Starting Chemo in November 2017
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big D kicked in at 1am, figures on my day back to work it starts! Last day of steroid was yesterday so hopefully the tack I am starving all the time goes away. I pigged all weekend and this morning. Luckily it must boost my metabolism a bit because I haven’t gained anything. Living on tums and Imodium today, but I didn’t make it to work just taking it a little easier.
Tima
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Blair...So sorry you felt so bad. But, probably a good idea not to take so many pills on an empty stomach...especially, the Ibuprofen.
Mom4...Oh no! Just glad you are able to take off work. Hope the Imodium works wonders for you.
No plans for me today or tomorrow -- Round 5 of Taxol on Thursday, so I will be resting up for that ordeal. I got through Christmas eve and day without any more than a bit of achiness...lucky me!
Hope
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Good morning Ladies,
Hope everyone had a good Christmas!
Tomorrow is my third chemotherapy and I’m kind of dreading it. Just when you feel mostly normal, it’s time to go back.
Anyway, God bless each one of you
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Thanks Nonahope - I was warned to try and eat before taking that ibuprofen. It was hard to time everything. It was one reason I skipped the ibuprofen last night, because I couldn’t eat anything.
Tina - sorry your system acted up - that happened to me this morning, but I was mostly constipated yesterday, so was glad I moved more today. I tell ya, you never know what our bodies are going to do! Big D and Big C just plain sucks!
LizabethM- I know exactly how you feel about your 3rd treatment. Yesterday I was thinking - dang, to go through this two more times is going to drive me crazy. Not to scare anyone, but my second time seemed to hit me sooner, and I lost my taste in things,but I have no fever so far this time around. I have heard that each treatment can effect you a little different - even less or more. So, hang in there and hope this will be an easy round for you!
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Yesterday, my hair started coming out in big handfuls. Very thin in spots now, and shedding like crazy. Good thing I have a ton of thick hair, so I could get away with it in public, but the shedding is driving me crazy. And super itchy... ready for my shaving appointment on Friday.
Back to the office today, so I decided to wrap it. Not too bad.Hang in there, everybody! A year from now, chemo will be nothing but a dream.
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Good Morning all!
Chemo #2/ Day# 7
Blair - Isn't it strange how different the rounds are? I was so ok the first and the second chemo is kicking my butt. Had "Christmas Pizza" over at my brothers (I'm paying dearly for it) but no one questioned or asked me about my beanie I was wearing. That's my Family. But it was nice.
I'll have to ask my MO about Probiotics again. Just doesn't make since.
It seems like my bristly hair is growing in as fast as its falling out. Ouch. Hurts. Might have to move up the Barber Shop Appointment. my Left hip is killing me. Got to find a new chiro.
And it snowed - so Its pretty out. -4 windchill. Truman is sporting his new winter coat laying outside.
Hey Hope 99 - My paperwork says to call at 101 degrees (38.33 Celsius). I think they want to talk to you to get other symptoms and they will advs what to do from there. Its Important to call. I've had a headache this #2 round. Different symptoms this time around.
Hi Meow- Let us know how your Hair cut appointment goes! I am absolutely obsessed by having the 'baby butt look' . LOoks like your eyebrows are holding up. My eyes have been watering and crusty. I have very thick eyebrows but I see them thinning. Time to get an Eyebrow Stencil Kit. Maybe. Nice Photo! You have such pretty Eyes!
Mom4- Tina - I'm interested to hear how the extra steroids worked for you/ They did nothing for me. Bummer. I had high hopes! I'm on a 'Maralax Diarrhea induced binge" I can't quite figure out how to remain regular. Probably by last round #6 I'll get it figured out.
Going to lay on the couch and binge watch. Then Nephews are flying in and we will have Christmas #2 tomorrow.
Take care all!
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I’m amazed how many of you can work your jobs and socialize with your families. Yesterday it killed me even to text my friends and family that were checking on me. That’s why I couldn’t even post at this site. I was miserable, but today there’s quite a huge difference in the way I feel. So Rljes, yes, I was most surprised how I felt this time. Maybe our third round will be easy - ha - we’ll find out.
Meowmmy65 - you really do have beautiful eyes! If I could look like that - I wouldn’t care what people thought of my bald head or any hat attire. And.... you can work through all of this? Wow! You are trulylucky I think along with Tina and Nonahope not to suffer too much. I know you said once your nose ran a bit, well mine is doing that again, but it does go away in time.
