2017 Diagnosed-- A Place To Share "Whats Next"
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GoKale— so sorry you are going thru this. As Moth suggested, head to the Stage 4 forums, read thru the Bone Mets thread. Many people can remain “bone only mets” for years.
When I was diagnosed Stage 4 back in Dec 2019, my oncologist suggested a trip as I wanted to spend time beach-front. Then onc scheduled me for weeks of baseline scans. Boom, next CoVid grounded us all. So my suggestion is if there is something you want to do, go, visit, think about making it happen sooner rather than later. Me? Hoping to get my trip in once I get my 2 nd CoVid vaccine
Please know you can post your questions and concerns here. Lots of great ladies here to lean on.
Write down your questions for your onc. Hopefully your first treatment will be something like Ibrance or Verzenio and that you will join those who are taking either of these drugs with great success for YEARS.
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GoKale, I'm so sorry to read this news. I'm thinking of you.
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How did you decide if the AI'S (the side effects sound horrendous) are worth the long term pain versus the risk without them? I am 69, and am scared of living with AI pain. I don't know what to do. When I told MO this, I was just told it's my decision. Is there a way the MO can tell how much my risks would go up each year if I chose not to take AI?
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Pqueen, it’s been a few years since I was on an AI, but the pain I recall wasn’t horrific - joint pain similar to arthritis. I’d suggest asking your Dr, you could try them and if you hated them from unbearable pain, stop them. As we age it’s quality of life vs length of life - all personal decisions. Best of luck to you.
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