2017 Diagnosed-- A Place To Share "Whats Next"

1444547495070

Comments

  • 53nancy
    53nancy Member Posts: 295
    edited May 2019

    moth, thank you. She's gorgeous!

  • Annbee
    Annbee Member Posts: 81
    edited May 2019

    53Nancy- congratulations on the kitty. I am a cat person and mine have been by side through everything. My kids call me the cat lady. Lol. Please share a picture of her.

  • dodgersgirl
    dodgersgirl Member Posts: 1,902
    edited May 2019

    53nancy—- yes, photos!

    Congrats!!



  • legomaster225
    legomaster225 Member Posts: 356
    edited May 2019

    Awesome news on  the negative mammograms pink and sm627!!  Good to get that weight off your mind.  

    I had my biopsy today.  It went pretty well.  The dr. said it was difficult but was able to maneuver through the little amount of tissue above my implant and got a single core sample without hitting the implant.  Hopefully good results will follow in the next couple days.  Definitely brings up some bad memories but it is not as emotional as it was before.  

    Hang in there girls - we got this!!

  • moth
    moth Member Posts: 3,293
    edited May 2019

    sending you good vibes Legomaster. May the pathologist be skilled, wise, fast & give you good news very soon!

  • legomaster225
    legomaster225 Member Posts: 356
    edited May 2019

    Thanks mothHeart

  • scrafgal
    scrafgal Member Posts: 413
    edited May 2019

    Legomaster...good to hear about the biopsy not impacting your implant...hoping for more good news with the results! Keep us posted.

  • legomaster225
    legomaster225 Member Posts: 356
    edited May 2019

    Good news on my biopsy! It is fat necrosis and “reparative tissue changes that show evidence of previous trauma”. I feel like I dodged a bullet this time and feel so relieved. Bruising and swelling from the biopsy are just about gone. I’m glad I had the biopsy instead of waiting. I would have just worried the next six months. Thanks for all your support.Heart

  • scrafgal
    scrafgal Member Posts: 413
    edited May 2019

    great news, Legomaster!! I am so happy to hear this!

  • dodgersgirl
    dodgersgirl Member Posts: 1,902
    edited May 2019

    Legomaster225–. Super happy for your great news!!! Enjoy your weekend!!!

  • moth
    moth Member Posts: 3,293
    edited May 2019

    Happy dance legomaster!!!!!

  • jo6359
    jo6359 Member Posts: 1,993
    edited May 2019

    lego- what a relief for you. It's time to celebrate.

  • runor
    runor Member Posts: 1,615
    edited May 2019

    Legomaster, thank god!

  • 53nancy
    53nancy Member Posts: 295
    edited May 2019

    Legomaster, that is great news! So happy for you! Hugs.

  • legomaster225
    legomaster225 Member Posts: 356
    edited May 2019

    Thanks everyone Hug

  • Vslush
    Vslush Member Posts: 117
    edited June 2019

    Such great news, Legomaster! Have a wonderful weekend ☺️

  • Annbee
    Annbee Member Posts: 81
    edited June 2019

    Legomaster that is awesome news. Have a great weekend.

  • dodgersgirl
    dodgersgirl Member Posts: 1,902
    edited June 2019

    saw my dermatologist last week. Showed the Dr. The spot on my forearm that had been scraped and cauterized twice before in the last 9 months as it seemed to me to still look flaky. Dr. agreed and took another sample for a 3rd biopsy. Got the call yesterday. It’s still skin cancer. Crap. Words no one wants to hear.

    Now it is early skin cancer. Epidermis layers only. It’s been cut out twice now and back again. And, this is my cancer side arm so I worry about lymphedema as the last biopsy resulted in cording.

    With the diagnosis came the new treatment plan. I have 5FU cream (Chemotherapy) to apply twice a day for at least 4 weeks. Hoping this is the treatment that kills that cancer forever!!

    Directions make it sound like the skin will burn and flake off and continue for 1-2 months after treatment ends. Hoping for no other SE. If I am honest with myself, I will admit I am a bit timid at the thought of applying chemo cream directly on a biopsy site that hasn’t fully scabbed over. Will feel better after learning how that process goes tonight.

    In the big picture of it all, this is a little issue. But kinda tired of treatments. Have only been out of the clinical trial for 2 months... back to chemo. Sigh.

    Thanks for listening!!

  • scrafgal
    scrafgal Member Posts: 413
    edited June 2019

    Dodgersgirl

    Sorry to hear this news. It sounds like your staying on top of things paid off with an early stage diagnosis though. Having another cancer is not what any of us want to hear, and I hate that you have to do chemo, but hopeful this won't be as bad as before. Keep us posted on how it goes.