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You ladies are very sweet. Except for my head itching and hurting, right now I feel pretty normal. My nose continues to drip, even with daily Claritin. Second infusion this Thursday, so we will see how it goes. I am very lucky that I have the option of working from home on the days that I am not up to coming in to the office. Thursday, I will work from my chemo bay at the cancer center. Friday, I know I will be super tired, so I will work from home and take nap breaks. Not spending my energy on getting dressed and driving to the office is a huge bonus. Everyone reacts to chemo differently, and I'm learning from the posts of those ahead of me in the process, each infusion can result in completely different side effects. It's important to listen to our bodies and take it easy when we need it.
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Hi All, love reading these posts and hearing how everyone is getting along and how everyone copes with side effects. Reading about other people’s fears makes me feel less alone. I go for chemo #2 tomorrow. I’m off thru 1/2 so hopefully I’ll return to work on schedule. A friend I bumped into at the market told me she is starting her new job at the infusion center where I receive treatment. Maybe that will be a good thing. Time will tell. Still not hearing from many people currently or ever on CMF. cyclophosphamide, methatrexate and fluorouracil. I’m just this past week feeling back to normal and we will see how this round goes. Happy Holidays to everyone. Kate
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rljes- I think stretching the steroids worked to get me through the holidays, but since I had to go back to work today and today was my first day with no steroids i was really exhausted, we will see how tomorrow goes. I work the next 3 in a row then off one and back one and off New Year’s Day. It’s going be a rough one. Didn’t help that I was up at 1 with the big D and my alarm goes off at 315. So the lack of sleep may play into it as well.
Meowmmy- I love the wrap, just beautiful! I haven’t got to creative yet because well as early as I get up I don’t really care. Lol. I throw a cap on and run out the door. Maybe if I go somewhere besides work and chemo I will try to wrap something pretty.
Blair2- sorry you are feeling so poorly, wish everyone would just sail through with no issues or SE’s.
Still tired but made it through the day. Going to force myself to stay up till at least 730 otherwise is will be up before my alarm. Still starving as well, which makes me crazy! Hoping that stops tomorrow too once the steroids are completely gone from my system.
Glad everyone made it through the holidays as best as they could! Hope Santa gave you what you wished for!
Tina
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Question for you ladies who are >1 round out. Are you taking the Claritn, Immodium, Miralax on an "as needed" basis? I'm trying to gauge my SE and respond with an appropriate pill, but I wasn't sure which ones to keep taking. I've had flu-ish symptoms and figured it was bone pain from Neulasta, and have been trying Claritin and naproxen, to some effect. Just wasn't sure how long to keep them up. I'm SO counting on SE easing up at the end of this first week. In the shower today I had one of those panicky "I can't do this 5 more times" moments, but there's no turning back now. If weeks 2 and 3 do get better, then I think I can stay optimistic.
Thanks,
Mindy
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Meow I have to say you do have beautiful eyes and eyebrows. You look very fashionable in your photo. My round 2 went much easier than my round 1. With round 2 I had a lot of fatigue for 24 hours after the Nuelasta (sp?) shot, but in general I didn't have the abdominal cramping I had with round 1. It's day 6 and I feel human again. I do find that I tire more easily though. I guess each round will be different which for me is anxiety provoking. My hair continues to shed relentlessly. What bothers me most about hair loss is the loss of privacy and questions from strangers, acquaintances, neighbors, etc., it generates. I live in a small town so it will be unavoidable.
I hope that those who are feeling the full brunt of side effects feel better soon and that those who are working continue to thrive.
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Couldn't stand it anymore. My husband and daughter got it the dog clippers. So much better! It doesn't hurt or itch anymore.
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diveslikeagirl- I take claritin, Prilosec and lasix regularly. Everything else is as needed. There are so many side effects from meds that I don’t think I would know what Se’s were med related and which were chemo related. I see from everyone’s posts that they all do it in a way that works for them. I had to take compazine twice during round 1 and not at all during round two. Figure compazine causes fatigue and constipation so if I can avoid it I will. I take tums as needed for the heartburn and 2 Imodium only if I have the big D, so far this mornings dose is working. I’m taking the fight the symptoms that show up approach instead of the prevent the symptoms that may never show up anyway approach. If that makes sense. The runny nose, heartburn and swelling last through my whole 3 weeks between cycles which is why I take those three meds regularly.
