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Any long term survivor stories with ILC

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Comments

  • sanazsabeti65
    sanazsabeti65 Member Posts: 21

    Hi All, I'm also looking for long term survival stories to give me hope. My older sister was diagnosed with ILC in October. After Ultrasound, MRI and MRI guided biopsy they realized that her tumor is multi focal ( about 5.5 cm ) or it could be larger. They are scheduling her for surgery ( double mastectomy) . Her stage at this point is either 2B or 3A depending on lymph nodes involvement. Her MRI didn't show any lymph nodes involvement but they would know that for sure once they do sentinel node biopsy during surgery. Her doctor said they since tumor is fairly large it's high likely that lymph nodes are involved. I'm trying to be there for my sister but I'm also scared so I can use some positive survival stories

  • moderators
    moderators Posts: 8,637

    Hi @sanazsabeti65,

    Sending big hugs to you and your sister. You're sure to find some great hope here. We are sure others will be by soon to weigh in with their encouragement and inspiring stories.

    Let us know if we can help at all!

    —The Mods

  • gracejoy
    gracejoy Member Posts: 26
    edited June 25

    Thank God, I am 10 years out. Stage 3. Still on Letrazole.
    I live a stress free life style, eat healthy and exercise regularly. Regular church goer. Spiritual. I hope this helps someone. Best to you all

  • sanazsabeti65
    sanazsabeti65 Member Posts: 21

    Thank you Gracejoy for sharing your story. I hope you remain cancer free for many more years.

  • moderators
    moderators Posts: 8,637

    @gracejoy, thank you so much for sharing your inspiring story, and congratulations on reaching 10 years out. That's truly wonderful to hear! 😀

    The Mods

  • grandma5789
    grandma5789 Member Posts: 3

    Just had my 10 year anniversary and so hopeful for many more. I see my onc later this month and hope to get off Tamoxifen then.

    (7 years arimidex and 3 Tamoxifen)

    Keep the faith!

  • sanazsabeti65
    sanazsabeti65 Member Posts: 21

    Thanks for sharing. Praying that you see many more anniversaries 🙏 Did you start with arimidex and then switch to Tamoxifin? That's interesting because it's usually the other way around

  • grandma5789
    grandma5789 Member Posts: 3

    yes I started with arimidex 10 years ago as I was post menopausal. Due to my BCI at 5 yrs I continued. 2 years later I asked to come off arimidex due to joint pain. No side effects with Tamoxifen

  • sanazsabeti65
    sanazsabeti65 Member Posts: 21

    Thanks for sharing. I didn't know there is an option to switch to Tamoxifin after AI. Wishing you many more years of health and happiness

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