  • Annbee
    Annbee Member Posts: 81
    edited June 2019

    dodgersgirl, I am sorry to hear this news. Hoping the chemo cream knocks it out once and for all. Maybe they will have you start once it scabs over. Please keep us all posted. You are in my prayers. I made my yearly dermatologist appointment three hours ago, almost thought of skipping it this year. Were you on the chemo arm? If it was posted earlier I am sorry I missed it.

  • dodgersgirl
    dodgersgirl Member Posts: 1,902
    edited June 2019

    Annbee, I do not know if I was on the chemo arm BUT the entire time I was taking the daily pill, my fingernails were lifting just like on Taxol. Now they are not. Now my nails look normal and healthy. And, no mouth sores since ending the trial. Makes me feel like I was on the chemo arm. But maybe I was reacting to fillers that were also in my IV chemo in 2017??

    I was supposed to start the 5FU cream this morning but opted to postpone until I could verify from Dr’s office that it was ok to apply to an open wound. I was told that it would be fine. Sigh.

  • runor
    runor Member Posts: 1,615
    edited June 2019

    DodgersGirl, I am sorry for this news. No, it isn't what anyone wants to hear. Everytime I hear of someone getting more bad news after the initial diagnosis, which was bloody bad enough, I wonder how they carry on. Yet we do. Good luck to you with this and good for you for not letting it slide! Hugs.

  • Annbee
    Annbee Member Posts: 81
    edited June 2019

    Dodgergirl it does sound like you were on the chemo arm. I will be keeping you in my prayers. Please keep us posted.

  • moth
    moth Member Posts: 3,293
    edited June 2019

    DodgersGirl - bummed to hear your news. I hope the cream takes care of it quickly.

    you've motivated me to book an appointment to have my GP look at some of my moles

  • legomaster225
    legomaster225 Member Posts: 356
    edited June 2019

    Sorry to hear your news. So frustrating and unfair! I never heard of chemo cream, that sounds pretty interesting. Hope it takes care of it for good! Will they remove more of it after the chemo treatments? I'm not that familiar with skin cancer protocol. We are here for you

  • dodgersgirl
    dodgersgirl Member Posts: 1,902
    edited June 2019

    so today is day 1 of my 4 week treatment. It is so weird when you are applying a cream chemo to yourself. It’s one thing when you sit there and a professional gives you chemo. It’s a different feeling when you do it to yourself.

    The chemo cream is 5% FU cream. 5 FU is/was a breast cancer treatment not all that long ago. I am not sure if it is still used or not here in the states. My SIL was on 5FU back in the early 80s. And it is part of a line of chemo called FEC in breast cancer. It’s also used as tx for other cancers. Ahhhh the stuff we learn as we navigate life.

    Washed off the wound and let air dry for 10 mins (per instructions). Looked at the wound and was happy to see it does look scabbed over. I don’t see a wound opening! Ok, I can do this.

    Took the tube out of the box. Removed the lid and punctured the protective seal. Here we go.

    I squeezed out a small dab. Thinking about “clear margins”, I applied the cream a good inch beyond the wound.

    Next, washed my hands and rinsed well.

    I paused and just looked at my arm. Area was white like happens with some sunscreen lotions. Then I could see it being absorbed into my skin. No pain or burning but it does itch. Have to remind my subconscious self not to scratch!

    Ok. I can do this.

    Thanks for the kind comments. Sure hope this does the trick!! Cancer GO AWAY!!!!

  • scrafgal
    scrafgal Member Posts: 413
    edited June 2019

    yes...go far far away, cancer, and never come back!!

    Wishing you well, DodgersGirl!

  • jo6359
    jo6359 Member Posts: 1,993
    edited June 2019

    dodgersgirl- best luck to you with your treatment. You are so right stop. Once you're diagnosed with cancer a person is constantly navigating New Paths

  • pink_is_my_colour
    pink_is_my_colour Member Posts: 265
    edited June 2019

    Thought I'd stop by today to see what's happening. Was shocked to hear about Dodgersgirl and your recurring skin cancer. Damn that cancer! Everyone I talked to lately seems to either have cancer, had cancer or knows someone who's going through it. And, yes, the things we find out about cancer. I'll light a candle for you.

  • dodgersgirl
    dodgersgirl Member Posts: 1,902
    edited June 2019

    here’s my update: started the chemo cream Wednesday, twice a day. So far it itches but nothing more. Reminds me of radiation where early rads were without incident but more sessions of rads brought side affects. I read on line how others who have had to use this cream on their face said people wouldn’t look at them due to what the cream was doing to their skin. Applying this cream everyday wondering when the fun begins. Not really PTSD but a reminder that it’s chemo and there will be impacts at some point. I am scheduled to see my dermatologist towards the end of July.

    Pink_is_my_colour— thanks for the candle