Meowmmy- love it!! It’s so freeing when you aren’t fighting the hair anymore!! Beautiful!!
Klvans- I had the same issue about the privacy when it came to work. It was easy to hide what I was going through when I had hair. Now that it’s gone, the questions keep coming. I don’t want my patients feeling sorry for me, it’s my job to take care of them and to worry about them. My Tuesday Thursday Saturday patients have seen me all week with no hair so the questions have stopped mostly. Tomorrow is my first day back with my Monday Wednesday Friday patients since I shaved the head, so it’s going to be a little overwhelming with their sympathy, even though they mean well. As for small town, I live in a pretty big area, and I don’t run into people I know. I can imagine how uncomfortable that could be. It’s the fact that people are feeling sorry for you that makes you feel uncomfortable, you aren’t dead you don’t need people to say how sorry they are. I wish people realized that’s it just makes it worse when they do that.
That was my rant of the day....🙄
Tina
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I went to the grocery today and this strange woman walked right up to me and started telling me her life story. What? I kept walking, she followed, then I caught what she had said that her son had the flu and and I turned on a dime and said "get away from me". Could it of been the Beanie hat? Oh My
Meow- Your so funny! I too got out my dog clippers, but I'm going to leave it to the professionals. My hair still hurts especially if the beanie rubs against the pillow case agaist my grain of what hair is left.
Diveslikeagirl - I am trying hard to balance between the Big D and Big C. and I'm loosing. I do take Claritin everyday. (and Ayr Nose Gel) Its seemed to help my runny nose. Not much bone pain. But if I go 2 days without going to the bathroom - I take Maralax - 2 days later I have severe Diarrhea for 48 hours. I don't take Imodium. I would rather have Big D than Big C. Can't seem to find a balance. I take fiber pills, eat Prunes, drink Smooth Moves tea, Colace stool softner, nothing works except Maralax which is so harsh. So Its according to where I need to be, whether I take Maralax. I time it out. And with the Maralax I get severe Cramping. Worse cramping with Seinna) But I get Cramping if I don't go. And I have stomach aches - so I took Pepto Bismol today that helped. Plus the Compozine. (doesn't make me sleepy as does some) (I take Prilosec rx too)
First round I felt good day 1-4, not so good 4-10 and great from 10-18. Had all kinds of energy. This round #2 just the opposite. Feel like crap from day 1 and its day #7. I'm just planning on 'hunkering' down for the next 4 months and sucking it up. I LOVE winter, and I will miss it. I'll feel like a gopher - pop my head up and it will be spring. Though I did take my dog Truman for a walk this afternoon - it was 2 degrees out. He wimped out - I was toasty warm. (he needs boots)Later! rj
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Yes, Tina, you're right, It's the "I feel sorry for you and how serious is your diagnosis," stuff that is so aggravating. Plus, I don't want my breast cancer to define me. A male friend was having a hard time understanding how I felt until I asked him, "How would you feel if you had prostate cancer and everyone automatically knew by looking at you?" Then he got it. So that's my rant, lol.
Despite the current challenges, Tina, I hope your work continues to be a source of satisfaction for you.
Meowmmy you are looking good! I don't think I could pull off a buzz cut as well. Those big pretty eyes are an advantage for sure.
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diveslikeagirl, claritin is required for me. a day before chemo and on the day of chemo. since i’m on taxol already. the others, my MO gave them for post chemo side effects as needed.
Meowmmy, congratulations on the new hairdo. it looks good!
nonahope, good luck on thursday infusion!
tina, hope things pan out when you meet with your MWF patients. i understand managing people’s reactions around us can be difficult. i was at a makeup counter once and there were two teenage girls next to me. one of them put a hat on. the other one said “you look like a cancer patient” and rolled her eyes. and i don’t know but i just felt like i had to do something i looked at them both and said “you’re actually standing next to one” you should have seen the shock on their faces.
rljes, you can do this! riding out the side effects is always rough. i had to lessen my social media visits. sometimes it makes me feel like my life is on hold during treatment while everyone else moves on with theirs.
mindy, i don’t know if this will help... but before chemo started one of my friends said i should write it down so that i will see how far i’ve come. so i wrote down sort of a cancer timeline starting from the first checkup when it wasn’t even cancer at all. and i didn’t truly understand it until i was in the middle of chemo and feeling completely discouraged with how things were going and how my tumor was (barely) reacting. i looked at the timeline and saw exactly how far i’ve come and i thought to myself “i can’t give up now” and i understand it’s rough... but it really is encouraging when there’s something concrete to remind you that you can accomplish great things or a reminder of how strong you are.
