping so much better too. You are also correct, my brother and SIL are caring as is their whole family.
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