After 9 years ... I have been released from Herceptin!
I have not posted in a while but wanted to give an update. My oncologist who has treated me for the last 9 1/2 years abruptly resigned last month. I decided to get another opinion at the University of Michigan and today met with this oncologist. She is the head of clinical research there and I was very impressed. I googled her to death before meeting her and read many of her abstracts. I have been NED now since June 2008 and have been on Herceptin only for about 9 years. It was her opinion I may well fall into the very small percent of curative patients. She said at this point it is very likely that the Herceptin is not really doing anything for me and that there are probably not cancer cells for it to target. No one knows for sure and she cannot tell me with certainty I am cured but she has several other patients like me who after a period of time stopped herceptin and have not had it reoccur in anywhere from 5 to now 15 years later. I have taken the leap and after my next infusion, I am going to stop the Herceptin. I won't say I am cured because I don't believe that but I want to be free from the infusions and the financial burden. Just wanted to share this with you all.