I haven’t worked this week. but just lucky enough that my company allows me to work remotely. but oh the cabin fever is terrible when it sets in. being cooped up all the time makes me grumpy.
going in for a blood test today and hoping to get my infusion tomorrow. fingers crossed!
keep being amazing everyone!
-kat
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Hope everyone had a nice Christmas. Christmas day was rough for me. I went to my parents. Even thought I had prepared everything I was taking days in advance, I still got really tired. I couldn't help much in the kitchen. Most of today I felt horrible, especially the brain fog. I guess I overdid it yesterday. Tomorrow I have to get blood counts checked at 8:45 am. Not looking forward to getting up early for the first time in a few days.
Had my 3rd infusion on the 20th with my new PICC line. No flare reaction on the arm this time! Yay! Usually my hands break out in a rash on the Monday following treatment, and they haven't. I've been putting Benadryl cream on them multiple times a day in addition to taking Claritin in the AM and Benadryl pills at night. Or maybe there's no rash this time because the Taxotere killed whatever it had been going after on my hands. My Onc said it goes after sunspots.
My stomach was extremely acidic for over a week after the first 2 treatments. I tried Prevacid and Tagamet, but they didn't help. Onc said take Prilosec. Wow, it has made a huge difference. You take it first thing in the morning and wait at least 30 minutes to eat. I've been having spells of neuropathy in my arms in hands. My Onc recommended B6 capsules. I'm already taking L-Glutimine. Originally I was waking up with arms tingling the first two nights after treatment, but it happened about 2 weeks after my 2nd treatment when I was driving. I think the B6 helped even the first two nights after treatment.
The addition of Sustol on the 2nd treatment gave me such bad constipation, so I was proactive with the Colace for 2 days, and it helped. Last treatment, the diarrhea started on Tuesday, and I haven't had it yet. I get the horrible stomach cramps with the diarrhea. I've been drinking plain Kefir and taking Align probiotic every day. Fingers crossed it doesn't hit tomorrow.
Mom4gma3 – my left ankle swelled about 2 weeks after the 2nd treatment. The steroids or something makes my mastectomy incisions swell, and it feels more swollen and hot on the side they took nodes. I hope that all passes when the chemo is done.
Blair2 - I still have lashes and brows after 3 treatments. Only one more to go. Hoping to keep them. That hair grows slower, and the Taxotere goes after the fastest growing cells. I still have hair around my wrists. I want it to leave and not come back. It's not horrible, but it's always annoyed me. I also still have a lot of my gray hair stubble on my head, and some of it has grown a little. I read sometimes gray does not completely fall out. Of course all my dark has.
My Onco says that Taxotere can cause bone pain. I had horrible bone pain at the base of my spine and into my pelvis with the first treatment. They stretched out my steroids pills for more days, and it helped. I take those extra days of steroids proactively now. But sounds like your pain has continued so long. You may be healing slower due to chemo.
My head got really sensitive again after the 2nd treatment, I guess when the 2nd wave of hair started falling. The stubble itched like crazy when it fell out. I bought a baby brush, and I brush it daily. It helps pull the lose hair out and keep it from itching.
Mom4gma3 – I don't think you should take turmeric supplements during chemo. I've read it can interfere. I stopped taking mine until after treatment. At least ask the doc. It is OK to cook with it because the quantity is so much smaller.
Diveslikeag…- I am taking Claritin every day throughout my entire treatment on orders from the Onc. I am taking Colace on Day 1 and 2 after treatment because I know I will be constipated and Imodium as needed. I take Prilosec for about 10 days after treatment.
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Hello ladies,
Yesterday I had a very bad pain in my upper back. its horrible! Also I think my headache from my hair. I am not sure if the hair make this BAD headache!
I am positive- receptors with one positive nodes checked by biopsy. I am worry now after reading this study that shows the chemo (FEC) its not good with hormone positive !! why my doctors waste my time with chemo and the effective percentage not high enough to pCR my tumor and node?!
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Orangedaisy - thanks for your detailed information. Aren’t you glad you’re almost done! It was interesting to me to read your reactions to drugs as I’m on exact same ones.. My IV in my arm has been fine so far. No bruising at all. They even had done the lab poke in the same vein. I have a prominent vein in my right arm that makes it easy for nurses to draw blood or give whatever there. I think that’s the difference. It sits up prominently even when my arm is relaxed.
Also, and this is sort of a question for all you girls here - why do some of you receive steroids? They have never given me steroids, but I wonder if that’s why I had such awful back pain. I will definitely ask my OM next time. Maybe it has to do with my being a heart patient? I know it’s an anti inflammatory drug, so why not me? Hummmmm. I hope this back pain does not flare up in the next two weeks. It’s much better now, but I can still feel a tinge of pain. This is my last day for ibuprofen doses. If it returns - I’ll be upset.
As far as constipation and diarrhea, I’ve managed not to take any laxative or Imodium this time. I did take a tablespoon of pepto bismo when I had a crampy stomach on Day 3. I have moved much better, but it was sometimes semi diarrhea, or semi constipation as if my body was confused. However, the way I look at it is- just keep moving, I’ll be fine.
Like many of you, my stubble brizzley head is driving me a bit crazy. I don’t care to baby butt it because I’m too ugly to go bald, and a bit of a chicken to be seen as such. Just too old. My chin droops - I call it my squirrel pouch. If I didn’t have that, I’d look much younger, but was born with a very round face. Even Dr. Evil looks better than I. Anyway, I just wear the scarves and hats around the house. I wore one fancy cap to the chiropractor last week, but wigs make me feel more normal when out in public, (helps hide the squirrel pouch), then no one will feel sorry for me. That too would get on my nerves. My friends have been great with me as far as how they approach my condition. I think when I busted my lip, they all had to tell me, don’t go down the stairs, bring your drugs up in a bag, keep your phone by your bed...bla, bla bla. They know I’m very independent and stubborn. However, I haven’t gotten a lot of sympathy - they are there’s when I need them, which is great, I love them all. When you live alone, friends are so valuable and a blessing to have.
I can’t tell if my hair is growing or still falling out. It’s going to be a burger when it starts to grow out again at all different lengths. My brows and lashes are still intact - thank goodness. Also I too have noticed my sunspots are more noticeable on my skin. One magically appeared on my chest that I’m not thrilled about, but I thought how could chemo drugs cause that? On the other hand, my complexion has seemed to improve, which is strange, but my skin overall is bone dry. Trying to moisturize religiously. However, the worst skin effect are my blood thinners - they cause long term bruising and that just sucks.
Well this is Day 6, and I think I finally feel normal again. Just hope my body functions well and food tastes good again.
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Blair2- I know my steroids are for the carboplatin, it can cause inflammation around your heart. Not sure about everyone else. I suppose it depends on the regimen you are on and your MO, I just know I get tons of energy from it and I’m hungry.
Tina
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blair, one of the nurses also told me steroids work in synergy with the anti nausea and anti vomitting meds that they give me. i have yet to remember the exact names of the ones they give me via IV.
) i can try and find out what they are specifically and share them here. Tina, same for me. steroids are massive uppers and it keeps me awake for 29 hours straight sometimes.
Kate/1950, i hope knowing someone/havig a friendat the infusion center helps you.
i talk to the nurses so often they actually are comfortable to make jokes around me now and it makes infusions so much easier for me. passed my blood test. WOOHOO! barely. going in for chemo tomorrow
i have 5 doses left and i really want to maximize it. so i'm trying to do everything i can so that my tumor shrinks as much as possible while i'm on taxol. even if that means eating steamed broccoli and all that every day until the last dose. i must sound sillysort of “looking forward" to it.
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Blair2, they put steroids and anti nausea meds in my IV before they start the chemo infusion. I take steroid pills twice a day for 3 days after treatment, and once a day for two more. . The steroid is one of the nausea prevention drugs and helps with pain. I have a steroid high the first two days after treatment. Tons of energy. Then I crash for 3 or 4 days.
The steroid they give doesn’t have as bad of side effects as prednisone. It is Decadron in the IV and Dexamethasone in pill form, but I think it is the same drug.
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rljes, see if your vet, a groomer, or pet store have Pawz. They are rubber balloon looking things that fit over paws. Our dogs use them and they can go out in our -3 weather no problem! Kate
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our dogs Casper and Snowflake with their Pawz on.0 -
Good morning...
Kate...Wishing you the best with Round 2 today!!
Meowmmy...You're beautiful with and without your scarf!
rljes...Enjoy your 2nd Christmas today...let the festivities continue!! OMG! Some people are just clueless...glad you told that woman to go away!
Mindy...The only thing I take on a regular basis is Dulcolax stool softener. it has kept both D & C at bay. I've had very mild achiness and take Advil for that. I have Claritin, but haven't felt the need to take it yet.
klvans...Great response to your friend. People mean well, but they often just don't get it.
mkn...I'm loving the responses from you gals to those who don't think before they speak! Glad you are good to go with your infusion.
Orangedaisy...Loved reading all your information. It really helps to know what others experience. Thanks for sharing.
Blair...I've never received steroids, other than what is in my chemo cocktail...never in pill form. I wondered the same thing...why others are on them. Glad you're back is feeling much better and sure hope it doesn't return. Did they give you a time limit on the Ibuprofen?
Time for breakfast....this will be another day of rest for me to gear up for Taxol #5 tomorrow.
Hope
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Blair, chemo drugs make your skin more light sensitive, much like retin a does, so it's easier to get sun spots, sun damage etc. I use a sunscreen when I go out.
Kate, I hope round 2 goes smoothly. Mine was easier.
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OH MY GOODNESS! Kate - 1950 - that is so cute! Thank you! I had no idea something like those boots were out there! The windchill is -14 this morning and Truman ran out - did his thing 'prancing' so I will diff go on the hunt for the bubble boots! Fantastic!
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Well thanks girls for all the replies on steroids, sunspots. I guess we are all different in what these doctors give us. I was just curious, and I still wonder about the back pain. Nanohope - , yes, I was told not to take the ibuprofen for more than 5 days. I’m sure that’s to prevent stomach bleeding which would be bad with a heart condition. I’m also suppose to eat before taking it, but Monday night I just didn’t want to eat anything and so I skipped it. My taste of things is still off. Nothing sounds good to eat at all, but I feel normal.
Also, they never gave me an appointment to check my wbc this week. I guess they figure mine should be ok. It was very high the first time, but I was eating better I think.
Casper and Snowflake are just adorable and look spiffy in their little red boots! I love the animal pics. Rljes - if you find boots for Truman, be sure to photograph him. You should do a quick video of him prancing - so funny. Oh how I want a new baby. I’m even thinking about maybe adopting a cat too. I love all thefur babies.
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Hi Everyone,
Day #9/ Chemo #2
If I got a cat (I love cats) I think Truman would eat it.
Was anyone told NOT to go out in public day 7-14? Even though I am taking the Neulasta shot, I was told to wear a mask and gloves if I was to go in public days 7-14. And I hear others who are working and going out. Maybe its because of my other mixed connective tissue disorders that is complicating things. I'm feeling pretty Isolated.
Lets see, Day #9 and I feel like crap. cramping, Horrible left hip Pain, my fingertips are sore and tinglingly and numbish. My eyes are watering and eye lashes are crusty. Have the Big D. I havn't felt well since Day #1 of Chemo #2. And Exhausted.
I thought it was my imagination that my incisions felt hot. Interesting that others too felt this. My gray hair was the first to go in clumps. And since I had my head shaved, (still have bristles) no acne. (Some had said they shaved and got acne on their head)
I've always kept a journal, and when dx, I treated myself with a leather bound 'cancer' journal and now I will need another.
I've added B6 and Magnesium - Dr Oz highly recommended Magnesium - If I took everything he recommended I'd be taking pills all day long and be broke.
L-Glutamine & L-Lysine
and Pepto Bismol is my FriendI tried to follow others who had my treatment, and found that NoBody is the same. Everybody reacts differently to Meds and SE's. That all Doctors have different agendas.
And that is not what I wanted to hear myself say. I was hoping to find a pattern of sorts.
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